CALLING ALL STAGE I SISTERS
Comments
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Wren..........I'm with you...............and your right about the "pink"..........hahaha.
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Hi all,
I can't remember if I posted since my 6 month check on Friday. (I got sidetracked when DD #3 came for the week end with her DH and my 2 precious GrDs - the little one has the most luscious chunky legs!)
I have felt pretty quirky lately (Femara); but my BS wouldn't entertain my "what if" questions....she said "not likely" to my persistent recurrence scenarios....anyway, she told me she recorded NED on my chart. That made me smile "big-ly".... I have been handed off to my (bad) MO and follow ups with RO.
Thinking of everyone here - and welcoming anyone who is new...you will get through this time.
Loved your *@#& flinging stories, Val, and others! I am the offender with a jungle along the property line...wicked vines crawling and killing trees..... I think I've had weed killer sprayed over the fence but cannot prove it. I love the deer, pheasant and birds that visit every day....but I do feel badly about the vines.
It's a beautiful day here in the east, and I am fortunate to be finished with work and heading out with an extra hour of daylight. If the clouds hold off, there will be quite a sky show once again, with Mercury, Venus and Jupiter following the sunset, then Mars overhead and Saturn rising later tonight.
Sending hugs and good thoughts....
Joan
Remembering Suze
who is being memorialized on another thread.0 -
I got a robo call today "to see if I'd been in an accident and needed a lawyer!"
!!!
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And once you're on medicare, you get calls asking if you need a wheelchair or hospital bed or motorized scooter. That should be illegal.
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Met with my oncologist for first time today; a bit frustrated since all I found out was that they were going to do the oncotype and I should know in 2-3 weeks what the treatment will be! Glad to be able to do the oncotype but wish they had sent report in earlier. Ah well. Was feeling pretty positive until today. He mentioned chemo which I was surprised about; thought I would just need rad and hormones. Ugh. Need a good cry.
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luckylucy - have your self a cry, it is ok. Yea I was hoping for only rads too, but have to do both.
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Luckylucy,
I think I might have a corner of my crying towel that you could use!!!!
On second thought, I guess there isn't a dry corner right now..SORRY...Here's hoping your onco score will be on the low side...
Vickie
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RIP Suze ♥
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Lucky. . . hang in there. . . . i was right there 2 plus weeks ago thinking, "you are just NOW sending in the order. . . arrrggghhhh!" I am still with you in limbo land . . .hoping to find details soon. . . . have that cry . . . .
Kelleyod
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I am stage 1 and just received my Onotype score. I got a 66? How obsured is that? I have no lymph node involvment. Recurrence is 32%. I was in shock. My tumor was very small. Has anyone else have a high score? I was getting ready for radiation, now I have to make an appointment for chemo. Does anyone know how long the chemo is for? I am sick over my score. I haven't seen anyone post a high score like this.
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Florida55, from what I understand (and I am FAR from an expert on this!) neither lymph node involvement nor tumor size have any bearing on the oncotype score. Here is a link to some information on this test: http://www.breastcancer.org/symptoms/testing/types/oncotype_dx.jsp (Sorry...I don't know how to make the link active)
So sorry to hear you will be facing chemo...my score was 9 (6% recurrence) so I got lucky,
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i am also 1a..1cm grade medium..0/2 er+PR+ her2- my mammoprint score was high risk 22%
i have already had the mammosite HDR ...and found that I must have 4 rounds of A/C...i was devastated. I thought I wouldnt have to have chemo...but my recurrence with mammoprint 22% within 5 years. My dr sent my tissue when lumpectomy was done...apparently mammoprint uses 70 genes versus oncotype which uses like 23 ...i believe.
will find out march 15th when i actually start the chemo..
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Welcome to all the newbies! I am so sorry you have to be here but promise we will be here for you each step of the way. Feel free to kick, scream, cry or whatever you need to do as we have all been there. The waiting was always the worst part for me and I know I felt better at least having a plan. Didn't mean I liked the plan but it was a lot less scary.
Florida - I am sorry I have no words of wisdom for you but send big hugs... Hopefully one of the other girls will come along to help you out.
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Yep,you can count on me to complain. End of month is next fill but i am in control,I could always call & cancel and reschedule further out but why delay the evitable? Someone told me to fire the PS cause she insisted on doing 100cc each time cause she said she doesnt wanna do a lot of fills cuz it could cause an infection,I told another friend who had bc a few yr ago and went to Mayo about it and she says thats bs and I should fire the PS but OMG I got incisions almost under the mammary fold,how can I fire someone who does work like that? My boobs will look nice if she goes in the same incision which I gotta discuss with her. Why I like my PS? Cause she is one hard headed little b===ch like me! LOL. I kept telling her,but look other dr only do 50cc at a time and this is hurting me. She says I dunno why you should be numb. I says well I am not. What kind of alchohol should I drink before the next fill? lol
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OMG sooo much goin on here!!!!
Welcome newbees.I see some new names.sorry you have to be here.pull up a seat and come along with us on this ride.
Say anything you want...we heard it all...And yes we are here for you all the time....
Hi the rest of my sistas.
Sheila how are things goin?
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Florida55 - I'm so sorry for your high score on your Oncotype. Mine was 30 which gave me a 20% chance of recurrence in 10 years without chemo and hormone therapy. I just finished 4 treatments of Taxotere and Cytoxin which seems to be the standard for people with high scores. My BS surgeon said my MO would either do 4 or 6 treatment and he decided on 4 treatments. I start my Arimidex in 2 weeks. I had 2 small tumors in my left breast with the largest at 1.8cm and no node involvement. It has everything to do with the genes that are tested, and nothing to do with the size or node involvement. Wshing you well.
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Welcome all the Newbies....It's not a happy place to be but we are bunch of seroius. funny women.
You can say anything as long as it makes you feel better. Hugs to all♥
(((Layla)))♥
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granny....Things are the same.
I spoke to my BIL today. He was crying.
My niece called me ...next step will be hospice....according the DR...My SIL will never come out from this...sadness all over......
Thinking of her every minute.......
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Just really feeling down today. Most since this all started a month ago. I guess I thought I'd have the lumpectomy, the radiation, and be done. Didn't realize there were so many false starts and stops. Plus my life is in an uproar - was supposed to finalize my divorce end of February then this happened and I need to stay on his insurance so no divorce. God laughs at those who make plans...right?
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Florida55,
I am so sorry your score is high. I'm sure it's frightening to be shocked like that. I had done enough research to know that with my very low PR and high Ki67 that I would score well into intermediate on the oncotype. I was still shocked when it came in at 30.
A high score means that chemo will be effective at fighting the cancer. My MO said a higher score wouldn't have changed the chemo I was given, TC X 4 at 3 weeks each. Yours has been caught early, it's small and you don't have lymph node involvement. Chemo and radiation will bring your recurrence down considerably. Tam or AIs even further.
Good luck on your appointment with the MO.
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Still thinking of you & your family Sheila....(((hugs)))
Hate to see so many of my sistas having a rough time of it right now. Sending love to all.
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So sorry Shelia...sending you prayers!
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I am so tired of "idiots"..........................you gals know my experience with the store that sells the lottery tickets, and had the coupons sent to the house from the Pa. State Lottery, and the morons at the store where I went to get mine.
Ok, here we go.........I checked my Poweerball to see if I won (hahahahaha I'm so funny)........well anyway, I didn't of course, but when I looked I noticed that the "bitch" charged me $3.00 for the Powerball ticket that with the coupon should have been $2.00............well I knew at this point it was my word again theirs whether I had used a c;oupon or not cause you have no proof, they keep the coupon................needless to say the "bimbo" who sold me the ticket also did not know how to work the sytem.........................so
Today I called the Commission, and asked them whether I should have been charged $2.00 or $3.00 for the ticket..............as I thought they told me the Powerball was $2.00, and you got the Multiplier free which is usually another $1.00....................Now I'm even more angry cause the bitch got one over on me........
So.......I took my ticket, and another coupon (daughter's) to the store, asked for the Mgr. and told her the whole sorted story about my experience with the morons behind the customer service...................she confirmed I should have been charged $2.00 and not 3, but of course nothing could be done.
She said "I got my Powerball ticket today, without a problem.........I said "really", well I will try again, right now..........................over I go to the customer service where they do the lottery...............I handed the chick behind the counter the "coupon", and $2.00...........She says..............OH WE DON'T HONOR THEM HERE"..............Well I said, what do you mean you don't honor them.................your friggin store manager got hers taken care of this moring........she just told me..........
Then she says......its a special machine, and we don't have one..........I march my ass back up to the Mgr............told her what happened, and she says "oh that is impossible, what i wrong with those people".............................back she goes to customer service.....................she spews all the "garbage" to the girl behind the desk, when I walk up....................she then says..........here she is...........this is the lady ...............the freak still says............we don't take them...........now the manager is going nuts.....................She says...........this lady reported us to the Lottery Commission 2 times for incompetency behind this lottery counter, so unless this is straightened out......"heads are gonna fly"........................finally a women comes out from the back, says to the Mgr........what is wrong.......Mgr. tells her the story.........the woman takes my coupon...............pushes a couple different keys on the computer, and hands me the Powerball ticket....................Everyone was falling all over me apologizing, and I siad .......................Maybe you need to do a crash course on Lottery Coupons 101, cause you have coupons each month from now till August.........................and believe me, if it happens again, I will call the Commission without hesitation.....................
I am so tired of morons, and people who don't take their job seriously...............I just don't get it.....................however, I feel better for getting it straightened out, but imagine how many other people went in with coupons, and had the same thing happen.........................only difference is they are not "NUTS".........like I am.............
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Ducky, I'm assuming that clerk won't get a tip if you win
Florida55, doxie 'splained it pretty well. I ended up with a 42 on my score. Had the T/C (4 treatments), 32 radiation visits & am taking Femara. My signature line tells you what I had.
I felt I would probably do chemo even if my score had been low. I wanted to throw everything at the beast!
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ducky ~ Amazing how dense & idiotic people can be!!! They just don't listen - They think they can tell you whatever they want, you will accept it & walk away. Well, they don't know sh*t, do they?!? They don't know ducky!!!!!! Yes, you betcha I would use my coupons every time I could & I would raise a ruckus every time I could until they got it right!!
Remember when I posted a few days ago about the lady at Walgreen's talking to me as if I were an idiot & didn't know what I was talking about? WELL, I received an apology today - not one, but two!!! The first gal, after verifying who I was, said, ".....and we want to apologize profusely about not processing your order on March 6. And we would like to put that through for you now." "NO!", I said. "I am having another pharmacy handle that for me." She apologized again & asked if there was anything else Walgreen's could do for me - I said, "No. Good-bye."
Within 20 minutes or close to it, Walgreen's called again - this time it was her boss, some supervisor gal. She told me that she knew of the call earlier & repeated what was said & she then proceeded to apologize profusely. She told me how sincerely sorry she was that the entire incident had happened & said, in part, "Is there any thing at all we can do for you?" She must have thought I was dying, she was talking softly & slowly, & apologized again. I only answered her in "yes" / "no" answers. I was very curt.
I did not tell them I accepted their apologies. (thinking about it later, maybe I should have. But, I didn't.) It's funny, because I was just thinking today of drafting a letter to the corporate office, as you suggested, ducky. I'm certain they must have reviewed the phone call from March 6 as those calls are always monitored. Someone got their a** chewed out!!!!
I didn't want to get nasty on the phone with either one of the gals today because I didn't want to burn my bridges; I might need Walgreen's someday.... ugh!
I felt soooo vindicated!!
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luckylucy ~ Hon, I know exactly how you feel. At an appointment with my BS, he was telling me, when I chose to go the lumpectomy route, that that would entail me having radiation treatments & that would be that. Of course, I didn't know his word was not final and that he was only the surgeon, not an oncologist.
At the next Onco appointment, when the doctor said, "We have a test that we can do to help determine whether or not you will have chemotherapy treatments." Well, I about lost it. I had convinced myself on the word from the BS that I would only have Rads & nothing more. It was such a shock & I remember sitting there after she said that in such numbness..... I don't remember much that was said after that &, of course, that was one of the times I was alone.
I do remember when I found out my score from her, which was 14, that if it had been much higher, she would have highly suggested chemo. So, I guess you could say I was lucky, but sometimes I think maybe I wish I'd been told to have it...........
Florida55 ~ I am sorry you have to do chemo, but we will all be here for you. I have heard that the Chemo threads are wonderful for their support during the tx and, as I said, we're here as well. (hug)
I know I am not commenting on posts that I mean to, but if I stop to go back & read, I will lose this post. So, please know you are all in my prayers.
{{{{{ Sheila }}}}} I'm so sorry this is such a sad time for you. You are always in my prayers, dear sister-friend. ♥
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(((((((Sheila)))))))
You are in my thoughts and your family in my prayers.
xoxo
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ducky: What a story..you really have to stand up for yourself these days...the people who work in the service industry are just not customer oriented. You can barely get them to show up, let alone do their jobs.
I was in the grocery store the other day to get a box of sodas and a young stockboy let me struggle to try and lift the box into my cart and never once offered to help! He was partially blocking my way, making it even more difficult, and seemed annoyed that I had interrupted his task! I gave him a look that indicated if he had a brain he would be dangerous. I should have reported him to the manager but I was in a hurry.
My eye feels much better today. I slept most of yesterday, refused to make dinner, so BF got takeout and did the dishes. I guess I've milked it for all it's worth, so it's back to business today.
Have a good day everyone!
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So many new people.
Luckylucy and Florida55 - so many ups and downs and changes in plans. Praying for you.
Sheila - praying for you and your SIL.
Valjean - I have the same score as you and feel the same way, maybe I should have insisted. To me, this is the hardest part... maybe I should do more even though the docs don't suggest it.
Joan - praying that Femera is kinder to you.
Hugs and love and sunshine to all today. (almost 70 and sunny in Chicago!!) Yay!
Ducky - go get 'em girl!
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Val...........I remember the Walgreen's thing, and good for you............Maybe if enough people deal with these "ingrates" the way they should be delt with things would improve...........but so many think................"not gonna say anything", or think so little of themselves that they feel its okay for someone to treat them in a "nasty" manner.........................Sorry, I 'm not one of those people................you really don't want to "piss" me off...................
Everyone gets a bad day, I will grant you that , but your "bad day" was not caused by the person ;your giving the "shit" too, so either be nice, or find another job............on'e where you don't have to deal with the public.....................
Me, I am a people person, have always been...............when I was in jobs that didn't involve dealing with people, I was bored, and hated it..................when my kids were younger I worked for the School District...........the one my kids went to, so it would coninside with their days off, and they were never alone..........
I loved dealing with the kids, and I finaloly got the job as "head baker" for 8 schools and the district office.........loved it.................then I went to work for SmithKline Pharma company, and I dealt with Drs, RN's, Pharmacist's, and sometimes consumers.......loved that too.
So I know how frustrating "people" can be, and how sometimes the people you work for don't give you that kind of training, but I belive the "girls" I had to deal with at the Market, over the Lottery Coupons, should have immediately said to someone..........."Hey we have costumers coming in with these coupons, and I need to know what to do"........Can you show me..............problem solved...........Like I said ...............Lottery coupons 101, and everyone is happy...........hugs.
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