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CALLING ALL STAGE I SISTERS

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Comments

  • jo1955
    jo1955 Member Posts: 7,545
    edited August 2011

    Samsue - Haven't seen you in such a long time.  Thought it was time to put my face on here.  I don't have too many photos of myself - I am usually the one behind the camera.

  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 504
    edited August 2011
    Gee ducky, now that made me cry...=)
  • stage1
    stage1 Member Posts: 285
    edited August 2011
    Ducky, I could just picture that wedding and the butterflyInnocentYou are so blessed with your family.
  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2011

    Stage 1...it was a day to remember............The other thing I did for her which she didn't know was being done........she always wanted to dance to Daddy's Little Girl.............her Dad would put her on his feet, turn that song on when she was little and dance her around the room.............after he died, and the wedding came she said "well I guess no Daddy's Little Girl...........she would giggle and say.............that's our song Daddy.

    At the reception without her knowing I arranged for the DJ to call her out onto the dance floor......she looked at me and said "Mom", and I said "just go"............He began playing Daddy's Little Girl, and 1 by 1 her 3 brothers took turns dancing with her beginning with the older brother, and finishing with the youngest brother who is 3 years younger then she is.............not a dry eye in the place.............it was beautiful, and she said "Mom it was as close to Daddy as I could have gotten".........................

    Then which I didn't know she called me out on the dance floor, and the DJ played "I'll Always Love My Mama", and her and :I fast danced to that.................she planned that for me.........what a wonderful day.....................I am blessed and that was 17 years ago..................still a memory

  • bcisnofun
    bcisnofun Member Posts: 117
    edited August 2011

    oh Ducky.  I love your story.  I will start looking for white butterflies and think of your story.  Thank you for sharing!

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2011

    I could write a book about white butterfly stories since my husband died.............amazing to me is how they always show up at something when someone says "Daddy would have loved to have been here", then here comes the white butterfly very quietly passing around and through people.................If you google "The story of white butterflies you will see how it applies to someone dying..................

  • samsue
    samsue Member Posts: 599
    edited August 2011

    Ducky, thanks so much for sharring the wonderful story about the white butterfly. I will be more alert for it's appearance.

  • jo1955
    jo1955 Member Posts: 7,545
    edited August 2011

    Ducky - That brought tears to my eyes - thanks for sharing the story about the white butterfly.

  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 504
    edited August 2011
    I just read your story to my husband, ducky, and it made us both cry....what a beautiful story. God is good, indeed.
  • eph3_12
    eph3_12 Member Posts: 2,704
    edited August 2011

    crying~~~~~~~~~~~~~~~~~~~~~~

  • FireKracker
    FireKracker Member Posts: 5,858
    edited August 2011

    Hi sistas.....Sheila---we all miss you.....I know you are enjoying your vacation.Hope you are rethinking comin back to good old NYC.

    Big HI to my sista Val and JO JO

    Ducky----either you are cracking me up or makin me cry...your story brought lots of tears to my eyes.I know the story about butterflys.AND I do believe in it.When ever I see on I think of a loved one who has passed on and say a prayer.

    went to a all night card game and i am payin for it dearly today.came home at 11am and woke up at 5pm.still want sleep.

    wishing all my sistas pain free days.B9 forever.hugggggggs K

  • mimi1964
    mimi1964 Member Posts: 851
    edited August 2011

    ducky your story of your husband and celebrating his life and his birthday with family, then the wedding story all make me cry!  How very sweet and you are truly blessed!!

    Sheila I miss you very much! 

    Hi to everyone else!!! Since I've come back from vacation work has been chaos once again.  So much going on I won't even begin to tell the story.  Those of you that are FB friends know I've been asking for special unspoken prayers, please everyone here help pray for a very special situation at work that involves myself and several others.  Let's just say we need our jobs and let that be all.  God is the master provider and he can change the tide and answer all prayers and change any situation or calm any storm as we all know.  Thanks wonderful ladies! Hugs to you all

  • gmafoley
    gmafoley Member Posts: 5,978
    edited August 2011

    Ducky you made me cry.... I miss my dad soooo much....I will start looking for that butterfly.

  • gmafoley
    gmafoley Member Posts: 5,978
    edited August 2011

    Ladies I haven't been here much...just off and on... been driving the rads and the arimidex forum ladies crazy I think...Most of you have seen me around the forums...I need to ask you a question and I need you to be honest... I just finished rads at the beginning of July and now dealing with some tough side effects on arimidex... I had a friend/aquaintance I know say something to me that really upset me and I need to know if she was right.... She told me I let my cancer control my life, the pain I am feeling won't hurt me, so breathe into them and know the pain will be there... she said its time not to talk about your cancer and get over it..... ((((((((crying)))))))) How do I do that? The back of my head feels like someone hit me with a bat...I am trying fioricet now, it takes the edge off but the pain is still there... Is she right??? When can I just not think about cancer for a day????it is now part of my life... sorry I'm having a rough day with hubby on a business trip again...

  • mostlymom
    mostlymom Member Posts: 378
    edited August 2011

    Gma - I think you should make that "aquaintance" & stay away from downers like her!!!!

    [[[[[[huggggg]]]]]]

  • FireKracker
    FireKracker Member Posts: 5,858
    edited August 2011

    MIMI---sending you lots of prayers....saying one right now for you along with a big hugggg.

    GmaFoley----dear sista----sorry to say I too have heard that im letting this bc lead my life.Well forgive my language but im sorry thats bullshit.We went through hell and back.lots of us went throu chemo,rads.mx,etc.tell your friend to walk one mile in your shoes and then lets hear what she has to say....I hate people like that...There will come a day when you will not think about the beast but it takes time...holding your hand and sending you love hugggs and kisses.One day soon you will be pain free and bc will not take up the space it does right now....SOON.....God bless K

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2011

    Gma...........dump that friend...........who does she think she is...............I won't let cancer rule my life, but I certainly will not forget about  it...........the day my BS said "I'm sure this is malignant.........my whole life changed..............I have gotten over the initial shock, the biopsy, surgery, Rads, and now dealing with  Femara........so tired I sometimes wonder if my body will ever feel the same again.............waiting each day for the SE of Femara to happen since its only 3 weeks..................wondering each day.........when will the other shoe drop.................We have faced the enemy, fought the good fight, won some battles, but our War will go on forever.........that is a fact..............we need to face each day wondering, but not letting "cancer" take our life over..............

    your friend.......................is no friend.....................or she would not have made such a thoughtless comment to you..................hope tomorrow is better........hugs.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited August 2011

    mimi will be praying for you

    ducky i get over one crying fit then read another story and cry some more.  Where are those kleenex.

    GMA I would stay away from that person.  I know that you have been in pain.  I know what that is like because I am on meds from permanant nerve damage from rads.  When you hurt all the time it plays mind games with you.  So when your boob is hurting how are you suppose to forget about bc which is what cause your boob to hurt in the first place. geeeeez.  I found that once I got my pain undercontrol with meds my mental status got much better as well.

  • nanzy
    nanzy Member Posts: 2
    edited August 2011
    hello....this is my first post.....not really sure what to say, I was wondering if anyone out there had trouble getting on with a normal life after  the diagnosis, tests, biopsies, surgery?
  • gmafoley
    gmafoley Member Posts: 5,978
    edited August 2011

    Nanzy: welcome! but sorry you need to be here.. these Ladies are awesome and supportive... I will speak for myself ....I don't know what "normal" is anymore... I know its not what my life used to be but I am trying to do some of the things I used to do..I am back to work at the fabric store but my other outdoor job as an archaeologist probably won't happen...

    Ducky1 - I pray you don't have any SE's from Femara...it looks like I will have to decide next week to change from arimidex to the generic femara because of the bad headache. or stay with the SE's and hope they get better...the headache after the week break came back with a vengence and I am so drugged up with pain/muscle meds I really don't know which end is up... 

  • valjean
    valjean Member Posts: 1,110
    edited August 2011

    GmaF ~ I agree with ducky, "your friend is not a friend or she would not have made such a thoughtless comment." And as grannyD says, "tell her to walk one mile in your shoes & then hear what she has to say."

    For anybody to make a comment like that to someone who has gone through "c", any "c", is uncaring & does not understand what she is saying. That is hurtful. I don't usually give advice, and I do not know how close you are to this person, but I, personally, would not want to associate with her anymore.

    You hang in there, you are doing what is right for you & we are here to support you. You have pain - you are doing something about it. You have fears - you are working your way through them.

    I am coming up to 3 years and I am still trying to get through a day without thinking of bc. I honestly don't know if or when I will ever be able to do it. But, each day has gotten better. The loving support & caring I receive here from these most caring sisters fills me with hope each day that I can move forward on a smooth path, with hope in my heart for a better tomorrow.

    We do not need toxic people in our lives.

    Now, off my soapbox!

    Hugs, GmaF.

  • valjean
    valjean Member Posts: 1,110
    edited August 2011

    nanzy ~ Welcome, so sorry you have to be here, but happy you have found us.

    Normal .... really, I wonder what normal is. Our normal everyday routine?? Well, I guess I'm normal. I do what I do. After all the tests, biopsies, etc, my days are routine. I guess it's just a new kind of normal. Maybe not like the gal next door, but it's my normal now. It's my life now.  

    It's hard, it's scary. Yes, it is. But, I have found it does get a bit ...... for lack of a better word, easier. It's just a diffferent normal.

    Please come here often to ask anything you want, vent, cry, laugh (yes, you will laugh cos these gals can get crazy as h*ll sometimes).

  • valjean
    valjean Member Posts: 1,110
    edited August 2011

    More prayers & hugs for you, Renee. ♥

    Miss ya, Sheila! ♥

    {{hug K}}

    Since I've written so much, I lost track of the time. Need to get to a couple of other threads & then get to bed.

  • gmafoley
    gmafoley Member Posts: 5,978
    edited August 2011

    MIMI: I just saw your post.... Praying for you all...

    Ladies: I will stay away from this acquaintance...it made me feel unvalidated - if you know what I mean... but I will try not to talk about cancer at work unless someone brings the subject up...I am one that if someone asks how I feel - I tell them and sometimes, I'm learning, ppl don't really want to hear its just something to say.. HOT FLASH - Time to go find a fan... have a great day all!!!

  • jo1955
    jo1955 Member Posts: 7,545
    edited August 2011

    GMA - Dump the so called friend. I don't know if we will ever reach the point where cancer is not on our minds.  I think in time it becomes less and less a topic we talk about.  We have to live with the physical and emotional reminders every day - how we deal with that on a daily basis is really up to each individual.  For those people who have not had to go through this experience - they don't get it and can't truly understand.  (((HUGS)))

  • FireKracker
    FireKracker Member Posts: 5,858
    edited August 2011

    It looks like we are all on the same page here........Walk a mile in my shoes and then lets talk.....that is my mantra....sure we try not to talk about it or even think about it but as one of the sistas said we are always waiting for the other shoe to drop....that is probably the new normal....people ask me how im doin my answer is always JUST FINE.even if i feel like crap i say JUST FINE....Its like im talking to myself too.

    hugggggs to all my sistas who are JUST FINE....have a great day.K

  • SAB
    SAB Member Posts: 1,121
    edited August 2011

    GMa, I get the sense all the time that my friends and even my family are "finished" talking about treatment and expect me to move along. (they ask "How are you," but don't really want an honest answer, if you know what I mean.)  I do believe that they think "moving on" is what would be best for us, without understanding the physical and mental trauma of what we go/have gone through.  That is why this discussion board is such a blessing--I find that even in the midst of treatment it is easier to talk about what is happening here than to my friends, family and even my husband.

  • jo1955
    jo1955 Member Posts: 7,545
    edited August 2011

    SAB - I agree with everything you said.  My DH of 38 years would rather not talk about this than listen to me whining.  These discussion boards have been my salvation.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2011

    Ladies.............each and everyone................I agree with what your saying too.......GMA....I can't advise you to switch to Femara since I have not been on Arimidex..............but so far I'm doing ok............I tire easily........can't walk far....................have a horrible right knee............but some of those things were there before I began Femara................I do notice my ankles are swollen more then usual, which I hate..........................I always had Cankles, but now they seem worse...............I have a few more pains then before (a different type of hurt)..........not sure if that is part of the "pill" or not, but sometimes I wonder.

    If this is all I get I will be grateful, but each day is a new "dawn", with not knowing how it is going to end ................I guess all we can do is hope for the best...................I never remember anyone telling me life would be easy .................................but damn if I expected this shit................ok, I'm gonna go look for the Vodka...........................hugs.

  • nanzy
    nanzy Member Posts: 2
    edited September 2011

    thanks Ladies, I feel better already after finding this site.It is terrible we all have to go through this,at the same time i feel great comfort reading your posts. I am trying to take this day by day. This year has been tough, it all started with my husband needing a hip replacement in Jan(hes 43). I was diagnosed in march, had a dbl mastectomy in April, tissue expanders placed at the same time.my implant exchange was in July....and now??? I feel like something else is going to happen....I dont know how to act. I am good most days, its the nights that i find hard....I lay awake thinking. I have 4 children who need me. I am trying so hard to be strong.My mother died of breast cancer when i was 18.....my father died of lung cancer when i was 25......the memories of this really came back to me because of my situation.....Thankyou all for listening to me ramble on and on....I dont even know why i am saying all this......