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CALLING ALL STAGE I SISTERS

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Comments

  • pinkgirl49
    pinkgirl49 Member Posts: 5
    edited September 2010

    Testing

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    I don't have much information about swallowing

    I want to Welcome you to our group pinkgirl.

    Also you can only post 5 times in 24 hours until you reach 50 posts after that there are no limits. Meanwhile you can Private Message anybody you want just by clicking on their names or avatar picture and follow the direction. There are no limits on that.

    If you need to test the private messaging you are welcome to use my name.

    Yes your signature line is showing.

    Good Luck and Hugs

  • FireKracker
    FireKracker Member Posts: 5,858
    edited September 2010

    update...dr called and was very convincing that i need the drain.im staying with a friend and it will be a huge inconvience to have her take me every other day for who know how long for her to drain it in the office.she said it was my choice but weighing it all out i chose the drain.

    went for my pre op today.strange thing happened.dr #1 never told me blood could never be drawn from that arm only the sistas.well my veins are shit...she got some blood from 2 diff veins but not enought so she said you only had snb so im gonna take just this one time the little bit of blood to complete your bloodwork.she needed it to test for the clotting.i hope i did the right thing.she did say never let anyone ever take blood from this arm again.did i do any damage?????

    will this crap ever end???????

    i read all the other posts but i forgot so ill just send blessings,prayers and huggggggggggs to all my sistas.God bless

    K

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010

    granny...My own oncologist took blood from the SNB side once. Because the other one wasnt cooperating. He said its really okay.

    But I still hand my left arm Im so use to it.

    The oncology nurse also said after 5 years you dont have to be that careful.

  • Meece
    Meece Member Posts: 10,618
    edited September 2010

    My onc said be careful indefinitely.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited September 2010

    this blood sucker said only this one time.never again.she needed it for the blood clotting test which is very important.i dont think she was following protocol but i dont really care as long as i dont have a problem...it seems like no one follows protocol when it comes to me.if dr#1 the schmuck would have followed protocol i would be finished with all this shit by now..lol

    oh weel....there is always a reason...

    im gonna catch up with you girls personally one of these days...thanks for the quick response

    huggggggggggggs

    K

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited September 2010

    Pinkgirl - make sure to ask your doctor for a referral to a lymphedema therapist - the swelling is most likely due to post surgical puffiness but it is always best to get baseline measurements and get educated on precautions to take to decrease your risk of developing LE.   Here is a link that will help you know how to find a QUALIFIED therapist  http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

  • valjean
    valjean Member Posts: 1,110
    edited September 2010

    elimar ~ Great news on report from your Rads onc. I see mine for my 2-yr check Nov 16, which I think is the last time I see him. (ever again, I hope! knock on wood!)

    Yay, Renee on your fabulous Dr. appts!  ♥ Just wanted to say our bodies continue to produce estrogen even though we may have had a hysterectomy. But, I do wonder why he upped your dosage if you were doing okay on the lower one. Hummmm is right.

    Welcome pinkgirl! So happy you had a clean mammo. I have one coming up before the end of the year. Trying not to think too far ahead...

    Oh grannydukes, I so feel for you. You have had one thing after another happen. Stay strong, sista! {{hug}}

    Nice to see you Michelle & I really like the flag avatar, Sheila!

    good night all!

  • inthepink49
    inthepink49 Member Posts: 49
    edited September 2010

    Hi everyone,its been a few days ,lots going on.

    Have my port insertion on Monday.Am supposed to start chemo on wed. but not sure now. I had a repeat MRI on tuesday and my BS still hasn't called with the results. My onco called because he knew I would be waiting and he can't even get in touch with my BS. Apparently they have a different spot that the radiologist wants another MRI and ultrasound on with a possible biopsy,which  would then put the chemo off a little bit.

    We are thinking its just post surgical changes but this is in a different part of the breast so they want to let the BS discuss with the radiologist to decide what it warrents next. Oh Boy this is getting so exhausting. I want to get the show on the road!

    Had to go pick out some wigs yesterday. That was so real but I did good. Lots of decisions but I don't have to take anything till I see all my choices a.Once they are cut then they are mine. Decisions,decisions...

    I hope all are doing good,well having cancer is never good but I hope everyone is doing as good as they would like.

    Take care and have a great weekend!:)

    Pink Hugs!

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited September 2010

    inthepink, you can get wigs @ American Cancer Society for free.  Our office gives out free styling coupons too. 

  • mimi1964
    mimi1964 Member Posts: 851
    edited September 2010

    inthepink - Hi and welcome!  I hope and pray that things go well for you with your chemo. 

    elimar congrats on your good checkup with the rad onco.  Laughing  Isn't life grand!!

    Hugs to all my sistas!!

    Renee

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010
  • Meece
    Meece Member Posts: 10,618
    edited September 2010

    And we won't!

  • valjean
    valjean Member Posts: 1,110
    edited September 2010

    NEVER

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited September 2010

    9 years-seems like yesterday.  I will never forget how quiet it was for the days following with no air traffic!

  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010
     
  • sheila888
    sheila888 Member Posts: 9,611
    edited September 2010
  • raeinnz
    raeinnz Member Posts: 553
    edited September 2010

    Yesterday, as I have done on every anniversary of 9/11, I watched the programmes about that act of violence.  The tears flow every year.  My thoughts are with you on this sad day.

  • theresap60
    theresap60 Member Posts: 849
    edited September 2010
    Grannydukes - no drains for me.... I had 4 nodes removed, but I also had the SAVI catheter in me for internal radiation and that was draining the whole week, so maybe I did drain.

    I was told no blood pressure cuffs, shots, blood drawn on my node removal arm for the rest of my life. My allergist forgot (and so did I, we were chatting away) and gave me 2 allergy shots in that arm one day. I panicked a bit, but all was well.

    Renee - congratulations on your reports! Celebrate everything. I had my first mammogram a few weeks ago since BC diagnosis and it was all clear. What a load off my shoulders! Until the next MRI or mammo. :-)

    Pinkgirl - welcome and good luck with chemo. We're here for you.

    Charmaine - what type of chemo causes the teeth/gum problem?  It's always something.

    --Theresa

  • patoo
    patoo Member Posts: 5,243
    edited September 2010

    Grannydukes - 5 nodes removed and no drain.  My BS had told me before surgery that she would make the call whether or not she thought I needed it during surgery.  She guessed correctly as I have not had any problems but I can see why your Dr#3 might want you to have it since this is not your first time around but having more removed.  That may put you at greater risk for developing problems.  You mentioned the oncotype test, have they sent out your tissue yet as it takes 3-4 weeks to get results.

    Also, for you and pink, lymphedema can develop days, weeks, months or years later - yes, 12 years down the road you can develop it out of the blue so always be on your guard.  I think those of us who have not gotten it cannot realize how devastating it can be.  I know it frightens me, even when I forget and lift something a wee-bit heavy with my right arm.  Please be careful everyone.

    HUGS (and, no, we will never forget)

  • FireKracker
    FireKracker Member Posts: 5,858
    edited September 2010

    hi patoo..been missing one of my best mentors.im having the surgery on the 20th.dont they take the tissue during the surgery and send it to the onc? as you can see im still in the dark about sooo many things.i should be a pro by now.lol

    i cannot wait for all this to be behind me.i know im closer then further.thanks for all your help.God bless.

    NO WE WILL NEVER FORGET SEPT 11TH.I WAS THERE.I STILL CANNOT WATCH ANYTHING ON TV PERTAINING TO THAT DAY.ESPECIALLY IN THIS FRAME OF MIND.

  • mimi1964
    mimi1964 Member Posts: 851
    edited September 2010

    Salute to all of our military men and women!  9-11 ... I know I shall never forget, I was driving to work up the hill called Oneonta mountain, when it came on the radio.  I hurriedly sped to work and we watched vigilantly the rest of the morning as the rest of the U.S. was attacked!!  God Speed to all of you that lost loved ones that day :( .  I have been to ground zero right after the attacks and have seen the emptiness, the holes left behind, the wreaths, the memorabilia from all the friends and loved ones and others from around the world. Everyone was touched, and I have never had anything touch me as much as seeing that place in person.  Love to you all!

    On a happier note... I hope all my sisters have a had a wonderful day.  I have had a blessed day, I spent the day with 3 of my grandchildren and Alabama football tonight was awesome!@! who could ask for more... Life is good!Smile

    Renee

  • Meece
    Meece Member Posts: 10,618
    edited September 2010
  • raeinnz
    raeinnz Member Posts: 553
    edited September 2010

    Meece - not seeing your photos here. Do they come up on your screen?

  • valjean
    valjean Member Posts: 1,110
    edited September 2010
    Whatever you just did, Meecie, doesn't show for me. Frown
  • raeinnz
    raeinnz Member Posts: 553
    edited September 2010

    Hi Val - up late again.  It's my birthday today and now you and I are in the same day. It's 5.15pm  on 12 Sept for me.

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited September 2010

    Happy birthday today & tomorrow!

  • valjean
    valjean Member Posts: 1,110
    edited September 2010

    Have a BEAUTIFUL Birthday, Rae!  ♥

    {{hugs}}

  • raeinnz
    raeinnz Member Posts: 553
    edited September 2010
    Thanks Joni and Val - I HAVE had a lovely day - has been raining Frown but I have had pressies, heard from lots of people and my dear friend turned up unexpectedly this morning and took me out for coffee. DD cooked breakfast this morning and DH is cooking dinner so a lazy day for me - just how it should be!  I have felt very loved all day.
  • Meece
    Meece Member Posts: 10,618
    edited September 2010

    Happy Birthday, Raeinnz!

    For some reason I can no longer post pictures from my laptop.  The "tree icon" won't work.  The desk top works fine.