MIDDLE-AGED WOMEN 40-60ish
Comments
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Well, I'm supposed to start my prep tomorrow night for my 1st colonoscopy so I just got back from the store with my supplies. 2 Dulcolax tomorrow night, followed by a day of Miralax mixed with Crystal Light lemonade. They said I could have Gatorade, but just the thought of Gatorade makes me want to puke! I wonder if I can have my Miralax/Crystal Light cocktail on the rocks?
Yes Eph, I have put this off long enough. Elimar's nudging plus the fact that I've met my deductible have finally pushed me to do this. I've met my deductible the last 4 years, and I hope I DON'T make it next year. Going to finally have a bone scan, too, the following week.
Elimar, I hope your mouth is feeling better! Constant, constant swishing of Magic Mouthwash should hasten the healing.... well, that's what worked for me but it didn't all begin with a reaction to contrast dye, then piled on with shellfish, THEN the chemo!
No tengo ni idea de lo que estás diciendo, pero mi hijo le gusta cambiar mis gadgets a español sólo para confundirme.
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Answering as I read ... Eli, my vision definitely improved after stopping Tamox. My eye doc wanted every 6 mos visits too, and she isn't generally an alarmist at all so I complied. Once I was off Tamox, we went back to a year.
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I could have any clear liquids so made mango jello and drank room temperature apple cider along with room temp water (I can't chug cold things). I recommend the apple cider. Best idea and you could warm it if needed. I can't handle Gatorade.
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Shaving under arms - am I the only one whose hair never grew back under my arm? I figured that was common, but after reading lots of posts here, apparently not! I had the one sentinal node positive, so axillaries taken. Maybe I got more rads in that area even though no axillaries positive? I have to remind myself to shave under left arm ... even though no rads or surgery on that side, that came back really light too. To those who still have to shave and prefer regular razors, I highly recommend the Schick Intuition - I think I've only nicked my legs once in about 10 yrs of using that razor, and no shave cream/gel needed - the head of the razor itself contains a lubricant bar. Pricey, but for me, well worth it.
Eli, don't even start about how some recent pages have been more about you than you'd like. Let's scroll back over a few hundred pages and check to see how many you posts you put out there to each of us with encouragement, guidance, knowledge, humor ... I can't even cover it all. So please continue to honor us by letting us feel that we're maybe...just maybe...helping you now by giving you a safe place to vent, to ask, and yes...to continue to educate us by keeping us in the loop about your treatment. I'm among those who love you and will boost (no pun intended) you into that 20% so this can all be ... ahem ... behind you before you know it.
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I had about 5 hairs grow back on rads side, and my leg and other underarm arm grew back really sparsely, I wasn't really hairy before, but this is way less, my eyebrows, eyelashes are more sparse too. My hair on my head is actually thicker.
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LOL, on the Spanish. The only Spanish I know is from amusing myself on the NY subway back in the day by deciphering Spanish ads for roach killer. Sadly, I have to inform you that this background is sufficient to understand your posts
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In Canada bilingual is french ... So my Spanish is very limited ...
2 cervezas por favor0 -
Good Morning Ladies, I am having my breakfast with you today. I can no longer have my habitual cup of hot tea. It hurts too much. I'll have some later at room temp. I'm having a scrambled egg. It hurts too, even after the lidocaine in the Magic Mouthwash (which has not worked it magic on me,) but I have to get something down even if it feels like razor blades in there. A few days ago, I could chase everything down with apple juice, but the juice is stinging the back of my throat this morning too. There's not too much I can eat anymore. I lost three pounds this week. At this rate, it'll be up to 18 lbs. by the time my chemo is over. I really only have about 5 to spare, so this is not working out too well. This is my day to see someone at the MOs. I hope there is some way I could have a break (even tho' it has only been a week) because I need to heal. I wonder if steroids could help, not that I want MORE drugs? Being sedated in a hospital with a stomach tube is starting to look good because every swallow brings tears to my eyes. Otherwise, I just feel a little tired, and that is probably just the Benadryl.
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Ugh! That sucks! How about milkshakes with a straw, could that work?
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It hurts to work a straw and any form of swallowing is painful. This is so unfortunate because I KNOW this (and radiation) is having the desired effect on my C/C. I had less blood by Day 2 and now just a very little. The treatments are making me feel better, all places except the mouth. I know the ones of you who had had chemo and who got mouth sores might be relating, well, I don't know if it feels the same or different. I do have mouth ulcers aournd my entire lips, the two corners of my mouth have ulcers and to open my mouth wide makes them bleed. The tip of my tongue hurts, and the taste buds (?) look swollen in the back. I can't see what up there, but my soft palate feels bumpy yet raw and it goes all the way to the back of my throat. It feels like strep throat in there, except the main pain is down the center and not on the tonsils. If you had something like this, then you probably know exactly how sore this feels. I only take Tylenol during the day (almost useless) and save the Vicodin (helps a little) for 2:00 a.m.
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I was afraid that was the case. I am really sorry you are dealing with this.
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So Sorry, Eli~! Maybe someone needs to come up with a milkshake pump. Might help the pain from trying to pull it through the straw. I see the Pink Panther is posed to have C/C rads as well. He isn't doing as well as you are though as I think his buns are a bit pink.
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Even if you could chill Ensure and get that down, you need to do something to prevent you from losing too much weight. When I was gfoint through chemo, I would lose about 10 lbs each round during the first 10 days. I would then spend the next 10 days prior to the next round eating high calorie high fat foods. I ate a lot of avocados. They went down smooth and helped keep some weight on. Unfortunately, once chemo was done, I had no problem getting back up to normal wieght...and then some!
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LOL, Meece, LOL! You have a very keen eye when it comes to Pink Panther poses!
You are 2 for 2, in that I plan on having an avocado for lunch. I had some Boost drink, but already I am getting tired of things that are "milk and sugar," like ice cream. yogurt, pudding (incl. tapioca) but at least milk does not sting. I tried cream of celery soup last night, and even that was too stingy. I am not feeling queasy, so I actually AM hungry, but scared to put anything in my mouth.
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I am not a buttermilk drinker, but perhaps the fats in it could coat your mouth and throat so other things might go down a bit better.
I do remember trying to avoid my favorite foods so I wouldn't hate them after chemo. I still love avocados. Whew!
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Elimar, hi, how bout a turkey baster at an angle on the side of your mouth not touching the uvila (sp?) semi sitting lift your head up, let the fluid/food slowly trickle down the side of your throat? Bypass the mouth but just little bits, cream soups..I don't want you to drown.
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Oh elimar....i can relate and feel your pain.....
When I was on A/c chemo I also developed severe mouth issues....lost about 8 pounds in 2 weeks
Then this miracle RX came along..it was pink tasty...(Don't remember the name)
I was told swish swish and swallow and did miracles for me.......
I'm sending you pleasant thoughts for a pain free mouth..
♥
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Tequila!!!
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Joanne, at least you know the most important words!
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Hi Elimar:
So sorry to hear about your sore mouth issues.....I know, I had the same problem when doing ACT chemo. I told my MO and he prescribed the following prescription (this "Magic Mouthwash" is the recipe they use at the Jewish General Hospital in Montreal.)
QTY INGREDIENT NAME DIN NO:
38.75 PMS Nystatin, 100,000 U/ML Susp. 00792667
307 QUEBEC-O WATER, DEMINERALIZED LIQ. 55003121
153 PERS. ELIXIR/ALLERGIES, LIQ. 02164574
1.25 SOUL-CORTEF ACT-O-VIAL, 100 MG PD INJ 00030600
I was told to swish and swallow this mouth wash (mine was an orange colour) as needed and also rinse and gargle with warm salt water several times a day. It did minimize the pain somewhat but didn't completely take it away until I was finished Chemo. I hope this helps.
Carmen
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Guess whose mouth sores were so bad they took her chemo away?
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Oh dear! So what happens now?
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Oh Elimar - What now? Only temporarily??
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Don't worry. My chemo is being stopped only for a week AND I get a mouthwash with steroids, so I think I can heal up o.k. in that time.
Stats: On 5-FU, 40% get what I have (mucositis) and of those 10-15% get it real bad like mine (doc said I have Grade 3.) Of all the luck!
Then, hopefully I can get "back on the bag" next Monday AT A LOWER DOSAGE. They must have given me the 300 lb. man dosage or something and I require something a bit daintier.
Some people will do anything to overthrow a dictator. Viva Elimar!
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Eli, I'm so sorry you are suffering so! I pray the docs will find a way to make your treatment more tolerable....and get your nutrition in good order! Blessings!!! And (((hugs))))
Fluff, your avatar is sideways on my IPad.....so maybe it is an Apple thing?0 -
Welcome Canada gals, JoCanuck1951 and Carmen1954!
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Elimar - Eat like a piggy while you're off. My prescription from Texas. Milkshake city. I hear Wendy's Frostys are very good. Personally I'm a DQ girl if you can find one. I would get everyone of Starbucks high fat concoctions.
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Ahhhhhh you noticed Eli!!!!!!! I bet not much slides past you
). I agree with luvmygoats (neat name) eat eat eat! Good grief, I don't think I've ever been told that in my life lol0 -
I AM hungry, but need a little healing before I can get to the solid food I want so bad. Tonight, I get the carmel milkshake. I only thought about getting that because I just know the new mouth rinse will taste very nasty like the others, so at least I can follow that with something yummy.
JoC, I've noticed that as my treatment begins to have effect, a lot less is "sliding past me" now.
Oh,oh,oh!0 -
Eli - here's to overthrowing the dictator and getting those mouth sores healed up. Hoping that a lower dose is just as effective at killing the cancer, but much more gentle on you.
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