CALLING ALL STAGE I SISTERS
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Hello all my wonderful sistas.Just want to thanks all of youu for the love and support you gave me.I feel strong like an ox.I was able to help my firend as much as i could physically.mentally not so good.i screamed a lot.she has blind faith in her stupid MSK where she is goin for 27 yrs.and according to her other friends they feel the same way i do.especially one feels like they are over medicating her.she is on some kinda trial med.(we all know what that means) that is killing her kidneys....trying to convince her for a 2nd opinion overwhelms her.i had to come home for a few days to recoup.Ill be on and off till monday.again thank you all of you.huggggggggs K
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Just need some reassurance friends. I was diagnosed in August, had all the tests, just completed radiation and am starting on Aromasin. I found my cancer when I noticed a dent or dimpling in my left breast. Today three days out of rads I find a dent in my other breast. I am afraid of course but wouldn't it have showed up in the MRI , in August? Has anyone else found another tumor that they missed so close to orignal diagnosis? I will see the MO the end of January and show him but if anyone has some thoughts would appreciate it.
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ptdreamers - I would not wait until the end of the month - try to get into see your MO now!!! The waiting is always the worst and you certainly don't need to play that game again. In answer to your question about it showing up on the Aug MRI - how knows - this could be new and very recent. Get is checked out ASAP. If for nothing else but your own peace of mind. Keep fingers crossed for B9 results.
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ptdreamers - I agree with Jo that a call or an e-mail is in order. Thinking good thoughts for you!0
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PT- here is a third one chiming in to call the doc-that is what they are for- the less stress you have the healthier you will be....big hugs and loving thoughts from texas
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Hey Annette - Where in the world have you been hiding girlfriend? We sure miss you around here.
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jojo- i have been looking for my brain- it went missing.
I miss you all which is why i popped back in. And will continue to do. Because I love you all and even those I don'tknow yet:)
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Annette - When you find your brain, tell mine to go home - I have an empty space up there too. LOL
Love ya gal.
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Pt I'll chime in as well call your MO.
Annette you have been so missed around here. Hope you find your brain soon
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Sheila, I find changing doctors such a tedious experience. But I got a lot of practice getting 2nd and 3rd opinions. You make appointments; you go; you hope and pray your insurance pays; then you pick the best one. But it takes so much effort and time. I hope you find just the right ones first time.
Granny, it sounds like you are really helping out. It is so difficult when we see a loved one who is not thriving with the care they are getting. You want to just get them somewhere and FIX it. I hope you find just the right words to help Phyllis. You are always giving -- keep in touch so you can get recharged when you need it.
ptdreamers, I am the biggest procrastinator; but I agree with the others who feel you should get it checked now.
Let's have a keep warm ((((HUG))))!0 -
Had 3rd boost today - 2 more to go. Skin is holding up! I had a "normal" day today. (whatever normal is)...I feel like my breast is burning but the rest of me is chillin'
Have a restful night, all.
Joan0 -
Have a lovely weekend, everyone! I say we should all do at least one fun thing this weekend and report back here...
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I just loved reading the Breaking News at the top right of this page.
"A large study found that women who'd received radiation therapy to treat early-stage breast cancer were more likely to have narrowing or blockage of the coronary arteries compared to women who hadn't received radiation therapy for breast cancer."
Yeah, I really need to see this......... just great.
I had rads.
Always something, isn't it????
Anette ~ how ya doin' girl? Great you're out looking for your brain, I'm still lookin' for mine. Missed ya!
ptdreamers ~ Yes, I agree with the gals here, I'd call my MO. Keeping good thoughts for you.
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Valjean - Yeah is right. I read that article and really did not need to hear that since my rads were on the left side. What else is going to be thrown at us? 0
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val and jo- it all falls under the catagory of "NOBODY REALLY KNOWS SQUAT"
everything is educated guesses and then the minute they have some damn random trial they print the results and say OK, do this....and then it comes out, uh, wait do this....and then it is well do this but for some don't because it might not be good but we aren't sure who it will be good for or not....
it is because we are all different. our friggin genetic makeup, our dna, our everything....it is like theonco test...i took great almost smug comfort in my stellar score of 6....until i read the fine print that the model reference was a pool of less than 700 women with *similar* characteristics...i am fin with my choices but of cours ein my brain i worry that some woman will miss out on treatment she needs because she was in that *shadow* bridge area of rating...insurance companies are jumping on the bandwagon because while it is an upfront big cost- it is far cheaper than the treatments. It is not a bad thing in and of itself- the test- but it is not the end all do all....just like all of our treatments, options, etc.
Phew...guess I had to vent just hate seeing any of my sistahs scared by yet another *study* saying well, this could happen now... ARGH
big hugs and wheni have something nice to say i will be back later:))))
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Annette - You don't have to wait until you have something nice to say - just come back. I did not have the oncotype test done - sometimes I feel like I should have but my MO was admanent about not needing it. Besides, I did not even learn about it until I found this website and by then it was way too late. I was already well into rads.
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ptdreamers-definitely go ASAP to the doc. If there was something there, it would have shown up in August on the mri since the test is so sensitive, but it has been a few months, so don't take it for granted!! Better to be safe and check and get rid of the worry.
For those ladies who had rads on the left, did your oncs discuss the heart issue with you before hand? I had a special breath technique during rads-I held my breath while there were giving me the dose and the machine would shut off if I exhaled even slightly. My doc explained that problems with the heart could occur 15 years down the road. It's possible that they were avoiding the heart in some way without you knowing it. There are many techniques out there to avoid it, from what I understand. The study was covering years up until 2004 I believe, before they knew about the problems.
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Forgot to add--saw my RO on Tuesday and asked to be sure my arteries were avoided. According to him, their technique avoids everything-heart and arteries. A friend of mine sent me this study on Monday, so it was great I could ask him at my checkup.
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SusanHG - My MO did not and has not discussed possible heart problems. I realize this should have come from my RO but his is such a moron, he does not think there are any SEs from rads. He did not believe the pain specialist once I found out I have permanent nerve damage from rads. I often wonder what else I am not being told.
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I learned so much about treatment and SE when i joined these boards.
Of course i wasn't in active treatment except Femara that time. Didn't even know my grade or such a thing excited.
Val...I agree with this Breaking News stuff. You know what i really don't pay attention because what's done is done we can't change it. Anyway they are coming out with new staff all the time ...what was good 6 months ago now they want you to avoid it.
Heeeey I have enough to deal with between MH & BC.
THE ONLY BREAKING NEWS WILL BE THAT THEY FOUND A VACCINE.......
i ALREADY HAD RADIATIONS THEY CAN'T UNDO IT
Annette please don't go MIA ....i really miss and worry about you........We love you.
(((Jo))♥
Joan...i'm glad your skin is behaving.....hugs
(((SISTERS)))♥
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Valjean I read to same thing and thought GREAT! I had left side rads and I have a very strong history of coronary heat disease in my family from my mother and father. My RO did talk about it but said you would miss it. I know after the people that do the plans (can't remember therir names) did my plan the RO would not approve it and made them redo it because he did not like how they had hit my heart. So at least I have comfort in that. But I did print the article out and am going to ask my MO about it when it see him next week.
I realized I have a couple of busy weeks ahead of me. Neck MRI on Monday, Pain Dr and MO on Friday, the next MOnday breast MRI then the following week follow up with BS from last surgery. My wire fell out right before surgery so they want an MRI to double check to make sure everything was gotten since the marking got messed up right before surgery. They think everything is OK but just a precaution. then I guess if something is really wrong with my neck I'll be going to some sprecialist for that. Whew I'm tired already.
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When was the last time i told you how much i hate hate hate cancer??????
find a damn cure!!!!!!vacine!!!!!!please God!!!!!let 2012 be the year.
Everyday something else.Im sick of it.They can put a man on the moon and they cannot find a cure/vacine for cancer!!!!!!!
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(((((((((((((((((((((((Deb)))))))))))))))))))
Never give up/Never surrender.Thank you.I needed that.
nice to see you.
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Hey Granny- Here is a big fat Texas hug just for you:))))
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Annette...sista/friend.you are following me...love ya.thanks huggggs K
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you bet I am following you Granny, you always look out for me:)
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Hey my friend.....you want here something funny....i didn't know granny's actual name so I PM ed her last month....Can you see me when we meet in GCS I'm yelling granny where are you?
LOL
Had a piece of steak with avocado salad was good
drinking POM now...I just love it........
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I was not able to view BC.org for a day and a half. Don't know why...
Sherryc - wow, what a week ahead for you. You will have no unknown secrets after all those tests. Am sending good thoughts and prayers for 100% good results.
Valjean - I caught that breaking news too...I had asked my RO last week if I would have any "perceptible" damage in my arteries when I have my angiogram (soon). She explained that it takes a long time to present the thickening or blocking. No big comfort there....
I was advised by my RO about cardiac and lung effects. She said if I have a chest x-ray I should tell them I had radiation as any damage would show up on x-ray.
Jo, I have heard others talk about nerve damage from rads. I do not understand why your doctor would dismiss it. Guess they have no fix....so they say it can't be happening.
Annette, I didn't realize that the Oncotype score was based on such a small statistical pool. I guess that is changing as so many women are doing it now. My MO (who saw me once and handed me off to her NP) is participating in a study of Stage 1 who do and do not take chemo. I had 13 score and she said she couldn't say whether chemo would or would not help me. (I chose no) Her study uses a lower score limit for no chemo so that participants who need chemo will not go without. ..
My fear, and I guess everyone's here, is recurrence or mets. We are typically assured in Stage 1 that our prognosis is good. I asked for a body scan 3 times and was told not to worry about it.
I worry sometimes.
I am glad that this is a place where we can express our fears. How many times do we hear "Oh stop...." or "You're going to be fine" ...from our friends and family.
I hope everyone has a good week.
Joan.0 -
Joan...i had the same issue last night. Everytime i tried it said link is broken.
I didn't like the idea to be away. Since some of us are friended on FB at least i can communicate there.
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