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  • Estepp
    Estepp Member Posts: 2,966
    edited November 2010

    I am so sorry I have had little time to read here... I have many PM's  to read and respond to... SO MANY ladies needing help.. new sisters to BC ...... PRAY FOR THEM

    I am going to BEG prayer for our VOTE today......

    ONLY on MY CATHOLIC THREAD I will post that......... I PRAY TO GOD, our FATHER, that the Rep. rule this vote today.. and CHANGE CAN HAPPEN

    Well,. change DID happen since OBAMA took our lead...... and we SO SO SO need this VOTE to take over the evil that has happened the past two yrs in our USA.

    GOD BLESS AMERICA!!!!!!!!!!!!

  • Estepp
    Estepp Member Posts: 2,966
    edited November 2010

    THOSE ON RECONSTRUCTION....... I PM'd you each .....

    FYI... I HAVE 500CC implants alone. Alloderm used. NO FLAP HERE! BOOBS ARE GOOD!

  • kindone
    kindone Member Posts: 435
    edited November 2010

    Traci I don't understand if your TEs are filled to 650cc then why don't they just replace them with implants the same sizes?  You are already stretched that much, or did you want to go bigger?  My TEs were only filled to 300cc.  My first PS said I would be bigger and then when I had surgery that wasn't the case.  I am disappointed, but I am afraid to mess things up.

  • Estepp
    Estepp Member Posts: 2,966
    edited November 2010

    Ok... so I am watching the VOTE

    I just heard this....

    " the MOST educated women... vote Liberal/Democrat "

    ---------------REALLY-----------

    ???????????????????????????????????????

    WOW.

    I am educated.

  • janet in virginia
    janet in virginia Member Posts: 923
    edited November 2010

    I hope Carly FIorina wins in CA - at least there would be a REAL breast cancer advocate in Congress!  Maybe there are others - I don't know.  But what I do know is the country needs to make cancer cure a priority.

  • kindone
    kindone Member Posts: 435
    edited November 2010

    Laura I just pm you

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    betty,

    I know, I am so confused right now my head is spinning! She just tossed the ball out then that was the end of it, saying we'll talk more closer to the date. I am even a bit overfilled with the intention of having 600 cc implants. I do have an idea though (stand back, she's gonna blow!) My PS is going on maternity leave, so I can see my friend's PS for a second opinion without feeling uncomfortable.

  • Estepp
    Estepp Member Posts: 2,966
    edited November 2010

    Squid.....You have my opinion and advice via PM... so do you Betty....:)

    ALL I CAN SAY

    " Quiet and polite women rarely make history"

    As for my Squidward..............

    As for rads and implants................ this above quote applies to you.

    Rads....implants.... Alloderm... fat grafting...... WILL BE MAKING HISTORY! Be part of it Squid!

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    Love It!!! Thanks again Laura for all of your help, encouragement and advice. I feel like I have options now, and I seriously don't want to be cut into any more! I already had surgery on my back muscles, and it was very painful for months. Who wants that again, if there is another option?

    Sheila,

    I wanted to say the service sounded so special, and I have no doubt Greg was there with you. I hope you get good rest tonight, so we can enjoy your presence again tomorrow. You have had a few late nights, so I am comforted that you are sleeping.

    God Bless you All!

  • DiamondGirl
    DiamondGirl Member Posts: 695
    edited November 2010

    I'm starting to feel fatigue now.  14 rads down and 19 more to go.  I did get to see the other dr. today and she's very nice.  Told me that she can't see any infection but listen intently to me talking about the numbness of the L arm, wrote me a prescription for a PT to evulate and measure my arm.  At least I get a jump start and hopefully something.  Best if the numbness goes away completely by itself.  With science being so advanced, it would be great if each doctor/specialist studying that particular specialty be able to be fitted a "computer chip" so that they will feel and go thru what the patients go thru (like pilots doing practices in flight simulators) so that when a patient tells them this and that hurts or this and that side effect, they will "KNOW" exactly what we are talking about.  Ha ha I'm just babbling tonight.  I'm tired of repeating this sensation until I can convince someone or that a doctor understands what is really happening. 

    Traci ~ whenever I encounter a disappointment, I usually tell myself that it "wasnt' meant to be".  Either I wasn't supposed to have it, or something is not right and needs to be changed.  It's almost like something is telling you "not to force the issue".  It's a strange understanding that I knew since I was a kid. I may not make sense but I will find a way to explain it later. {I PM'd you}.

    Good nite.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited November 2010

    Theresa and squid--doggy story kind of sad. Schatzi is a germanwirehaired pointer mix. Well for awhile now when we let her out or come home and let her out. She walks around the cars. It's been going on awhile, don't know exactly when she started, but tonight I figuired out she's looking for Greg. Same routine and then she goes to the grass. Previously never did this.

    Went to bed@ 10p---no sleep.  Im going to qualify for hooded eye surgery soon and get the bags fixed OH well try again

    We didn't hear from PRA today she was supposed to get path results.

    Theresa went you get achance would you post the acceptance prayer please

    I would love to have the archive of our prayers. Wish we had a secretary we could give the assignment toHMMMMMMMMMMMMMMMStarting to nod. Love

  • apple
    apple Member Posts: 1,466
    edited November 2010

    I am going to have to get up 15 minutes earlier to read this thread.  So amazing.  I spent the evening with my dear brother last nite.  We played our duet.  Gosh i just love him to pieces.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    Mary,

    Your relationship with your brother is like looking at a picture of friends throughout the ages.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    Wishing you all a Blessed Day, and for us each to be infused with the Peace of our Lord. See you tonight, and do I understand Prayers are at 9:30 PM EST?

    (Hi Sweet Tori, hang in there, you are going through so much, and you are not far from our minds)

    Jeannine, we hold you up in Prayer, and love you Dear Sister.

  • Estepp
    Estepp Member Posts: 2,966
    edited November 2010

    Apple... thanks for sharing... " you" with us... I love it. Sweet.

    Paula... I am sorry you are hitting the hard part of rads. It was when I was half way done also. Tired. I did not have too much skin issues... I tell you.. rads just gave me a LOT of scar tissue.... and I have to stretch and do other therapy daily to calm this. Some woman go on and have no issues at all with scar tissue. They do not even know the had rads before. I Pray this  is you !

  • theresap60
    theresap60 Member Posts: 849
    edited November 2010

    Laura:  No one asked me either and I'm educated!!  Like Fr. Krempa said, everything you read is just someone else's opinion.  Truly, I hate politics and they all have an "agenda" but I can't deal with the a-moral issues that the dems push.  My DH is / was dem and reads/supports those dems who have the courage to speak out against the moral decline of their party - Dems for Life.  We need some balance and common sense on both sides to get us on track.

    Apple:  I love the picture.

    Sheila:  I'm not quite sure what you mean about the acceptance prayer.  It sounds like Schatzi is looking for Greg. :-(  Dogs are so human sensitive.

    Traci:  It sounds like you're getting some great advice!

    Normally, we don't need to put things up for naughty doggie, but she gets crazy at halloween and we forget.  Grandson left the little bag of M&Ms on the table and we just didn't notice.  Yep, I know about the chocolate thing.  We had a beagle a long time ago that got into candy kisses and ate a lot of them, including the wrapper.  She was ok.

    I thought prayers were 9:45 to 10:00....

  • prayersareanswered
    prayersareanswered Member Posts: 26
    edited November 2010

    Dear all,

    I did not have the courage to log on yesterday after my post op visit. Turned out the one sentinel node they removed was positive so now not only I am scheduled for another surgery next Wednesday for an axillary lymph node dissection, but also my treatment will now include for sure chemotherapy (I am 39, one node positive and tumor size is between 2 and 5cm) and most probably radiation. I could not do anything but cry cry cry cry......I am so discouraged. I will have bone scan and ct scan tomorrow or friday and i feel i just cannot take anymore. i am tired of waiting and getting bad news. my sister was here to help out for a couple of weeks but she will have to leave soon. i don t know how we are going to cope. i have two little boys (4 and almost 3), my husband is not working.......Please God, help me.

    I am sorry if I feel like I am selfish only talking about myself here, I have nowhere to turn to. My parents are not here and there is no way we can tell them what is going on, that would kill them. I fell so helpless, so hopeless right now. I cannot sleep at night, I cannot eat...my boy saw me crying. I have been trying to stay very strong but yesterday was too much.

  • hood1980
    hood1980 Member Posts: 168
    edited November 2010

    My love & prayers go out to you prayersareanswered!  We are all here for you & will do all we can to support you through this!  You will make it!  You can do it!!!  Where are you located sweetie?  I think you need a second opinion from a major medical/cancer center before having a complete axillary lymph node dissection!  I had a very dear friend that was sent to me through divine guidance I am positive to help me through my BC experience.  Keep your your spirits up & keep praying.  I bet there is an angel in the waiting to come help you too. 

  • Estepp
    Estepp Member Posts: 2,966
    edited November 2010

    Prayersareanswered. ( What is your real name)

    I KNOW HOW YOU FEEL!

    Here I was 39 too. I had a 3+cm tumor..... and then if that was not enough... I had 1-3 nodes positive ... it was UNBELIEVABLE! I just cried... and cried..... and cried some more. My two sons were older than yours. I had to tell adult children this all. THEY understood it all... and it was HORRID to tell them.

    I could not believe it, that 2 1/2 years ago.. I was looking at chemo.... big surgeries... rads for sure.... herceptin for another year after.... WOW... BAM...... and the idea of putting in a port freaked me out... ( it was no big deal though)

    No one in my family or friend circle had ever had this... I was the first ( I HATE GOING FIRST... but I always do.... so God thinks I am good at it)

    ANYWAY........ I wanted you to see that I too, was in your shoes.... and now I am 42..... and doing GOOD! My cancer is GONE...... GONE .....GONE....!

    PLEASE..... give me your name.... PM me if you wanna talk. I will walk with you ALL THE WAY THROUGH THIS if you want me. Really! I am offering you my time and love to help you sort this all out.. I will hold your hand through Chemo.... and ALL THE REST. I will give you my private e-mail to talk to me through... all hours of the night,,,, you can just sit down any type your heart out to me. .......and I will respond fast.

    Please look into St. Peregrine. I have a devotion to him now. Honey, please put all your effort into prayer...God is with you.... He is!

    Let me know HOW I can help you. If you want me... I promise to walk with you for the next few years.

    Laura

  • apple
    apple Member Posts: 1,466
    edited August 2013

    prayers are answered.. hang in there. 

    prayers for all.

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 762
    edited November 2010

    Dear Prayers,

    Thank you so much for finding the courage to reach out to us today.  We are here for you--you can count on that.  This wonderful group of women are on your side!  You are not alone.  I am so sorry you are going through this--it is so not easy--.  Praying for you and sending you lots of love and support!! xo

  • kindone
    kindone Member Posts: 435
    edited November 2010

    Prays I am soooooo sorry to hear about your path.  I know how you feel.  Feel free to vent any time to us we are here for you.  I've been through chemo and rads its not fun but doable.  You will get through this, and be will be right here with you. Please keep your faith and you will be every stronger.  Praying for you

    Betty

  • janet in virginia
    janet in virginia Member Posts: 923
    edited November 2010

    Hi prayers.   I know you're feeling overwhelmed.  I wish I was there to put my arms around you and say it will be OK.   Just try to just take one step at a time - this is all treatable.  On many posts I;ve read that node positive has a good side - the node was doing its job to catch random cells and avoid spread. 

    And this is the time to ask for help & not try to tough it out alone, especially with little ones.  I bet you'd have an outpouring of assistance if you contact your parish office.  There are all kinds of volunteers to help with rides to doctor appointments & treatments, babysitting, meals, etc. There are also interfaith organizations too that the parish office should be able to get you connected with.   That's what they are there for!!  Our parish even has its own food bank, baby clothes exchange, Christmas presents, Tksgiving dinners etc. etc. etc. -- with so many people out of work, it has been a Godsend to many.  By taking advantage of these, you also actually help other people fulfill their own needs to help. (probably didn't state that very well but you know what I mean).  You will be blessed by their help and they will be blessed by helping.   So, pick up the phone and make a call.  I know they will help.

  • theresap60
    theresap60 Member Posts: 849
    edited November 2010

    Prayersareanswered:  God bless you!!!  I know God heard your prayers for healing, but for reasons we don't know, he wants you to walk this path, either for you or for someone else.  Lots of good advice here, and pray, pray, pray.

    Yes, contact your parish and Arlington Diocese...

    Christ House, 131 S. West Street, Alexandria, VA 22314, 703-548-4227

    Catholic Charities, 703.481.3830

    I'll PM/email when I get home.

  • theresap60
    theresap60 Member Posts: 849
    edited November 2010

    I almost forgot... for you or anyone else in need of help (financial, physical, logistical)... contact Red Cross.  My DD works for our local chapter.  She will bring home local Virginia numbers tomorrow and I'll give them to you Prayersaa.

  • prayersareanswered
    prayersareanswered Member Posts: 26
    edited November 2010

    THANK YOU so much everyone ! I read and read and re-read your messages, make me feel so good. thank you so much.

    thanks a lot for the kind words, the kind advice. I wish I could get a second opinion but I don t know where to go ? Anyone has any name, recommendation in the DC area ? I live in Virginia and my surgeon is at the center for breast health in the virginia hospital center in arlington.

    i will have the bone scan and the ct scan tomorrow morning....thank you for your prayers.

    God bless you all

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited November 2010

    Oh, I am so sorry this has been so rough for you!!! Please know we are NOT going to let you go down, K? We can help you with the referrals, and I received help from DC Breast Cancer organization, so hold on, hold on. I say that only to soothe you, let us do our thing and rally, and I think we will be having a few PM's light up here.

  • pagowens
    pagowens Member Posts: 61
    edited November 2010

    Hi Prayersare answered,

    The beginning of this BC journey is the worst - the not knowing all the facts, the revalations from one test to the other.  I started as a "probably Stage 1 or early 2....then the size "got bigger" and the sentinel nodes came back positive and -- viola!  I was stage 3 a.  I remember taking the bone scan and PET scan and soooo anxious about....had I moved on to Stage 4?  The anxiety of not knowing all the facts was horrendous.  After we got all the tests done and all the data in...a plan was put togetber and we all got on with doing the plan.  At least then I was doing something positive for myself...even though it was surgery, 6 months chemo, 33 rads and now daily Femara.

    So for me, the worst part of all this was where you are right now.  Hugs across the miles!  I know my anxiety was very high and I was seeing myself dead and gone...what about my grandson?  what about my husband?   Yup, I got pretty carried away.  Here I am 1 year later - doing okay and still around and kicking.  My heart is with you, what you are feeling is pretty normal - scared and in shock.

    I'll keep you in my proayers tonight that God provides you a good night sleep so that you can prepare yourself for the tests and the data to come.

    Pat

    PS  We attended the nearby Gilda's Club Halloween Party - what a great experience.  I did dress up as Wonder Woman and met mini-me there.  See my new Avatar!

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited November 2010

    PRA  All the words above reread several times. There is one or more pearls in each response. That means good information. We have all had the day you had yesterday. It sucks. On the same day I found out I had breast cancer I was told I had a brain tumor.  I'm still hereeeeeeeeee. As are your other sisters here. We have all said "Why me". As JV has said and I believe it is the hardest thing to hold onto right now is ONE STEP AT A TIME.  Theresa's comment "He wants you to walk this path".

    I am going to ask some very direct questions because they will help all here guide you. Apparently you are in Virginia.  Do you have insurance?  If yes Immediately call and ask for an assignment to an oncology case manager. Ask for a social worker to be assigned to your case. The two people will be a wealth of information regarding resourses. If no insurance, call 211 if you have that in your state. Where it is available, it is a resource for all available resources in your state. Why do you feel you can't tell your parents-- this is very important to share with us? This is the time to circle the family and friends wagons.

    Go to the just diagnosed forum. I have a topic thread there Its pinned "Just diagnosed get prepared". It has practical things to think about in keeping yourself organized. There are suggestions from other people as well. Native Mariner has a very good list of mobilizing similar resources that several others above have mentioned. Anyone here that can go to the thread and add info it would be very welcome.

    Full Lymph node dissection is a hot topic -- research is coming back in the direction of ---is it really necessary to do all nodes. It has been the standard for about 13 years. But its a toughy because newer research is questioning outcome with complications vs affect on survival . A second opinion is definitely warranted. This is not written so frankly, to cause you more anxiety. But now is the time for action, so that you can make the best decision you can. You do not want to look back and say, if I had only known. Use BCO resources outside the discussion thread. Read from  each section. BCO has more complete information on everything re:BC than American Cancer society, Susan Komen foundation or anyone else out there.

    We have all walked in your shoes.  Hold on to your Faith more strongly than you have ever embraced it before. AS Laura has said whatever you nead from us, you will get. L&H&P Sheila

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited August 2013

    Prayers,

    I PM'd you, but I will share here too, so we can get all input. My suggestion for a second opinion would be Georgetown Lombardi Cancer Center. I also know a phenomenal Plastic Surgeon who operated on me there for neuromas related to my hysterectomy. I will probably have my second opinion with him, so I feel very confident in sharing his name. Georgetown has a good reputation, is faith based, and while I do not know any of the oncologists, others can probably give you their input.