CALLING ALL STAGE I SISTERS

15859616364512

Comments

  • Harley44
    Harley44 Member Posts: 2,126
    edited January 2010

    Susan

    I'm praying for b9 b9 b9...

    gentle hugs to you

    Harley

  • carolinachick
    carolinachick Member Posts: 135
    edited January 2010

    Cake - so sorry to hear of your MIL's recurrence and your FIL's passing.  How is DH holding up?  You sound like you're blessed with a wonderful MIL, as am I.  Hugs to you and your family.

    Susan - praying for b9 results for you.  Let us know when you hear something.

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited January 2010

    Hi, guys!  Thanks for the encouragement.  I always know I can get hugs here.

    Carolinachick--yes, I have SUCH a grea MIL...she is so good with the kids and kind to me.  She and my mom get along great as well which is cool.  I hope I can share that same relationship with my son-in-laws and DIL when that happens (since Im living til I'm 87 we all know!).

    Today my hubby is going to spread FIL's remains in the Atlantic.  He's holding up well...when Meema goes home (my MIL, his mom), everyone is going to be traumatized for years.  Ugh! 

    Sorry for the downers...I'll post happies from now on! Laughing

  • Grakenmom
    Grakenmom Member Posts: 137
    edited January 2010

    {{{Cake and family}}}

  • C130sunshine
    C130sunshine Member Posts: 47
    edited January 2010

    Cake - so sorry to hear about all that is going on in your life......{{{{{HUGS}}}}}

  • brando1mar
    brando1mar Member Posts: 2
    edited January 2010

    Thanks for the welcomes....I am in that sorta kinda don't feel like doing anything fatigue that comes by day 5.  I am glad chemo is over but thought it was so strange when I left the room and it was like any other "see ya later".  I guess it's so routine to these nurses, and god bless them please!.  But nontheless, glad I am done.  Onward and upward to radiation, and perhaps work one of these days....I am going through the blues of the unknown but hope to get that in check once I am physically better.  Love chatting with you ladies and will keep doing so till I've cut my hair many times over!!

  • DenverDiva
    DenverDiva Member Posts: 77
    edited January 2010

    Hello Ladies,

    Thank you all so much for all of your words of encouragement.  Today was a much better day, your warm wishes make a huge difference.

    Cake, I am so for you and your family.  My prayers are with you all.

    Love & Hugs,

    Susan

  • sheila888
    sheila888 Member Posts: 9,611
    edited January 2010

    Hello Susan...Im glad it was a better day for you my friend.

    We are always here for you.

    Hugs

    SheilaWink

  • labarbera2006
    labarbera2006 Member Posts: 22
    edited January 2010

    Thank all of you for your thoughts and prayers.  My surgery was over 4 hrs, so recovery a little bit of challenge.  I am doing much better and I came home yesterday.  I am resting comfortably and hope I have a speedy recovery.  My path rpt will back next week.  So I only know that I will have rads., but the verdict for chemo is still out.  The tumor was 2 cms, so will see. 

    I am wishing everyone good help and sending lots of hugs.

    Hugs

    Labby

  • sheila888
    sheila888 Member Posts: 9,611
    edited January 2010

    Welcome Home Labby. glad you are comfortable.

    Take care of yourself. Thanks for letting us know.

    Hugs

    Sheila

  • MBCR
    MBCR Member Posts: 51
    edited January 2010

    HUGS TO LABBY!

  • deborye
    deborye Member Posts: 2,441
    edited January 2010

    Sorry to hear about your loss of you FIL, my condolences♥  Hugs and prayers to your MIL also.

    thereishope, everyone has that feeling in the back of their mind, I know I do, even though my onc said to me last week, that I have a very good outcome, I guess I just can't get that thought out of my mind.  I watched my mother die of BC and I will never for get that, God I Miss Her.  She has been gone 14 years May 31st she was only 64.

  • deborye
    deborye Member Posts: 2,441
    edited January 2010

    Hugs coming your way Labby♥

  • Nicole112
    Nicole112 Member Posts: 130
    edited January 2010

    LABBY- wishing you a speed recovery... I know the waiting for the path report is the hardest part, but it must feel so good to have the surgery behind you, your already done with the first step!

    Keep us posted, we are all thinking of you!

    Nicole

  • ThereIsHope
    ThereIsHope Member Posts: 18
    edited January 2010

    Hello... I've made a few posts on this web site, but am glad to find a Stage I "home."  I had a BLMx on January 5th of this year.  My drains are all out and I'm busy filling up with fluid, especially on the left side where nodes were removed. It isn't painful, just weird feeling.  My surgeon will drain them the end of the week. I am unusual in that I had a false positive on my sentinal lymph node at surgery.  I learned that less than one percent of people get a false positive.  It was good news to find out that the cancer had not spread when the lab reports came back a few days later, but by that time they had removed an additional 13 nodes.  Not that many, as I understand it.  Lymphadema chances are very low.  So, now I'm waiting for my OncoType DX score to get going on my treatment.  I hope it just involves hormone therapy.  We'll see.  Hopefully the score will be in by Friday, which is my next follow-up appointment with my surgeon.  I can't help but feel that my dx just barely meets the criteria for serious consideration compared to higher stages, etc. of BC.  But, cancer is cancer.  I'm learning that it can come back no matter how much we do to prevent it.  That, in itself, is reason enough to need the support of others.  So, I feel blessed to have others with Stage I to share with.  Looking forward to knowing y'all.  Karen (aka ThereIsHope)

  • Meece
    Meece Member Posts: 10,618
    edited January 2010

    Hi, Karen, since I only had a lumpectomy and SNB I didn't have drains, but I remember the fluid buildup and how when I leaned over you could hear the sloshing of the fluids in my breast/node area.  It was a real strange feeling as well.

  • ThereIsHope
    ThereIsHope Member Posts: 18
    edited January 2010
    Yep!  I hear the slosh and glub glub sound.  Surprised  My body is so different now!  No boobies (or poopies as my 2 year old granddaughter calls them) to hide my stomach.  I don't plan on reconstruction, so this will be "me" from now on.  Hey...as long as they stop slushing around, I'll be good with that!  LOL    Karen
  • Meece
    Meece Member Posts: 10,618
    edited January 2010

    The sloshing kind of grossed me out.

  • valjean
    valjean Member Posts: 1,110
    edited January 2010

    Labby ~ Welcome home, to your physical home & back here. {{{Gentle Hugs}}}

    Karen ~ Welcome sistah! We look forward to getting to know you as well. I had a lumpectomy & SNB & I did have one drain. It was only the one, but I. could. not. wait. to. get. that. out!!

    {{hugs to all}}

  • mimi1964
    mimi1964 Member Posts: 851
    edited January 2010

    Hi Ladies - I haven't been on in a few weeks.  I've been reading the posts, I just didn't really have much to say I guess.  It's been a down few weeks as I've been finishing up my rads.  I have 3 more boosts to go and I'm done!!!

    Labby - I'm glad you made it through surgery and are at home recuperating.  Big gentle hugs to you!! Feel better soon!!!

    Cake - So very sorry to hear of the loss of your FIL and about your MIL's recurrence.  You and your family have definitely been through a lot this past year.  I hope and pray for God's grace to shine upon you all.  And that Disney vacation should be a welcomed break for everyone.

    {{{{Hugs to Everyone}}}}

    Renee

  • LauraM
    LauraM Member Posts: 41
    edited February 2010

    Good morning!  I hope everyone is feeling well this morning!

  • cakeisgreat
    cakeisgreat Member Posts: 188
    edited February 2010

    Hugs to mimi/Renee to boost up your "down" weeks.  Congratulations on only 3 more boosts!  Or maybe 1 by the time I've written this.

    I cant WAIT for Disney!  We are surprising the kids till the DAY of...it'll be so fun to see the looks on their faces when we say...what should we do today...I dont know...maybe go to DISNEY!

    yahoo!

  • Jaimieh
    Jaimieh Member Posts: 925
    edited February 2010

    Wow Cake I am sorry about your FIL and I hope your MIL responds to treatment.  Have fun in Disney and look at all of the eating that you are doing as getting the girls you want. 

    I am recovering in NOLA from hip Gap flap.  In the past year I have had a mastectomy with expanders, exchange, exchange again, implant removal and a capsulectomy to remove the scar tissue and now finally Hip Flap.  My new girls are great IMO :)  So if anyone has any reconstructions questions I have a lot of knowledge about it..lol..... 

  • DenverDiva
    DenverDiva Member Posts: 77
    edited February 2010

    Hello all of you dear ladies,  I have just a second to do a quick post.  I am still waiting to hear the results of my biopsy.  I will let you know as soon as I find out.

    Love,

    Susan

  • Grakenmom
    Grakenmom Member Posts: 137
    edited February 2010

    Sending gentle hugs and prayers up for everyone to have a good day.

    xo, E

  • Erika09
    Erika09 Member Posts: 87
    edited February 2010

    I posted below on the tamoxifen thread but I would love input from the ladies on this thread too, Thank you!

    -I went to see my hermat/onco yesterday.  I am more confused now than before!  She told me that I fall into the ‘GRAY ZONE' regarding tamoxifen, and that no studies have been done on people with my diagnosis. They don't really know of the benefits of it for women who have had bilateral mastectomy while ALL tumors were smaller than 4mm.

    I also do not fall into the Oncotype DX  category since all 3 tumors found were 4mm or smaller and insurances do not pay for this expensive test unless tumor is 1cm or bigger.

    She recommended that I take it as a preventive measure, knowing that it would improve by 1-2% but she'd be OK with my decision if I decide not to take it! Again, it is left to the patients decision....This is wearing me out!!  My first reaction is of not taking it! How much improvement can 1-2% be compared to all the side effects??  On the other hand, I don't want to contribute to the possible growth of Mr. Cancer cells either!

    Ladies, if you have any light to my confused mind I so greatly appreciate it!

  • musiclovermom
    musiclovermom Member Posts: 245
    edited February 2010

    Erika How are you? I haven't posted to you in a while!

    What if you take it and have no bad side effects? 

    What if you take it and then decide to stop taking it later?

    What if you never take it and down the road you have more cancer?

    These were questions that went through my mind when I was trying to come to grips with skipping chemo & radiation.

    I chose the BMX and skipped rads - my Oncotype scores were too low and chemo would have done more damage than good. I decided to try Tamoxifen and if I did not like it I could stop taking it... I am still on it and the only difference is I use moisturizer on my face more often now.

    I am trying to do everything I can to keep from having cancer again...

    Kimberly

  • Erika09
    Erika09 Member Posts: 87
    edited February 2010

    Hi Kimberly, I am doing very well if wasn't for this Tamoxifen deal! Thanks for asking.

    Your questions are exactly my husband's, and I am seriously thinking of doing what you did! I can start on it and see what happens but I feel that, besides possible side effects, it'l be an everyday reminder of bc and...Maybe I'm just worrying too much and I should stop researching on Tamoxifen! The list of side effects is so long and scary! 

    How are you doing? Your big day is soooooo close now! I am so excited for you and I wish all the best in your surgery! I noticed a posting from you somewhere and you mentioned pics in the forum. I would love to see results! I have been taking pics of my recon and will also only post at the end for educational purpose for other ladies. I have not had any major problems so far with it other than some pain fter my first fill. Le me know how your surgery goes.

  • running-girl
    running-girl Member Posts: 2
    edited February 2010

    Hi all,

    I have just joined this group.I have had a lumpectomy 3 weeks ago.Beastie was 17mm but no nodes affected and clear margins. Surgeon says I fall into a "grey area" for chemo. Going to see oncology tomorrow to see what will happen next. A liitle anxious as not sure what to expect.I am 41 years old.

  • carolehalston
    carolehalston Member Posts: 8,287
    edited February 2010

    Hi to Stage 1 sisters!  My dx info is at the bottom of the post.  I'm 6 mos out from surgery and feel really good except for some SEs of Arimidex.  Nothing I can't handle.  Joint pain mostly and loss of cognitive function.  Draw lots of mental blanks when I try to think of a word that fits perfectly into the sentence I'm speaking.   

    I'm a golfaholic and was back to playing golf after about 8 weeks out of surgery.  My  PS is pressing me to go back to surgery for some tweaking.  He wants to replace my implants with larger ones and improve the positioning of the right implant.  I haven't decided whether I'll go that route.  Any advice based on experience?