HER2 Positive-anyone 10 years out?

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Comments

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited September 2012

    Great to see more women more years out and doing well :-) Sharon you certainly "sound" great!



    Jenn

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited September 2012

    Great to see more women more years out and doing well :-) Sharon you certainly "sound" great!



    Jenn

  • mmm5
    mmm5 Member Posts: 797
    edited September 2012

    HI To everyone as well.

    I am also at 4 1/2 years now and just went through a recent scare but all turned out to be NORMAL once again. It sure is good to be amongst good company with all of these HER2 survivors. 

  • mmm5
    mmm5 Member Posts: 797
    edited September 2012

    HI To everyone as well.

    I am also at 4 1/2 years now and just went through a recent scare but all turned out to be NORMAL once again. It sure is good to be amongst good company with all of these HER2 survivors. 

  • LisaH
    LisaH Member Posts: 16
    edited October 2012

    Count me in! 10 years this month.  I don't hang around the board often, but drop by once in a while to post.   A lot has happened in 10 years, aside from the life we all know.  My sister had babies (twins) born, a baby die, and then a fourth child (healthy), my Father was diagnosed with prostate cancer (now 4 years NED), lost my Mother, watched my children move from elementary school, to middle school, high school and now college.  My daughter was in kindergarten when I was diagnosed.  She's now in the 10th grade.  My son was a third grader and now is a freshman (Knob) at The Citadel. 

    Time marches on....I'm still marching to the beat.  Keep marching girls!!!!! 

  • lago
    lago Member Posts: 11,653
    edited October 2012
    Look at you LisaH! Congratulations! Now for another 10 and more
  • JulieLynn
    JulieLynn Member Posts: 86
    edited October 2012
    Congrats LisaH - *happy dance*  That is awesome!!!Laughing
  • KakaCathFreeSpirit
    KakaCathFreeSpirit Member Posts: 38
    edited October 2012
    Thanks LisaH, and so from me too, your an inspiration for me, as is for many, Yay you have been living life in all its wonder and glory, you keep going girl.....and Thanks again, your post mean more than you know, and Im still marching on too....Cyber Hugs to you...Smile 
  • dventi
    dventi Member Posts: 100
    edited October 2012

    Hi Ladies.. just finished chemo 6 x TCH, now onto continued Herceptin for 1 year in a few weeks.

    Were you able to work during HER2 infusions (every 3 weeks). Im hoping the side effects are not as severe as the TCH.

    Thanks and Hugs to all of you!.

  • JRyan
    JRyan Member Posts: 102
    edited October 2012

    Hi dventi. I have been on just herceptin for a couple months now. SE's are pretty minimal. I have been working fulltime through this so far.

    Good luck to you!

  • lago
    lago Member Posts: 11,653
    edited October 2012

    dventi 2 year survivor here. Finished Herceptin Sept 2011. Minor stiffness but that's it… some of that stiffness was from anastrozole because I still have it. You should have no problems getting back to your normal routine once your chemo SE fade away.

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited October 2012

    I'm not finished the 3 weekly Herceptin until next March and have been working full-time. The infusion does seem to tire me so I always schedule it for after work on a Friday and I'm pretty much straight into bed when I get home. Then I'm fine the next day.



    The noticeable SEs for me: runny nose, it aggravates my mild peripheral neuropathy in my fingers for a couple of days and my eyes get a bit itchy.



    Jenn

  • dventi
    dventi Member Posts: 100
    edited October 2012

    jryan, lago, Jennt28.. Thanks for info!!

    lago - 2 year out! great news.... so happy to hear..Question is anastrozole endrocrine therapy? Im scheduled for Femara in about 2 weeks --How long do you have to take anastrozole?

  • lago
    lago Member Posts: 11,653
    edited October 2012

    dventi Yes Anstrozole is generic Arimidex, an aromatase inhibitors (endocrine therapy). I call it ESD (Estrogen Sucking Drug). I think I have my BS calling it that now too as of this Monday. Femara is also an ESD. The plan right now is 5 years. There are studies that seem to point to 10 years but still waiting for more results. I'm not sure if that applies to all Hormone positive women. I know I read something that said 10 years is not beneficial for luminal B tumors… but larger studies need to be done.

  • Jennifer404
    Jennifer404 Member Posts: 133
    edited October 2012

    Lago- I forget are we luminal b?

  • Soccermom4force
    Soccermom4force Member Posts: 311
    edited October 2012

    7 years 10 months 3 weeks... ;)

  • lago
    lago Member Posts: 11,653
    edited October 2012

    Yay Soccermom4force!

  • sheila888
    sheila888 Member Posts: 9,611
    edited October 2012

    7 years 6 months 3 weeks     Wink

  • septembersong
    septembersong Member Posts: 153
    edited October 2012

    Yay to Soccermom4force and sheila888! Seven years and counting is awesome. So glad to hear your great news.

    Ann

  • sherry67
    sherry67 Member Posts: 370
    edited October 2012

    Woundernful news for you girls congrats to both of you...

  • JRyan
    JRyan Member Posts: 102
    edited October 2012

    All of you ladies are inspiration to me! Thank you for being here, sharing your stories, and offering support to others!

  • lago
    lago Member Posts: 11,653
    edited October 2012

    Way to go Sheila!!!

  • denise-g
    denise-g Member Posts: 353
    edited October 2012

    Soccermom and Sheila - thank you for the hope and congratulations!

  • sheila888
    sheila888 Member Posts: 9,611
    edited October 2012

    TO ALL MY SISTERS♥

  • Bold
    Bold Member Posts: 306
    edited October 2012

    Hello Sistahs!! I am coming up on my 4 year anniversary. It is hard to believe so much time has gone by.. My breast is still sore. HA

    I guess it will be forever and thats ok as long as forever is a long time. I think I will breath even easier after the five year mark. Life is good!!

    Rock on

  • Aussie-Sharon
    Aussie-Sharon Member Posts: 45
    edited November 2012

    Awesome Bold:) Rock on most definately...

  • LeeA
    LeeA Member Posts: 1,092
    edited November 2012

    Thanks to everyone for this wonderful thread!  Just diagnosed and I'm sure I'll return to this thread often for inspiration!

  • Aussie-Sharon
    Aussie-Sharon Member Posts: 45
    edited November 2012

    Hi Lee, will be sending you my love across the seas...I don't post often but all the best. Sharon x

  • septembersong
    septembersong Member Posts: 153
    edited November 2012

    Yes, please come back often. Many HER2-Pos women don't post past treatment, and I suspect it's because they're out there, living their lives.

    All the best to you.

    Ann

  • LeeA
    LeeA Member Posts: 1,092
    edited November 2012

    Thank you, Aussie-Sharon and September Song.  I'm keeping this thread in the back of my mind - especially going into surgery tomorrow.  Best wishes to you both and all the great people at this site who have made this very tense past week so much easier to endure!