Calling all TNs
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hi everyone, just checking in to say happy holidays, I'm sending love and good thoughts to everyone one of you.
MichCali - I've had the diep. Try not to worry (easy to say I know). Feel free to ask me as many questions as you like. I'm not on here consistently, but if you send me a PM with your email, that's probably a better way to get a quick response.
Big love to everyone x
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Thank you for the advice Trishyla. Did you do squats and lunges? I appreciate the advice.
Cassylou, I'm sure I will be contacting you.
I hope everyone had a nice holiday weekend.
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congrats AL
hope to hear from cocker soon.
others...hold on! one day at a time, one week at a time, one month at a time and so on...my way of living ever since 2013!
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(((BanR)))
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Hi Everyone,
The Moonshot Program by MD Anderson, (focusing on breast and ovarian cancers, as well as other cancers that needed more treatment resources), is updated here within this video.
https://www.mdanderson.org/cancermoonshots/cancer-types/breast.html
Sending my love and hugs to all of you!
Debra
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InspiredbyDolce, thanks for posting a link for the video. It's very interesting. I hope the cancer moonshot does not lose funding. There is research all over the country that is making progress--I wish it was faster, but it is encouraging.
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Hi Everyone... 😋
BanR..I'm very happy to tell you that instead is waiting for and worrying about bad news...I've just booked a 15 night cruise to Ireland‼️ Enough of living in fear of the unknown....time to live it up. 👍👍 Thanks for the good advice.
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Cathytoo! Thats terrific!!
Hope all here had a good holiday, are enjoying spring and are feeling well!
hugs from NYC!
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Cathy! So exciting! In your pocket for the whole trip!
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Hello ladies
Cathytoo that's awesome, have an amazing time. We just got back from Vegas, mom had a blast and gambled like no tomorrow.
She started A(on its own) on Thursday so far no side effect. When do you usually start feeling the side effects of the A? She also does a dose dense so hoping for good blood counts in 10 days.
Love to all
Cristina
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Very cool, Cathytoo!
Lyn
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Cathytoo: you rock! Here's to an amazing experience!!!
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Good for you Cathytoo!!
Dova, I think the effects from AC hit me fairly quickly, but only lasted a few days each time. I know the neulasta shot effects lasted for two days.
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Dova...If you are getting a Neulasta shot or patch you MUST take Claritin the day before and for five days after. Result? No aches or pains‼️ I promise
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Just to put it out there, I had a Neulasta shot after my first chemo two weeks ago and will have another tomorrow. Claritin was mentioned but only if I experience pretty heavy bone and joint pain. I didn't have any bone pain so I'm glad I didn't add Claritin to my regimen. At wasn't at all required and barely mentioned for me so consulting your Onc would be best.
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Cathytoo,
The Claritin works great! With each shot the bone pain got worse. My skull even hurt! Thankful the Claritin helped!!
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JLBinPDx...sorry to disagree with you regarding Claritin use along with Neulasta. You are very lucky you had no bone pain with Neulasta. Hope it continues for you because the pain is horrible and unrelenting. A tiny pill taken for a few days eliminates that side effect and is really harmless. Also...since Claritin was mentioned to you, it stands to reason that it DOES relieve and prevent bone pain from the shot. My thinking is better to prevent than to relieve
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Madison4568...Funny thing is that they don't know why Claritin works...it just does. One time I forgot to take it and the pain was worse than labor pain‼️
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JL, yes, so glad you did not hurt. As Madison says, the pain does seem to increase as treatment goes on. Hoping you stay out of pain. Thankful for the Claritan help. I found Taxol to be very miserable, and the Claritan did help me. Always good to run anything we take past the Team. As Cathy said above, the ONCs seem to know and recommend this easy over the counter drug.
Hello y'all...showing my Ozarks heritage tonight!
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Hi all
Neulasta stimulates bone marrow to make WBCs. Along with firing up the WBCs to keep our counts up, it stimulates histamine release...which causes the bone pain. Claritin is an anti-histamine, thereby lessening the histamine production, and the bone pain. Yay!
I too, am so glad it was part of my NYUregimen. I had back and hip pain 4 days after my first TC, and it was no fun. Thankfully, it didn't last long, and did not occur again. I took Claritin for 4 days after each infusion.
I haven't been on here for awhile, but do check in. I am 2 1/2 years from dx and still have my fingers crossed, and am feeling good. I am sending prayers and hugs to all, and think of all of you often. To those in treatment, I wish you strength and few SEs, I found the mental stuff harder than the physical. Still working on it!
You Ladies are Amazing!
Special thoughts of Annie and hi to you, Shari! Meadow, I hope you're healing well. Yes, Cathytoo, plan that vacay, and enjoy! Div, keep on keeping on--you are incredible!
I know I am leaving out so many, but know I think of all of you!
Happy Spring
Arlene
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I realize I was lucky to not have bone pain. I was really just saying that it isn't automatic that every oncologist strongly suggests Claritin in the regiment mentioned. Perhaps it's more individual. I take Claritin anyway at points during the year so I'm not opposed to it, but to take it prior to knowing if I need it is always challenging for me. I just thought it was more of a doctor thing, that's all. Best to all.
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Sound advice JLB, please let us know how you are doing. Thinking of you as you head into chemo again soon. You got this! We got your back too. Or as we say, "in your pocket ".
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I didn't get bone pain, I had muscle pain. Claritin didn't help me. So glad all of that is behind me. Having a flare up of rib pain from radiation though. 🙄 Last rad treatment was 10/14/16. Hurts when I reach for anything. Probably just inflammation.
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I had the terrible bone pain. Claritan helped. My MO had suggested it right from the beginning. My nurse practitioner had so many helpful things that were right on line with these boards. So glad I had both, but like lovesmyviz, so happy it's behind me.
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I am letting you all know that I am having a Latissimis Flap on Wed. I had reconstruction surgery in December, and 4 months later, it still won't heal. So my PS says it is a must do. It will put healthy skin and muscle on my chest wall, from my back. Letting you know so you can hop in my pocket, and say a prayer for me. I feel ok about it. Ready to get healthy.
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Meadow - you will be in my prayers. Peace be with you
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Our prayers and hugs are with you meadow.
val
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Meadow...I'm already in your pocket bringing prayers, good wishes, caring and support for you. I'm sure that pocket will be overflowing❤️❤️❤️
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Meadow, - you already know I'm in that pocket, too!
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meadow saying a prayer and hope things go Good. We (mom) did take Claritin with Taxol and first infusion of Nulasta. Made mom super drowsy even if it says mom drowsy ones. She slept a lot but She needed too. Than with A she decided to only take 2 days with the first 2 injections (she has a series of 7 shots for 7 days starting the 3rd day after chimo) but she was just fine. Thankfully no bone pain hopefully she keeps it up like this.
Div hope things are gone well haven't heard from you or Anne. Take care and sending good vibes
Love to all
Cristina
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