CALLING ALL STAGE I SISTERS
Comments
-
Kymn....i had a re excision because the margins weren't clear
Yes they do cut it exactly where the scar is, No they dont make you look like a map.
Most of the time second lumpectomy does the job like mine did.
Just one day at a time Sister.
I'm glad you like the panel
♥
0 -
Jo...It's nice to hear from a DR on a Saturday.
Like you said now that you know what it is probably your symptoms of burning sensation will be less and less every day.
Anxiety of not knowing is the worse thing.
0 -
Valgirl - My lump was left side also. RO basically blew me off too. That's okay - I have already thrown his sorry ass in the bonfire. Boy, did he burn!
Sheila - It will be interesting to see how much the lung has changed since rads. Yesterday I was pissed about this, now that I think about it curiosity has taken over. Will be good for everyone else to know this tidbit of information.
0 -
Here's a group hug for my sisters. {{{{{{{HUGS}}}}}}}
0 -
I, too, wound up with a raging case of pneumonia and inflamed pleura (lining of the lung). When I asked Dr why this happened and how, he did say that this is definitely as a result of the rads. Was given some wicked meds (antibiotics) and feel a great deal better. Still a nasty cough and some pain in the chest area; also, shortness of breath that seems to be lingering. Techs said pretty hard not to affect lungs, heart, etc as the beam/ray can only be directed so much without catching what lays in the path.
On a more positive note, only 3 rads left and then I am done! Can't wait! It will be fabulous to finally "heal" and start to feel better. This past entire year (almost a year for me) has been about surgery and treatment, chemo and then rads. Sheesh. No wonder I am so pooped!!!
You are the most courageous and amazing women I have known and I thank you all for everything you have done to help me on this path. You will NEVER know how incredibly awesome this has been to have your support, wisdom, advice, concern and empathy.
Take good care and just breathe. . .
Teklya
0 -
Teklya - i have to wholeheartedly agree with you. These are some amazing women. The support, wisdom, advice, concern and caring has been so great. It has kept me from going insane. I couldn't have made it this far without them.
0 -
I too have to say my sistas are just the best.It was one year last Dec.that I started this ugly walk and I probably would be half dead by now if it wasnt for the sistas when i first began.I was sooo dumb and in shock.The love and support that I felt was amazing.Now that Im at the end of the line I feel like I want to give back.I have soooo much information im on overload.Thank you and God bless.There is a safety in numbers.I love all of you.hugggggggggggggggggs K0
-
Beautiful postings.
Sisters forever
(((HUGS)))
((♥♥♥)
0 -
WOW Sheila it's nice to know that there are a lot of sista's that lov AI as much as we do! Oakley, can't believe you went to the concert
!! ValJean - I love, love, love, Kellie Pickler too, she is one of my all time favs!
Granny so sorry to hear about your SIL {{{{prayers for Judy}}}} and Congrats on finishing RADS!! doing the happy dance for you
Kym - Welcome to our world and I hope you are finding all the answers you need or seek. I really hate you are having to have surg again on Feb. 18th but I will keep you in my prayers that you will get clear margins this time. I too had IDC and DCIS with no lymph node involvement and I had a partial mastectomy and radiation- no chemo needed. I hope the same for you.
Tekyla - congrats on being almost through with rads.
To all of you that live in Texas and have had a snow storm I hope you are staying warm.
Jo - I am so happy that your problem wasn't anymore cancer. Apparently lung changes after rads is par for the course. My RO told me it could happen but every precaution was taken to prevent it and it was likely that nothing would occur... Yeah Right! I have a spot on my right lung smack in the middle that showed up on an xray that caused me to have to have a scan and worried me to death for a week and was scar tissue from rads. But sometimes when I am talking I notice that I get short of breath now also. All of this is caused from the radiation. The things they don't tell us. Hope you feel better soon.
Hugs to all my lovely ladies!!
Sheila and Val Jean - I guess one of these days I will meet up with you on these boards!
Renee
0 -
Granny - yeah only one boost to go. Take care and don't overdo afterwards. I was actually more tired after the rads were finished. It was about two weeks afterwards that I had a "meltdown" with my energy. What is the update on your SIL and DB?
I've been busy with company and my computer is in the room where the company is sleeping so..I haven't been able to get on line for a while. You've been chatty and taking time to catch up with all that 's going on.
Jo, glad to hear that there wasn't any BC but also sorry to hear about the lung problem. Did they suggest any type of therapy?
Had to go to see a lymphadema therapist last week and he found that I have cording and gave me exercised to try and help the problem. The movement of my arm and the pain down the inside around the incision was really bothering me. Could this also be part of your problem if there is adhesion around your scar? Just trying to find something that might help....
Missing you all... the company - my DS & BIL leave sometime next week.
0 -
Kymn - hoping that your second surgery is successful with clean margins. I wanted to let you know, for comforting reasons, that a friend of mine just went through THREE lumpectomies for ILC - from one of the top BS in NYC, etc. etc. - needed clear margins and got them the third time around (it's a charm, right) and was fine. I'm sorry you have to go through this again, but you will come out clear and that's exactly what you want. ((((Kymn))))
There were other things I wanted to respond to, but they are on the page before this and I don't know how to go back without deleting what I am writing here! Rads brain?
((((SISTERS))))
0 -
samsue - Waiting to see the lung specialist on Feb 15th. Then back to the surgeon on Mar 4th. Sounds like I have to wait until then to get a good answer to all of this. I should be used to this dreaded waiting game but I am not. Hate it. All these appts are getting in the way of other things I want to do. Hope I get a break soon.
I have already told my surgeon and MO that they need to get their stuff together and get things done by the middle of April. I am going on a cruise and nothing is going to stop me. It is paid for and I need the vacation badly.
0 -
((((SISTERS)))) !!!!
0 -
Speaking of all the doctors, I am curious of who is really "in charge" of my case. I don't have a "team" of doctors, my RO, MO and BS are all from different places (but I love them all). I have a 6-month follow up with my BS who gave me a prescription for a 6-month follow up for mammo and US (which I may not be able to do at 6 mos because of radiation effects). My MO gave me prescription for Tamox. RO is just dealing with my rads right now. Interesting to see others who have their RO give them a mammo script, etc. So confusing! I guess there really is no protocol for who's "in charge?"
Nice boat Jo!
0 -
Oh Grannydukes! How exciting that Monday is the last rads!!!! Good luck! Are you doing anything special to celebrate?
Oakley: How confusing! I went to a presentation on doctor/patient communication and the breast surgeon on the panel considered himself "the quarterback" of the medical team. In the ovca world, my relationship is closest with my med onc b/c that is who I see more frequently. I know a few women who have very long and close relationships with their primary care doctors who stay involved during cancer treatment and facilitate communication between the cancer doctors.
Ultimately, it looks like you might have to take on the role of making sure that everyone has up-to-date information. All my doctors are at the same institution (for ovca and breast) and even with computerized records that everyone has access at the push of a button, they aren't always on the same page! It can be annoying to have to be on top of all the information all the time, but with so many bits and pieces of information, it is easy for something to get overlooked and fall through the cracks.
I wish there was an easy answer!
0 -
Oakley - I am down to two doctors - my BS and Onc. Once I get this breast issue resolved then it is down to just the onc. I haven't seen my RO since a one week skin check after finishing rads. My onc is going all the testing and mammos. I will be seeing my gyn about the time I need my next mammo and will most likely have him order it. I like the imaging center much better than the one the onc would send me to. MO does not care who orders it - I just have to let me know so he can get a copy of the report. Bottom line - My MO is basically orchestrating all my care and the GYN is an annual thing. I like it this way.
0 -
Jo - I am so so surprised you are not trusting and using your RO for everything! hahaha!
Thanks for the info Teal and Jo.
Have a great superbowl sunday! Preparing for a crowd here - rooting for the Steelers (I know, some may boo me!).
0 -
Oakley - Kinda late to trust my RO. Sadly, he has already burned in the bonfire - LOL.
0 -
Oakley - Yea! I know.
0 -
I never trusted mine. He was and is an arrogant little pri$k! I only allowed him to treat me because he is excellent. I had one time in the beginning where I laid down the law. I said, "you don't have to like me and I don't like you but you are excellent at what you do so let's just get this treatment done and be done with each other." He was unfailingly polite to me after that.
0 -
BarbaraA - Good for you. I hate arrogance - especially in medical people. Who do they think they are? And better yet, who do they think pays their salaries?
In the middle of my rads, I had to get treatment for my rash from the BS. Amazingly after that the RO changed his attitude and was somewhat nice. Too late for me. I think my BS called him and had a chat. BS was referring physician.
0 -
Well, the jacka$$ still keeps finding reasons for me to see him (think $ have something to do with that?). I am done with him. Anyway, as I said before I need to have the ENT check out my raspiness and a dermatologist for the black spot that was never there until rads. Nice. Two more freaking doctors! This really stinks, doctor-ville.
0 -
wow after reading some of these posts I am scared to meet my oncologist. I sure hope I like hiim as he is the only one in Lethbridge and I would have to travel to Calgary if he turns out to be a$$.
anyhow just wanted to pop on and say HI sooooooo HI
0 -
BarbaraA - Of course it has to do with money. He is sucking your insurance for all he can get. Doctor-ville does sucks! Thought I could get through March without going there - guess not. Maybe May will be my month appt free.
0 -
After I was finished with my radiation, my onc told me to cancel my follow up appt with him that I did not need to see him anymore because you are seeing me. That was fine with me. Although I love all my doctors. My rad onc was a sweet heart.
0 -
I loved all my Doctors.
But BS is #1 with his warm and caring personality.
Rad Onco was also very warm man.
My oncologist is not warm but I trust him.
So I really don't have any complaints.
Stopped seeing Rad ONC after finishing my treatment.
BS I see him once a year.
Oncologist every 4 months and have an appointment in 2 weeks.
Probably he will change it once a year and I wont be very comfortable with that.
0 -
Sheila - Can't imagine your onc only seeing you once a year. My DH had cancer over 5 years ago and he is still seeing the MO every 6 months. We have the same MO - how convenient is that?
0 -
Jo...im just saying. It will be almost 6 years and Im coming off Femara in March.
That Im sure of. im little eneasy with this.
0 -
Sheila - I understand your concerns. It is scary to think that after 5 years of Femara you will be taken off. These pills are our security blanket and to have that taken away? The best we can hope for is the pill did it's job and we can rest a little easier. Are we ever safe? Who knows? What I do now is I am not going to let this BC beast get the best of me. I refuse to llive in fear.
I will be with you at your March appt holding your hand and will have an arm around your shoulder.
0
