CALLING ALL STAGE I SISTERS
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Diane...Its always snowing.
The real snow wasnt suppose to start until later but it was already winter wonderland at 10am.
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HI mfrog....I like the word Party.
Welcome♥
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It looks like a number of you Stage 1 Ladies are getting Bone and CT scans. My doctor and hospital (NCI hospital) claim that no scans for early stage bc, period - unless suspicious sympthoms. Why such a difference in protocol.
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My Onc said my insurance would pay for it so let's get a baseline. I did not want to but in retrospect everything was fine so I am glad I did.
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char....I had all these tests once at the beginning after lumpectomy.
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My scans were baseline scans prior to Surgery/Chemo, etc... after tx was over I had asked what scans we would do to confirm NED but they said no scans for me
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Michelle, loving the hair!
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Thanks Joni2!!!
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Got the call from the hospital for my scans tomorrow. Then it is the dreaded waiting game for results which aren't until Feb 4th.
Thanks to all my sisters for your caring & concern.
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Char - my bone density scan is simply looking for bone loss as a baseline before I start on the anti-estrogen "how to be a man" pills
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Diane...Bone Density test (Dexa) is different than bone scan.
It takes about 10-15 minutes and like you said no prep is required.
I already had 2 of those the next one will be the end of April.
((jo))♥
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Jo, look on the bright side, I was just watching a program about a 58 yr old woman whose dr. thought she had ovarian cancer, so he sent her for an emergency US. They found out she was nearly 30 weeks pregnant! Just wanted you to laugh, or gasp. Trying to get your mind off it.
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For a bone scan, a radioactive tracer substance is injected into a vein in the arm. The tracer then travels through the bloodstream and into the bones. This process may take several hours. A special camera (gamma) takes pictures of the tracer in the bones. This helps show cell activity and function in the bones. Areas that absorb little or no amount of tracer appear as dark or "cold" spots, which may indicate a lack of blood supply to the bone (bone infarction) or the presence of certain types of cancer. Areas of rapid bone growth or repair absorb increased amounts of the tracer and show up as bright or "hot" spots in the pictures. Hot spots may indicate problems such as arthritis, the presence of a tumor, a fracture, or an infection.
A bone scan may be done on the entire body or just a part of it. (From WebMD)
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I did not get the bone scan initially after treatments, but then when I got a sore back from moving some furniture and it lasted over 3 weeks, I made the mistake of mentioning the words "bone" and "pain" in the same sentence to my MedOnc. Well, I swear I saw dollar signs pop up in his eyeballs. Kidding, but only kind of. And, so, a scan got ordered. All was well & now I do have a baseline scan for comparison to any future scan, should I be unlucky enough to need another.
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The doctor's order stated I am to have a 3 Phase Rib Bone Scan - so I am thinking it will be just to the chest area as well as the Chest CT he ordered.
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Jo...If you are not having complete body bone scan then the time is much more shorter
♥
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Once I changed oncologists, I requested my files from my original one. So many of the pre-chemo scans and baselines were missing out of my file, that me new onc ordered the bone scan for a baseline. Mine was full body. Nice little nap during the time it took.
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Sheila - I just wanted to clarify for someone else who seemed to not realize that one is for bone density and therefore no prep and the other is for a different evaluation.
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(((♥Diane♥))) 0
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My dear Sisters....
I heard yesterday my aunt who I love so much has lung cancer. (wasnt sure of that)
She lives overseas. Today I spoke to my cousin to get more details.
Stage IV and mets everywhere and she is on morphine.
It was originated from the breast which nobody knew to full bloom.
I spoke to her few minutes.
The reason I'm writing all these is. I have a strong desire to fly to Turkey and be with her for a while. i have not been there since 1983.
I'm not comfortable going there for no known reason.
Financially I have to put it on my credit card and pay little by little which I don't like.
Hawaii trip in May to see my daughter will be jeopardized.
I don't want to sound like a selfish woman but I'm thinking its selfish not to go.
Please give me some logical answers. I'm very confused and need input from you.
Thank You All.
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Sheila - I understand that pull, and I think you mentioned she played a big role in your life. Knowing what I do of you, I am afraid it will bother you if you don't do this. However, will she know you are there? Will seeing her bring you too down? Will there be too much cost other than the airline? Finally, it might make you feel good to return to Turkey for a visit. The real price will be not being able to go to see your daughter....
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Jo - sorry to hear about your MS progression. Shelia - I'm praying for your Aunt and God's discernment for your decision to travel. Personally, I'd try to do both simply because I can't live w/o seeing my daughter for more than 6-8 mos. and feeling pulled to see your Aunt will only cause you stress (which you don't need).
Ladies, thank you for the reassurances re joint/muscle pain. I feel like I'm 90+. I asked my onc for a bone density to help make decision re anti-hormone treatment. I asked my radiation doc for echo cuz my ct scan for rads showed an enlarged heart. Results from both tests will help determine best Rx for man pills (I like that one but I'm already the husband in my house! bahahaha) Sorry, I digress. HMO approved echo but asked for more info supporting bone density scan. We'll see what the final determination is but I'll get it done anyway cuz I have 2 ins. co's and the other will pay - I'm VERY lucky, I know!.
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((((((((((Sheila)))))))))))))
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((((Seyla))))) If your aunt would recognize you, it would be wonderful for you to have a few precious moments with her. If she wouldn't recognize you, there might be no reason to put yourself in such turmoil for naught. Your daughter would understand if she is a tenth as compassionate as her mother. Yes, it would be difficult to postpone that trip, and if possible try to do both. But you know your aunt will not be here much longer, and you must do what is in your heart.
Praying for God to make His will present in your decision making process.
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I think your Aunt will know that you are with her. Don't live your life with regrets! Go with your heart Seyla and make a decision you can live with.
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Dearest Sheila---my heart aches for you.this is a hard one.Ill be prayin for you that GOD will somehow provide you with the strength and the answer you so desperately need.What ever you decide to do will surely come from the heart.Ill be prayin for you and your aunt.God bless both of you at this very stressful time.huggggggggggs K0
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(((Shelia))) - When my gram was dying in hospice my mom kept calling me telling me gram is fading fast come and say your goodbyes... My gram & I had breakfast the day before she was sent to hospice. We laughed, cried a little and just enjoyed each others company. My gram knew how much I loved her and that we were saying our goodbyes. That is my favorite memory of my gram, still full of life and laughter, wearing her over-sized sweat shirt sleeping gown with a fuzzy bear on it (I now have that night gown, it was all I asked for after she had pasted away). I did not want my last memory to be of her withered away, incoherent and not able to recognize me. My mom thought I was being selfish, it was only an hour drive to hospice but I was at peace.
I know your circumstance is different and more time has pasted since you last saw your aunt but I wanted to share with you my experience and my decision. Will your aunt recognise you? Is she coherent? What is your last memory of her and how do you want to remember her? If your visit will bring her/you peace, then go. If going will only bring heart ache and pain, stay. Either way your daughter (and your aunt) will understand.
Sending you much love and prayers
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I have to think about all your outputs and make a decision soon.
Good Night
♥
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Sheila - I have to agree with everyone else. You should go to Turkey and be with her. She will know you are there by here side. Remember, I have been to your country and family is very important. I'm sure your daughter will understand and praise you for making such a hard decision. Go with your heart in making your decision.
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I wanted to make a separate post. I'm up late - can't sleep for thinking about the scans in the morning. Really anxious now about the IV thing. If I would just grow up and get over it, I would be fine but that is really hard - sometimes bad experiences are hard to forget. Want this to be over so I can get on with other things. I had to admit, I went to a dance in the park I live in and had a great time, wonderful distraction but now home and the mind is racing. I am starting to ramble and make no sense so gonna stop for now and try to go to bed
Will let everyone know how it went when I get back
Good Night Everyone
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