CALLING ALL STAGE I SISTERS
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Just had my first diagnostic mammo and it was fine. Did an ultrasound of my armpit on the other side cause I could feel a little knot in there the days before, but it was clear too.See breast surgeon on Tuesday---how long do we keep seeing them? I keep thinking every visit with him will be the last....
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Redheaded--Be prepared to develop a long-term relationship with your surgeon! With a diagnosis like yours, I have been seeing mine every six months since rads ended, and will continue to see him twice a year for at least three years and then yearly. But this is time well spent, since the monitoring is reassuring, to say nothing of being an "advance warning system" should something go amiss.
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It seems like who you see for exams and how often varies by where you live. I saw my breast surgeon once 10 days post surgery . . . and that was it. But my radiation oncologist, who I really like, sees me every 6 months for the first 3 years and then once a year for another two years. She actually gives the best exam of anyone I've seen.
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My breast surgeon said I'm only to go through him from now on when I get mamos. He said all imaging goes to him from now on every 6 mon for several years. He was very adamant about it.
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My breast surgeon also asked that I get my next mamo through her rather than the regular imaging center although I was surprised that it is not until April which will be a year since I was diagnosed.
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I would ask for one sooner. I thought they always want you to have them every 6 mons for a while.
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Susug, You are right. I should. I have thought about it but I am a grand master at procrastination and denial! I am so bad and feel like I am on a cancer break until next tests but I WILL bring it up with my PCP who I really trust and without whom I suspect my cancer would not have been found so early.
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My BS said that I will see her every six months for the next 2 years & then once a year. I will see the MO every 3 months while in active treatment with the Arimidex. The RO I will see twice a year.
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Yes, it is funny how it varies. My MO said he will see me every 3 months for the first 2 -3years, then every 6 for 2 and then once a year for the final 5 (10 years total) unless something pops up. My RO gives the best Breast exam. When she is done, I feel confident there is nothing lurking that I've missed. My MO doesn't even do it unless I ask.... my surgeon isn't too focused on it either--told me to do my BSE and if I felt something say something......I'd gladly pay to co[pay to have my RO do this quarterly......0 -
Hi all, I've been off the discussion boards for a while dealing with health issues and family issues. I check in every once in a while, but I haven't posted. I wanted to wish you all happy and peaceful holidays!
Latise - I am curious....you've had bilateral MX and implant reconstruction and you're scheduled for mammograms? I've had multiple MRIs and ultrasounds during and since reconstruction to follow some lumps, but I've been told I will not require mammograms. Did you have an unusual tumor location that requires follow-up mammograms?
Best wishes!
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Happy Holidays to all!!!
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Merry Christmas everyone !! 😃
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Hi
Everyone I figured I would see how everything is going.
I need to make a decision whether or not to have RADS again. A risk of skin break down since I had RADS before.
So they are saying surgery not a option ? I really cannot figure out why.
I have five visible pink bumps lumps dots along the scar tissue.
I'm more than frustrated.
I'm now on Aromasin and Lupron.
Instead of just arimadex.
Pet Scan Negative.
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anyone have an oncotype in the high middle range (my oncotype is 28- high intermediate range and chose not to do chemo? (DIag- invasive ductal Ca, Stage 1A, clear margins and no lymph node spread, SIze- 2 cm, Grade 2.
I opted not to do chemo and will do, instead, radiation and hormone therapy (Ai inhibitor). Such a painstaking decision. If anyone else made a similar choice, I would love to hear from you.
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I declined chemo and radiation, just taking Tamoxifen, possibly for 10 years....not changing to an AL due to osteopenia , and a hip replacement last year.........
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Hello Ladies,
I have a Stage 1A IDC BC.. I have had a lumpectomy and there is no lymph node involvement. The receptors are ER+/PR+ but the HER2 was inconclusive. So my MO sent a sample to California for another test to see if treatment for that is needed. My RO has suggested Radiation. I have decided to go ahead with that even though I will lose 10% of lung capacity in the left lung.
I am really glad to be here.. It is good to know I am not as alone as I felt. I'm still kind of scared
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I'm scheduled for port placement to start teratoxin and Cytoxan once every 3wks for 4wks and then radiation and feramar for hormone therapy. I'm glad to read so many have had positive results from these chemo drugs.
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ecehamm, I hope the chemo is tolerable and kills the cancer! Good luck.
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sending you good vibes Elizabeth and hoping not to many problems will arise with loss lung capacity. I was also a lefty Mine had to be sent off also for the inconclusive her2 but thank God it came back neg. I did lumpectomy,rads and now on tamoxifen.
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Thanks Meow13
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Mine was 27 and decided not to do chemo for many reasons. Most important probably being I already have an autoimmune polyneuropathy. My docs agreed that the risks outweighed the benefits. Good luck to all....
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Ecehamm and Elizabetham, all of the decisions that need to be made once the dx of BC is made are leaps into the unknown. Fortunately, there are so many people who have made similar choices to whichever route you take, so ask lots of questions and check many different threads. I'm sure you will bravely go where you need to and hope all your treatment results are positive. A big Sunday morning (((HUG))).
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Just popped in to this thread. I was stage 1 A and my onco score is in the gray area, HER2 was neutral but then FSH came back negative. Now waiting one more week for a prosigna test that will give more specific DNA info re need for chemo or not. I'm really learning toward going straight to rads but decided it was worth 1 more week wait to try to get it right. I see so many with much higher onco scores (mine was 20) that I'm not sure I should wait. I"m only 5 weeks out from surgery though so I guess that's not too bad. I have large amounts of cancer in family; I'm the 6th w bc in 2 generations on my mom's side. Nice to see all the different choices and be able to tap into other's decision making process. Thanks.
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have not been on this site for a long long time
I had my mammogram and had to go back for another one and they found 5 dots on my right breast which is the one I had the lumpectomy on. I have to go for a stereotactic biopsy on jan 23 and am so so so very frightened.
had my lumpectomy on 1/13/2012 and my hubbie was here with me to go through all this,,,he died 2015 and I am so afraid to go it alone..
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also, didn't this site used to have a chat room?
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Munnybunni...Don't go it alone, take a friend or sister with you...i wish you the best...
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i am going to take a friend. My sister died in 2004 from stage 4 triple neg breast cancer and it is hard to put away in my mind of any outcomes. Thanks
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didn't there used to be a "chat" room here on breastcancer.org? I thought I used to get on an actually chat with people
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There was a chat room. I tried it a couple of times but it moved too fast for me. Check with the Mods.
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welcome to all new sisters.
I'm glad this thread was picked up again.
So sorry I wasn't here for a long time. I hope you all continue to post and I promise I will be hare reading all your posts.
Sheila
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