Catholics
Comments
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Dear Lord, by allowing me to experience this affliction, so that I may share in your suffering on the cross for sin, you take a sublime chance that I might either draw closer to you for comfort, or turn away from you in my misery. O my Savior, grant me that precious grace to offer up my pain, as you did in Your Passion, to atone for sin. Help me to imitate your patience and to turn my complaints into offerings for my sins or for those of others, as you see fit. In this time of distress and pain, I ask, I seek, and I knock, for the grace of endurance, perseverance, and above all, trustful submission to Your Divine will, for my good and your glory.
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Pat - I miss Gilda's Club! I attended meetings and events. It's a great resource. I love the costumes!!
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Prayers - I'm PMing you.
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Sisters,
Thank you for the prayers and encouragement...I appreciate it more than you can imagine. I find myself getting all freaked out again...treatment number 3 is Friday...doing my best to keep it all in perspective, but again, sometimes my mind goes to those dark places and I get all sad again. I told myself that I wouldn't have anymore "pity parties"...but oh well!
At least I will be half way done with treatments after this one! Have to look at the small victories, right?Despite my little drama going on...still made it out for my daily walk and rosary...lifting you all up to our Blessed Mother and asking her to hear your prayers and for her to intercede for us. It was beautiful this morning and I have to get out when I can...we are sure to have a deep freeze here in the next week or so...I'm still determined to get out and walk though...(well, as much as I can!)
Prayesareanswered: You are in the right place to come for advice, comfort, hugs and prayers. The women on this thread and the women (in general) on this board as a whole, are here for you and will get you through the hardest part of the journey (exactly where you are). I've been there, and everyone else has too...I got to a point when I was hearing one bad thing after another and was ready to just walk away before all was said and done...Lean on us...let us pray with you and for you and you will make it through this!
What are the nights that you all get together and pray again?
Take care sisters...
peace and prayers,
Tori
DE COLORES!
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Tori - I'm glad you said something.... weren't we going to meet tonight at 9:45 and pray?
I know what you're going through... what your mind is going through with this chemo. I think a lot of it (anxiety, depression, dark thoughts, bad dreams) are chemical induced. I remember my halfway point and was so happy! Celebrate it. Celebrate the little things... like you're still about to go out and walk your rosary!!! To me, that's amazing! I wasn't able to do any of that type of exercise when I was on chemo. You're really strong through this.
God bless you!!
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Thanks Theresa...I don't think I'm strong at all...at least I don't feel it...I'm just stubborn!
If for some reason I can't make it out to walk, I will still be keeping up with my rosary....being able to lift you all up is my gift to you all for being so giving and sharing with your thoughts, feelings, advice and stories....
I was just on the "Power of Prayer" thread and I just feel so blessed now...so many wonderful, giving folks on there that it just makes me smile...I love that thread and this one too!
Have a blessed night,
Tori
DE COLORES!
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You woman are AMAZING! I just wanted to tell you this.... ((((KISS))))
Prayers, I am SO glad to see ladies in your area, right here on our Catholic thread... wahoooooooooooooooooooooooooooo!!!! ... I am still waiting on the leads I wrote you. It sounds like you have two ladies right here with doctor info. THAT IS SO AWESOME!
God is good, all the time.
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I'm here and starting novena prayers!
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here
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I'm here.
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I am here lets begin with the St. Jude Novena followed by an OUr Father, Hail Mary
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i'm here in spirit
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Please read off the special intentions tonight by name and extra extra support prayed for tonight for Ebann (Elizabeth) who found out her cancer has returned and for Prayersanswered.
Dear Lord shine your light on all of our intentions tonight and please hold these ladies in you loving embrace, we pray consistently and persistently for you to hear our prayers. We thank you for ALL of the wonderful blessings you have bestowed, we are so appreciative.
AMEN
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Pra-L when i did my research on all things BC, that is how I found BCO. Their info was so complete on everything I wanted to know. I have directed others to their teaching sites. And asked that each give me an opinion compared to all the other sites. To a person they came back and said BCO had the best information. It was only months later that I came to the discussion boards. It wasn't because of me, it was because of Greg and there was nothing comparable for Lymphoma boards as here at BCO. At That point I needed comfort. You need comfort, but NOT NOT for the same reason.
Girl You can do this. Time for a Namaste-- I salute the God within You. If you evaluate that statement---you carry God within you at all times, if you believe in God and I know you do. DO not falter in your belief, at any moment or at any time ever. Do not let anyone let you believe that this is your fault, or you did something to deserve this, or if you had done something different it would have been different. They're really stupid people-- self righteous that have no clue. One sight that may be helpfull is "The stupidiest Things People Have SAID to me". It's amazing how stupid people can be. And unkind.
The research on sentinel node bx was published in 1996 six months after my twin had her first mastectomy She had 34 out of 54 lymph nodes removed. I was so sad at the time because the GOAL of sentinel node bx was to tell what lymph nodes were involved and what their drainage basin was. She missed the research by 6 months. Then I never revisited the research until it came up for me 14 years later. The standard I found out then was full node dissection. That was not the intent of the original research. What I can't prove because it would be to difficult to follow is "WHEN". when did the surgeons translate the research to include all lymph nodes. It comes down to a STANDARD OF CARE . If they didn't remove all lymph nodes, and then someone could make a case that they had positive node or nodes, had they removed all nodes there would not have been a reoccurrence. What doc's have done is take the approach all come out---they can claim, then I did everything to prevent the spread. WE now know about different genetic typings , for example, Oncotype DX Score. Mine is 30 (high end of intermediate). I was node negative , but I have a high chance of reoccurence at a different site even though I was node negative.
Complications of full lymph node dissection are a lifetime of dealing with the prevention of lymphedema. Lyhphedema is a chronic hell.
Ask your doc for an Oncotype dx score before consenting, but it is necessary to understand your pathology report. ASK the office for it or go to medical records of the hospital that performed the test and tell them you want a copy. They legally have a right to charge a fee.
Thats where the teaching site on BCO can help you understand your Pathology report. My cancer was very aggressive. I was lucky I was into the elective research for prophylatic bmx. Had I not been, i'd likely be gone. I am not you. You are you. Each pathology report is different. Do not assume your case is like anyone else's case. You need a completely explained reason for treatment. Path report, margins, Grade. If you got a lumpectomy vs mx do you improve your chances by getting a mx or even bmx. Life without boobs is life.
You have been told you need a full Lymph node dissection. Question is that supported by pathology report? Oncotype dx score is? Why can't we wait for oncotype dx score? What is the latest research in support of full lymph node dissection?
I recently Questioned Paulas antihypertensive treatment in relationship to her radiation therapy---shot in the dark ---found out the drug she''s on is good----found out the drug i'm on is bad. Thats what research is about. Research. Never ever stop questioning. You have a right to all answers. Just because it has been a standard for a number of years(13 1/2) does not make it the only approach. The person that invented the lobotomy got a Nobel prize. We now know and have known for many years it was wrong. L, I say none of this to confuse you or frighten you or sadden , but it really pisses me off when we are only given one option and no explanation of choices. Pm me with questions if you don't want to put them here.
The difference with pm think first, could someone else reading these past pages have learned something, LOVe sheila
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God bless you all ladies!
Thanks for joining me tonight!
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I'm here sheila
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Amen everyone. May the peace of Jesus be with you tonight.
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Are we here
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Good night -- thank you Michelle!
Sheila - thank you for the research.
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Theresa I don't know why I can;t remeber the name of the prayer---but it is used by so manyI believe aa uses it . Let me accept-------
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Amen.. and I was here.
EBANN/ELIZABETH <------------------ oh sisters.... stage 4.... BC in her bones. I cry for her tonight... and I just met her in Vegas. I posted her on our intentions thread.
SAS.............. ARE WE STILL USING THAT THREAD?????????????????????????????? I sure am... but want to make sure it is getting seen??? Am I doing the right thing girls?
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Laura what threadddddddddddddddddddddddddddddddddddddddddddddd???????????????
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The Intentions Thread --yes It will be there for years and years. It will be like the bulletin at church if you enter an Intention you can date it and then because you entered it you can re-enter it and add another prayer or intention. If their is something new like surgery If you had entered an Intention you can re-enter by edit and add a new intention for that person. That is what is so unique to BCO. Your topic threads that you have done you can alter them at any time because the computer recognizes you. Love it----Laura of the sweet heart--Love sheila
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OK.... just making sure!!!
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Sheila, Is It the serenity pray?
God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;
That I may be reasonably happy in this life
and supremely happy with Him
Forever in the next.
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Trust in the LORD with all your heart
and lean not on your own understanding;
in all your ways acknowledge him,
and he will direct your paths.0 -
Betty thanks so much
Pra-L this is the prayer to keep beside you dear one LOve sheila
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Hey where did everyone go? Just kidding, I'm sorry, I have just been wiped out and taking on more work since a Nurse resigned (due to family obligations.) Betty, thanks for your prayers, and yes The Serenity Prayer speaks volumes.
I'm going to get my wrist X Ray-ed tomorrow, it's still making itself known. I'm also having to play the where can I get my sleeve and glove covered by my insurance game. 45 minutes on the phone, switched to 6 different people, and all were mistakes. Really? I have to say, Tim, was my least favorite of the bunch, and I told that on an automated message, and it's probably Tim who takes off the messages. so, still plugging on, but feeling a bit cranky due to fatigue, pain and trying to sort stuff out. I'm sure this is not new information to anyone here.
I hope you all have a very blessed day tomorrow, and Prayersareanswered, we are sending our prayers to you. Also to Sisters Ebann and Jeannine, and our Intentions list.
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My insurance will pay.. 80% of the cost of a LE/PT
BUT: will pay 0% for any and ALL my LE material.... no sleeves.. no gauntlet.... no mummy wrap.. NOPE NOPE NOPE........
Binney....... this makes NO SINCE to me???????????
If Blue Cross will PAY for my therapy FOR LE.. WHY in the hell won't they pay for the TREATMENT GARMENTS my PT says I need, for LE??????????????????????????????????????????????????
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okay folks- the prayer archive is done----forum >prayer and spritual >catholic prayer archive with Invitation ro all. The words are self explanatory
Betty I would so like you to lead it off with the serenity prayer. That would just be such a great start.
To all who are so good with prayers please add to this thread to get it going. I have seen so many prayers that bring so much to each of us. That when the need is there, the prayers touch the soul of us, but then they are gone by the next page. If you believe as I have written on the archive page, that they will bring solace, peace, joy to others and have patience to add those prayers to that space please consider it Love sheila
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