The dumbest things people have said to you/about you
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I have been fortunate to have gone thru all with minimal SE's and able to work. But let's be clear I still have cancer. DX a year ago followed by chemo, masectomy, chemo, rads and now herceptin continues untuil next January. And a friend says to me "At least you have your health" Really, do I?? Would she consider this having her health. I don't think so. My response was " Maybe I am doing well, but really, but I don't think I will ever consider my self to have my health again."
Be well
Nel
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I have been fortunate to have gone thru all with minimal SE's and able to work. But let's be clear I still have cancer. DX a year ago followed by chemo, masectomy, chemo, rads and now herceptin continues untuil next January. And a friend says to me "At least you have your health" Really, do I?? Would she consider this having her health. I don't think so. My response was " Maybe I am doing well, but really, but I don't think I will ever consider my self to have my health again."
Be well
Nel
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Pretty true!
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When people find out I have cancer and that it is not genetic they always ask me how I go it. I tell them I was bored and walked into my doctors office and said give me a disease and chose the pink jar on the shelf. Little did I know it was cancer. Really?!? Of course I do not know how I got cancer.
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Geez, 2miracles, if we could pinpoint what causes it every time, we cure the damn thing every time! Maybe they think you're a future Nobel prize winner for Medicine.
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LOL I know right! One of my bosses has actually had someone in their family, a child, that had cancer. He asks me all the time if I am cured. You would think he would know there is no cure. It also amazes me that people think as soon as chemo is done we are back to normal. I wish it was that easy.
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My response to "When will you know you're cured?" is "When I die from something else." Usually shuts 'em right up.
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Love it Riley! lol
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OMG I'm still reeling over "at least u have u'r health" hahaha I mean yea cancer is so healthy to have rather than a cold. How could anyone say that.
And Riley u always say the riht thing--good for u.
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OMG I'm still reeling over "at least u have u'r health" hahaha I mean yea cancer is so healthy to have rather than a cold. How could anyone say that.
And Riley u always say the riht thing--good for u.
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Hello to all -I sincerely apologize for just plain disappearing. My laptop is in the shop and I have not been well enough to visit people who have a laptop or to go to my local library. Fortunately, my daughter's boyfriend lent us his for awhile. Instead of rambling-on, I will catch you up with a list of my recent BC experiences:
1. Went to my local hospital for a lung bx a week ago. I asked my onc if he was certain I should stay local. He felt that there would be no problem with the local radiologist - WRONG!
2. The Rad. nurse was wonderful. She spent the entire horrible day with me.
3. The day started with lab work - I advised a new tech that my veins are shot and that she needed to use a vein further down my arm from the elbow crease. The tech who knew me advised her to do the same - but no, she was all gung-ho and stabbed me twice without success - the tech who knew me used the correct vein and I was all set for my bx.
4. The Radiologist was very friendly - I know many are not, so I should not complain, but he was almost unprofessionally flippant and kidding around. I was not in a kidding around mood.
5. As soon as we entered the CT room, I sensed disorganization and poor planning for the procedure.
6. As soon as the first bx needle entered my back, I could sense the panic in the room - I did not know why at the time, but for the first time ever I almost demanded that the procedure be stopped. I should have.
7. I was on the CT table for 2 1/2 hours for a needle bx!! The Rad went in five times - that's five lidocaine needles plus five bx needles. At one point I advised him that I was fully awake and in need of more meds!
8. When I realized that the procedure was finally over, I was very relieved, until the extreme chest pain started. I am really tolerant of pain - that pain was a 10 plus on the scale. The Rad. called out for someone to call the local surgeon - he could not be reached - why wasn't one on stand-by! When he could not reach the surgeon, he said, "Well, I guess I'll have to go in again". A huge syringe, with a thick needle was then inserted in my back to hopefully expell air - My lung had partally collapsed.
9. I realize that I signed an informed consent and was advised that a collapsed lung was possible - but the Rad later informed me that my lung "blew out" with the first bx needle. He also told me that he could not get any usable tissue because my collapsed lung kept getting in the way - WHY the heck did he try four more times? Ego, maybe....
10. I spent 8 hours in recovery - since I live five mins from the hospital and promised to call 911 if I could not breathe, the Rad let me go home.
11. I was so ill the next day, I could barely move. The rad nurse called me twice to try to get me to have a chest xray - I told her I could not and would not until Mon. - The x ray showed that the leak in my lung in no worse, but no better. Now I have to wait and see if my body will heal the problem or if I will need another procedure. I cannot have another bx until the lung issue is resolved.
12. I called my Onc and advised him that any further procedures would be done at the Vermont Hospital (3 hrs. away) where he is also on staff - I had my port placement and lx done there.
So, that's what I have been doing. Thanks for listening and caring.
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reality, oh my goodness
so sorry things were so tough, all I can think of now is to rest. do you think you want to try a dif hospital center?
I live in central nj so tons of hospitals so easy to find new one and hope you have some options
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reality - just what you, or anyone, should never endure! My prayers for your full and rapid recovery.
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Reaility - OMG. (((BIG HUGS))) gentle ones coming your way. And lots of heartfelt prayers. I can't imagine how you endured that. And yes, the other hospital could certainly not be any worse and sure hope it is a thousand times better for you. And now you know where you stand with the locals. NOT!!! With you looking forward to healing from the botched biopsy and on to better things, at least an answer, with the next one.
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wow - suddenly I feel so grateful for the great care I received during my treatment. Im so so sorry you had to go thru this. I hope you complain to the right people, so no one else has to go thru this - when you are feeling up to that.
Hope you heal quickly and get results in a timely manner.....good results!
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I'm so sorry, Reality. What a horrible experience! Excellent decision to never go back there again. (((gentle hugs)))
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Reality how horrible for u--OMG I'd never go there again--he just kept on going--I' sorry that u went thru all that. Hope results are good. Rest alot.
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Thanks, Camillegal. My Onc. called me this p.m. I have mets to lungs. It's ok, though. I am ready to fight again.
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Thanks so much for all of your support! My Onc. called me this p.m. I have mets to lungs. It's ok, though. I am ready to fight again.
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Damn it, damn it, damn it!
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That's just awful. It's like an assault. You are so right to decide to never go there again
Mx0 -
So sorry you had to endure such inept techs and Dr, Reality.
They seem to have graduated from the same school as my local radiology centre. I went back there last week for the first time in about 2 years after a bad experience with contrast injections and injectors. At that time they were the only radiologists in the district but now there is a plethora of them in the next town 30 mins drive away.
On this particular day I had to have a body scan with the radioactive contrast and the two female techs failed to get into my left arm/hand with the two tries they are each allowed.
Finally, one of them decided to find a Dr in the small private hospital this radiology unit was attached to....as I waited on the CT plank with four cotton-ball-covered dressings on my arm.
Suddenly, a male voice came from behind me and started bellowing at me that, "This lymphodema fear of needles is a crock, nobody gets LD from a small needle.....and I'm not going to listen to any fearmongering myth that people choose to believe and makes life difficult for us......"
By this time he was beside me leaning over and shaking his finger at me and I was trying to move backward to get away from him without falling off the plank.
When he finished his little dummy spit, he walked out without doing anything at all.
The two female techs wouldn't look me in the eye and tried to retreat into the little room where they stay while a scan is in progress.
I was just about to start crying when one of them came in and said she would try to find a nurse, so I said, 'Don't bother, just do it in my right arm and get it over with!'
....And they did just that, easy peasy.
When I walked out to the waiting room full of people, my husband took one look before saying, "My God, did they use you for a dart board?" which made me laugh when I looked down and saw all these little while powder puffs taped to my arms, one foot and a hand.
I decided to go back again because I figured that they had probably a staff turn over since the last time and I might get lucky with a new tech.....and I wasn't up to getting the dye injected and hanging around that town for 2-3 hrs until the scan could be done.
Mind you, I was ready for a fight this time and had my battle lines primed ready to fire if anything looked like being repeated from the last time.
I got a great bloke who got the dye canula in and did the job without leaving a bruise or even a mark on my skin.
The further I go on this journey, the less tolerant I am becoming and I won't let them treat me like a piece of beef on a butchers block any more.
I hope you get better treatment on your next appointment with the medical system.
Sheila.
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Oh Sheila,
I am so sorry you had such a terrible experience. I could actually imagine the bellowing, authoritative voice of the person who told you the LE fear was not real.
I definitely identify with your decreasing tolerance level. I felt as though I needed some definitive answers yesterday, so I left two messages on my oncologist's office phone before the office opened. I stated in the messages that I did not want to speak to anyone else but him. My onc is an understanding, compassionate professional. He called me during the day to advise me that he would call me after clinic hours - He called again yesterday evening and spent a lot of time answering questions. Our conversation ended with him advising me to call him anytime. I thanked him for always being here for me. I really needed that call.
Thanks so much for your supportive post.
Sherry
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Sherry, so glad your onco got back to you with helpful info, you deserved it. I never thought about leaving a message that I would only talk to the doc and not an asst. Will be on my list if I need.
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Reality - so sorry for your terrible experience. Sending you love.
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I had my Zometa infusion yesterday (every 6 mos., because the Arimidex can cause bone loss). I forgot it was this onc. visit and was a bit dehydrated - I know, bad me. So they had trouble getting a vein. The antecubital (inside elbow) blew immediately. The first one in the back of my hand also blew. I offered my foot, and the chemo nurse kinda gave it a "Hmm" considering look, then said she'd try the back of the hand again. I uncertainly asked if I should just let them use the left arm just this once. She immediately shook her head and said, "Nope, not gonna happen. We'll get a vein without using that arm." And the next stick was the magic one and I got my Zometa infusion without further difficulties.
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Reality I a so sorry u got the news of having mets. After that terrible time then this. I'm sure u'r thinking about what next and u'll get u'r answers and more help. Damn cancer it just keeps going after some and it sucks. Please tell us what the next steps are for u and u'r in my prayers.
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It's different with IV's and infusions or any drug they have to "push" through your vein. That puts a LOT of stress on your veins! Good for your nurse for recognizing that riley!!!! I've allowed blood to be taken out of desperation on my LE side (and I HAVE LE!!) because I figured they'd punctured my good side enough to CAUSE LE.
Reality that is just horrid!!! I thought you said the radiologist said he didn't get any tissue? To go through all that for nothing would have been tramautic!! But so sorry they got enough to catch your mets. Hugs, sweetie.
I had a thyroid biopsy once that they allowed my DH into the room with me, but told him they didn't care about him during the procedure, just me. They stuck me 13 TIMES in the throat, each time saying "don't move, don't swallow"!!! My poor DH passed out!! Backed into the wall and slid to the floor as tears streamed down the side of my head into my ears...sigh. Sure enough, they let him sit there. After all that the results (years ago) was inconclusive!!! I just think they didn't get a good enough sample!
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I hate to hear these stories and hugs to all that have been through such crap!
Barbe- Your description made me laugh! But then you often do that. (c:
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