natural girls
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Pixelpup ... I have one of the best ND Oncologists here in BC (British Columbia - Breast Cancer) .. sent you a PM .. contact me if you would like to know more. He has over 25 years in researching cancer and is well connected. Lots of options here .. My five year sentence of Tamoxifen is gone as he has me on a great food intake plan and natural supplements and vitamins that have no SEs.
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Thanks althea-I already signed
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One of the things I am trying to set up on my website is doctor references. I would love for you gals to let others know about your experiences with great doctors for others to find. Jainey, if you have a great doc, let us know how he has helped you. I will post the name of the doc mine referred to in CA as soon as she gets back from vacation and I can ask her. Check out the way I have set up the "land of linkin" group. If I do not have a group for your area, please start one up to let others know about natural health resources in your area. I really want that site to be a resource for us to help others who have never had bc, but need some motivation and information to be more proactive. I feel I have given a lot of time to you all, and will continue to try to help out, but I need all of you to help me bring your friends and families to my site so we can help them too. Women who have never had cancer, will not find their way here. We need to start reaching out to them.
AmyK, a bit of baking soda in warm water before bed is good for heartburn. Try it and let us know if it helps you. Apple Cider vinegar is also good. Heartburn is actually a sign of lack of stomach acid, not too much. Food is not digesting, that is why you get heartburn. You need to start taking a quality probiotic too.
Sandee-It sounds like are off and running with a good plan. Just don't get discouraged. Keep it up and you will eventually start to see a big difference. But you are right, take it one step and one day at a tiem. Be patient. Health wasn't built in a day.
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I like the idea of a list of naturopath doctors per region. I live in the DFW area, and have only found one naturopath doctor, and she doesn't take insurance.
It seems that is the trend with naturopaths. I have resorted to working with a nutritionist instead, and have gotten good results, but would have liked to have visited with a doctor (either D.O or M.D.)This is an area of medicine that is sorely lacking, but I am preaching to the choir here.
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Is Maxine Thomas, MD, anywhere near you in Texas? She's in Greenville. She is supposed to be very good on complementary/naturopathics. I haven't seen her myself but have heard of her thru the grapevine.
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Question: Anyone having difficulty maintaining their body temperature? Mine was quite low at diagnosis and now I find I am allover the place. I have been told that body temperature and cancer are related and wondering if anyone's temp changed after treatment.0
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Pixelpup: Dr. Galitzer is in West Los Angeles and many of his patients come from San Diego. I think his website is AmericanHealthInstitute.com for his contact info. He is an MD/Homeopathic but quite good with the bioidenticals and getting your body in balance. His specialty is hormone balance, thyroid/adrenal balance and he works with many BC patients. The first appointment is about what you paid to the other Dr. but after that he is reasonable and his rate includes homeopathics. My friend who has insurance says hers reimburses her for half the costs.
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MBJ-
I have had the same experience -I have always had low basal temps - but they have recently gotten worse.
Have you had your ferritin levels checked? I had been avoiding iron - but recently found out that although my iron was OK - my ferritin levels are extremely low. Do you take a lot of curcumin or have you had hpylori or parasite infections?
I was just recently treated for the hpylori/parasite and I take lots of curcumin and I found out that both the infections and curcumin can reduce/intefere with iron. I also take DIM and ground flaxseed and eat lots of cruciferous veggies- which are goitrogenic - but had agreed with my alt. doc that the benefits were worth having to tweak my natural thyroid hormones.
If your ferritin is below 70 (mine was 18) - it is hard for your body to utilize the thyroid hormones. My doc has me trying Ferrochel for 3 months and then re-test. I have also treated the infections(NOt fun!)
There is also a Dr. Rind who has a temp chart that will tell you whether your low temp issues could be adrenal or thyroid or both - you might want to google it and see if the pattern gives you more insight.
Could any of this be a factor for you?
Good Luck!
Beth
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Thank you, Beth! I will have to check what my last tests show, as I never considered the Ferritin levels and I doubt that I have a parasite, though some believe everyone has these! The reason I asked about the body temp thing is because I have a friend in the UK who worked with someone and she has reset her body temp--all her thyroid/adrenal issues have dissappeared and the only remaining struggle she is having is with the hot flashes.
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Vivre wrote: Heartburn is actually a sign of lack of stomach acid, not too much. Food is not digesting, that is why you get heartburn.
Please check out the Mayo Clinic website -- and just about any other website -- on causes of heartburn. It's caused by a weakness in the lower esophageal sphincter (either because of a hiatal hernia, or by smoking or drinking alcohol or by eating fatty foods which take a long time to digest). The reason heartburn is painful is because of acid reflux. Continuing and untreated acid reflux can cause a type of esophageal cancer.
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MBJ, I've done a fair amount of reading which compares the symptoms of underactive thyroid with adrenal fatigue. They both can cause below-normal temperatures. My recollection is a fluctuating low temp leans toward adrenal fatigue; an unchanging low temp leans toward hypthyroidism. I checked mine yesterday for the first time in a long while... still stuck at 97.6. Now I'm wishing I would've checked it in nov or dec when I was feeling good. My fatigue is camping out on my doorstep again, and I suspect all those sugary treats during the holidays were my undoing.
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Body temp issues- Yes! But different than everyone else maybe- I have been very cold all my life, problematically so, but the minute I started on the taxotere my temp went through the roof. I'm 10 months from the end of chemo now (woah! That went by fast!) and still run hot hot hot. I also have hot flashes, and this makes them worse, I think, but it isn't the same thing. I was having them back when I was still cold, during the first 1/2 of chemo.
My thyroid is normal, and I continue to have adrenal fatigue.
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Ladies, how are you measuring your daily temp? My nutritionist had me measure my first a.m urine, but I never felt like that was truly accurate. Mine ran low as well, despite great eating habits and no fatigue at all. My thyroid levels looked decent at my last endo check, but have read that the temperature can indicate hypothyroid even when tests come back normal.
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Vivre- thanks...I am going at my usual pace but switched pump classes for personal training..figured I would get more results that way...combat the potential weight gain predicted with Tamoxifen and lose some weight while I am at it.
Alhea- I went on an adrenal support supplement for three weeks (SRTS...or some combination of those letters!) pre-radiation and post-radiation...it really helped me stay energized.....but now I am tired again...could be the winter weather., could be the running around I am doing...could be my body continuing to heal and become accustomed to Tamoxifen...not sure but eating 3 meals a day, lots of red and blue fruit and trying to get green tea and water in me has got to help, hmm?
Love this discussion!
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Low body temperature is definately linked to Thyroid. That would be my guess.
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I think this article about BC stem cells is important when considering any BC treatment or diet.
It seems to me that all the lab work done whether for drugs or natural substances are not worth anything unless they are tested on BC stem cells, not some donated BC cells that may not even contain any stem cells, or if they do contain stem cells then when the tumour shrinks or seems to be completely gone, they need to be able to test for remaining stem cells that can start the cancer up again.
As for conventional treatment, if we're to avoid a recurrence we need to kill the stem cells and it seems they are resistant to chemo and radiation. Does this mean that chemo and radiation are ineffective at stopping recurrence if stem cells have already escaped from the primary cancer prior to surgery? So those stray cancer cells that may be circulating the body that chemo aims at won't kill us anyway if they aren't stem cells?
In other words, chemo given after surgery may reduce and slow down any tiny undetectable tumours that have metastasised and harmless non-stem cell cancer cells, so the inevitable recurrence is delayed and that makes those 5 and 10 year survival rates much improved. But then we are doomed to have the recurrence at a later date when those chemo resistant stem cells cause a recurrence.
So it seems from the evidence in this and similar articles that chemo and radiation delay recurrence and improve statistics but don't improve overall survival. Let's hope that in the extra time people get from the chemo they can come up with a stem cell killer that will cure us.
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Sheila-one of things most oncs underrate is the importance of detoxing after cancer treatments. They pump a lot of toxins in us, added to the toxins that caused our cancer, and if we do not detox, we are suseptible to cancer cells growing again.
The best way to detox is with liver and bowel cleanse diets and supplements. There are tons of books on this. But I also feel it is important to have a doctor support one during detox who truly understands it. You can disturb a lot of gunk during detox, and if you do not do it correctly, you can feel very sick.
My favorite detox is still the far infared sauna. I have a portable one from momentum98.com that I absolutely love. There is not better way to get rid of toxins than sweating, and nothing makes you sweat like a FIR.
You gals that are freezing need to check out they thryroid/iodine thread. This was an issue I studied long and hard, and did not get on the bandwagon because none of my docs took it seriously. My TSH looked fine, but most docs do not understand that it is the T3 and T4 tests, and symptoms, that should determine problems. Read Dr. Brownstiens books on thyroid, and the information at my website, including videos for more information. This is essential to our health. Next to losing weight, which has lowered my estrogen levels, taking iodine is the most protective thing I think I am doing. Iodine not only helps to detox the breasts, it helps the thyroid to function and you will be amazed at how much you can increase you energy. Again, find a good thyroid doctor to monitor this. They are not easy to find. Another reason why we need to help each other with references.
I also want to add, that I ahve started sitting in my FIR before bed, and WOW, I sleep like a baby again. Plus, it gets me so toasty warm!
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Vivre.............. your post scares me some. I have been off chemo for two + yrs.. and I never did any detox. I can tell you... that finally... after two yrs. I am no longer sensitive to smells... I no longer have bone and joint pain............ I no longer......ETC.............. finally.. it is over for me.
Could time have detoxed me... or ladies like me? I sweat with cardio daily. I would like your advice, your experience, if you are willing to share it.
Laura
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Althea: I do still have adrenal fatigue! I am taking both adrenals and thyroid meds. I have a friend in the UK who worked with someone who has helped her reset her body temp and now all of her thyroid and adrenal problems have subsided including her chemo side effects (neuropathy) and the only thing she is still battling is the chemopause hot flashes. I am considering attempting to see if it's possible to reset my body's temp.
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Vivre, the cancer cells will only grow again if there are stem cells left behind that havn't been killed. I can't see how detoxing would affect those stem cells as the stem cells have a way of hiding and disguising themselves from our immune system. On the other hand it is clear that women who have had chemo and radiation can still have a recurrence years or decades later so they have definitely failed to do the job we are all told they will do.
That leaves us with alternatives as our only option to fight any remaining stem cells. As researchers have not had stem cells to test against whatever substance they are testing it leaves an open field now. All research is basically out of date if stem cells are the final determinants (is that a word?) as to whether we still have the seeds of metastases in our bodies.
It seems to me that this is now a new era in cancer research, a new playing field. And we need to be on the winning team, which is not with currently practiced oncology.
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vivre-
I totally believe in the Iodine Protocol. I had actually started Iodoral 18 months before my diagnosis because of cysts and it really helped. Unfortunately I was only taking 25-50mg back then and was not doing all of the companion nutrients. I have now been taking 100mg along with the entire protocol for over a year and for whatever reason it has yet to help my basal temp issues. Maybe those of us with high bromide levels just take longer to feel the effects.
ANyone know anything about the Infrared Biomat? I have lymphedema and can't do the FIR sauna. I have done a session on the Infrared BIOmat. It appears that you can set it anywhere from 95-158 degrees, which would accomodate those of us with LE issues. It is expensive, so I am researching more before buying. There is a book I downloaded online called " Infrared and Cancer: The Fourth Treatment for Medical Refugees: Thermotherapy in the New Century by Nobuhiro Yoshimbu. It discusses the use of the biomat with cancer patients in Japan.
Beth
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My saliva test revealed that I have adrenal fatigue and I have always suspected low thyroid, though never diagnosed. Since my recent thermography suggested I may have "thyroid disfunction", I am currently looking into that, I'm just not sure how much my NP knows about the subject. I mentioned awhile back during the coconut oil discussion that I was having an allergic reaction when I used it as a body moisturizer. I have currently been using magnesium gel when I get out of the shower...and guess what?....I get the same reaction to it! I have had basil cell carcinoma and melanoma before bc so I'm sure my skin "has issues" and this is some sort of herxheimer reaction. Anyway, I just ordered an infrared sauna and am soooo looking forward to receiving it! Hopefully, it will help alleviate these issues.
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Beth, I have had the discussion with Phil from Momentum many times about the FIR and lympedema. Firstly, in his sauna, you can actually sit with your arm out, as it has holes for your arm and head. That is one thing I really like, I can keep my head out and not breath in the hot air, like in the big wooden units, plus it is a LOT cheaper. Also, he told me that since the FIR breaks down lymphatic fluids and sweats it out, it is not like being exposed to heat from other sources. If you want to talk to him about it, I can give you his number.
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Sheila-I guess the jury is still out on stem cells. More research needs to done for sure. There are so many theories about cancer. But I truly believe we change our body to make it hostile environment for cancer cells to grow. Every day, our bodies are bombarded with free radicals that can become cancerous. Whether or not they do, depends on how healthy our digestive and immune systems are. At who is to say that recurrances after many many years are recurrances. Perhaps they are just new cancers. But you are so right about the failure of traditional medicine. We need to take it upon ourselves to take care of ourselves. The real miracle is within us all.
Have you read the story of David Kelly, the Texas dentist who was told he was out of time with stage 4 pancreatic cancer? He did not take the dx lying down. He went into action, started to study cell metabolism, enzymes, nutrition, etc, and cured himself. He lived for 40 more years! There are lots of stories like this. Cancer is curable. There is just no single answer. We have to play detective and look at our own health issues and address them individually.
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Vivre, I've never heard of David Kelly but I believe that people who have had a so-called spontaneous remission from any terminal illness should be studied if they agree to it. I know retrospective studies are not reliable as they depend on people's memories. Also it's very hard to study the emotional component that many claim helped with their cure. But we need to start somewhere.
I agree that the jury is still out and we don't know what part free radicals and immune systems etc play in most illnesses. There is so much we don't know yet. So why do researchers keep looking at sick people instead of those who have cured themselves?
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vivre-
Will you please PM me Phil's number? I'd like to do some more investigation on this.
Thanks!
Beth0 -
hlth4513: I have a very good friend who uses the mat and she is Stage 4 mets. She says she just feels amazing after using it! I will have a hard time convincing my DH to spend the $$ on this as it is very expensive. She seems to think that it's worth it.
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Beth: BTW: Since the BioMat ups your temp I imagine just this would make you feel better, as we all seem to suffer from low body temperatures. I am just as curious as you to see how it works. I am like an old woman when I get out of bed in the morning and I have slight lymphedema in my back behind my MX site. So afraid that it will spread.
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MBJ-
Thanks for the input. I tried out the mat for a brief session at a local health expo. I dangled my LE arm off the side. I wasn't exactly dressed for the occasion, so I need to go back and do a few full sessions.They are offering a two for one - 2 sessions for $30 - so that should give me some incentive. I'll keep you posted.
Beth
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Beth: That sounds great! That sounds very reasonable, considering it costs so much to buy one. I will look forward to seeing how it works for you.
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