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CALLING ALL STAGE I SISTERS

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Comments

  • happymom8285
    happymom8285 Member Posts: 132
    edited November 2010

    Seems like I can't have a life outside of BCO.  I'm gone for a few days and have a terrible time trying to catch up!

    For those having questions or trying on bras check out the board on here.  Bras 101.  You can probably find it.  I don't know how to cut and paste on this thing.  Some great websites that carry larger sizes are

    www.barenecessities.com and www.herroom.com  I've bought several bras from barenecessities.  Very nice.  PS are all over the map when it comes to wearing bras after surgery.  Read the article and the posts from Bras 101.  You'll be greatly helped.

    Whippetmom is the bomb when it comes to knowing about our breasts.  They call her the "breast whisperer".  She's really great and has helped me tremendously!

    I know we get tired of yet another surgery!  But, we shouldn't "settle", either.  If you're content with your body, then so be it.  If there's a way to make it better, then we should go for it.  And drs. who tell their patients, we shouldn't expect much because, after all, we've had BC, are full of bologna.  That's not an excuse to give up and we should just be grateful for what we have.  How cruel and insensitive.  Ok!  Getting off my soap box now.  :)

    I do have good news!!  Had a colonoscopy Wednesday (colon cancer in the fam as well as the BC!) and it was clear!!  Clean as a whistle.  LOL.  I had one 5 years ago.  Will have another in 5 years.  I hate the prep stuff!  YUCK!  I've been told the protocol for that test has changed.  Used to be every 10 years.  Has anyone else heard it's changed to more often?

    Those having tests coming up, mellysu, I know, and anyone else:  Try not to borrow trouble from something that hasn't happened yet.  One day at a time.  Praying everything goes well!!

  • happymom8285
    happymom8285 Member Posts: 132
    edited November 2010

    I forgot!  Nordstroms will file your insurance for you if it's covered.  Maybe other stores will, too. I know some plans in CIGNA cover bras.  You have to check with your ins.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited November 2010

    happymom I just took my husband for his colonoscopy as he has colon cancer in his fam.  He had one at age 50 and is now 61.  The doc said protocol is now every 5 years unless they find a certain poply called an adenomy???? (can't remember) but if they find it then they follow up in three years.  Said our kids should start at age 40 and every 5 years.  Said if you do not have colon cancer in fam start at age 50 and every 5 years.  He said with these protocols and removing polpys early they have really reduced people actually getting colon cancer.

  • happymom8285
    happymom8285 Member Posts: 132
    edited August 2013

    Thanks Sherry!  That's good to know.  How's your husband?

  • Sherryc
    Sherryc Member Posts: 4,503
    edited November 2010

    happymom-- He is fine, they did remove 3 polps but the dr did not seem to be very concerned.  One he said may be that adenomy??? but will not know for sure till the path report comes back.  So he is good to go a few more years.  He did not take the first colonoscopy very seriously but since my bc he has taken this one more seriously and I don't think he will put them off in the future. 

  • happymom8285
    happymom8285 Member Posts: 132
    edited November 2010

    Sherry, I'm glad things went well!  And no matter what kind of cancer it is, it needs to be taken VERY seriously!  Don't know about that "adenomy" thing either.(?)

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010

    oakley so sorry I missed your post.

    I also had the same procedure done.

    Now I can tell you it wasn't painful or anything but then I was terrified. We always terrified of the unknown. Like Val said Ill be thinking of you and waiting for your Thursday post.

    If you have any concern or questions please PM me.

    Hugs

  • raincitygirl
    raincitygirl Member Posts: 700
    edited November 2010

    actually, there is now also a virtual colonoscopy and I hear you don't have to drink the guck.....

  • happymom8285
    happymom8285 Member Posts: 132
    edited November 2010

    oakley--thinking of you, too.  hope everything comes out all right!

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited November 2010

    Sheila-I like the new topper!

  • happymom8285
    happymom8285 Member Posts: 132
    edited November 2010

    raincitygirl--really?  I know my MIL can't have a colonoscopy because of a bunch of abdominal scar tissue.  She has to have a certain kind of scan, but she said it's not as reliable.  Is this what you're talking about?

    And Sheila, I like it too!!

  • sheila888
    sheila888 Member Posts: 9,611
    edited August 2013

    Thank You Joni and happymom.

    I had a colonoscopy once. I think it was little less than 3 years ago.

    No polyps (sp)

    I think I'm due to a bone density test after New Years.

  • raincitygirl
    raincitygirl Member Posts: 700
    edited November 2010

    happymom - here is the description:  http://en.wikipedia.org/wiki/Virtual_colonoscopy

  • happymom8285
    happymom8285 Member Posts: 132
    edited November 2010

    Thanks raincitygirl.

    Sheila, I've had 3 bone density tests over the years.  I do have osteopenia.  But it hasn't gotten any worse, or any better.  Been on Boniva now for several years.  Plus, now I'm being serious about calcium and vit.D supplement.

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010

    i have osteopinia too I dont know if it is age or Femara related or both!!!

    I'm not on anything. I guess my DR wants to wait for the next test.

    What serious amount?  I take Caltrate+D twice a day.

  • mimi1964
    mimi1964 Member Posts: 851
    edited November 2010

    Sheila the Caltrate + D is a very good supplement but Boniva, Fosamax (those type of meds), help to prevent and rebuild bone loss, which in turn helps to decrease the risk of fractures in people with Osteopenia and Osteoporosis.  People think that fractures, especially hip fxs, happen to people when they fall, but they can also occur spontaneously and then cause you to fall.  So many times people and docs get it backwards. 

    Sheila thanks for the post on the coobie bra.  It looks comfy but doesn't look like it would offer much support.  I know that several of you were saying that the surgeon said no underwires, mine has never told me that.  The only time I was told not to wear underwires was by my Rad Onc told me not to wear them during Rads but he told me it was fine after my radiation was over.  HMMM?  Oh well, go figure... different docs.  I wonder what there reasoning for it was?

    Renee

  • sheila888
    sheila888 Member Posts: 9,611
    edited November 2010

    Renee...My Dr never told me dont wear them.

    But even before my DX I was doing wireless.

    Last time I had my  BD test my DR came in with some Boniva samples but he changed his mind and said lets wait until next time.

  • onestep
    onestep Member Posts: 106
    edited November 2010

    Good morning, 

    I love the sign in the window. :) 

  • onestep
    onestep Member Posts: 106
    edited November 2010

    Did anyone make sure they got a BD test or any other tests as a baseline before starting treatments? I do not think my onc is going to do any such testing before beginning Herceptin and chemo, but I am thinking it may be worth my while to request it or go through my ob-gyn.

  • onestep
    onestep Member Posts: 106
    edited November 2010

    Oakley, how are you? You are in my prayers with good, healing thoughts filled with lots of light and strength. One step at a time.

  • onestep
    onestep Member Posts: 106
    edited November 2010

    Okay, this is the post I am hitting the 50 mark on and I want it to be on this thread because everyone on it is dear to me. I was supported and welcomed by all of you the first day I found this site and am thankful. Thank you to all of you as you are so strong, amazing, generous  and so much more! Talk soon.

  • oakley
    oakley Member Posts: 82
    edited November 2010
    happymom, sheila and onestep - thanks so much for your thoughts.  I am anxiously waiting for MRI results.  I know I won't hear today, but hoping Monday brings good news.  Trying desperately to keep my mind off things - it is impossible.  Looking forward to next Friday, when everything will be done and my daughter will be home from college!Smile
  • Meece
    Meece Member Posts: 10,618
    edited November 2010

    I am not sure why you are not supposedto wear underwire after having implant(s) surgery, so I starting searching. 

    What I came up with is that especially if you have had an inframammary incision, the underwire can irritate it and cause a great deal of pain.  I can say from experience, that any bra hitting that incision line hurts like heck.  Most PSs I read about said anywhere from 6 weeks wo six months post op you should not wear underwire, because the implant may not settle properly into their "pockets" if you wear an underwire.  Also the wire may not actually be the same curve as the implant.

    They also recommend if you don't have to have an underwire, try to get by without one indefinitely.  They recommend going and being professionally fitted if you still experience pain, and not to Victoria's Secret. I am a year out and may contact my PS and see what he recommends.  I have been toying with going to the local Bra shop for a fitting, but I never have time, and know it won't be cheap.

  • Annabella58
    Annabella58 Member Posts: 916
    edited November 2010

    Oakley, thinking positive thoughts for you.

    Having had this two times, I have found out that the bad news generally travels very fast!  My onc called me at night, at home the same day!

    So here is hoping very much and feeling confident that you will be getting good news!!!

    With a kid coming home from college, that is my happy time to do sheets, get their room all ready, buy their favorite foods.....hopefully that will engage your mind and keep good thoughts in it.

    Worst case, (and it is actually not bad, either)...they find something and it's plenty nice and early, so everyone that gets monitored will always be OK :).

    Best case, it's just fine and you will have a wonderful holiday :).

  • Annabella58
    Annabella58 Member Posts: 916
    edited November 2010

    I am a DD and a new B/C...I have had to find supportive wirefree....VS has a few, but Bali concealers, really do a great job.

    If you can find a molded cup (Bali, Walcoal) this works well......PS said underwires fine, but oh, so uncomfy.

    xoxo

  • chabba
    chabba Member Posts: 3,600
    edited November 2010
    Meece,  good fitters are hard to find.  Most can't get it through theirs that you can't get a good measurement by measuring you in a good fitting bra if you don't own a good fitting bra.  The only two really good fitters I've ever had were both in department stores and I've been wearing them for 57 years!  The first was in high school at Spokane's best store and the other when I was in my thirties at a Nordstroms.  Both times I was desperate enough to shop out of my normal price range.  The worst was at a bra shop. I think the problem there was partly that she just didn't carry a big enough cup and wanted the sale anyway. Yell
  • mellysu1022
    mellysu1022 Member Posts: 59
    edited November 2010

    Waiting is always the hardest part of this. But I agree, if you need to know something fast, they will call you even on the weekend. I have learned that the longer it takes for the results, the better the news. .I hope for only good news for you Oakley.

  • valjean
    valjean Member Posts: 1,110
    edited November 2010

    onestep ~ After I was given the 'script for Aromasin, my onc told me about Fosamax (Actonel at the time) & gave me a 'script for that to help counteract the bone loss from the AI & then set me up for a bone density test for a baseline. Result: osteopenia.

    My second bone density scan is set for Jan 4, 2011, which will be at the 2-year mark.

    {{thinking of you, oakley♥}

  • jo1955
    jo1955 Member Posts: 7,545
    edited August 2013

    Hi!  My name is Jo and I am Stage 1.  Breezed through lumpectomy surgery 8/30.  Have a wonderful, amazing BS.  Rads on the other hand has been a nightmare.  Tried Mammosite, did not work.  Delay in starting 30 tx's for 3 weeks to get everything healed.  Finally started middle of Sept.  Went in Friday for #18 and now have had to stop rads for a short period of time.  Developed a raging, itchy rash that seems to get worse with each tx.  Trying Topicort over the weekend and will have a skin recheck on Monday.  Was looking forward to being done on 12/3, now don't know when I will see the end. Will let everyone know what happens on Mon.

    Have a great weekend. 

  • barbaraa
    barbaraa Member Posts: 3,548
    edited November 2010

    Welcome, Jo. Sorry you have to be here but these gals are a great bunch!. Sorry about your rash. What a mess. Let us know how it goes tomorrow!