CALLING ALL STAGE I SISTERS
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Jo...Thanks♥
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granny...yeaaaaaah tomorrow is your last day.
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((To All My Sisters))
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Sheila - That is pretty cool.
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hi Nancy...I'm glad you and jo liked my Mr google.
You have a Good Night.
♥
Good Night jo.
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I don't know if this is correct information, so sorry if it's confusing, but I thought had heard there were studies being done to see if staying on medication over 5 years would be beneficial. Did anyone else hear that? Maybe Sheila they might tell you that when you see your Onc.
Hi Kymn!
Good night y'all. Sleep tight.
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Hi everyone
Jo - I only saw my onc once - he prescribed Femara and then said I had a good prognosis BC and he wouldn't need to see me again - hope he's right. GP now prescribes my Letara (generic Femara). Glad to hear you are BC free - yay!
Welcome Kymn - fingers crossed the next surgery gets clear margins. Are you getting your head around the pathology results yet? I understood most of what you shared - please feel free to private message me if you have any questions.
Granny - yay, rads finished nearly. You are one tough lady - I am so happy you have given yourself the best chance of ridding yourself of this beast. I know it hasn't been easy for you but you stuck with it and it is done. Your SIL and DB are in my thoughts.
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YAY GD!! Last day!
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CONGRATS TO EVERYONE FINISHING RADS TODAY - IT'S PARTY TIME!!!!
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WOO-HOO!!!
(not me though!)
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I posted on the middies thread but will also update everyone here.
I called the rad center this morning and had to talk to the b%#ch of a nurse to let her know about the lung damage. Her standard response was "Do you want to come in and talk to the doctor?" I said no - what are you going to do for me now? I already have an appt with a lung specialist. She asked if she could get a copy of the scans to show the doctor instead of just telling him about it. I said fine. I would not want to go in to talk to the rad doctor now - just too angry.
Interesting to see what, if any, thing happens next.
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Is it true that no matter what you will always have some kind of lung damage after rads? The reason I ask is I ended up doing to GP last week for Bronchitis. It came out of no where with a deep cough like I have never had. The cough was so bad that my chest muscles are sore. So need to know are we more prone to lung problems for life??
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mari - That is a good question and I would like to know the answer to that one. I have had the same kind of cough and was told he was not due to rads but did not have it before I started treatments. I do think is related. We do need to know if we will have lung problems for life. My RO is such a moron I wouldn't trust a d#@m thing he said.
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I was told that there can definitely be some risidual effects from rads. Of course, the concerns were lungs, heart, etc. It is IMPOSSIBLE to completely miss those areas and so, they have had radiation as many times as your breast has. Apparently lung problems can emerge as early as 2 months after end of treatments and can be just a mild cough that will not go away or much more severe.
Hang in there and know that you are stronger than you even know and will get thru this!
Teklya
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Teklya - I understand about the residual effects from rads. My issue right now is my moron RO did not and would not discuss any long term SE's. I was so shocked when I was told I had the lung damage I wanted to explode. I am so ready to be over these doc appts and move on with my life.
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Yikes! I heard that radiation is the easy part. After reading all this, now I'm not so sure! Is everyone getting WBR? Or pinpoint? What are boosts? I'll have to look around on this website for more info!
My appointment with RO is on 2/28 and I want to be prepared!
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My RO never mentioned anything about long term SE. All I know is the cough is driving me nuts...
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Thank you all for the information. It's nice to know I can come to this forum and get so many answers.
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There are several good websites you can go to that will tell you all about radiation therapy. If you had chemo, radiation is easier. Skin care will be your biggest concern. Everyone does differently.
You will receive so many regular treatments and the boosts are directed at the tumor site. The type of radiation is different and does not penetrate the skin as much. You have to be remarked for these prior to doing them. I had 25 reg rads and 5 boosts. The boosts were the easiest part and also marked the end of rads for me.
Ask lots of questions - the ladies on here are amazing and we will help you through rads.
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Teal3Pink1 - I think the majority of people start with whole breast radiation and then have boosts, the number of treatments varies greatly according to doc, diagnosis, region, etc. Radiation is not difficult for many people, it has it's moments but overall, it has been for me, a good experience. I just hope you don't go there expecting something horrible, though I guess you could be pleasantly surprised. Being two treatments from done, I want to say it has not been anything close to terrible.
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Teal3Pink1 - I am in raincitygirl's camp with regards to radiation being just fine. I do realize that everyone will have different reactions, and some have it more difficult than others, but I just wanted you to know that there are also people who have not had a difficult time with it. I feel tired and I'm a tiny bit itchy, and I have 5 boosts to go. It's really been fine.
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(((granny))) for your last treatment.
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Ladies,
Interesting Jo and all who are posting about rads and lung issues, I posted a similar thread on "not recrurrence but concerned" for a chronic cough that I have... I went to visit my RO today and he put me on antibiotics... I went to my primary doctor a few weeks ago and she sent me on my way!
So, I have been a bit worried about recurrence in the lungs, you know just because, well we have been given the s**t end of the stick once and when everyone tells me not to worry it brings me back to a time not so far back I was told the same thing when I found the lump in my breast! The kicker was everyone saying, honey you are sooooo young, this cannot possibly be!
So, call me pessimist, but I FREAKED out today! My RO was very cool and said the same thing Jo has stated here along with some other ladies, rads comes with some life long effects, 2 of which I have picked up on! It can promote lymphedema as well as potentially create lung problems.
When I had a PET scan in Oct., it showed something on the lungs, NOT CANCER, just what they say is typical lung damage from rads!
So, I take my antibiotic and hope this all goes away! SHOO FLY DON'T BOTHER ME... (A book I read my 3 year old!) I just thought to share...
Good night ladies!
Nicole
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I have to add, as I realize many woman on this board are preparing for rads or in the process,I WOULD STILL DO THE RADS REGARDLESS OF MY secondary issues! I had to do what was offered as the best defenseagainst this ugly disease.
My lymhedema has a lot to do with my prior surgeries! I was a complicated case to begin with, go figure
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Nicole - As I have said before, I understand the potential for long term side effects from rads like the lung issue, my problem with it is, my RO did not even bother to tell me about it so when I got my scan results and that showed up, you can imagine my shock. Then I got plain pissed off.
When ROs say there will be "typical lung damage from rads" - what is typical? How much is normal and can it be treated? These are the things I would like to have my RO tell me but he won't.
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IM DONE.IN MORE WAYS THEN ONE.DONE TX.WELL DONE BREAST.BUT IM DONE..YAY
i spoke to the RO about the heart,lungs issues and he said NO SE>>>and mine is on the left side.he said i told you before and im telling you again you will be fine.HE BETTER BE RIGHT OR IM GONNA HUNT HIM DOWN.
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YAY Granny!!b
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Lol Granny - you crack me up! Love your attitude. Must rush - have that four letter word today - WORK.
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Granny: Congrats!!!
Ladies: Thank you everyone for all the info and reassurances. I'll read up on rads on the websites and keep a very open mind and try not to freak out too much! I've had plenty of surgery and chemo so they don't phase me at all. Rads will be a whole new ride! I'm actually kind of excited about getting the tattoos!
If I wasn't such a chicken, I'd already have a teal ribbon tattoo above my right ankle. Went to a conference where they were handing out lick and stick tattoos and I thought it looked super cool. 0
