CALLING ALL STAGE I SISTERS
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I agree with Annettek...
I should start singing lalalalalalalala lalalalalalalalalala
Can you hear me?
Shouls I join American Idol?
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ummmm I love you sheila....but no:) hahahahahahaha.....
I WANT EVERYONE WHO IS IN DRIVING DISTANCE OF NYC TO COME THERE SOMETIME DURING THE WEEK OF MARCH 27 AND LETS HAVE A CUP OF COFFEE OR SOME WINE. I WILL BE IN MANHATTHAN-MIDTOWN/HELL'sKITCHEN...typical annette style I have reservations at 8 hotels and will make my mind up this week which one...I always wait for the *feeling* which one is right.....I will have firmer details after doc visit on Wednesday
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Atjina,
You go girl! Beat my score. Actually it is possible I heard the score of 0 does exist.
Good luck ! I am seeing my onc tomorrow so I am going to ask questions if I learn something intelligent I will let you know.
take care
Chocolate- I do love baklava..
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Meece sorry to hear you're having to wait for the procedure. The wait is always the most difficult part of this BC. Insurance can complicate the process but I'm finding that the dr office has a lot to do with the way they react the the request. I had to go thru the RO office to get the oncotype test since the Onc didn't want to do it. He made the request and it was done.
Keeping you in busy with the lalalala's and fast paced talking we do here. ((((hugs))))
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AnnetteK-I sure wish I was within driving distance for more than one reason. I love how you roll with the reservations tho' - too cool.
I hate that BCO hasn't been going to the page where I last read like it used to. Moderators-I hope that's going to be fixed (fingers crossed!)
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Hi ladies, I have been patiently awaiting my Oncotype score as well. (And I am 6 weeks post BMX). ERGH! Anyway, I had no idea you could have a score as low as ONE. Amazing!! Congrats!
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It is funny Renn....My onco score was liveable 6 and I was bummed it was not lower. Only time my BS looked at me like she wanted to knockme in the head...sometimes we just want...I don't what, just want. I finally gave up on waking up and finding this has all been a bad dream. The good news is there are some very few mornings where I wake up and BC is not the first thing I think about and that is GREAT (as well as the waking up part)
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Rennasus: Good heavens! Why so long for your results? When was the test ordered?0
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I hate it, too, Eph. Maybe they did it because it slows us down a bit.
I am not waiting on insurance, it is that they only do this procedure on Fridays, and 3 fridays from now is the first opening.
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Annette---I will be in NY when ever you go.Count me in...whenever you get the details just post them.lookin forward to meeting my NY sistas.Im from Brooklyn but now live in NJ.
Meece---big huggggggggggggggg
Mimi----welcome back.we missed you
Sheila-----come dance with me---
huggggggs to all my sistas.God bless K
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Meece sorry for the wait. But we will all be here waiting with you.
Chocolate and Rennasus let us know when your onco scores come in. Will be praying for low scores.
I am 8 weeks post rads and am having breast discomfort/pain and slight swelling. Have had this since Feb 28th. Spoke to the rads nurse a couple of days after it started and she said that it was normal and take Aleve which I am allergic to so I tried Tylenol and that did not help so have been taking Asprin and not much better. I am scheduled to see my MO on friday so I really hope he can help me out with this. I refuse for this to be normal.
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Sherryc - have you been evaluated by a qualified LE theraphist?? If not, ask your MO for a referral, I had a lot of discomfort and minor swelling with my breast/truncal LE and my therapist was a big help in teaching me how to manage my LE. There is a forum for Lymphedema where you can find alot of helpful information and links. I would cut and paste but my work computer won't allow me to...
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o2bhealthy--I kinda figure that is probably what I have. I have been researching and found breast lymphedema and radiation induced fribrosis. The more I search I feel like it is probably the lymphedema and will see what my MO says about it. I will look at the lymphedema threads thanks
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Oncotype results are in! Score is 21 with a 14% avg chance of distant recurrence. At this point, I'm declining chemo and taking the risk.
I'm just relieved to FINALLY have all the data points, to have made the decision and to move forward on a treatment plan! It's been such a long, long road since that initial call to come in for diagnostic mammos back in early January. Whew!
Annettek: I'd love to have had your score! lol
ilovechocolate: You win, dangit!
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ajtina - Glad to hear you got your onco score in and have made the decision on what treatments you will have. Sounds like you are so ready to move on to the next step.
I have to say that an oncotype dx test was not done on me. I was not aware of such a thing right after getting my dx. In fact, I was not aware of it until I read about it on these threads. I did ask my MO why he did not do one and he said he felt I did not need one and did not want to have to bill my insurance for a very expensive test. I really like my MO and have to trust his professional judgement. Funny how alot of MOs do things differently.
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I did not have the onco type test, but I was told that it was because I am TN.
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I didn't even know about that test and so many other things until I joined BCO.
I'm think because of my HER+ status I got the whole package chemo
ajtina ...As long as you are comfortable with your choice that's what you should do.
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Thanks Jo, Sheila and Meese!
My understanding is that the test is for stage I or II who are node negative and ER positive and Her2- (since the main purpose is to determine if chemo would be beneficial). I've heard the test costs about $4k. Since I'm Kaiser, I don't really go through any approval process; they just follow the nccn.com standard of care recommendations without any drama which has been nice!
Sherryc: I hope you find some relief! I start the rads process on May 9th and fear some of those painful-sounding SEs now that I'm finally finding some comfort post-surgery!
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Annetek- are you on tamo?
Atjina- Sorry
Saw the onco today and since there is only tamo for pre- menopausal women that is the recommendation.
take care!
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yeah, no test for me, either, bc i was her2neu, and it was real aggressive, doubling almost in size while they diddled w/ tests. it all worked out.. se's are pains in the arse, though... 3jays
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Ajtina, am I mistaken or did you have an avatar, and it is gone?
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ajtinina, my score was a 23 and I did not do chemo and feel good about that. My tumor was 1.6cm. At first I was very anxious about it but it was because I had a different MO and he did not explain things very well. Once I switched MO's and the new one really explained things to me and gave me the option I choose not to do it and feel good about it. At this point I don't worry about distance recurrance. I have some additional breast disease and worry more about getting a new BC than I do this one coming back. Good Luck with rads. Not everyone has problems. I jsut ran into a friend last night that has 2 TX left and she has not had any problems at all, just some red skin and we use the same RO. Just take really good care of your skin and use whatever creams they tell you are good. The rads threads helped me alot.
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Sherry: Thanks for the decision support and guidance! I'm very fair and have fussy skin (have had two incidences of basal cell carcinoma and one "even Stanford can't tell what that was, let's write it up in a medical journal" event) so I worry a bit.
Meece: I did but I took it down. I've used this username on a number of different boards for many years and decided I didn't want old friends from other boards that I'm no longer active on searching me out here since Google captures our posts. Figured lack of a picture might help since I'm not the only ajtina on the web! I've told only my close friends and family about the bc and would like to keep it that way; wish I'd considered that when signing up!
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I think there is a way to change your user name here. It seems last year Badger had a different name, and she changed it to badger and it kept her posts but attached her new name.
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Yes you can change it. I have another friend who changed her username for the same reason. Her post were not deleted and I have her in my favorite friends and it changed it all automatically. Of course she had to send me a PM to let me know so I would recognize her.
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I think it was OG, right?
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Many many more....................♥
(((Meece)))
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Thank you, Seyla. I was beginning to wonder where you were this morning!
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Thanks for the guidance ladies! I'm now tinaj!
Happy birthday Meece!
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Hi Ladies!
Tinaj, I'm glad you finally got your onco score! I find it so interesting to hear about everyone's different treatments. I have been puzzled by the similarity in everyone's scores and differences in treatments. So many layers go into making a treatment cake! Anyway, good for you for saying no to chemo! I am in that camp...I don't think I would do it either. But, I'm still waiting to find out if it is even going to be suggested to me.
My onco score should be in at the end of the week. Finally! It took 2 weeks just for my insurance to approve it. ERGH. Results are due in exactly one month after I saw my oncologist. Good thing I had other things to occupy my worrying mind so I haven't been dwelling on it — I have delayed healing in my right incision and need a 2nd revision surgery, which will happen on Monday.
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