The dumbest things people have said to you/about you
Comments
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My rule - they get 1 poke.......if they dont get it.....then someone more experienced gets to try. No exceptions.....
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Shayne, I am with you on that one. Had one bad set of pokes...4 tries to get a setup for one of the early pre-treatment tests...not sure what one but I remember my arm was black and blue before he finished! I called the hospital and complained but...then again, "young-male-dark-haired nurses" at that hospital, do not get to poke me even once!
not taking any chances there as would not be able to ID the nurse!
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They can go in my hands and zi always ask for a baby needle and they have them cuz my veins are bad and they get it right away. O request a baby nurse.
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went for a pet scan 3 days ago and i am bilat LE. So asked em to please do my foot. She made a big deal about it asked the super who said call the doc who said yes do it in her foot. The tech had never done one so found someone who had and she tried on the top of the foot....no success after 10 mins of shoving the damn thing up the vein. Then she tried on the inside of the ankle and no success there either after 10 mins. By this time I am more aggravated and frustrated from what BC has done to me with the LE crap that I am crying...probably from starvation too... that she says she is done and someone else has to do it. So the super comes out and tries the other foot...again 10 more minutes of torture unsuccessful so i rip off my sleeve in the arm with the minimal LE and said just do my arm I cannot take anymore. So they said only if it is ok with you. I knew that I was not going through the day before starve and day of deprivation again so i said just do it...i want to be done. It was already after 1pm. Even the hand was a little bit of a problem but not near as painful as the foot agony!!
Picked up the report today and have an appt next tuesday with my Onc...really should not read these things ourselves. it says there is a small nodule on the left lung but no evidence of metastasis. of course all I am seeing is nodule on lung part and just am freaking out. It is going to be a long weekend for me...i see some sleeping pills in my very near future
reality....hugging you my dear.
mags
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Hello Barbe - I pinned my MO down when he called last night. I asked him why all of my med paperwork had mets as the diagnosis before the bx. He told me that I have mets to lungs - he told me that often bx are not done if CT scans are definitive. He advised me that he wants a path report as he is hoping my six lung tumors are not triple neg as my primary tumor was. I asked him one more time - "Do I have mets to the lungs" - he stated that I do. I was so surprised that he would commit to the dx before the bx. What a confusing journey we are one.
thanks for your support
Sherry
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not sure in your area, but in NJ there is a nursing school mill.....where they go for 2 year degrees, and at the end, they all work in a docs office....for almost free
guess what they do? BLOOD draws!
I know this as my cleaning person has a 2 year degree from one of the "mills" and works also for a doc for $10 an hour
actually, I would let her do my blood draw but you might want to ask the "nurse" what there skill training is
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Hello Barbe - I pinned my MO down when he called last night. I asked him why all of my med paperwork had mets as the diagnosis before the bx. He told me that I have mets to lungs - he told me that often bx are not done if CT scans are definitive. He advised me that he wants a path report as he is hoping my six lung tumors are not triple neg as my primary tumor was. I asked him one more time - "Do I have mets to the lungs" - he stated that I do. I was so surprised that he would commit to the dx before the bx. What a confusing journey we are one.
thanks for your support
Sherry
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Hello Barbe - I pinned my MO down when he called last night. I asked him why all of my med paperwork had mets as the diagnosis before the bx. He told me that I have mets to lungs - he told me that often bx are not done if CT scans are definitive. He advised me that he wants a path report as he is hoping my six lung tumors are not triple neg as my primary tumor was. I asked him one more time - "Do I have mets to the lungs" - he stated that I do. I was so surprised that he would commit to the dx before the bx. What a confusing journey we are one.
thanks for your support
Sherry
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Dear Mags,
My thoughts will be with you this weekend. Hugs back to you! So sorry you had to go through the multiple sticks -I dread starting the IV - lab test routine again. I will definitely have a power port again this time. I know the waiting is torture - I just wanted to sleep until I could get some definite answers.
Shery
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Oh my goodness Thanks to each and every one of you for your love and support. I just read some posts on previous pages, in-between-coloring with my 5 yr. old granddaughter. I will sign off for now, as we are having "Girl's Nite at Gramma's" - choc. ice cream and coloring - Yea.
Sherry
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Oh reality this all sucks I feel so bad--all that u'r going thru.
Mags that's crazy, how could they do that to u? The foot can hurt so much when they are just stabbing at u--I've asked for a baby nurse before and they usually oblige cuz no one can see invisible veins and u don't feel anything--I was shocked-She came in and did it and left.
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So here's my smile for the day - courtesy of my brilliant neighbour. She noticed when I cut off my hair, but I had successfully evaded having this conversation until now (months after this drama started)...
She: "Are you okay? No really, are you okay?" I actually replied these things to her " Yeah, other than the obvious"
She: "Oh, I have a sixth sense about this kinda thing, it runs in my family (cancer), I just knew"
Well, it doesn't take a rocket scientist to figure it out, what with the scarf and the hat (said with a smile)
She: "Oh, no, I meant when you first cut your hair, I knew"
Patiently, with a smile "Don't worry about me, I'll be fine." (Whilst thinking "shit, if you knew ahead of time, aren't you special?") and so on and so forth (until I could escape). Unbelievable.
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Camil - Love your cartoon, if I were brave enough I would print it and post it at work. Of course those who it applies to are probably too obtuse to realize I mean them - LOL!
Reality - so sorry for your ordeal. Sounds like the rad. Has a big ego. I agree if he knew it was mets prior why don't they say so and then to have to subject you to so many biopsy attempts and subsequent pain. This journey certainly makes us stronger and as you say less tolerant at the same time.
Shelia - sorry you have been through so much similar .
When I had my rotator cuff surgery a few weeks ago, worker's comp. wanted it done at the cheaper surgery center in town and I told them no deal, either do it at the large hospital where I work (and fell) or no surgery! This is my second surgery there in 6 weeks 8th in past 3 years and each time the IV stuff gets worse. I have done phlebotomy for over 40 years so know my veins are crap. First they have the whole discussion of using my arms due to the BMX and I have to assure them no lymph node involvement then since surgery on right arm only have left to use and the vancomycin has really eaten the veins as well. This time they tried 3 times to get IV in and I finally told them use my foot and finally they brought person in who got it in the hand on the 4th try. At least the anesthesiologist had no trouble with the arm block and got it right away.
I am so sick of everything as all of you are. Now I am having huge floaters in my eye and random light flashes - soo scarred that it might be beginning if retinal detachment. I really think I can't handle that along with no use of my right arm for the next how many months. I know I shouldn't complain with those of you with much worse diagnoses so I will send my prayers to all and hope for better times ahead.0 -
And I will keep you in my prayers.
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Delila please don't apologize for anything u have every right to complain, vent, rant and whsyever u want. We're all in a mess ans we all know and understand. How about this
Can u use this????
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Cami, love your pics and I'm stealing them!
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Camil - yes I think your latest might work LOL - thanks
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My best friend has totally put her foot in it.
I have spinal compression, I cant walk, am catheterised and try to manage my bowels. Not easy when there are no feeling from the below the breasts down.
Anyway she recons I'm not that badly off, when I get benifets for being disabled I'll be able to retire.
That I'm no worse of than she is - after all she might have a heart attack, get run over by a bus or have a stroke.
Then went on to tell me if I had lost weigh after having the first dx of breast cancer - I would'nt have got mets.
That made me a bit mad - and asked why slim poeple got cancer and mets, seems that just bad luck
Now my friend isnt stupid normally - But she has been told anything that may kill her can kill me - plus I know my days are numbered.
By the way I'm 64 and would love tp be able to retire- onc says there is no reason why I can work from a wheelchair , so i plan to return in November.
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harvey - I'm sorry that you are dealing with such a bad situation, and sorry that your friend is such a doofus. People say the most godawful things sometimes.
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Harvey I'm so sorry what u've been going thru, it s horrendous and how could anyone say that to you. It must have hurt so much. Yes she can have a heart attack, get hit by a bus, have a stroke--but if she could do it all at one time that would be interesting. U sound mmuch kinder than I am, but I would have said that. u are quite a woman to be able to put up with all of u'r problems, I do wish and pray the best for u.
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"But if she could do it all at once, THAT would be interesting."
Cami, you crack me up with your perfect responses!
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Riley I have to say not many people get or understand me but u seem to. LOL
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Reality - I am so sorry you went through that and now have to face lung mets...
Sheila - what an idiot doctor you got! LE is so well documented. My doctors and nurses here in hospital (day 4 of 7 day stay after BMX and recon) are very careful of my arm and most ask which arm is OK to use when they meet me the first time.
Jenn0 -
Oh mine are always good about it too, but then I say u have to use my leg-they stare for a minute and get the other machine for B/P or my port that's one of the reasons I kept my port.
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((((((REALITY))))))). I so don't know what to say.....DAMN this SH....! As for what you went through I'd like to put them through it just for fun!
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Camille, I have used a baby needle (or butterfly as it's sometimes called) with great success but you can't use it for an injection where they need to "push" say, dye, through the vein.
Aw, Sherry, that SUX!!!
Hugs to everyone who is where I am!!
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Oh Barb I know that--that where the foot oart comes in and I still ask for a baby nuse even with a bigger size needle they do better than a tech and I don't feel much--but a tech is probably used to arm veins more than feet. Sme scans they can use my port but not all so they have to use my feet, it just depends what they are putting in.
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Camillegal is so right. The RNs who work in NICUs and SCUs are goddesses when it comes to starting IVs. They also really identify with their tiny patients so they don't keep trying. They know when to pass off to a colleague and they know the next day they may be called on to replace that same colleague. In the hospital in which I worked there was always someone who would respond to a request for a difficult IV start on any floor. All it takes is humility on the part of the nurses and a supportive management that sees asking for help as a strength, not a weakness. All.
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