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CALLING ALL STAGE I SISTERS

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Comments

  • pinkie48
    pinkie48 Member Posts: 4
    edited August 2013

    Hi Everyone!

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010
    Hi Pinkie.Smile
  • julie_dee
    julie_dee Member Posts: 7
    edited November 2010

    Oakley,

    If it helps, my stats are very similar to yours.  I had a lumpectomy on 10/27, and agree with the poster that said she had little trouble.  One percocet that night, Advil for a couple of days - felt really good to shower at the 48 hour mark!  I have been fine ever since.  A little discomfort around the SNB incision site, but nothing major.  I got a little sore from clapping too hard at my son's sectional football playoffs two days after surgery. Tongue out

    The waiting for the next steps is somewhat nerve-wracking, I'll admit.  The post-surgical pathology found a micromet in my sentinel node, so my treatment plan might not be as straightforward as yours, but the lumpectomy itself - a non-issue!  My one tip:  Have someone bring you a really good, big pot of soup for after you come home - it was the best medicine.

    Julie

  • valjean
    valjean Member Posts: 1,110
    edited November 2010

    Thanks everyone for the good wishes!

    Sheila ~I'd have a Milano cookie if I had one. What I'd really like is a nice slice of Cheesecake with Raspberry Sauce. Tongue out

    Sherry ~ Keeping good thoughts for your PET scan results.

    Welcome pinkie!

    {{hugs to all}}

  • deborye
    deborye Member Posts: 2,441
    edited November 2010

    oakly: I did not have the onco type test, maybe in 07 they didn't test for it.  I had surgical biopsy with wide excision 2x to get clearer margins because of DCIS which did not show on mam, after healing for 3 weeks started rads. 33 tx plus 5 boosts which was a piece of cake just got pinkish red like a bad sunburn, went away within 3 to 4 days.  Started Arimidex right after radiation.  I was really scared when I was told I had breast cancer because my mother lost her battle 14 years ago and was dx at the same age as I.  Listen to your team of doctors.  All 3 of my doctors, BS, oncol, and rad oncol said NO to chemo.

  • raincitygirl
    raincitygirl Member Posts: 700
    edited November 2010

    deborye - I think you are right, docs were less dependent on the oncotype in 2007 - you were so lucky to have docs with strong opinion and a diagnosis that made for a reasonably easy call - I think part of that is because your IDC was less than 1cm - they originally thought mine was less as well, but after surgery, it was 1.5 which put me in the "it's your call, but maybe you should" place.  I am so glad to hear the rads were a piece of cake - were you able to wear a bra during them?  I have seen several who said they can't, but in my case, I wouldnt' be able to leave the house with these giant things hanging down :)

  • oakley
    oakley Member Posts: 82
    edited November 2010

    Am I to understand this correctly with regards to oncotype - if my results from the lumpectomy and SNB remain the same as what they are right now:  less than 1 cm, grade 1, ER+/PR+, HER2-, and my oncotype is HIGH, would that mean I should be getting chemo?  It seems that the oncotype then would be unrelated to the rest of results?  Just a little confusing.  Thanks.

  • raincitygirl
    raincitygirl Member Posts: 700
    edited November 2010

    Oakley - I am not even sure I should be having chemo.The oncotype is but a piece of the decision process.  I can't say what would happen in your case if you had had an oncotype but remember, I am doing chemo because I was grade 2 with a tumor greater than 1cm and an intermediate oncotype score.  I can guarantee you that if I had your statistics, I would not be doing chemo.  The tricky thing about the current use of oncotype is that it is still a study based on only 600 women whose tumor samples were not necessarily fresh.  I know they are doing a new study now and it will be some time before the real ranges are better understood.  I didn't mean to imply anything or frighten you - hope that I didn't. I wish I had your stats!

  • onestep
    onestep Member Posts: 106
    edited November 2010

    Congrats Valjean! Your words are always so helpful and great to read here. Thank you and enjoy.

  • deborye
    deborye Member Posts: 2,441
    edited November 2010

    I found some camisoles that had a little support and found them very comfortable in fact I still wear them.  I'm a 38B so I buy a large in the camisoles.  They also control my muffin top and little flat tires I have cause I love food.

  • deborye
    deborye Member Posts: 2,441
    edited November 2010

    I just had a MRI Wednesday and got a call Thursday, it scared the hell out of me, usually the next day call means something is wrong.  But the nurse said they have the MRI results and it says just some post op changes and no malignancy to be found.  WHOO HOOO

  • flash
    flash Member Posts: 129
    edited November 2010

    deb-  phewwwww. hugs

    flash

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2010

    yeah Deborye.

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2010

    Oakley, after surgery my BS & onc both wanted the oncotyping done-both expected low score-it was 42.  I had chemo.

  • FireKracker
    FireKracker Member Posts: 5,858
    edited November 2010

    YAY DEB.DOIN THE HAPPY DANCE....DO SOMETHING NICE FOR YOURSELF.

  • mellysu1022
    mellysu1022 Member Posts: 59
    edited November 2010

    Good Evening to all. Although I am working today, I am celebrating my 2 years of survivorship  When I was first dx, I didn't think I would be around but here I am. I am proud of my doctors, my family and me. And of course everyone of you. I will agree with everyone-waiting for results is always the hardest part.

    Oakley- it's ok to be afraid. We all are. Everyones input here has been helpful and comforting. I was not able to wear any bra with undrwires but found a Calvin Klein wireless that worked. I did that for at least a year.

    Grannydukes- I'm glad your grandson is home. I am hoping for a full recovery.

  • onestep
    onestep Member Posts: 106
    edited November 2010

    Hi mellysu1022 and congrats to you! :)

  • onestep
    onestep Member Posts: 106
    edited November 2010

    Do pm messages count as a post when you are trying to get to the 50 mark? Tks.

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010
    Congratulations mellysuWink
  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010

    How are you feeling onestep?

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010

    No they dont count.

  • onestep
    onestep Member Posts: 106
    edited November 2010

    Hi, I do feel as though I turned a corner this week (its almost been 3 weeks since dbl mx w/te). I have to get going on the next step being treatment. I have to admit I am dragging my feet on this part. I am scared, honestly. I know you have a similar diagnosis and did treatment... and did it well. :) Any advice is appreciated. You had written to me when I first found all of you, but even if your words are redundant I would so appreciate them now again. Thanks for all. :)

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010

    onestep...After i was healed from my second Lumpectomy. I chose my Oncologist (There were 2)

    He ordered Bone scan, chest abdomen pelvic scan.

    Port was put in (I recommend even more because you will be receiving Herceptin either once a week for one year (Thats what I had) or every 3 weeks. Your chemo regimen will be decided.

    I had 4X A/C and 4X Taxol every 2 weeks.

    With my first Taxol Herceptin was added also.

    I had radiation while I was still on Herceptin.

    Before I started chemo I got a Muga scan (Just Google it) and midway of Herceptin I had a second one. This was my treatment. You might get a different one but since you are HER+ you should be getting Herceptin.

    Any questions just PM me.

    Hugs

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010

    Goodbye Summer

  • deborye
    deborye Member Posts: 2,441
    edited November 2010

    Does anyone know anything about microglandular adenosis?

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited November 2010

    Deborye - i just found this link

    http://www.pathconsultddx.com/pathCon/diagnosis?pii=S1559-8675(06)70785-9

    I thought it was a pretty good discription of microgladular adenosis - the first few paragraphs give a basic defination the rest is pretty techincal...

  • raincitygirl
    raincitygirl Member Posts: 700
    edited November 2010

    Just to show how different doctors can be  - I had none of what seyla has had ordered -I think there are also some regional differences to approach.

    No bone scan, chest, abdomen, or pelvic scan and no Muga.

    I actually asked if I could have a bone scan (another attempt to avoid chemo) and was declined by each of my docs because I am only stage 1.

    onestep - what are they recommending for you?  I began CMF in October so am still pretty early in the process but thankfully there have been some wonderful friends on here to keep me very well informed and motivated...

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010

    jodimaca...Im thinking maybe in 2005 those were routine scans.

    I didnt have a MRI. I was never in a MRI machine.Also A/C is kind of more toxic maybe thats why I had the muga before.

    Michelle...So nice to see you.♥

  • raincitygirl
    raincitygirl Member Posts: 700
    edited November 2010

    Seyla - I did have two MRI's, one after initial biopsy and then another round to do more biopsies. 

    I wish they were still routine, they must have provided you a modicum of comfort?

  • elimar
    elimar Member Posts: 5,890
    edited November 2010

    Other than an MRI as part of the before surgery diagnostic and a few CT images that were prior to radiation, I have not been scanned by those other means.