MIDDLE-AGED WOMEN 40-60ish
Comments
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Eph, We would have spotted your suntan if you were in that photo.
stayn, Correct! I had to stick to the basic roll today and not push it with the pecans (that I also love) on top. They will be on the next ones.
Momine, I would dearly love if I lived in a city where I could get some fine European pastries, but no, I live in the land where (the overblown, IMO) Krispy Kreme doughnut is king. I'd kill for a European poppy loaf!
Dianarose, Are you going for a prize, the prestige, or both?
Poor JoC, She might still be hooked up to her 6-hour infusion.
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I can't stand Krispy Kreme doughnuts. I don't get the attraction. THEY ARE WET!! Bleeeeech!
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Eph3_12 ~ That is because we in the NW know good pastry from little shops. I despise KK and DD. None float my boat.
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i agree Mary, but we have people here that do fund-raisers with Krispy Kreme donuts (or doughnut). They'll pre-sale, & then some parent will do a SIX HOUR run to Reno & 6 hours back. That's how I had my 1st (& only KK). A friend's child was doing the fund-raiser, they went to Reno, got back in time for me to pick up on my way to church. I was all stoked cause I'd always heard they were wonderful; took a bite, threw it away & took the remaining 11 in the box into the hospitality room at the church.
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Krispy Kreme couldn't make it in this market. I think they were around for four or five years, then poof. I didn't like them. Why ice a donut twice? I'd rather taste the pastry part of it. I did love taking the kids there to watch the machines though.
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Eph - while my son was working at Microsoft over the summer, he had a friend that drove down to Portland a few times to bring these donuts to work:
http://voodoodoughnut.com/doughnuts.html
Man, they look good! So funny, I always thought of KK donuts as wet, too. I would dry them off with a paper towel if I had to eat one.
Momine - yum, Copenhagen bakery? Oooh, how nice. I would be afraid to have that close-by. In no time, it would probably be a regular stop for me. Yep, same with Elimar - nothing around here but KK and DD.
Elimar - did you get back on the chemo today? Glad to hear you are healing up! Yeah, I meant to call about the bone scan results again today, but since I have my regular MO appointment coming up soon I may just wait until then.
About positive thinking - I am an eternally "the glass is half-full" kind of girl. My brothers and I talked about that over Christmas and I said I'm like that song by Chumbawamba - "I get knocked down, but I get up again. They're never going to keep me down." I love my attitude, partially because it annoys certain negative people who can't believe that I dare to be so happy, haha.
JoC - hope chemo went well for you and I hope you are feeling okay - stay on top of the nausea meds. I took them by the clock, not as needed.
Meece - I didn't know about ports either before I started. No one said a word - I would have done it if I had known.
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I picked up a wicked cough while flying home on the 31st. It's keeping me awake tonight & kept me from attending pocket parties cause I didn't anyone to catch.
I'm still writing about my cruise adventures & will then paste here when done, but since I'm up right now, thought I'd let you know that when we got back to FL on the 30th & we weren't flying out until the 31st, DD & I did an Everglades airboat tour which was very beautiful & interesting. I got to meet one of my chemo angels-she & her husband came to meet me, while on a mini-vacation a few hours away. It was so cool. If you arent familiar with the chemo angel program, here's the link. http://www.chemoangels.net
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Donuts --- those voodoos look wonderful -- I am slightly partial to Tim Hortons being from Canada. They are so MUCH better then KK.
Eph -- what a wonderful time for you to meet one of your chemo angels --
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Heartnsoul, I would also jump at it in a heartbeat.
Eph, I had never heard of Chemo Angels either, What a nice way to not feel alone! ACS hooked me up with a "mentor" who had coffee with me once. She only talked about herself, never asked about my situation, and I never saw her again. It was like a bad first date!
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Elimar- I don't even know what the prize is. I just want the state ribbon to add to my collection of ribbons. It is held at the annual agricultural trade show so it should be fun. It's a 2 hour drive, but it will do me good to get out of town for a bit.
Have you started your treatments again? I have 5 more rads and then I am done with that. I got my foot caught on a piece of furniture and I think I broke my baby toe and maybe some other bones in my foot. It is not pretty. If it is not better on Friday they will take some xrays. I went to work and just walked on my heel of that foot. It took the focus off anything else that was hurting today.
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JoC, Love, hugs and prayers from texas to you! We are all here for you in whatever way you need or want. It's the club that no one wants to be a member of. I know I've had my "FU to Cancer moments" and I'm very sure there will be more of them. I had plenty of them the first time around 18 years ago as well. It's normal and we are all here for you. Hoping things continue to go in the right direction and you cankick this cancer crap in the behiney.
Marlegal, My caps jsut showed up and right after dinner we will begin the dry run through. I'm going to have to take pictures of this and send it to my family across the country. I'm sure I am going to look hysterical. Too bad it's not halloween time!!
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Eli, if you posted it before, I missed it - who/what is the page topper ? (The normal looking women)
Amr,I can't wait to hear firsthand info on the caps. We're all pulling for you. No pun intended!!0 -
We're family-we want to see too!
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Jo - I just read your story which reminded me of my own. I also was told it was only scar tissue from removing a cyst from my breast the prior year 2008.
So for one year I live like nothing is wrong - then their were two. I called and schedule and appointment - again - no worry I will be back from vacation in two weeks your annual we will take a look. Surprise he was wrong - that would be the breast surgeon.
When the biopsy was given to me and my husband - I left the planet, couldn't listen, talk or rationalize how this could have happen when I had the best breast surgeon in the city. My husband and I were lied to 4 times - telling us there is nothing to worry about. I still get sad and angry that he could be so careless with my life.
After surgery, treatment he called to let me know I could call him when ever I needed to talk. I told him never to call me ever!!!!
A friend of mine is the head surgical nurse of a very large hospital -'her advise to me was manage your care with diligence for your future health because the docs are not going to make decisions the always benefit you.
I am, also, tired of hearing be positive. fear, sadness, anxiety, anger are all part of the tumbling emotions I felt. I try to stay out of that part of the dark attic and spend more time restructuring my life through my business and exercise. But there are days when nothing beats back the anxiety.
I am a master swimmer and swim to keep my immune system awake and working at full capacity. Many studies, including the nurses study, propose a very strong argument that exercise may help to prevent recurrence. You can read the study while sitting so long to have your treatment.
Hugs to you. AMP0 -
Amp, good points all. I also think that even good and caring docs get stuck on things, forget things, have beliefs that may not always be entirely fact-based and so on. Cancer treatment is not black/white and the stakes are high, so this means that patients have to stay on top of it, unfortunately.
This part of the whole thing was in many ways the hardest for me. It is a steep learning curve, even if you are reasonably intelligent and have good reading skills. I have a good friend who is a science researcher and she saved me more than once, by explaining things to me.
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I agree, momine. I consider myself pretty intelligent, but nine years ago I wasn't as active on the internet, and just trusted what my doctors told me. I have learned so much over the years. What I like about BCO is that you aren't just getting "facts" from others here, but you are getting real life experiences as well as direction of where to go for further info. There are so many variences of this disease and it's tx.
We are not all cut from the same pattern.
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Welcome AMP47! You did not put your Dx line, but hopefully your cancer is long gone. When it comes to having friends in medical fields tell us that we had best learn to look after our own healthcare interests, well, it is hard to ignore that message. That's why docs and nurses make tough patients, they want to be involved and it is hard to just hand over the reins, knowing what they know about the varying levels of competence.
As far as the pictures I sometimes put at the top of this page. Usually the groups of women are just representative groups. Sometimes a bunch of regular people (like the one now,) sometimes Middies Gone Wild, and sometimes representational groups that aren't even human. I'd let you know if there was some "special" significance, marlegal.
Well, I'm up early to give myself the pep talk about starting back with treatment today. I feel good and know treatment is going to make me feel bad again, so I have to focus on the big reason why I will once again be poisoning/burning myself. Pretty sure they will be strapping the chemo back on me this afternoon, but perhaps at the lower dosage. Dianarose, you have gotten ahead of me now. I will have three regular rads this week, then one regular and three boosts next week.
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Even with a regular appetite and ability to eat regular foods, I still have not been able to gain any of the ten pounds lost. Have to adopt a Hobbit eating plan. Going to have "second breakfast" now.
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Eli, I had the same problem after treatment. I felt fine, but I was rail thin, to the point that the docs were downright worried. I found that one problem was too little protein. I had to add more fish, chicken, eggs etc. Much more than I normally eat.
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Good luck with your tx once again Eli! Hoping that it will be more gentle on you than in the past. It's a good day to kill some cancer - right?
I also have lost quite a bit of weight over the past yr. Doctors getting very concerned. Last appt a feeding tube was mentioned and on the clinic notes was the word anorexia. Yikes. I promised that I would start to eat more/better. It is not an easy task when you don't feel like eating. I have since started ciprilex and dexilant. One of them is doing the trick as my appetite has definitely increased. I can't believe how hungry I am these days.
Here's hoping your new Hobbit diet will help you regain some of that weight.
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It's a good day to kill some cancer - right?
Oh, yes, indeedy!!!!!!
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I wish I could send you too thin ladies a little fat and appitite donation. For a while I didn't have much of an appitite and lost some weight. Now I'm so hungry I could eat anything, and the weight loss is stalled. And I still have 20 lbs to lose before I drop below obese to merely overweight. This whole process is so unfair. Eat something yummy for me!
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elimar, good luck with your treatment today.
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When I last posted we were on page 703 now it is 763. Wow I have been gone awhile.
I am two and half years out from surgery on the tumor side and I am still experiencing spasms and aches. Is that still normal. I see my BS today (6mo checkup) and I will ask her about. Is it the muscles still being wonky.
Hope all is well, catch up later as I am off to the Dr.
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Eli - Did not realise my dx was not posting.
This month will be 4 years since the life altering diagnois. I have been off the AI' s for about 2 months. Side effects are hard to handle and sometimes actually affect my daily ability to function and change my personality dramatically.
So, my visit with the onco, this month, will be to either switch back to Arimidex or consider Tamox. Unfortunately, they are talking about keeping us on these drugs for ten years. One good thing about Tamoxifen is it can be taken every other day instead of everyday. Hopefully, side effects will be less than AI's on any given day.
Not sure what your treatment again is about, but wish you well.
Nice thread....very smart women posting to this thread. AMP0 -
Eli - I see that my dx is not going to post so here it is: IDC and DCIS, size 1.9 cm, mostly IDC with small amount of DCIS, stage 1, grade 1, NO, MO, ER+(90%), PR+(40%), Her2 - no vascular involvement; ONCO Score 11 percent chance of recurrence - low risk for recurrence; Lumpectomy, radiation, Aromatase Inhibitor. That sums it up. AMP
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AMP47......Life changing i have been taking Arimidex for 3years now, coping with aches, stiffness, i feel very low at times, wondering if this is side effect or i am depressed due to dx and life in general, did you feel low in yourself on this med xx
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Kaza, I have been taking Arimidex since Sept. 20 and besides all the common S/E, such as pains, aches, stiffness, hair thinning, insomnia, etc....the one that is really bothering me and being of much concern is how I feel both mentally and emotionally!
Memory loss, mood swings get me so crazy. I cry at the drop of a hat! I feel so down, depressed. I don't want to see anyone, I rather be alone, and my anxiety level is sometimes at its max!
Monday, I see my Oncologist and this issue is the first we are going to address.
So you see you are not alone....
Mena
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Thankyou Mena for your reply, i have all the symptoms you mention, as i am working full time i find not being able to remember things very difficult.
I am going to mention this to my Oncologist as soon as possible, maybe change meds.
Hope all goes well for you on Monday.
kaza x
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Hello all,
My next appt with my Onco will be this month. I've now been on Arimidex for a year. Same SE as everyone else. Only thing the NP had suggested earlier was to try Femera. I asked if the make-up differed between the two AI and she said no.....so, has anyone felt better switching to a different med? BTW, I was post menopausal.
Lorraine0
