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CALLING ALL STAGE I SISTERS

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Comments

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited May 2011

    Way to go BarbaraA!  I wish I could fire all my doc's and start over but that would just be a nightmare...

    ((((Sherry))))  It is so hard when parents health starts to fail

    Welcome vhshea!  

  • Sherryc
    Sherryc Member Posts: 4,503
    edited May 2011
    Barbara you go girl.  My RO only made me come back for a three month follow up.  Told me I was doing good and did not need to come back unless I felt I needed to.  I may need to make up an excuse cause he was really good looking.Smile
  • FireKracker
    FireKracker Member Posts: 5,858
    edited May 2011

    OMG I just read 3 pages and i dont remember tooo much of what i read.damn this BC sure does suk even the brain(what brain)

    cant write too much .back is killing me.just wanted to let the sistas know im thinkin and prayin for all of us.PLEASE GOD WE NEED A VACINE.

    aND A EARLY hAPPY mOTHERS dAY TO EVERYONE.if your not a mother celebrate it anyway.hugggggggggggs K

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2011

    Happy Mother's Day to all my sista's....................enjoy the day

  • cc4npg
    cc4npg Member Posts: 438
    edited May 2011
    vhshea:  I was quite small too.  I opted for mx because my BS said I would not be happy with the result with lumpectomy being so small.  I made the right decision for me.  Not having rads really helps with reconstruction.  However just because you have a mx doesn't necessarily mean you won't have to have rads... depends on lymph nodes.  Anyway, I turned out to be BRCA2+, so I had a bilat... but I would have had a mx even if I hadn't been BRCA+.  I can't say how the healing time is for mx vs. lumpectomy.  I know it't less for lumpectomy, and you have more sensation in the breast.  I have little sensation, but I was fortunate to be able to have nipple sparing and have sensation in one nipple.  You have to weigh it out yourself and it's a hard decision.  There is no wrong choice.. being BRCA kinda means I needed bilat mx.  In all honesty, you may not be happy with how it looks if you choose lumpectomy.  Best of luck!
  • mimi1964
    mimi1964 Member Posts: 851
    edited May 2011

    Welcome to all the new ladies on the board... Glad that you have found this group of wonderful women to share with and rant if you need to with!  You will find someone that has shared the experience you are going through. 

    Love to all of my Sister/friends on Mother's Day!!!

  • Plils
    Plils Member Posts: 35
    edited May 2011

    mini1964,

    Happy Mothers Day to you also. I am so glad to have found this site, It has already helped just reading everything and knowing I am not alone, it is great to have my sister's to talk to.

    Pam 

  • valjean
    valjean Member Posts: 1,110
    edited May 2011

    Happy Mother's Day to all my beautiful sister/friends.

    Love & Hugs,

    Val

  • valjean
    valjean Member Posts: 1,110
    edited May 2011

    Sheila ~ Have a beautiful day, my dear sister/friend. ♥

    I love ya!

  • barbaraa
    barbaraa Member Posts: 3,548
    edited May 2011

    Happy Mother's Day to all!

  • annettek
    annettek Member Posts: 1,160
    edited May 2011

    Happy Mother's Day

  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2011

    Happy Mothers Day to all my sisters.♥

  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2011

    It's a very sad day.

    I just read Lisa/PauldingMom is an Angel now.

    RIP my friend. You will be missed.

    Sheila

  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2011

    RIP LisaCry

  • Meece
    Meece Member Posts: 10,618
    edited May 2011

    I remember when Saint passed, arrangements were made with a florist in her city to make a bouquet of pink roses. The florist made a special price of something like $10 per rose and we called our orders in directly to the florist. Do you think we could do something like this for Lisa?

    Happy Birthday, Seyla!

  • Plils
    Plils Member Posts: 35
    edited May 2011

    Happy Mother's Day to all you beautiful mothers.

    Lots of hugs  Pam 

  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2011

                                                                                                                  

  • Meece
    Meece Member Posts: 10,618
    edited May 2011

  • pinkcandy001
    pinkcandy001 Member Posts: 17
    edited May 2011

    Diagnosed 2010: 2 left breast lumps 1mm (+ 2mm invasion) grade 2,  4mm (+ 10mm invasion) grade 1, no vascular invasion, no nodes, clear margins.

    Lumpectomy, 3 weeks radio, followed by tamo. Have had bad time on tamo, and have a family history of heart problems. 53 no period for year. Came off tamo 2 weeks ago after being on tamo for 2 months  as it really was bad news (terrible dry peeling hands, feet cracked and bleeding, ezcema, vag dryness, stomach cramps). Onco said that i had recurrence rate of 4% without taking tamo. 

    My onco nurse said that i had a ever so slight chance of it coming back, but after reading posts i am changing my mind, and personally think that if i can i should stay on tamo for another 6 months, get hormone level bloods, and then go onto Arimidex - as surely i should be post meno by then.

    Any suggestions.

    Pinkie

  • jo1955
    jo1955 Member Posts: 7,545
    edited May 2011

    Pinkcandy - If you are post meno, why don't you explore the idea of going straight on Arimidex?  I am not aware that there is a specific time frame you have to be without periods to go on the AIs.  I would ask the MO about this.

  • pinkcandy001
    pinkcandy001 Member Posts: 17
    edited May 2011

    apparently u have to be post meno to go on arimidex, and according to my hormone test i am not post meno, thats what ive been told by onco nurse.  Thing is i am/was on tamo at the time, and u cant get a reading from results.  Should I wait another couple of months and get another blood done.

    Pinkie

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited May 2011

    Happy Birthday our darling Seyla! Altho there is sadness today, imagine the party Lisa is having right now.

    Happy Mom's Day too all the rest of us!  Hold your family close today!

  • jo1955
    jo1955 Member Posts: 7,545
    edited May 2011

    Pinkcandy - That would be a good idea.  Wait a couple of months, get new labs and then make decision.

  • samsue
    samsue Member Posts: 599
    edited May 2011

    Happy Mothers Day to all you mothers out there!

    Mothers Day

  • pinkcandy001
    pinkcandy001 Member Posts: 17
    edited May 2011

    Many thanks. Will do.

    Pinkie

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2011

    I have 23 more Rad treatments, and then it is on to Femara........Not happy about taking that, but I had a heart attack, so Tamox isn't  looking good right now.  I wish I could go from Rads to "nothing", but I know that isn't a choice........REally don't feel like dealing with the SE, but then that means dealing with a possible recurrance.............its all bullshit

  • o2bhealthy
    o2bhealthy Member Posts: 1,089
    edited May 2011

    Happy Mothers Day!!!

    I tried to post a a mothers day photo earlier this am but got attacked my a nasty virus, luckily my DH saved the day...whew!  I would be lost without being able to check in at BC.org

    Happy Birthday Shelia!  Sending you lots of hugs today!!

  • Melmes
    Melmes Member Posts: 38
    edited May 2011

    Happy Mother's Day to all of you!

    I don't think I have been on since my last surgery last Monday. The re-excision went very well and I have clear margins - hurrah!

    That said, I have been having anxiety and panic attacks today - of all days - over my cat and bone scans next Tuesday. I'm all stressed up and unreasonably upset that they might find metastases, or ovarian cancer, or some other horrid thing in there I don't know about.  I know it's unreasonable - my lymph nodes are clear, and my margins are clear, there's no reason to think it's spread. But there were cancer cells in the blood vessels and I just - GAH. I'm having anxiety over it. I just wish I knew for sure one way or the other. But I don't know if I am ready to hear it if they do find anything. I'm 37 years old, I have young kids and a PhD to complete. If it turns out they find anything, I just don't think I can handle it. :(

    Sorry to dump on you, but no one here understands how I feel. DH keeps insisting I'm being ridiculous and they're not going to find anything because my nodes are clean and the margins are clear, and my mom says don't borrow troulbe. All of that is easier said than done when you are the one living with it....right?

    Talk me off a ledge, would you?

  • jo1955
    jo1955 Member Posts: 7,545
    edited May 2011

    Melmes - Your fears and anxieties are not unreasonable.   We face too many unknowns on a daily basis.  It is alright to feel the way you do and this is the place to get it out.  

    I am due to have my first mammo since dx as well as my annual pap in just a few weeks and I am already stressing over it.  I have been on Tamox for 5 months - 6 months by the time I have appts and I do know if I am having uterine issues.  No tests for estrogen levels or anything like that has been done.

    So I do know what you are going through and I perfectly understand the way you feel.  I know this is easier said than done, but we both need to relax and breath.  Need to take things one day at a time. 

  • Melmes
    Melmes Member Posts: 38
    edited May 2011
    Jo - I am keeping my fingers crossed for a nice, clean mammogram for you!! Thank you for talking me down from the ledge a bit. It really is the unknown that gets to me, mostly. Undecided