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  • heidihill
    heidihill Member Posts: 1,858
    edited June 2011

    MJB, sunlight is mostly in the far infrared range, so sitting in the sun with a space heater will simulate a FIR sauna pretty well, I would think. Whatever you do, the overall temperature should not exceed 44C / 111F or peripheral nerve tissues could be damaged. I'd try to have a safe margin of error below that, particularly if you've had radiation therapy. 

    http://www.ncbi.nlm.nih.gov/pubmed/15204519

  • MBJ
    MBJ Member Posts: 3,671
    edited June 2011

    Heidihill:  It is recommended to get at least 20 minutes of sunshine per day.  I can barely get to 99.9 in a very hot shower, though today I got my temp up to 100.4 F just in front of the heater.  It's not applying heat but getting body temperature heat up which is why I prefer the use of a space heater and taking off and putting on clothes to maintain it.  I don't know anyone who has had cancer that can maintain a 98.6 F temp--Anyone?

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011
    MBJ, what is the best way to take one's temperature, by mouth or armpit ?
  • MBJ
    MBJ Member Posts: 3,671
    edited June 2011

    I use an oral Vick's thermometer--they are fast and read in farenheit unlike the cheaper ones that convert from celcius to farenheit.  I have two to ensure accuracy--one cheapo which is slightly off and the Vick's.

  • Melizzard
    Melizzard Member Posts: 24
    edited June 2011

    I don't know how many of you are still having mammograms (I don't have boobs any more), but have you heard of thermograms?  They're much safer ... no radiation ... but insurance doesn't cover them.  Anyway, here is an interesting take on the FDA's thermogram bashing that recently happened.  God forbid we find less toxic ways ...

     "The FDA has just released a "safety communication" about thermographic breast cancer screening.

    Yeah, you can pretty much predict exactly where this is going to go.

    As I've told you before, thermography uses infrared imagining to screen for breast cancer. That's an important clue that this method is on the right track, because it eliminates exposure to radiation.

    But the FDA is having NONE of that.

    Here's a quote from the "communication:" "The FDA is concerned that women will believe these misleading claims about thermography and not receive needed mammograms."

    According to the agency, the primary "misleading claim" is that thermography is a replacement for mammography.

    Just as with the drug industry, we can rely on the FDA to fully support mammography, because radiology is a huge financial generator in the medical mainstream, just like pharmaceuticals.

    Also consider the enormous outlay of funds required by hospitals, radiology clinics, and academic centers to purchase the very expensive equipment and train medical professionals to use it.

    Obviously, no one in this tight financial circle wants to see a safer, less expensive, more effective technology appear more attractive than mammograms.

    Not to mention...they aren't the best at admitting when they're wrong...

    -----------------------------------------------------------
    Picking up on the heat
    -----------------------------------------------------------

    Thermography harnesses infrared imaging in a simple and brilliant way.

    As explained by Philip Getson, D.O. -- a medical thermographer for nearly 30 years -- cancers manage to activate inactive blood vessels, or even create new blood vessels to deliver glucose and other nutrients to support the multiplying cancer cells.

    At its very earliest stages, this activity generates just enough heat to be detected by infrared imaging cameras.

    So what we have are three major factors that make thermography far superior to mammography: 1) No radiation exposure, 2) Earlier detection of breast cancer, and 3) No painful breast compression (which can also prompt the spread of some tumors).

    In a recent Huffington Post article, Christiane Northrup, M.D. -– an ob/gyn and bestselling author –- reviewed these and other thermography benefits.

    Dr. Northrup notes that thermography may be able to detect cancer activity eight to 10 years earlier than any other screening method. The reason? Thermal imaging identifies abnormal activity on the cellular level.

    That's one reason why thermograms produce "unambiguous results" in identifying cancerous and even pre-cancerous cells. And those clear results cut way down on the need for further tests.

    Here's why that's a HUGE benefit: Around one million breast tumor biopsies are performed each year. And about 800,000 turn out to be benign. That's a two-in-ten success rate in judging biopsy need, which is a pretty dreadful record considering that biopsies are often expensive and cause significant anxiety in patients.

    Of course, like any technology, thermography is only as good as the thermologist.

    Dr. Getson (a colleague of Dr. Northrup) notes the importance of finding a board-certified doctor like himself who is specially trained to interpret thermographic images.

    You can find a qualified thermologist in your area by using the Find a Doc feature on our website (hsionline.com). And you can also visit the International Academy of Clinical Thermology website at iact-org.org."

    Freakin' figures, doesn't it?  LOL  It's always something ... the FDA is so good at trying to cover their butts and keep us from straying too far off their beaten path.

    xxoo

    Melissa

  • Merilee
    Merilee Member Posts: 734
    edited June 2011

    Um, hate to be a wet blanket but I had a thermagram in March that did nit pick  up a recurrence I was having. 1.2 cm tumor

  • Sherryc
    Sherryc Member Posts: 4,503
    edited June 2011

    I have come to the conclusion that nothing is fullproof.  Not mammo's, thermograms, mri's you name it we just do the best we can with what we have and feel comfortable with. We all know our bodies best and I have found that when I listen to my body I am much better off.

  • Melizzard
    Melizzard Member Posts: 24
    edited June 2011

    Britchick, I really don't know.  I didn't learn of them until after both my breasts were goners.  

    SherryC, you're right ... nothing is foolproof.  But IF I still had breasts, I would err on the side of no radiation.  :)

    Merilee, that sucks!!!!!!!!  On the other hand, both a mammo and an ultrasound missed my 5.8cm tumor.  :(  The more I'm walking the planet, the more I realize that there are NO guarantees about anything in life at all ... and especially in cancer land!!!!!  The more we think we know, the squirellier it all gets ... I figure if there's no one treatment that works the exact same for everyone, there's probably no diagnostic that will work exactly the same either.  ;) :P

    xxoo

    Melissa

  • corian68
    corian68 Member Posts: 86
    edited June 2011

    Mammosmash didn't pick up my 1.5 cm beast either. Ultrasound said benign & insurance wouldn't pay for MRI. Gotta love the American insurance industry.....

  • Merilee
    Merilee Member Posts: 734
    edited June 2011

    Self examination is how I found all 3 of mine so far. This is after mammos, and termagrams. My message, check um every day, and don't forget the little folds in your arm pits. That is where both my BB size recurrences have been. My onc nor my naturapath could not feel them so I called the breast surgeon and she got up in there with her fingers and said "lets do and ultrasound which did show it. Last time I was having nightmares about it which alerted me to go really digging in my pit. Amazing how my body was talking to me,,,which by the way was terrifying but at least I caught it. As soon as it was confirmed, I stopped having the dreams. It was very difficult to determine if the dreams were part of my PTSD or intuition. This is a struggle I will need tgo work on for some time to come.

    I asked for ultrasound every 3 months , but they say my insurance won't pay for them unless we detect something.

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Merilee, intuition, i had the same phenomena, not nightmares, thank God, but somehow, i was not surprised at dx, devastated yes, but forewarned . we women are extremely intuitive if connected

  • pixelsupply
    pixelsupply Member Posts: 16
    edited June 2011

    LJ13

    I too was told not to eat raw fruits not because the alter the effects of chemo but just as you said because of the chance of bacteria from fruits and veggies if not washed properly.

    When on rads I was told not to eat anti-oxidants (umm pretty much everything I eat -- its summer and the fruits and veggies are fab now- aaargh) because the radiation "uses" the oxidants to attack any cancer. Not sure exactly what that means but if I am going through 38 sessions then umm I want that to work!

    I also worked out every day during chemo and rads and it helped my fatigue ALOT! I wasn't running 5 miles just 30 minutes on the elliptical and 15 minutes upper body free weights.The chemo nurses said that it helps with the immune system -- keeps the body working! -- and my WBC count tested normal each time...went down a few points but never below what they deemed to be a low count.

    My diet during chemo for Taxol was basically fiber and protein - both meat and grains, nuts..LOVE QUINOA! just saying. But on AC I lost my taste buds and nothing satisfied me...so ate really crappy stuff just to be able to taste it...like really salty or sweet ...and unfortunately gained 5 pounds on my first week on AC. Once I found different healthy foods, I lost those pounds again.Its weird how you loose and gain so fast when in chemo...

    And lets not forget water. I was drinking at least 10 glasses a day while on chemo -- now back to my 8. And always filtered...(did you know that they are finding estrogen in some of the city water supply? Anyone else hear about that?) 

    StaceyR

    I too am appalled that the oncologist never mentions food or diet. And yet the information packets they give you specify diet restrictions - not to eat garlic or drink alcohol, or grapefruit. And no one recommends a nutritionist.  Frankly with the research I have done, I think its VERY important to watch what you eat when in treatment and a nutritionist or at the very least a diet plan should be set up as part of your treatment

    By the way, I too had a complete response to my neoadjuvant therapy -- again not necessarily proof. I also did not drink a drop of alcohol and have reduced my few glasses a week to barely a glass a month. The thought of recurrence just doesn't make that even appealing.

    I am also reading a book recommended by a friend, The China Study, which looks at the role of food and cancer occurrence. Interesting, albeit controversial for some. It recommends moving away from meat, dairy and protein diets to fruit, vegtable, and grains or vegan diet for a healthier body.

    And it makes sense to limit meat and dairy if you know that acid is the environment a cancer cell grows in and both meat and dairy are acidic for the body.

    So have been llimiting meat and dairy and going completely organic...can go without meat but wow don't know if I could live without cheese :)

  • vivre
    vivre Member Posts: 881
    edited June 2011

    Merilee-I found my lump with a SBE too, which I did following a gut instinct that something was wrong, even though my mammo did not detect anything. We need to tell more women to tune into that inner voice. It does not let us down. That said, I will continue to spread the word about thermography. It gives me such piece of mind. I will never have a mammo again. I have been zapped enough, and I can see changes in my breast. One thermography will not do the trick. It needs to be done in series to monitor changes. Yes, it is infuriating that insurance will not cover it. This is a result of the mammo industry, backed by all those pink $$$ lobbying against an insurance code. The only way this will change is if more of us demand thermography. If men had their balls crushed like they do to our breasts, you can be damn sure the rules would change ASAP.

    Corian-Insurance companies do not make up the rules. They have to follow standard protocols. Standard protocols are determined by the Friggin Doping Agency and Washington politicos. One of the reasons I deplore the idea of national health care is that we will be forced to follow only standard protocols. They will literally mandate mammograms and vaccines, whether you want it or not. They already do this with our pets. I was forced to put a chip into my cat by the county. It really makes me mad. These chips have been the site of cancers in pets. If I did not comply, I would get a hefty fine. I am so sick of big government telling me what to.

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    Mine was also a feeling. I went to my GP and told him I knew something was wrong, just not sure what. I had the Mammagram the next day.

  • Melizzard
    Melizzard Member Posts: 24
    edited June 2011

    Yup, same here ... found the lump on self exam.  And since the imaging came back clean, a surgeon actually had to audacity to tell me that lump was a "ridge of breast tissue."  Yeah, that hadn't been there before and I was 39?  So thank God for my big mouth, telling any physician who would listen, about this lump ... for 10 months ... before someone finally wanted to biopsy/excise it.  Jeez!  And THAT'S when I got jaded.  I believed them then.  I don't trust any of them now.  LOL

    xxoo

    Melissa

  • MBJ
    MBJ Member Posts: 3,671
    edited June 2011

    Melissa:  I only found mine by self exame and intuition, too.  I knew long before the biopsy results that it was BC.  I still constantly check myself.  I got the run around for almost a year before I finally found a dr. that would listen to me. 

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011
    I'm sorry to hear about the runaround Melissa and MBJ, that's awful Frown and unacceptable.  We sure need a big mouth on us
  • MBJ
    MBJ Member Posts: 3,671
    edited June 2011

    Luan:  That's why I chose my avatar :)

  • Sherryc
    Sherryc Member Posts: 4,503
    edited June 2011

    As soon as they did a diagnostic mammo I knew something was wrong.  Just not what they saw on mammo, found it during MRI.  I kept telling DH I knew I had BC, he would say we've done this before and it was B9 and I would say this time is different I feel it in my gut.

  • dlb823
    dlb823 Member Posts: 2,701
    edited June 2011

    Got this link about magnesium supplements via FB, and thought I'd pass it along. I haven't read it yet, but evidently some well-known brands tested excessively high for lead!

    https://www.consumerlab.com/reviews/Magnesium_Supplement_Review/magnesium/

    I'm also still hoping to get some input on my question a bit back on bottled water.  Anyone?   Deanna 

  • MBJ
    MBJ Member Posts: 3,671
    edited June 2011

    Deanna:  I tried to access that link and it wants $15 to access one report or you have to join and pay money!  Can you re-post the report here?

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    Deanna, Went back to look at your post. I have never heard anything about the saftey of plastic bottles after they cool down. What I have done is I have bottles that are "safe" that I fill from my own system. I'm not sure the bottle water is all that safe, I read recently the water where I live has unsafe levels of toxins in it, and it has also been found in the bottled water in this area.

    I use a home purifier on tap water.

  • Merilee
    Merilee Member Posts: 734
    edited June 2011

    What kind of tap purifier did you get?

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Re tap water, I invite you to watch the documentary on Hormonal Girls re: sewage disposal....

  • dlb823
    dlb823 Member Posts: 2,701
    edited June 2011

    MBJ and all... sorry about that link not being readily available.  I'm not a subscriber either, but had seen a post about it on FB that specifically mentioned that Natural Calm had tested excessively high in lead content.  That caught my attention b'cuz I'd bought that product for my 28-year old son when he was dealing with kidney stones, and it had made him really sick.  

    As far as the plastic water bottles, I also have refillable stainless and glass bottles and an undersink water filter, as well as one in the frig.  But when you live in the desert (it was 114 here yesterday) and drink multiple bottles of water on a summer day, it's hard to be rigid about not ever drinking bottled water.    Deanna 

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Hey all, I was able to access the link by cutting out some of the data and keeping just

    https://www.consumerlab.com

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 166
    edited June 2011

    Deanna,

    I know what you mean about not drinking from bottles and the heat. My son plays baseball on little league, and we are usually outside in 100+ Texas heat. I tried and tried to only drink purified H20 in glass bottles, but it really gets out of hand. Not to mention almost impossible, since I'm usually managing a 5 yr old and a 3 year old and their thirst issues as well.  We usually load up a cooler with bottled waters and I pretend like I don't know what I know while I keep hydrated..... hard stuff.

    I still haven't moved to an H20 purifier for our house, but it's on my list of to-dos for this year. I'd love to get a whole-house system, but it seems a bit pricey for us.

  • vivre
    vivre Member Posts: 881
    edited July 2012

    About the water-This is a topic I wish we could get more certainty about. I keep reading debates about the ionic water craze and I just cannot see how dropping several grand on a machine will take out all the toxins. I am sticking with my triple RO system. I bought a system at Menards for under $150 and had my handman install it. We fill up a big cooler jug with it and keep it in the water cooler dispenser. Since it is always cold and tastes great, we drink a lot more water. We have a well and yet our water tastes and smells great.

    Deanna-are you talking about the reusable plastic bottles or the ones you buy bottled water in? I think the thin skinned ones that come with the water are the problem. The harder plasic is not supposed to "bleed". As for the possible toxins in magnesium-this kind of stuff use to make me crazy which is why I only use Usana now. Every product is pharmaceutical grade which means it has to have what it says on the bottle, no additives, and every batch is tested for impurities. They even test the raw ingredients before mixing to ensure quality control. This is one less thing I have to worry about. Usana did not even come out with a melatonin product until recently when they found a source in Switzerland that they could trust with purity.

    As for intuition-When I was debating the whole Arimidex issue with my doctors, I picked up Dr. Northrup's book, The Wisdom of Menopause. She talked a lot about how we need to listen to our inner voices, they will not steer us wrong. When I read that it really hit home. I knew my intuition saved me from a later stage cancer and I knew my inner voice was screaming at me that I did not need any pills. I was literally freaking out with rage everytime I took that little pill.  When I tossed those pills, I felt like a ton was lifted off of my shouders and have not looked back. Call it intuition, our guardian angel or whatever, we need be good listeners. Everyone should read her book. It is very empowering. And another reason I choose Usana is because that is what she recommends.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited June 2011

    I have a friend who bought a distiller and they use it in their kitchen for all their drinking and cooking.  she told me the website is h20labs.com  I would like to buy one but still paying off medical bills.  Maybe sometime soon