CALLING ALL STAGE I SISTERS
Comments
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Deb--so happy for your MRI results!! Happy Dance!
Mellysu--2 years. That's something to celebrate!
lexy--BMX in July. Left side was prophylactic with NS. But not the right side. Cancer was too close. My BS likes to save the nips if he can. He said studies have shown that having your nipple spared hasn't changed statistically whether it's there or not for recurrance. So, I have one with and one without. I will be having my new "fipple" surgery in Dec. Then a tat. If I had no nips, I would def. consider 3D tats. No surgery. They look awesome and real, yet won't show through clothing.
rae--thanks for explaining the HER thing. I know I'm positive, but not the numbers. And my onc said no herceptin, even though it's considered normal treatment. So maybe my numbers were low enough. He just thinks my recurrance rate is so low, it wouldn't do any good or change anything. I'm glad I had the recon. I love my new foobs. But to look "even", I need my other nip. haha.
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This is a regular question to All DCIS DX.
I thought DCIS was always Stage 0.
happymom...Im glad you dont have to have Herceptin treatment. I dont think they give it if you are DX with DCIS.
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Seyla - it is my understanding that DCIS is always stage 0 - except when it is grouped along with IDC, like mine which means the stat becomes stage 1 or more....
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I really think I learned more about BC on these boards than I did with my DR.
Now we know what to ask. We are in control.
HUGS♥
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I totally forgot yesterday was our Thread's First Anniversary.
Thank You Everyone for becoming a member of This Group.
HUGS
♥♥♥
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And for us latecomers, thank you as well. Happy Anniversary
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I am scheduled for a diagnostic mammogram this coming Tuesday - first one after surgery/chemo/radiation. I can't believe how anxious I am getting as the appointment gets closer.
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Oh Char - it seems we are sentenced to a life of anxiety and waiting. At this point, I am looking forward to that appointment, but will surely feel as you do when the time comes....
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This info re Her2 is so helpful, all, thank you. If there is any more perspectives please share. Thanks so much.
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Sheila--DCIS is usually Stage 0, but I had microinvasion, 3 multifoci. So was upgraded to Stage 1. There's just no way for me to put the microinvasion status, or at least I don't know how.
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Char--hoping your tests come out just fine. There's always that thought in the back of your mind, what if? One day at a time!
Happy Anniversary.....I think.
But you know what I mean.0 -
I dont like this thing about people reading these posts.i think ill have to change my name.too many people know me by this name.and way too many people have no clue i have bc.thats the way i want it.and i put my GS name.ME NO LIKE THIS.
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granny....Please Pm your new name when you change it.
Hugs
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grannydukes - even if you change your name, your old grannydukes post stay out there, i know, i tried - i did find that i can write and ask them to remove things and they will consider it...
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If you think you wrote something personal in the past go and delete it.
I know it takes forever to find them.
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hey..i googled grannydukes.ha there are a million of them.i spent 1/2 hr lookin for me.i dont know if i did anything wrong but i could not find ME....so i think ill leave it alone.maybe look for post with my GS name and remove the posts.I STILL DONT LIKE IT.
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granny- because of dukes of hazzard, you don't appear for pages and pages - i bet you are safe to leave it alone as well...
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so ill remain grannydukes.ha.my GS gave me the name.id hate to give it up.Ill just have to be more careful and if there is anything personel ill send a pm.
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Sorry, don't know where I got that 16 weeks of radiation!!!! My brain is not working these days...it's actually 3 weeks of radiation and I can come home on weekends. So it is the Canadian protocol. (Think I was counting the days).
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JMW...i was reading your other posts about telling the children.
My daughters were adults but even the younger one will sense something is wrong with Mom and they start thinking the worse especially you'll be away for the entire week.
If you decide to tell them you don't have to go in details.
Good Luck to you. Keep in touch.
Can I ask why you are traveling to have radiation treatment
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I went with what Sheila recommended and stuck to the age appropriate truth. We have 3 children and my oldest is a preteen girl who knows me like a book. I was so worried to tell them, but they are doing great. I actually feel as though it has been a defining moment for my older daughter and I's relationship. Once again, it seems like one of those situations that you have to go with your gut and it will be the right decision either way. JMW, are you children little ones?
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It really helped that my daughter had a good friend whose mom had experienced BC a few years ago and has done very well. It also helped that my son's best friend from college is now a physician focused on oncology research, and specifically breast cancer. He was the one who convinced me to weight the oncotype more heavily than I had been. Both adult "children" had people to discuss it with other than us. My son, however, did not appreciate my humor early on. I was playing cards with my father-in-law and he beat me badly so I said "you can't do that, I have cancer" - I thought I was making it lighter but that did not fly, now it does though, he just needed time.
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Char-I am sending good, strong, healthy thoughts to you re your diagnostic mammo.
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Char....So sorry I missed your post about Tuesday's mammogram.
I hope you get the result right away since its diagnostic.
Good Luck to you Sister.
♥
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Hi Sheila, my fellow night owl sister! I wonder if this will last when I begin chemo. I am guessing not.
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raincitygirl: you just brought up a memory I'd totally forgotten. My brother & his family came up the weekend right after my lumpectomy (it was mom's day weekend also). We were all sitting around playing Tripoly & someone did some nasty thing thing to me & I piped up with a comment similiar to yours;don't exactly remember how it was worded, but I remember there was dead silence & then we all (about 7 of us) just busted up! Thank you for then nudge on that; I'm glad to have that memory back!
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Onestep and Seyla - You two sure are nightowls! I am on chemo and I can be found on here at all hours - usually up because I am HUNGRY again.
Eph3_12 - I am glad to give that back and now even my son can find it funny
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onestep....Unfortunately when I was DX I didn't have a computer. So I cant answer your question.
My DD gave me the computer for 2008 Xmas because they wanted to bring me to 21st century.
I don't remember going to bed so early except the chemo night because of the Benadryl they gave me. I used to feel so sleepy for hours after I came home. Then the steroids makes you hyper. Its an adjustment.
When I joined BCO on July 2009 it was purely accidental. I'm so glad I did.
2 more days you will be up to your 50 posts limit. Lets sing lalalalala
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I didn't find BC.org for nearly 5 and a half years. Dh found it for me when I needed a VASCNB.
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VASCNB?????????????
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