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  • althea
    althea Member Posts: 506
    edited August 2013

    Hi again ladies.  I loved hearing about everyone else's relatives after my vent about my brother.  Within moments of posting my vent, my jackass brother called me here at my house.  It's a good thing I had just vented or he would've gotten an earful!  lol  He was backpedalling and saying he didn't intend to launch into an indepth conversation at mom's house.  Well, why the hell were those the first f---ing words out of his mouth?  Both my brothers are of ridiculously high intelligence, but it's very lopsided.  Some areas of common sense are VACANT.  I am so grateful for this group of ladies where I can vent, learn, give and receive support. 

    otter, the lemon flavored (and probably other flavors too) of gatorade has brominated vegetable oil in it.  Mountain Dew has it also, and that was my favorite soda when I was a kid.  Nowadays, I wonder if I'm still walking around with the same bromide I ingested decades ago!  Brominated anything is definitely something to avoid.  If you can use water, or real lemonade instead, that sounds like a much better choice.  

    re toothpaste, another common ingredient is glycerin, which sticks to the teeth.  Quite some time ago I watched the video at toothsoap.com which explains why our teeth are better off without glycerin (let alone flouride and I've never heard of triclosan).  It made a lot of sense, but at the time, it was the first place I'd heard of such information.  That same site also sells toothsoap, so I was reluctant to take the info at face value. More than that, the idea of using soap was hugely unappealing.  

    Eventually the toothsoap people developed easier to use forms.  When they offered cinnamon flavor soap in liquid form, I ordered some.  I am so glad I did.  Back in 05 I had one tooth get very slightly chipped when I was in the hospital for surgery.  Didn't have money for a dentist, and that tooth eventually showed signs of trouble with pain and looseness.  I tried oil pulling first, and later toothsoap.  That rough spot smoothed back over, the pain disappeared and the tooth has been firmly in place ever since.  Plus, toothpaste always has a caveat to call the POISON center if you swallow the product!  Toothsoap doesn't.  The worst that would happen would be swallowing something that probably doesn't taste very good, or possibly some loose bowels from ingesting soap.  Anyway, in my typical longwinded fashion, I recommend toothsoap and I find the information in the videos to be credible.  Sign up for the newsletter to get coupon codes.  Karen has a steady stream of good deals if you subscribe to her newsletter.  

    As for DIM and I3C, those aren't supplements I've tried mainly because of the cruciferous ingredients.  I have an underactive thyroid, and cruciferous veggies interfere with the uptake of iodine.  I learned that just when I had discovered how yummy kale and collard greens taste in my green juices.  :(  Cabbage, no love lost there.  :)  

    re iodine, I also get mine from breastcancerchoices.org.  Their shopping cart interface is bare bones, but response time is very quick.  Try to order a 3-pack so you can get free shipping.  Jackie at breastcancerchoices can mix and match whatever 3 items you want to get the free shipping.   For anyone getting started, there's a big thread just for iodine in this section.  Do be aware that it's important to follow the protocol, which is:  50 mg iodoral, 300-600 mg magnesium (transdermal spray is preferred by many, including myself), 200 mcg selenium, liberal use of unrefined celtic or himalayan salt.  The ATP cofactors, also available at breastcancerchoices, helps boost absorption for people like me who need extra help.  

  • painterly
    painterly Member Posts: 266
    edited December 2010

    Talking about cruciferous veges again, it's amazing the power that certain foods have on the body. For example, my daughter is breast-feeding her child at the moment and one of the foods to avoid in breast-feeding is cabbage! Cabbage, she was told, has a huge impact on the breast.

    Glenis

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited December 2010

    Girls, you're talking about all my favorite ways to eat kale! I love it in green smoothies (a cup of filtered water, a blender full of kale, throw in an apple and a chunk of ginger, maybe some other good cancer-fighting goodies, blend until smooth, and enjoy! Mmmmmm.

    Well, I splurged on an early Christmas present for myself... a Wii!!! LOL. I had never remotely wanted one, but I was trying to figure out what exercise I'll do while I recuperate from my mastectomy (which is Dec. 15, btw). Plus, although I much prefer walking/jogging outside in the fresh air, I wanted an indoor alternative for days when it's just too cooooold to jog outdoors... and just something to add a little variety. Actually, the biggest reason was to get me motivated to do strength training, since I am notoriously lazy about that.

    Anyway, I already love this thing! It was actually so fun that I would giggle a little during some of it. And today, I'm SORE! It was a real workout! I'm glad to have something that will ease me back into exercising again after my mx.

    painterly, since I hope to be breast-feeding sometime in the next year or two from my good breast (LOL!), I'm curious - why can't cabbage be eaten while breast-feeding?

  • GreenLibrarian
    GreenLibrarian Member Posts: 19
    edited December 2010

    I'm in somewhat of a similar situation as DesignerMom except I'm currently taking Tamoxifen.  I'm perimenopasal and the T is giving me a double whammy of menopause symptoms according to my onc.  Hot flashes are terrible thus I don't sleep - haven't slept well for over 3 months.  AI sounds horrible so would not look forward to that.  Onc. suggested Neurontin to deal with hot flashes but that has a laundry list of side effects including hot flashes. 

    Am considering skipping this hormone treatment.  I too was told my chances of recurrence double if I skip it - from 8 to 16%.  Do these percents take into account all that one does - diet, exercise, smoking, alcohol, stress?  Also who funds the studies that come up with these percents?

    For people who have forgone hormone drugs, from whom do you seek alternative solutions?  A naturopath oncologist?  A chinese medicine practicioner?  Someone else?  Do you still see a conventional oncologist too?  Thanks!

  • Luna5
    Luna5 Member Posts: 532
    edited December 2010

    Help! My skin is drying out terribly and SAGGING!!!!!  And Aging before my eyes!!! 

    Am I reducing my estrogen, milk, dairy, meat too much???

    Help!

  • painterly
    painterly Member Posts: 266
    edited August 2013

    Crunchie,

    My daughter is away on holidays at the moment so I cannot ask her about the cabbage thing. So I googled foods to avoid in breast-feeding. Cabbage was mentioned as causing gas in babies as well as the other cruciferous veges.

    Thanks for your smoothie recipeSmile

    Glenis

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited August 2013

    Luna, how much healthy fat are you eating? You may want to start eating more organic coconut oil, avocados, etc. Also, have you tried using coconut oil on your skin? That's worked wonders for mine!

    painterly, thank you... I guess the gassiness would make sense... although it seems that it would make sense to help the baby ease into eating foods like that even from the womb. I thought maybe it had something to do with changing the texture of the breast somehow, or something... in any case, it's all interesting stuff!

  • Sherryc
    Sherryc Member Posts: 4,503
    edited December 2010

    Also nuts can be bad on babies.  My daughter-in-law ate peanut butter every morning for breakfast and for 4 months we could not figure out what was wrong with my grandbabies tummy.  After researching and my d-i-l giving up peanut butter it was like overnight her tummy was better.

  • Luna5
    Luna5 Member Posts: 532
    edited December 2010

    JULIA......Thank you...I will go back to eating  more avocados.  I do use coconut oil on my skin but haven't been using as much on my face lately because I have been using my estriol there...but will start slathering on the coconut oil again and see if that helps.

     ALTHEA.......I remember your earlier posts about toothsoap.  Thanks for reminding me.  I just ordered peppermint for me and BBQ for my dog:)  I have actually been adding xylitol to my diet 6.5 - 10 grams (two packets) per day and a little on my toothbrush.  Supposedly it  removes bacteria, helps mouth ph and helps re-mineralize teeth.  If anyone has heard it is bad for me, please advise because I don't need artificial sweeteners....just using this because it is purported to be good for teeth.  It is really good if anyone is looking for a sweetener.  I order Smart Sweet which is GMO free real Birch made from organic hardwood, not corn...made in USA..  I order this brand because of all this and because the others I found were made in countries I don't trust.

  • vivre
    vivre Member Posts: 881
    edited December 2010

    My goodness things are zooming around here. Some comments:

    Cuciferous veggies and iodoral-The need for these veggies is too important to skip them, I take my iodoral in the morning, so it is well absorbed before I eat any cuciferous veggies

    xilitol-I have been swishing with it lately(and using my usana toothpaste) because I have so much bacteria released from my dental procedures. I refuse to take an antibiotic. I cannot believe how much bacteria was lurking in my teeth. No wonder I got BC!

    Green-Not taking a drug was something I thought long and hard about. I researched all the numbers. I realized they do NOT take into account any lifestlye changes in their stats. Did you know the arimidex study never even compared users vs non users? It compared armidex uses vs tamox! And since there are no long term studies yet, I did not want to be a guinea pig. Also, the stats say that you lower your risk with diet and exercise, so those are the stats I am running with. It is all a matter of choice, and what we feel is best for our own bodies. Follow your instincts. Women's wisdom doesn't lie.

    Re: to beauty products-I have recently been in touch with a Canadian gal who has written a wonderful book about skin care health. She has researched every aspect of what is in products, what to look for, what to avoid, and some of the false stories out there. For instance, some of the things we thought we really bad, are no so dangerous. She says to stay away from the EWG as they are more of a politcal org than an environmental group (something that I have come to believe after reading a lot of their stuff). She also talks about the cosmetics database as being funded by the companies whose products are tested. Where is the integrity there? If anyone would like a copy of her book, PM me and I will give you her email. I just got the book yesterday, so I have not had time to more than glace at it, but it looks fascinating.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited December 2010

    I know that diet and exercise is the best prevention for recurring BC.  This may sound dumb but does it apply to other cancers as well.  Makes since that it would but just asking?

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited December 2010

    Sherry, YES, it does apply to other cancers, and the same is true for many, many diseases and other conditions... heart disease, type 2 diabetes, obesity, infertility, etc. etc.! Diet + exercise + lifestyle = my favorite cure-all for so many things!

  • MBJ
    MBJ Member Posts: 3,671
    edited December 2010

    GreenLibrarian:  breastcancerchoices.org has tons of info for alternatives and it also has a list of natural dr's and hopefully one is in your area!  I am triple negative and so I am not hormone responsive but if I were in any of your shoes I would opt out of the extra drugs! 

  • althea
    althea Member Posts: 506
    edited December 2010

    luna, I second crunchy's suggestion for coconut oil on your skin. And just by coincidence, I've been seeking out information on estriol this week, thanks to fairy.  I'm sure she won't mind me outing the info she shared with me in a pm re my mom's recurring uti's.  Apparently estriol can be very effective at preventing uti's because it preserves the more natural state of the vagina.  When there's atrophy, dryness and subsequent creases in the the tissue create the conditions where the nasty bacterias  like to grow.  While browsing, I read that estriol receptors are found only in the vagina.  So, I'm curious where you got information that recommends you put it on your face, and I'm more curious if things will get better if you use vaginal suppositories for estriol.  

  • seaotter
    seaotter Member Posts: 642
    edited December 2010

    althea - Fairy tells all on the thread "menopause and your skin." I think you will find your answers there. Wink

    Patty

  • debbie6122
    debbie6122 Member Posts: 2,935
    edited December 2010

    Thanks ladies for the info on the toothpaste and xylitol im going today to the health food store and buy some i bought the cocount and almond oil last week after reading how good it was on here it has done wonders on my dry hands what a difference it made not sure which one is best as i use them at the same time but thanks for that advice as well your all just a great source of wonderful information.

    On another note i had to laugh at the response on estriol it may very well be it can be used on the face (dont know) but made me think of my daughter, she had a yeast infection during her chemo and i told her yogurt was very good for that, so a couple of days later i asked her if it has helped and she said i dont know mom but it was very cold, i laughed and said honey did you put it ON your vajayjay she said yes you told me to i said no i meant for you to eat it not wear it, i dont think i ever laughed so hard that day!

  • Suzanne3131
    Suzanne3131 Member Posts: 2,000
    edited December 2010

    wearing it helps too!  No joke!

  • Adey
    Adey Member Posts: 2,413
    edited December 2010

    debbie--  Thanks for the laugh!

  • mollyann
    mollyann Member Posts: 148
    edited December 2010

    Patty,

    We need to get Fairy to write a book titled Fairy Tells All! 

    PS, You found me :) I try to keep a really low profile.

  • painterly
    painterly Member Posts: 266
    edited December 2010

    My mother was prone to yeast infections and put the yoghurt in the 'whoseitwhatsit" every time she had an outbreakCool. She swore by it.

    Glenis

  • debbie6122
    debbie6122 Member Posts: 2,935
    edited December 2010

    wow who knew! LOL

  • mollyann
    mollyann Member Posts: 148
    edited December 2010

    I can tell some of you are way younger than I am. In the 70s we all used yogurt vaginally.

    It would be a good marketing slogan for Dannon. "Works from both ends!" Laughing

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited December 2010

    mollyann wrote: It would be a good marketing slogan for Dannon.  "Works from both ends!" Laughing

    ROFL!!! Too funny!

  • Adey
    Adey Member Posts: 2,413
    edited December 2010

    Mollyann-- another good one, thanks, laughter is healing!

  • seaotter
    seaotter Member Posts: 642
    edited December 2010

    Lol mollyann! I love it! I agree Fairy should write a book. I'm thinking you should also you always have a lot of great advice!!!!

    Patty

  • samsue
    samsue Member Posts: 599
    edited December 2010
    The yogurt in the youho.. does work. My natropathc/acupuncturist had me use it one time. He had me get a syringe fill it with the yogurt. the rest is history Wink 
  • asschercut
    asschercut Member Posts: 73
    edited December 2010

    I am currently using a toothpaste called "Propolis" by Phyto Shield, that also contains xylitol. It's NOT runny like some of the other organic toothpastes I've used in the past...which the children found too hard to keep on the toothbrush without it wastefully falling off all the time.

    The Phytoshield toothpastes contain Totarol, which combats plaque-causing bacteria to protect your gums and teeth naturally. Totarol is derived from the New Zealand Totara tree, which can live for over a thousand years and even after dying the wood does not rot. This prompted research into how this tree is so resistant to decay and Totarol was discovered, as the agent that destroyed the bacteria that start the rotting process.

    Phyto Shield Herbal Toothpaste

    Botanical Oral Care Toothpaste

    No added fluoride

    No sodium lauryl sulphate - low foaming

    Natural plant sweeteners

    Suitable for children, vegans and vegetarians

    100% Naturally New Zealand

    Phytoshield toothpastes are naturally sweetened with xylitol - found in birch, strawberry, plum and pear; ammonium glycyrrhizinate - found in the roots of the liquorice plant; and thaumatin - an extract from the fruit of a shrub found in Africa. Naturally derived chalk, dolomite and silica help remove plaque and prevent tooth decay. Plant extracts scientifically proven to combat plaque bacteria have been combined with natural flavours to leave your mouth and breath feeling fresh and clean: PROPOLIS - (not vegan) gum care using the beneficial effects of propolis, healing, antibacterial and antioxidant. This toothpaste is ideal for people with sensitive teeth and receding gums, with the additional benefits of totarol, eucalyptus, aniseed, peppermint and menthol.

    Victoria

  • Luna5
    Luna5 Member Posts: 532
    edited December 2010

    Althea...I had heard somewhere on these threads about putting estriol on the face.  E-mailed my doc and he said yes, French women have been doing it for years.  Original instructions on my bio identical estriol was to put it on inner wrists.  I was told to put a little of my testosterone creme on clitoris and rest on inner thigh.

    This is confusing.  Just like progesterone.  I was told to apply only to upper body to keep liver from clearing it out too soon....others have been told differently.

    If estriol can only be absorbed vaginally, I am definitely doing it wrong.

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited December 2010

    Hi all, it's been awhile since I've been here.  I need to get back to healthy eating again, and I thought this thread would be motivational for me.  It is. I'm not suppose to be eating any type of grains, so what's the first thing I want?  PIZZA, or PASTA.  So I got a pizza, ate some and still feel terrible since last night.

    I'm trying to do this food thing to pay attention to how we feel after we eat something.  It will lead the way to losing weight and feeling better overall with some energy.  All grains deplete me and make me feel hungry after I eat them, so they were the first to go.  I lost 13 lbs. overtime by just giving up eating cereal.  I replaced it with organic Greek yogurt and fresh or frozen blueberries and a half tsp of cinnamon.  Getting cinnamon in everyday is important for something, but I forgot what that is.   

    I'm kinda stuck now because I don't have anything else to give up.  I even stopped eating ice cream.  I replaced ice cream with frozen fruit bars with the fruit in them which I'm sure isn't good but I had to have something for that now and again sweet craving. 

    To change the subject.  I was reading the other day about men who are using hormonal creams are doing themselves in because the guys seem to naturally increase estrogen when on the creams and that Dr.s should be monitoring their estrogen levels or just prescribe Arimidex to be taken also.  I thought I would pass that info on if you ladies are using male hormonal creams.   

  • dlb823
    dlb823 Member Posts: 2,701
    edited December 2010

    I haven't been on BCO quite so much recently, but wanted to share this with you all this morning.  Some interesting facts...  http://www.huffingtonpost.com/the-sweet-beet/food-facts_b_789417.html#s185436      

    Also, re. dry skin... I've been having the same problem, big time.  Last night I mixed a few drops of straight Squalane Oil and Emu Oil (both of which I already had around), and slathered the mix on my face and hands, and they look and feel much better today.  I know there are negatives about Emu Oil (I was desperate and willing to overlook them!), but does anyone know if Squalane is okay?   Deanna