Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

natural girls

1213214216218219338

Comments

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited October 2010

    Althea, LOVE your creativity!!!! I really like the wording -- it's catchy and gets the point across -- but agree that the design is a teensy bit busy (even though I love the design, actually!! it's just that it's a bit too busy for people to take time to stop and read the entire thing). I'd love to see a "clean" rework of it -- if your creativity hasn't been tapped out completely!

    Now, I'm looking into adding Iodine, probably 50mg.day of Iodoral (but that's 4 pills; does anyone take less ?) and unfortunately my Onc is clueless about anything that even slightly varies from the traditional.

    The ridiculous thing is, iodine WAS a big part of traditional medicine for so long!! Even well into the 20th century, doctors would administer iodine for a host of health problems, even though they didn't fully understand at that time how it worked. It's just outrageous that such a time-honored, PROVEN nutrient ahs now been shut out as though it's a quacky snake-oil treatment. Thankfully, that seems to be changing now that it's being researched and talked about in peer-reviewed journals.

  • hlth4513
    hlth4513 Member Posts: 161
    edited October 2010

    Crunchy-

    AS far as the Iodine - they do have a 50mg Iodoral tablet that you can get. I take 100mg a day of Iodoral - so I was taking eight of the little pills and thought I would like taking just two a day better.I just ordered the bigger tablets and  I have to say - that I do not like the size of the 50mg and I am going to switch back to the 12.5 mg pills - they are very small.

     I do think that the entire protocol including the companion nutrients and unrefined sea salt is critical to removing the halides and unfortunately that ends up adding more pills.

    Your comments about returning to what used to work is so true!!! I think overcoming IOdine deficiency in our bodies and getting that bromide out of our bodies is HUGE!!!

    Beth

  • jsh22
    jsh22 Member Posts: 17
    edited October 2010

    Hi Everyone...decided I would love to join this group because I really think going more"natural" , not only makes you feel better, but it is good for the body and in treating and preventing cancer!  It also helps me to feel like I am doing something proactive to help myself and I don't feel helpless with my own treatment.  I also take iodine now, but I take 3mg pills of prolamine iodine.  I take 2 in a.m., and 2 in afternoon, for a total of 12 mg/day.  I do this under doctor supervision because too much iodine can affect thyroid function.  It has helped me tremendously with leveling out my hormone levels which were all over the place.  When I had my hormone levels tested, the "dangerous" estrogens were way high and the protective estrogen was way low...bad ratio!  Then had my iodine level tested and it was way low.  I went off tamoxifen and started taking iodine and my hormone levels came way down to where they should be.  Still have a couple more tests to do to make sure hormone levels are at correct ratios, along with iodine, but so far, the stuff is working!  If one little pill can make such a difference, why isn't conventional medicine using it more?  I don't get it!  I am finding there is tons of things you can do for yourself to help with treatment and keeping the beast at bay!!!  -Janet

  • samsue
    samsue Member Posts: 599
    edited October 2010

    Does anyone know if you can take iodine and also be taking thyroid meds? I switched from synthroid to Armour just recently. I'm trying to take the more natural approach with that med too. I'm not finding anything on the web concerning this issue.

  • hlth4513
    hlth4513 Member Posts: 161
    edited October 2010

    samsue-

    Yes - I have been taking IOdoral and thyroid meds for several years. As a matter of fact, Dr. Brownstein believes that anyone on thyroid should take iodine.  I always wait at least one hour after taking my thyroid meds before taking any supplements. Dr. Brownstein says that as iodine saturation improves, some people are able to reduce their thyroid dose - but that varies. I am still battling high bromide levels, so that has yet to be the case for me.

    Beth

  • vivre
    vivre Member Posts: 881
    edited October 2010

    Anyone who takes iodine MUST read Dr. Brownsteins book. It will answer all your questions.

    I recently found a fantastic video from a doctors symposium about why we are obese. It makes so much sense. It is all about insulin! Hormones are affected by insulin. This explains why I was able to lose weight for the first time in my life when I got over my sugar addiction and balanced my hormones with nutrition, not pills. I just posted it on my website is anyone is interested. I also have a great ThinkBeyondthePink tshirt design if anyone is interested.

  • samsue
    samsue Member Posts: 599
    edited October 2010

    Thanks hlth4513. I've been taking the thyroid meds because I had one lobe removed. Not sure if the Armour is changing the way I feel yet. Joint and aches from the DIM perhaps?

    I'll check into the Ioderal.

  • Luna5
    Luna5 Member Posts: 532
    edited October 2010

    hlth4513   I had my consult with Dr. Flechas and even though my bromide is sky high, he did not recommend anything but sticking with my 50mg dose to eventually bring that down because my iodine was only a couple of points below acceptable.

    Pleae, tell me what else I should be taking...maybe I already am taking the right things...I am taking so many!!!!  What about sea salt?  What brand?  how much?  how do you take it?

  • Luna5
    Luna5 Member Posts: 532
    edited October 2010

    QUESTION for all you wonderful experts who I trust more than most docs....

    The last two weeks I've noticed my face drying out ...lines....bags big and puffy under eyes again...this had subsided a month ago....is back now....

    Am I suppressing the estrogen too much?  What am I missing?  I take over 30 supplements but i try to eliminate all estrogen foods.

    I do use prog cream and just began estriol and testosterone.

    HELP!  I'm looking older and tireder and dryer and wrinklyer and baggier by the minute!

  • hlth4513
    hlth4513 Member Posts: 161
    edited October 2010

    Luna-

    I just had my consult with Fletchas and he told me to stay at 100mg iodine, but my saturation has been stuck about 75% - and my bromide was 26 and it should be below 10 .I had been using celtic sea salt very liberally on food - but Dr. Fletchas told me I need to take a full teaspoon in 32oz of water every day to address the bromide levels.

    The companion nutrients are selenium, Vitamin C, Magnesium and unrefined sea salt. I also take the ATP co-factors, which are B2/B3 - because I have a problem with the organification of iodine - which Dr. Fletchas said is true with about 80% of BC patients.

     As far as your dry skin - when you lower estradiol - it can have that effect. I use estriol, but only vaginally twice a week - I am seeing my hormone doc next week and I am going to ask her if I can use a bit on my face.

    As far as if you are suppressing it too much - does your hormone doc monitor your hormones, including  metabolites and all 3 estrogens?  Have you had your EQ(Estrogen Quotient checked?). My estradiol is virtually nil - but my estrone and estriol are ideal and since low estradiol is at least anti-BC - I decided that I am not messing with it.

    It's work, isn't it?

    Beth

  • Luna5
    Luna5 Member Posts: 532
    edited October 2010

    My hormone doc gave me the 2:16 test that I need to do soon.  My estradiol is 15 but my estrone is 47.  I don't remember what my estriol is will have to look when I get home.

    Interesting that you are at 75% using 100 mg but I am at 84% using 50 mg but Dr. Flechas did not increase mine to get me to the over 90 number.  My bromide is 67.20 when yours is 26 but he didn't suggest the salt.  He didn't actually suggest anything.  Just that over time the iodine would bring the bromide down ?????

  • Luna5
    Luna5 Member Posts: 532
    edited October 2010

    I'm out of town right now so I have my Bs with me but not the bottle for me to check to see how much B2 and B3 are in them.  How much do you think is ideal?

    I have just recently re-started niacin because I had a bad reaction and need to gradually work my way into it.  I would like to use niacin and not no flush niacin because I was told that niacin will work better on my cholesterol than no flush.  Niacinamide is in my B vitamin.

  • hlth4513
    hlth4513 Member Posts: 161
    edited October 2010

    Luna-

    Not sure about the bromide -was yours tested by FFP labs? It can't hurt you to do the unrefined sea salt. The protocol suggests 1/4 - 1/2 t a day of unrefined salt plus liberal use on food.

     I have been on Iodoral for a couple of years. I started at 25 before I had BC and then up to 50mg and then have been at 100mg since last December per Fletchas advice. Maybe he doesn't advise an increase unless you get "stalled" - was this your first test?

     You can certainly experiment if you want and - you can up the dose and if you start to get detox symptoms - you know you are getting rid of more bromide.The salt will help with detoxing.

     AS far as the B's - I do also take a B-complex in addition to the ATP co-factors. . Each ATPtablet contains 100mg Riboflavin and 500mg Niacin(as inositol hexanicotinate). I take two a day.

    Good luck!

    Beth

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 166
    edited October 2010

    Ladies,

    I felt I must share a funny moment with you. I watched my two friends' faces as they watched me with my vitamin regime. At breakfast, I pulled out my Multi, Calcium Glycinate, Magnesium Glycinate, Zinc, Kelp, Probiotics (2), B-complex sublingual and Vitamin D drops. So I am a vitamin popper! If I miss one day, I really think I feel a difference, especially with the D Drops. 

     I wanted to thank all of you for your profoundly insightful posts, because most of this I've learned through this board, along with some help and guidance of a nutritionist. But mostly, I learn it all here.  Thank you for sharing what you've learned, because it has helped me tremendously.

  • dlb823
    dlb823 Member Posts: 2,701
    edited October 2010

    I am really pleased to hear and read Dr. Susan Love's point of view these days:

    http://www.daytondailynews.com/lifestyle/its-time-to-find-the-cause-says-breast-cancer-guru-972714.html

    I hope her newest message (find the cause and we can do something about prevention) won't end when October is over.  We need her to stay front & center year 'round with this kind of thinking.  

    Did anyone else listen to her on Doctor Radio (XM) on Sunday?  She was so good!    Deanna.

  • dlb823
    dlb823 Member Posts: 2,701
    edited October 2010
  • donnadio
    donnadio Member Posts: 674
    edited October 2010
    samsue...yes.. you can take armour thyroid and iodine.. it is recommended in Brownstein's book and  actually my dose for armour had decreased. Get the  book as it is everything in  understanding thyroid issues and how vital iodine is for you and this endocrine crisis. have not tried theATP factor supplement as this would assist in the detoxing process of bromide and various toxins.
  • jsh22
    jsh22 Member Posts: 17
    edited October 2010

    Can someone explain to me the bromide/BC connection?  Never had my bromide levels checked and wondered if I should for some reason.

  • Luna5
    Luna5 Member Posts: 532
    edited October 2010

    Thanks Beth...yes my test was by FFP

  • hlth4513
    hlth4513 Member Posts: 161
    edited August 2013

    jsh-

    Brownstein's book on Iodine does a great job explaining it - but I will try and give a synopsis.

    Bromide is a halide - just like Iodine. All of the different halides will compete with each other for the receptor sites that are throughout the body. So Bromide can bind to an iodine receptor, in lieu of iodine, - in the thyroid or in the breast, or anywhere else in the body. Bromine is toxic - so it is a double whammy - you get the toxic nature of the bromides and lose the benefits of iodine when this happens.

    Bromine is  a known carcinogen to the breast - which is the opposite of iodine - which is anti-carcinogenic. STudies have shown that bromide levels are significantly higher in breast cancer patients.

    Taking extra iodine will help to replace bromide on some of these receptors and the process of detoxifying is helped greatly by all the companion nutrients in the protocol - like unrefined sea salt, and Vitamin C, etc.

    Edited to add:

    Iodine also helps maintain the correct balance between the 3 estrogens, since it helps the body metabolize the safer form - estriol. There is also some evidence that iodine(Iodoral/Lugol's) has been shown to alter gene expression in estrogen-responsive breast cancer cells. If bromide can be replaced with iodine on these receptors - then it allows iodine to impact hormonal imbalances which might have been implicated in breast cancer.

    Hope this helps!

     Beth

  • jsh22
    jsh22 Member Posts: 17
    edited October 2010

    Thanx Beth...great info!  I knew about the iodine/estrogen relationship, but not about the bromide.  Does  vitamin C help detoxify the bromide?  I take a lot of that!  I know bromide was in a lot of breads, but they have taken it out...what else is bromide in and how do you detoxify your body from it?  What is Brownsteins book called in case I want to get it?  -Janet

  • hlth4513
    hlth4513 Member Posts: 161
    edited October 2010

    jsh-

    Bromide is in a lot of things - including breads, medications, fire-retardant chemicals in carpets, furniture, car interiors, bedding; crops fumigants;Gatorade; Mountain Dew; hot tub and pool chemicals;and more.

     The hard part is that bromide stays in your system long after you stop exposure or ingestion. Eliminating exposure has to be accompanied by the detoxification.

    Brownstein says there are 4 critical elements to detoxifying bromides:

    -Adequate Hydration(clean water that is free of chlorine and flouride);

    -Vitamin C(he suggests 3000-6000mg or to tolerance);

    -Unrefined sea salt(he claims it is impossible to reduce bromides without this and suggests 1-1.5 tsp a day)

    - Iodine/Iodide supplementation

    I STRONGLY suggest reading the book - I have the 4th edition and he may even have a later version. IODINE: WHy you Need It WHY you can't Live Without It. David Brownstein, MD.

    Beth

  • PiscesMoon
    PiscesMoon Member Posts: 17
    edited October 2010

    hello, ladies :-)  i have a couple of questions regarding the thermo imiging.  has anyone had one done?  did your insurance pay for it?  is it FDA approved?  and how could you change your cells from becoming cancerous years before their due date?  or am i reading the above posted article wrong?

    i admit it touched a sore spot with me regarding mammo's being done at age 50 or older (mine was found when i was 43 - and my very first mammo, too, darn it all).

    thanks for responding in advance! :-)

    ~M

  • PiscesMoon
    PiscesMoon Member Posts: 17
    edited October 2010

    :-)

  • althea
    althea Member Posts: 506
    edited October 2010

    jenn, I've been taking Quantum Greens Mix, which has chlorella and other ingredients.  More specifically, it is chlorella with the cell wall broken.  I'm currently drawing a blank on where I heard that it's good for the cell wall to be broken, but the reason for it being a good thing is because we can absorb from the broken cells but not so much from the unbroken ones.  I didn't know about the broken cell wall distinction at the time I ordered the mix.  I got mine from advanced oasis wellness, and I feel confident in their choices of products they sell to be of good quality. 

    jsh, most baked goods have brominated flour.   Pepperidge Farms does not have bromine in any of their breads, and some other brands also do not use it.  For home baking, organic King Arthur flour does not have bromine.  They have a whole wheat white flour, which comes from a white wheat.  Probably most of our exposure is from fire retardents in carpets, mattresses, fabrics, computers, tv's and cell phones.  

    I use himalayan salt and I love it so much I've turned into a bit of a salt snob.  I keep some at my mom's house so I can avoid using morton's if I'm eating over there.   I went out of town last weekend and took some with me.  As it turned out, I didn't need it.  I was helping a dear friend show her artwork at a fair, and our 'neighbors' were a belgium couple selling things that come from southern france, including salt grinders filled with celtic salt.  Talk about serendipity.  I couldn't afford what they were asking, but I figured out the right google words to find them much less expensively.  Look for herb grinder "provence"  I think my daily salt intake is probably between a half teaspoon to a teaspoon, sometimes more depending on what I eat.  I don't drink water with salt unless I have a headache.  

    Also remember that flouride and chlorine are toxic halides that compete for the same receptors as iodine and bromine.  Reverse osmosis is the only filtering system I'm aware of that gets rid of the flouride.  Filters for baths and showers are available and well worth the expense.  They cost about $40 or $50 and last for a year.  

  • jenn1975
    jenn1975 Member Posts: 19
    edited October 2010

    I am getting ready to fill up my hot tub for the winter. I obviously dont want to use chlorine does anyone know of a natural alternative to keep the yuckys out?????

     Jenn

  • DesignerMom
    DesignerMom Member Posts: 730
    edited October 2010

    jenn1975-  I'm no expert about hot tubs, but many years ago, when I had one, they had Ozone devices that sterilized the water.  They used no chemicals.  Maybe google it?

  • althea
    althea Member Posts: 506
    edited October 2010

    http://preventdisease.com/news/10/030910_bromine_toxicity_thyroid.shtml

    This link goes to a good article explaining bromide and the sources of exposure we have in day to day life.  It also suggests ozone for hot tubs.  I also recall reading in the iodine group that iodine can be used for treating hot tubs or swimming pools.  

  • samsue
    samsue Member Posts: 599
    edited October 2010

    Althea, I'm with you on the Himalayan salt. I had a Himalayan salt massage recently and I use it to soak in. I felt so much better after!

    I have a couple of crystals that are large and sometimes I just hold onto them. It's surprising how sometimes my hands get "sweaty". I think the salt is being absorbed thru the skin this way.

  • althea
    althea Member Posts: 506
    edited October 2010

    I almost forgot to post about what I discovered today!  I search every few weeks for a local provider of thermography.  My last mammo was in 08, and I really don't want to go back.  I don't want to be squashed, I don't want to be radiated, and besides, my tumor never showed up on mammo or ultrasound anyway.  Finally, I found some local thermography!  Sort of.  Apparently they can make the equipment mobile, and my city will have thermography next month for 2 days. 

     Thermography was FDA approved in 1982.  I called my insurance today to see what I could find out.  I never could make heads or tails out of their vocabulary.  They spoke of procedure codes, diagnostic vs routine screening, outpatient diagnostics.  Then they reminded my of deductible, and the whole thing sort of became moot because I haven't been to see anyone since 08 and I haven't spent anything toward a deductible this year.  The initial screening will be $185, and I can a $50 discount by recruiting a friend under their bosom buddy program where we'd each get $50 knocked off our fee.  

    If you haven't found thermography locally, just keep looking.  It can travel!