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CALLING ALL STAGE I SISTERS

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Comments

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Jmorrow.....Paclitaxel is called Taxol which is more easier when it comes to Side Effects.

    I did 4 rounds of Taxol.

  • jmorrow
    jmorrow Member Posts: 6
    edited September 2010

    Thanks...I thought it might be Taxol. Now at least I know a little of what Im talking about.

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited September 2010

    Jmorrow: I was a diet pepsi addict for YEARS. Ounces & ounces & ounces per day.  After my 2nd T/C treatment last year (end of July), my DP tasted terrible & I haven't been able to drink it since.  In May this year, I was at a friend's house & she offered me a Diet Coke which of course to Diet Pepsi addicts is heresy, but I went ahead and tried it & LIKED it!  I tried a DP a couple days later--still can't drink them.  I'm trying to stay away from the Diet Coke & have it only occasionally.  I'm an ice water girl now (ICE, ICE, baby!)

  • valjean
    valjean Member Posts: 1,110
    edited September 2010

    Welcome jmorrow !

    So sorry you have had to join us, but we so welcome you with open arms. Come here anytime, 24/7, someone is always here to chat, hold your hand, give you a {{hug}}, listen to you vent (as we will vent to you), share a laugh, anything & everything.

    {{a BIG hug}}

  • theresap60
    theresap60 Member Posts: 849
    edited September 2010

    Julia - you're in my thoughts and prayers!!  I can imagine how frightened you must feel and yes, it's a fear we all live with every time we have to have a mammogram or MRI or any scan.  Please report back.

    jmorrow - you're in the right place.  I had the Cytoxen and Taxotere cocktail.  I kept ahead of the nausea most of the time with the meds my onc gave me, but there were things I couldn't eat ... some smells turned my stomach.  I was drinking ginger tea, then that turned my stomach and to this day I can't go near it.  But I kept pushing the fluids to get the chemicals out... the most soothing was grape Koolaid.  My daughter kept making grape Jello for me too!  I had problems with diarrhea, so I ate a light breakfast of peanut butter toast and banana.  Couldn't drink coffee either.  I lost weight but now it's all back and more b/c of the tamoxifen.

    -Theresa

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    To All......♥

  • Meece
    Meece Member Posts: 10,618
    edited September 2010

    Another hint from my chemo days:

    During chemo, I tried to stay away from all of the foods I really, really liked. That way I wouldn't have an aversion to something later. 

    What I did develop an aversion to was red koolaid, and red Popsicles (i.e.cherry).  I am sure it had something to do with the Popsicles during Adriamycin.  It was over five years before I could handle either again.  I was also given Lavender suckers to fight the nausea and it was a long time before I could stand the smell of lavender.

  • jmorrow
    jmorrow Member Posts: 6
    edited September 2010

    Thanks so much for all of your suggestions...feeling alot better today!

  • ladysingstheblues
    ladysingstheblues Member Posts: 2
    edited September 2010

    hello

    thanks for the kind words, yes it is like so many of us. for me it is good to communicate with people who are actually living with this diagnosis.  i am sorry that all of us have to go through with it. i think it is challenging and relentless and all we can do is do the best we can.  i really think it is great for women to empower themselves and ask as many questions to their doctors and be as informed as we can. like someone said stage 1 does not necessarily mean cured as is implied in some statistics. when i was diagnosed and was in the onkology waiting room from week to week i looked around at all the women, we all looked anxious and i shared their grief and fear silently, we are all in the same boat that is living with the diagniosis of cancer and sadly there are some of us at more advanced stages and this reminds me that i cannot be idle with this disease.

     seeyla888 are you also doing tamaxofine?

    still would like to hear if any of you did 4TCH instead of 6. tomorrow i go and have my  port out.  look forward to having that reminder out of my sight. 

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited September 2010

    LSB - I had 4 Taxotere/Cytoxan + 1 yr of H - looking forward to getting my port removed in mid OCT (my co-worker is having gastric bypass this month and I don't want to have any conflicts with her appointments/healing). 

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    ladysings.......I am on Femara. I also did one year of Herceptin.

    Hi Michelle

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited September 2010
    Laughing HI Shelia!!!
  • Meece
    Meece Member Posts: 10,618
    edited September 2010

    Michelle, that is so nice of you to think of your co-worker, and your employer!

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited September 2010

    Thanks Meece - I really cannot say enough about my co-worker and my employer.  They have been incredibly giving and considerate through out my cancer journey and I am more then happy to pay it forward.  I am not sure if you remember, but I was hired two weeks after my dx and two weeks before my BMX.  They actually hired temporary help for 3 months so I could recover from surgery and get through chemo knowing full well that it was a crap shoot on how my body would react to chemo and the surgeries.   It really is nice to be able to give back...

  • inthepink49
    inthepink49 Member Posts: 49
    edited September 2010

    Picked up my meds today. seeing a surgeon next week to consult about a port. Doing 6 rounds of chemo in 18 weeks.Then I'll do rads.At least I now have a treatment plan. the port was a surprise to me .That makes me nervous.

    Waiting for hurricane Earl to hit.

    Stay safe.

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited September 2010

    Ports are good pink, specially if you are a "hard stick" like me.  Makes admistration of drugs much easier.  They just are sort of an alien-like feature every time you look in the mirror. 

  • deborye
    deborye Member Posts: 2,441
    edited September 2010
    NEWBIES♥
  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited September 2010

    inthepink - I loved my port!! Yeah I felt a bit like a BORG from Star Trek but it made getting my infusions so much easier.

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    inthepink....Port was God sent I don't think I could or my veins could survive especially 52 weeks of Herceptin. Just think your arms will be free to do anything you want during chemo.

    I give the port A+

    Hugs

  • mimi1964
    mimi1964 Member Posts: 851
    edited September 2010

    Hi to all the Newbies and a BIG WELCOME!!! really hate that each and everyone of you had to join in.  All I can say is WOW... I've been off for about a week and there are many new faces.  I hope everyone going through treatment and chemo is doing well as can be expected.  Those of you awaiting tests results I am praying with you for negative/Benign results. 

    It's been a very busy week at work, I had to reschedule my Med Onco appt twice.  I now have an appt. to see him on Thurs, Sept. 9th. they actually wanted to put it out further but since my last platelet count was low and I've had some leg pain the scheduleder moved some things around and got me on in.  I'm praying that Platelet count is up and not down anymore and that the leg pain is just a fluke related to the Tamoxifen. I know the weather is starting to change here and my knees are really hurting again, though the creakiness never stops since I started it. 

    Whoever said it, I agree... I HATE CANCER!!!!

    Hi Sheila, Meece, Val jean, Michelle, grannydukes, Patoo, Eph, and Charmaine!! If I missed you I'm sorry my mind has difficulty remembering names, unless you are one of my resident's in the Assisted Living I work at... Wink {{{Hugs}}}

    Renee

  • valjean
    valjean Member Posts: 1,110
    edited September 2010

    {{hugs}} Renee!

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    ((Renee))♥

    ((Valerie))♥

    Good night All!

  • mimi1964
    mimi1964 Member Posts: 851
    edited September 2010

    Valjean and Sheila thanks for the hugs I definitely needed them!

  • mimi1964
    mimi1964 Member Posts: 851
    edited September 2010

    Valjean and Sheila thanks for the hugs I definitely needed them!

    Renee

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    You're Welcome Renee

    You're Welcome Renee

  • valjean
    valjean Member Posts: 1,110
    edited September 2010

    {{Sheila}}♥

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited September 2010

    some of these posts remind of the Doublemint Twins. "Two, Two, Two mints (posts) in one!

  • onestep
    onestep Member Posts: 106
    edited September 2010

    Good night everyone. I have you all in my thoughts and they are thoughts of healing, strength, peace and lots more that is powerful. Thank you for your words to me the other night when I first signed on here. You all are simply amazing. Talk soon. :)

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Joni BCO site is very slow tonight thats why There are double posts or even triple posts.

    Its darn hard not to click the submit button twice.

    I keep saying Good Night and still coming back.

    Good Night again!Wink

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    Hugs to You onestep.♥