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  • theresap60
    theresap60 Member Posts: 849
    edited October 2010

    Ellie - I have a great devotion to St. Joseph.  When I was a single mother, I placed myself in his care and asked for his intercessions, since he took care of the Virgin Mother and Jesus.  I asked him to help me financially with my little family, and I always had enough to make ends meet.  I can't find my little prayer card that I used, but here is a nice Novena:

    Oh, St. Joseph, whose protection is so great, so strong, so prompt before the throne of God. I place in you all my interests and desires. Oh, St. Joseph, do assist me by your powerful intercession, and obtain for me from your devine Son all spiritual blessings, through Jesus Christ, our Lord. So that, having engaged here below your heavenly power, I may offer my thanksgiving and homage to the most loving of Fathers.

    Oh, St. Joseph, I never weary of contemplating you, and Jesus asleep in your arms; I dare not approach while He reposes near your heart. Press Him in my name and kiss His fine head for me and ask him to return the Kiss when I draw my dying breath. St. Joseph, Patron of departing souls - Pray for me.

    This prayer was found in the fiftienth year of Our Lord and Savior Jesus Christ. In 1505 it was sent from the Pope to Emperor Charles when he was going into battle. Whoever shall read this prayer or hear it or keep it about themselves, shall never die a sudden death, or be drowned, not shall posion take effect of them; neither shall they fall into the hands of the enemy; or shall be burned in any fire, or shall be overpowered in battle.

    Say for nine mornings for anything you may desire. It has never been known to fail, so be sure you really want what you ask.

  • Estepp
    Estepp Member Posts: 2,966
    edited October 2010

    I hate to hear this about all the Laurens... WAY TOO YOUNG. This goes to show.. if you are BRCA +... do NOT wait to have the mast. ( JMO)... Oh how I am sorry for this young girl and her family. God please heal her. PLEASE

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited October 2010

    I will make sure a whole rosary gets done tonight for prayerareanswereded, paula , Ellie and Lauren. Taylor L&H&P Sheila--- I have trouble staying awake for a whole rosary at bedtime, but tonite it will get done. Laura I willwrite it , I think I have, but i will do it again. God made it happen it's good to talk about. UNTIED/Tough NamasteSheila

  • Estepp
    Estepp Member Posts: 2,966
    edited October 2010

    Untied and United.................... I wish Firni were here to remember this...:) Lilah too.... :)

  • torigirl
    torigirl Member Posts: 748
    edited October 2010

    Sisters...

    Just checking in since I really haven't all done...so many new posts to read and catch up on!

    Blood labs went well for the most part. Had to pee in a cup, but they went ahead and sent me home with a prescription for an antibiotic. So, looks like it's some sort of infection or maybe not.

    I just want to feel better...I"m a mess, aren't I?

    At any rate, lifted you all up in prayer during my rosary.  Hope you all felt the blessings...

    Peace and prayers,

    Tori

    DE COLORES! 

  • apple
    apple Member Posts: 1,466
    edited October 2010

    middle and confirmation name?

    I am Mary Magdalen Anne Bryde Stevermer

  • torigirl
    torigirl Member Posts: 748
    edited October 2010

    SAS-

    Thanks for the toothbrush information. I've been a bit paranoid about my teeth during treatment as I've always had issues with my teeth.. I do use an electric toothbrush and did buy the vio-light that uses UV light to get rid of bacteria...so hope it is working!  I also have the prescription for Prevident...I"m' keeping my fingers crossed all goes well....

    Peace and prayers, 

    Tori

    DE COLORES! 

  • Estepp
    Estepp Member Posts: 2,966
    edited October 2010

    Tori.. we are all a mess..... it is ok... anyone who begs to differ is wrong......xxxooo

    I am still worried about Paula

    Laura Anne Monica........

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    oh no, I fell asleep! I am worried for Paula too,  sheila PM'd me.  so while we all wait, I will read all of your wonderful post Theresa

    Hi Everybody!

    Sorry about your car Ellie :(

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited August 2013

    Good evening sisters,

    I waited for almost 2 hrs and I I was the last one to leave his office. Well I was very thankful that they saw me.  First it was his PA then Dr.  He palpated my underarm, it twiched a few times and he is aware of my numbness but assured me the symptoms were all from radiation and will get worse.  He did not see any infection, but it is all inside (not on the skin, no blisters), he checked my arm but said that he didn't think anything was pressing on any nerves :-(

    DH came back to pick me up after getting daughter from her campus, then wade through traffic and went to Sam's Club for some groceries.  Just now got home.  I haven't read all the posts yet, I will go back and read them, but thank you all so far for waiting for my prognosis.

    SO, no antibiotics, nothing.  I did get a rx for a sleeve for future flying.  I guess I will just have to call if the numbness gets worse.  Sometimes it is scary to think that the arm has to be 3x bigger than before or blisters with pus coming out before they think it is a problem (I'm just being facetious).

    A Great Big thank you all for waiting up on me!  {{{{{{HUGS}}}}}}

    Going to eat now :)

  • Estepp
    Estepp Member Posts: 2,966
    edited October 2010

    Dear Lord Paula.. I pray you NEVER get LE.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited October 2010

    OH what a relief. we were all praying. Having his eyes on it, but it's like I said in the pm until his eyes were on it you don't know. What did he say to expect as far as symptoms and when should you take action. Your description has such a mixed picture. Does he say to continue rads. ??? How does he compare it to other rads presentation.  ????sheila

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    well, now that's a story with a good ending!

    Laura,

    Do you see a PT on a weekly basis for your LE?

    I am going to see the PT on Wednesday for the LE in my hand, in the pads....to see if we can get this turned around. I'll let you all know.

    Glad to see we are all looking out for each other!

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    Torigirl,

    Glad to see you started on antibiotics, you don't want it going beyond UTI. Make sure you have good fluid intake :) Are you feeling more like yourself? When is hubby back?

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited October 2010

    Squid come on back --I don't know anything effectively about rads, help.

    Paula. all the signs and symptoms in my last pm can indicate a worsening. So if your doc didn't tell you that--- if your s/s get worse to come back or seek medical attention THen thats what I'm saying.  Try and cut and paste my last pm so squid can read it. I so wish -pray . I am at a loss for words and that doesn't often happen. I'm confounded Sheila

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2013

    Laura you are so right-I won't add anymore tonite ,but I'm likely getting into your same boat. And more ,but this has been a pretty emotional night. We have to tell them over the next few days the story of untied /united/ and tough.I do need to get back to foobville. In trying to find the toothbrush page I had to go through so many pages. Wow Let everyone know i send my love. I reread the watermelon story what a hoot. And about Vegas with everyone checking the Foob. Fipples/ and tat work

    Squid honey where are you? Frankly I need as much reassurance as Paula .

    Anyone here tonite that has rads knowledge? SAS

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited August 2013

    Hello! ( I just wrote Jello!)

    I was off in a wonderland that Theresa wrote for me regarding St. Francis.

    I think what I am hearing is that this is part of the Radiation picture. We all react differently, and I had redness that started week three, and it did progress to some pain, shooting pain, and I would coat the skin in aloe. I also did very well, and I had tenderness under the arm, and would flinch when my MD would press into my skin. My arm did get tighter, which I realized when I would try and lift it up. It was just yesterday, that I realized I had more range of motion in my shoulder (fall notwithstanding.) (my rads concluded end of May)

    I know I don't create a cozy picture, and I did very well compared to many. I don't say these things to scare anyone, or say you should stop. I hope to maybe normalize this experience. It will get worse. I was given a prescription for Biafine which I used twice a day, once immediately after rads, and once before bed. I used hydrogel with aloe to soothe the area, especially the redness.

    I had weekly appointment with my radiation MD, and the Rad Nurse also helped normalize the experience telling me the ranges of reactions.

    I would ask your Rad onc or Nurse what else you can use to help treat the area, and what you can use to help with pain/discomfort. I can't say what your course will be Paula, having discomfort this early on. We are all so different in how we respond to things. I think you have been in the Rads treatment thread too to discuss? Would you be more comfortable with a different treatment team? I believe you have another site, but it's an hour away?

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2013

    Oh good your here squid Thanks for all your good info Sheila

    I guess using michelles thought for the night of giving it up to God and go and start the rosary SAS Sheila Ann Marie

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Sheila, Traci ~ I really don't know what to say except that the BS did check my axilla, pressed every where and I said a few "ouches" and jerked a couple of times.  I repeated the numbness that got worse over the weekend.  He even asked if my rings were too tight and I said a tiny bit.  Showed him the inside crease of the elbow and said it even looks like it's got water inside.  But really it did not grow big enough to cause alarm to whoever is looking.  The doc said that he's sure that it sure feels different for me and he agreed that I did not show signs of much pain after surgery and at each follow up and that I do have high tolerance for pain.  That right now it is bothering me more than the 2 big cuts from surgery. 

    All he said was the effects from radiation, as if I got a bad sun burn (but I told him it does not feel like a sun burn).  I've tried and do feel frustrated.  I also asked what if it gets worse, and he said to call their office right away.  Did not say stop rads :-(

    At one point, I can almost see that they may think that I'm a hypochondriac (which I'm not).  My PCP don't even see one more than once a year before and I used to hate it to go back just to get a prescription for blood pressure meds. 

    It's really frustrating, they should invent a scanner and whatever we feels can be determined by a scan, like an error code (LOL).

    For Ellie ~

    PRAYER IN TIME OF FINANCIAL DIFFICULTIES

    God of Mercy and Compassion, you promise to give us all that we need.

    As we face this time of financial struggle, help us to trust in your providence and keep our hearts fixed on the treasures of heaven. 

    We ask this through Christ our Lord, Amen.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    Paula,

    what about scar tissue near the area?

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Traci ~ you're right, I didn't really get that pink although there is a small spot (where the infection was next to aerola) is sore and a light purple.  Rad onc said it could be an inflamation (not come up to the surface yet) but is radiating to the lymph area.  He did confirm a very slight swell last Thursday and said to "keep watch on it". 

    Over the weekend it is the slgith enlargement of the swell and numbness of the arm (the latter is what bothers me, because you can feel it all the time). 

    Oh, I even said to the surgeon, it feels like the blood not circulating properly and as if something is pressing on the veins. 

    Traci ~ can you please ask your Rad MD, if the beam penetrates the heart?  My rad onc said that my treatment from the L tangent does hit my heart but he said that the heart muscle is strong enough to take it !  - I'm so hating this -

    Laura, how's your LE arm?  What do you feel? Does the finger gets swollen as well?  

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited October 2010

    Traci ~ the scar near the axilla was painful with a small area of skin being light purplish color, like the size of a half dollar.  It is very tender to the touch but the skin is not burnt.  The tenderness is inside the tissue/muscle.  I'm wondering if it is because the beam destroys the small blood vessels, I don't have good vessels as I have lots of varicose veins in the calves. 

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited October 2010

    Paula What antihypertensive ar you taking many of them can be sensitive to sunlight Which is Uv radiation. I'll google it and see if any antihypertensive can make your skin and tissues more sensitive to radiation .What other drugs are you on. lets call this a leap of faith Sheila

  • mmm5
    mmm5 Member Posts: 797
    edited October 2010

    Been soooo busy today, will post about Novena tomorrow, found it just need your intentions!

    We will add Ellie's and Go through the one's on other thread as well.

    Please PM me or list here new intentions.

    The St. Jude Novena will be posted tomorrow but we wont' start until weds/thursday so you can prepare. You need to really be able to set aside quiet time for this Novena and drop by a church for 9 days (any church) to pray and leave copies of novena. So start preparing for that and we will begin together this week.

    I would love to give  an example of some of my spiritual growth over the last couple of years. I think I have always been a good person (most of the time) and wanted to do good things. BUT I got wrapped up a lot in the earthly things of this world, DH and I had very good jobs, really nice home, vacation home etc. When I had bc dx I went through hell, I had 3 little boys (youngest being 4) and a month after my dx my middle son was rushed to hospital and dxed with juvenile diabetes. He was in the Hospital for 5 days, during my first chemo treatment, I couldn't visit him and my DH could not be with me as he had to be with my SON. My parents flew in from Seattle to be with other boys. We went through so much stress trying to get him regulated and me doing chemo and 4 surgeries over a year, I finally quit my job after 17 years. I gave up thousands in Stock options and all kinds of other great stuff. We rented out both of our houses and moved into a small rental while we could regroup. One week after I quit my job, MY DH lost his good job (laid off) we went from having everything to nothing except our family. I was living in a house 1/3 the size of my home and honestly I was so much happier not worrying about the cleaning, landscaping, pool etc.

    After 1 1/2 years in this rental we finally decided to buy a house close to our rental and we made an offer last week. There are many particulars and we are waiting for a counter offer. Normally I would be going crazy thinking about how to get this house (its perfect) and trying to control the outcome and praying we get "this"house and NOW............I totally forgot we made an offer and I am kind of just hanging out to see what has happens. I pray now for the big picture.

    Lord please let me see my family raised, please heal our financial situation, instead of cure me right now, and let me get this job, and my Husband another specific job. Now I just know I want to be with my beautiful family and be OK, but God can decide in which way we do that and where etc etc

    God Knows the best outcome for us, anyway the more "I give it back to GOD" I am so much happier and OK. Honestly I still worry a lot about bc, because I want to be with my family and children, but other than that I just don't worry about much, and am working very hard to let that go as well. (it's a tough one for me)

    Anyway thought I would just share a little about what has evolved for me and where I am hoping to get to as well. 

    Ellie - Please give over your worries about money tonight and believe that situation will be healed, it may take a little time but it will happen. It is happening for us and we were in a bad predicament. Just keep letting go and follow your soul and listen. We will pray for you on this issue and I believe good things will follow. 

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited August 2013

    Sheila ~ it's benazepril 40mg, once a day.  I hope that this is not being affected by rads :-(

    My DH and I are heading to the airport to pickup my sis from Toronto, she took 2 weeks off work to come visit and help us.

    Good nite all.  TTY tomorrow.

    xoxo

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited October 2010

    Michele Bless you for your story. Your an inspiration. Thank you for setting up the novena St jude is a good choice this week, Everyone has so much going on

    Paula I'll do a search and get back to you. The one thing that would be way good, is if it can be affected by rads , you can change to something else.

    To all---Remember prayersareanswereds  surgery is today

    Namaste sheila--and goodnight

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited October 2010

    Michelle,

    Your story reminds me of how quickly our circumstances can change. What brings us back to God. Learning to trust God and praying with trust in outcome. That's a challenge for me, which involves changing my way of thinking. It's true that God knows best how to bring us to our best selves.

    Did you ever hear the expression, that which you resist, persists? For me that's always trying to re-route my life to what I want, and frankly, it doesn't go very well. Since one of my core belief's is my choice of challenges during this lifetime, it behooves me to step back and look at the bigger picture, as you say Michelle.

    Some things are terribly hard to let go of, and I struggle, I do. Or I wish there had been more time for me to be in certain places in my life. But it does move on, so resisting means I miss the grace of where I am now.

    So to have the goal of enjoying your family, with some measure of job security are attainable, humble loving goals. (and I don't mean that to sound judgemental, I mean it like they are heart desires, and are about loving you and your family and seeing their value above all.

    so, I do have a question...I don't have a set Church, but there are several on my way home. I have to see if they are accessable, and I can use the chapel. Can you tell me more what we do at Church?

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited October 2010

    Michele ditto to what Squid asked and what if we can't make the church? Sheila

  • apple
    apple Member Posts: 1,466
    edited August 2013

    a lovely story Michele (mmm5)

    i am beginning to be challenged by all of our names.. what name matches the screen name.

    Estepp is Laura

    Sas-schatzi is Sheila

    Diamondgirl is Paula

    squidwitch4 is squidwitch4.. no, Traci

    Torigirl is Tori..

    Theresap60 is Theresa?

    JanetinVirginia is Janet

    lovesmyfamilysomuch is Ellie

    hood1980 is Joyce

    patmom is Pat

    (HELP)

  • hood1980
    hood1980 Member Posts: 168
    edited October 2010

    Hood1980 is Joyce  :)