Mucinous Carcinoma of the breast
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Thank you, It started around the same time I got breast cancer this summer & my PA told me to see an eye doctor. Seen an eye doctor for it & couldn't see anything wrong so recommended me to a neurologist & she said she sees nothing at this time to be concerned about. I told her it started the same time I was diagnosed with breast cancer & I just know they are related. But she just told me only if the symptoms get worse, then I can come back for Botox injections. We'll forget that - too many risk. Might go to Mayo (the experts) as it is getting worse
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You know how you instinctstell you that your ailments must somehow be related & not just a coincidence? This paraneoplastic syndromes are known to come along with some cancers & they are as RARE as our Mucinous cancer.0 -
if you have it...
you need to be under the care of a neurologist or rheumaologist. Removing the cancer should help, but the specialists dont know how long treatment should last. But you must be seen by someone qualified. What does your cancer team recommend? This seems quite concrrning that it isnt being addressed.
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Hi VR, I am a Texan originally from Houston and an Aggie. I have a sister living in Austin and our family studied at UT, UH, Tech, and TAMU. The next generation has gone out of state to the Northeast mostly. I have a few more nieces and nephews who haven’t reached college yet so a few might stay in Texas yet. I would like to move to the northwest actually - Texas summers are brutally hot and humid. Pollifa
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polli....if you decide to stay in Texas, you might one day find me and the DH at Barton Springs!
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Voracious- Thanks for your advise. I am certainly going to bring this up in a more serious conversation with my oncologist next month. I think the Neurologist I seen just wrote in my medical records that I had anxiety & just imagining things.
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Voracious - May I ask if you had a lumpectomy or mastectomy & if you had radiation? They told me I only needed 16 days radiation & because I had a huge 3.6cm tumor, I just don't feel it was enough. Also I have to take estrogen blocking Anastrozole for 5 years which has awful side effects. Did you have to take such a hormone
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badluck....the number of days of radiation does not necessarily mean anything. What matters is the dose and the total amount of radiation that you receive. Rest assured that the radiologist followed a formula that was tailored to your requirements.
There are many threads here at bc.org devoted to hormone therapy, specifically to aromatase inhibitors and even more specifically to the duration AND there are even more threads devoted to side effects.
When I was diagnosed, I was premenopausal and had ovarian suppression in addition to taking hormone therapy. For several years I had minor side effects due to putting my ovaries to sleep. Today I can say I feel as healthy as one can feel who is a delighted grandmother....
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Voracious - I love your positive attitude! I guess we can call ourselves lucky - one of a kind to of had this rare but with better prognosis than other breast cancers. So do you think I'll make it through the full 5 years of Anastrozole hormone therapy? How long were you on it. Any side effects like I'm having
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bad...i think the most important thing is to have good communication with your team. Quite honestly, I have had more issues with other body parts that the minimal discomfort I have had from hormone therapy. With that said, I did have side effects and they were discussed with my team. When you work closely with your team, there should always be discussion and your symptoms and side effects should never be dismissed. One of the biggest problems clinicians have with their patients is getting them to take their meds. Imagine for a moment those patients that need to take diabetes meds or hypertension meds FOREVER. Over and over again, I hear how patients end up in the hospital because they didn’t take their meds or didn’t take their meds properly. Personally, I don’t think a five year committment is a very long time to take a med. and even if you encounter side effects, there are always different brands that you can try that may cause even less side effects. My biggest issue is that i got hot flashes which ultimately led to being constantly in a state of simmer. So, I now have a new wardrobe. It is all about layering my clothes and wearing a cooling scarf when the temps rise above 79 degrees. Keep in mind, my beloved mom also had issues with sweating and she never had cancer....so I wonder if what I thought was side effects is really just age related changes....
My best advise is not to get ahead of yourself. And, make sure you have good communication with your team. I sincerely wish you well...
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Voraciousteader - thanks for your words of encouragement & wisdom! I agree about the communication with my doctors. That's where I have the problems. My oncologist seems to always be in a hurry & doesn't like me asking questions! Tells me often that "it doesn't Matter or it's not of importance". She even told me I had to get a molar pulled because there was no time for me to wait & go through a root canal & postpone radiation. Well, I found out the hard way. She was wrong & my dentist & oral surgeon told me only if I was having radiation to the head & neck, would I might have some problems. So had a molar removed & that caused another whole bunch of neurological problems I believe
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I think they don't want you to have drawn-out dental procedures during radiation because it would require more X-rays. It was actually a dentist who told me to take care of any dental issues before radiation or wait until afterwards. Also, if you go on an AI, AND if you also need to take Prolia shots or another anti-osteoporosis med (depending on what your Dexa scans show), you might be limited to doing invasive dental work coordinated with the timing of those drugs. It's all so complicated that I asked for Tamoxifen instead.
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agree with alice. Last May, I had my hip replaced. I needed a tooth. filling replaced and had to do it before my surgery. Going forward, I need antibiotics for three years, even for just a cleaning.
I think most doctors will want you to have any necessary dental work done before embarking on any surgery or extended therapy. As my grandmother used to say, "You better be safe than sorry."
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https://www.ncbi.nlm.nih.gov/pubmed/30843622
Micropapillary Variant of Mucinous Carcinomas of the Breast Display Genetic Alterations Intermediate Between Mucinous Carcinomas and Micropapillary Carcinomas.
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I have a question. On the pathology report of my biopsy it states
Infiltrating ductal carcinoma with mucinous features
I'm triple positive with a 3cm in right breast and 1 node effected
Not sure what the mucinous features mean. BS said he thought it was part of the mass.
Any help would be appreciated.
Thank you!
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when there appears to be what looks like SOME mucinous type cells within a tumor with traditional IDC a pathologist will note that there are mucinous features. When there appears to be MANY what appears to be, mucinous cells, mixed in with traditional IDC, it will be called mixed mucinous, and, when 90% or more of the cells are mucinous, then it will be called pure mucinous. I wouldn’t get too caught up in the description because you will be treated based on the most aggressive components of your disease. Also keep in mind that there is no absolute way of describing mucinous tumors. Often it will depend on where and by whom the pathologist was trained. Getting a second pathology opinion, when it comes to mucinous, is sometimes wise
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https://www.ncbi.nlm.nih.gov/pubmed/30900967
Tubular and mucinous breast cancer: results of a cohort of 917 patients.
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Hello! New here! Thank you for all the previous posts and great information. It was so helpful to find this thread. I had Hodgkin’s Lymphoma in 2008 and received chemo and radiation to the chest that put me at higher risk for BC. I was followed frequently with alternating MRI/mammograms. I’ve had many fibroadenomas and biopsies, but this time around it was not benign. Due to the risk of recurrence, my age (41) and not having the option of radiation, I had a BMX with SNB 4/12/19. The pathology report indicated Mucinous Carcinoma, no lymph involvement, stage 1, grade 1, ER/PR+ and HER2-. The oncologist was very thorough and explained the pathology report. She presented the case to her tumor board and agreed that tamoxifen and no chemo was the treatment plan. She said Oncotype would not be necessary and score may not be valid with the tumor type. I’m so afraid of missing something and wondering if I should have the oncotype done? Any thoughts are greatly appreciated 😊
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What is the size of your tumor? Node negative? Based on the 2019 NCCN guidelines, unless your tumor is larger than three cms and or/ node positive, you would not be a candidate for chemo. So, the oncotype DX test would not be warranted. howeveR, based on your young age, I would want to do the oncotype dx test. thaT is just my
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Tumor was 1.1 cm and no node involvement. She did go through the NCCN guidelines with me, explaining the recommendation. I just keep thinking I don’t want to miss anything. Thanks so much for your reply!
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Hello Be-A-Light, your wonderful screen name is both clever & inspiring! So sorry you find yourself here with us, but this thread is also very inspiring as well as a wealth of knowledge... thanks much to our sister, VR. I would second VR's suggestion, but also a 2nd opinion pathology report is often warranted concerning Mucinous Carcinoma, preferably done by a dedicated breast pathologist. MC can be a highly complicated pathology sometimes.
Did your team advise you what your ER% and PR% percentages were? Were you advised if your tumor was Luminal A or Luminal B phenotype? Also pure mucinous or mixed mucinous? These are some prudent factors in the decision making process.
I am very sorry that an ex-Hodgkins Lymphoma patient is now being hit with MC, although being "stage 1" and "grade 1" with hopefully 100% PURE MC are excellent prognostic indicators. Hope to hear from you again and wish you the best, sister!
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be...I apologize...my tablet seems to have hiccups on this website! I second obsolete’s opinions!
Agree! Great prognostics
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hello ladies!
My pathology report from my skin sparing mastectomy indicates an 8mm focus of Mucinous Carcinoma with a positive margin against the skin (anterior) and DCIS with a positive (posterior) margin against my chest wall. I’m not going to resect the margins because the BS says it’s not a good idea. I have no idea if the Mucinous IDC is truly ER/PR positive or if the MO just said that because that cancer almost always is ER/PR positive. I know that my breast was full of DCIS. It was in every quadrant. The MO said that I would do radiation, no need for Oncotype scoring and follow up would be just a regular annual physical with my general practitioner. Does this seem super strange to anyone else? I’m 40. The IDC was not a lump or found with any screening. I feel like I will for sure have a reoccurrence with the attitude of these doctors. Also I am trying not to take tamoxifen because of my clinical depression and anxiety disorder. I would love your thoughts on my situation.
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you must get a copy of your pathology report. It drives your treatment. While it is only 8mm, which is excellent news, if it is ER + then you should have the OncotypeDX test. Because it is small, it is doubtful that you would receive a high score and require aggressive post treatment therapy. But, there are several caveats. You might get a high score. No one knows, until they have the test. Furthermore, some patients because of their age, might require more aggressive treatment than those who are older. And finally, once you have had a breast cancer diagnosis, you are at increased risk of cancer in your other breast.
I urge you to get that pathology report and confirm that it is ER /PR + AND HER 2 negative. Also, register at the NCCN’s website and read the breast cancer treatment guidelines. Specifically, look for the page that discusses Tubular and Mucinous breast cancers.
Good luck and please keep us posted
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My needle biopsy result is INVASIVE MAMMARY CARCINOMA WITH MUCINOUS FEATURES. My breast surgeon gave me 2 choices, lumptectomy with 39 sessions of radiation theraphy or mastectomy. Appreciate feedback which is a better option.0
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phg...sorry to hear about your diagnosis. Can’t help you with deciding which is your best option. Here at Breastcancer.org there are many threads devoted to the question. What it boils down to is personal decision. The only thing I can say is that with either procedure, the mortality rates are equal. That said, when it was time for me to decide, my surgeon said all I needed was a lumpectomy with radiation. I trusted him, so lumpectomy was the right decision for me.
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https://www.ncbi.nlm.nih.gov/pubmed/31281734
Human Epidermal Growth Factor Receptor 2-positive Mucinous Carcinoma with Signet Ring Cell Differentiation, Which Showed Complete Response after Neoadjuvant Chemotherapy.
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https://www.ncbi.nlm.nih.gov/pubmed/31068224
Is surgical axillary staging necessary in women with T1 breast cancer who are treated with breast-conserving therapy?
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Hello. I am new to this forum and recently diagnosed on July 24, 2019 with “invasive mucinous (colloid) carcinoma", I quoted what my test results came back with. I am 44 y/o, not menopausal (still get my periods on the dot every 3 weeks, give or take a day or two), no family history of breast cancer. I felt a lump on my right breast about the 1 or 2 o'clock position mid July, went for a mammogram and ultrasound following week which the radiologist doctor informed me the lump was 3cm and suspicious for cancer, next day biopsy and stated something about vascular and calcifications, following week went to surgical oncology and received the aforementioned diagnosis. The surgeon scheduled me for genetic testing (08/15), and to meet with medical oncology this upcoming Friday, 08/09. The surgeon wants an aggressive treatment plan, surgery, radiation, hormone therapy, chemotherapy, and a sentinel node biopsy... didn't say in what order. The surgeon stated that medical oncology would discuss with me about an exact treatment plan. Now I am just waiting trying to find any information online on this type of cancer or anyone who has gone through this type. From what I have read, a main concern for me is to find out if this is the pure or mixed type. The most difficult part I find is the waiting. Thanks in advance on anyone who can share some insight into this type of cancer. Last note, some other words I have no idea what they mean on my results were “heterogenous hypoechoic solid mass with lobulated margins; some color vascularity of the periphery at the mass; suspicious microcalcifications seen within the mass and surrounding tissues +/- 4-5cm extent" and that sums up the medical jargon I am unfamiliar with. Thank you to all who have shared their experiences and advice regarding this rare type of cancer
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can’t speak to the details of your report....once you have your surgery and final pathology report, you will have a better understanding of your treatment plan. It is good that you are scheduled to see the oncologist soon. They will go over your treatment options. The surgeon is experienced at surgery and the medical oncologist is better able to explain the medical options. And yes, you want to know if it is pure or mixed. Also the hormone status and HER 2 status.
You might also want to ask that a tumor board review your case. That is a group of specialists who can chime in and give you a group opinion.
Good luck and keep us posted
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