Calling all TNs
Comments
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High ten kber! Great to hear how well you are doing.
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Hello to all my triple negative sisters.
I've reached 5 years this month from DX. What a milestone. I can't believe it myself.
To all who are in treatment or just finished or just starting: IT GETS BETTER. I had the kitchen sink plus some, and it was horrible during the times of infusion and rads totally put me in another place with the blistering and dead skin. Thank god for the threads. It really got me through.
Keep up the fight or whatever you want to call it. Now I fight with a little more confidence, but the first ache or pain I always am looking or worrying about recurrence.
An ancient quote has really helped me: So never be anxious about the next day, for the next day will have it's own anxieties. Each day has enough of its own troubles.
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Yay, Valstim! Congratulations. What a huge milestone. I passed my three year mark on August 29th. Can't wait to get to five.
Best wishes for continued good health.
Trish
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Congratulations Valstim52 on 5 years clear!!! You are an inspiration to those of us still doing treatment. Thank you for showing us that the treatment does work. Wishing you continued good health!!
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Hip Hip Hooray -- love this encouraging news! I am one year PFC tomorrow, and feeling good.
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Valstim52 - love it!! Living your best life! It’s wonderful when people take the time to share great news and spread hope.
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CONGRATS, Val!! I am 39 days behind you!
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Congrats to all of you and thank you for continuing to give us hope
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Hi Val and greenae!
I'm about your same time line, and check back here often. It's so good to 'hear' from old friends as well as try to get to know and encourage the new friends here.
Val I know EXACTLY how you feel, - I look over my shoulder and trrrrry to not worry so much. Time passing helps!
greenae, - I love your hair in your photo!! Mine didnt grow in well and I usually wear a top piece or hat
Val, - wasnt it you who helped ease my nerves when my daughter was pregnant and had CPP? I am still so appreciative!!
Hoping all here have a happy holiday season ahead!
Hugs from NY!
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Yes that was me anotherNYCG. How time flies. During treatment it was like a very slow train with lots of bumps. Hooray to all of us for staying aboard, and I so appreciated all who checked in. It gave me so much hope. Here is for more hope in this club we were dragged in to join.
I remember all of us that were pulling for each other during those days in 2015 and 2016. Now we are barrelling into 2020
Val
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Hello Valstim52,
I have missed you on the thread and I just wanted to say congratulations on reaching five years since diagnosis. Well done!
I love that ancient quote you have posted and think that is the best way to live.
Thinking of you.
Love.
Sylvia xxxx
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Wow, so many new names. That's a two sided coin because there are certainly groups with a happier focus. I haven't been on in AGES! My wife is on a steady march toward 7 years since diagnosis. All you new people. NEVER GIVE UP. My wife was right where you are almost 7 years ago! Since then she's been doing great! We now have an unbelievable 2 1/2 year old grandson and she just started a new job! I remember how terrified we were when she was diagnosed...and look at her now! Hang in there!
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just had my one year follow up with the surgeon and I am a hot mess! She noticed a large “mass” that she is 99.9% sure is fat necrosis but wants to be 100% sure. She says it’s fine to wait until after the holidays but I just want it checked out now. I’m scared!
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Mncteach, no wonder you are worried... never fun to hear the word "mass"... what does she want you to do? Mammogram or US?
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Completely understandable that you’re a hot mess! I’d be the same way and would definitely want answers before the holidays. You’ll do nothing but worry yourself sick. Most likely she is correct and you are fine, but for peace of mind I hope she’ll schedule the necessary test ASAP.
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mncteach
I know exactly how you feel. I have had three lumps found after recon and fat grafting. First time we checked with MRI and US, second and third time with US. All 3 times radiologist did fine needle aspiration. All three masses were fat necrosis! By the third time, I wasnt worried much. It is very common after fat grafting, but our docs are vigilant, so they have to be certain. (Thank goodness!) Maybe ask your radiology place and doc to get u in ASAP so you can have peace of mind. If your doc feels its fat necrosis, I am betting it is!
( The FNA is painless and they can tell then and there that its fat necrosis, cause the lump shrinks and oily liquid will be in the syringe. They checked it while I was still in the exam room-and we all high fived. I am hoping the Same for you!
Sending Hugs!
Arlene.
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Thank you all for chiming in! My doc is great, she didn’t call it a mass until after we had discussed everything, including the dreaded c word! I’m still a mess because I just don’t want to be that .1%.She said it would be like a mammogram and the radiologists at her facility ( which is different from the cancer center close to me) are breast specialists and could most likely tell me just from images if it was fat necrosis or if it needed biopsied. Because my hubby mentioned our Christmas vacation plans, she thought it would be best to just wait til after the holidays, but you all are right, once you have cancer you never want to wait and just want to know sooner rather than later. When the scheduler calls, I’m going to see if we can’t squeeze something in before the trip, but if not, I have to have faith that I am the 99.9%!
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ALHusband, thank you for checking back in. It was the perfect timing. I also post for my wife and have gotten a lot out of these sites. My wife is TN, BRCA 2 positive as well. We finished chemo in October, DMX in November and now we are squeezing out hair and eyelashes
Your message was inspiring and hopeful. Thank you!! Her pathology report came back with no signs of cancer, no signs of the original tumor and no node involvement, PRAISE GOD! We will have her ovaries and fallopian tubes removed in February due to BRCA 2. Thank you again and we plan on following in your footsteps! We are a tad ahead of you in the grandchildren department, as we have 6 grandkids and they will all be here for Christmas!! What a blessing.Jay
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Just completed all of my 1 year check ups and got the all clear. I'm having some hip pain and while I was 99% sure it was arthritis, my MO said "Let's check it out to give you peace of mind", so we did and yes, I have arthritis. His attitude is, with my history, that scans or tests will be easily justifiable and approved, so if something's worrying me, we should take a look.
Had a BMX, so no mammograms in my future. It's all self and clinical exams and being self aware.
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kber, congrats on the clean bill of health. Must be a relief to get that far, and I wish you many more happy anniversaries!
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Great news kber!!
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Great news! The scheduler called today and I get to go tomorrow! Of course there’s a snowstorm forecasted but that never stops DH from driving so all should be well, just take longer!
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Amazing!!! Cheering for you right now!!!
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Mncteach: Make sure to ASK for the diagnosis right there when you get th test so there isn't an additional wait for results. You can often ask to speak to the radiologist who is on shift for their conclusions (but, at least at my place, you have to ask). Hoping it's just necrosis as suspected. Good they got you in so fast!
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Hey all I have my last Taxol Dec 19th, and instead up being happy, which I am, I'm so scared of ending active treatment, knowing now its just monitoring. I am trying to come to terms with, trying to be positive, being tn is just so scary.
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Gamb it is so weird to switch gears from treatment to post treatment.
I have put myself on a non-recurrence plan of eating nutritiously, supplements and exercise that provides a little structure... but we all understand that feeling!
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Great news! I went for imaging today and it is indeed fat necrosis. I am relieved and exhausted from the worry.
Gamb— I know exactly how you feel, moving from treatment routine to non treatment routine is HUGE!
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Excellent, Mnc!! Now you can relax. Be good to yourself
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Great news! Now you can enjoy the holidays!
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Two promising clinical results involving advanced tnbc were posted today in Lumpie's thread... very encouraging.
https://community.breastcancer.org/forum/73/topics/860294?page=58#idx_1715
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