Calling all TNs

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  • sheila888
    sheila888 Member Posts: 9,611
    edited May 2011

    Sisters...I just stopped by to say how sad I am about Lisa's passing.

    When I first joined BCO she welcomed me with open arms even though i wasnt in Active treatment at that point.. It was her thread where i posted first.

    Her sense of humor and goodness of her heart touched me.

    She will be missed.

     Hugs to All My Triple- sisters.

    Sheila♥

  • Titan
    Titan Member Posts: 1,313
    edited May 2011

    Thanks Sheila!   I just popped over to your thread a minute ago!  Thanks for coming over here..we need you and your kindness..appreciate it greatly!

    Kymn..please..it's ok to tell us about your SE's..and whine about them if you need to..that is what this thread is for.  some of of us are starting dealing with this crap, some are in the middle and some are done with treatments but we are all here to hang with each other.

    Fact:  Breast Cancer is a killer..oh yeah..we all need to accept this fact...another Fact:  alot of us will NOT die from BC...being on this board..well the first time I came on here it totally freaked me out..I read  most of the forums including Stage 4...it took alot to even stay on here...I'm honestly not one to go on the threads for Newbies...I'm not that good at encouragement..it is what it is...

    The first thing I had to accept in my head was that I have Breast Cancer..once I got that in my head and realized what could happen because of that I had two choices..to accept it and live with it...or let it overcome my mind...I chose to accept it and live with it.

    Yes..I freak out about any ache or pain and freaking doctors appts..Yes..I take vitamins and eat right and excercise...yes I got out and drink and have fun with my friends also...it's called living..and dang it..that is what I'm going to do..until whatever...kills me.

    As Forest Gump said..that's all I have to say about that...

  • cc4npg
    cc4npg Member Posts: 438
    edited May 2011

    I'm very saddened by the news.  We need to hear from some long time survivors.  They pop in every once in a while, and there are many out there. 

  • cc4npg
    cc4npg Member Posts: 438
    edited May 2011

    I gotta say ... I too may take a break for a while.  We all need to get out there and live without feeling like we shouldn't be enjoying life.  We should. We deserve to feel good about feeling good.  These boards will go on.  Maybe I'll take a break from the TN thread a while and just pop in at times to the other ones.  I pray for each of you.  One day it will be our time, but not today, hopefully not this year, and hopefully not for a very long time.  BC won't take the majority of us!

  • JenC
    JenC Member Posts: 186
    edited May 2011

    Just catching up from the weekend and I am so very saddened by the news of Paulding Mom and Justpayton.  This disease sucks.  Kymn - You are strong and can do this.  Hig hugs... 

  • Angelice
    Angelice Member Posts: 1,116
    edited May 2011

    its very sad  ....... Cancer does Suck

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited May 2011

    After having a wonderful weekend and now hearing this my head is hung low. I am so scared right now. I hate living like this!!!!!

    SH*T put me on the cursing list!!!!!!!!!!!

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited May 2011

    seeing and hearing about other peoples courage help me to fight on.  I know i'm far away but warm hugs to you all.  May those that have passed on Rest in Peace, look up at night - they are the stars in the sky

  • Luah
    Luah Member Posts: 626
    edited May 2011

    Lisa was diagnosed just a few months before I was, and I always enjoyed reading her posts. She had such a sharp wit, amazing spirit and contagious energy. It just seemed that even with mets she would be one who would beat this thing. Damn.

    As I read through these heartfelt posts yesterday, I felt intense sadness that she's gone, anger that her doctors somehow let her down, and cold terror that I am only a symptom away from walking a similar journey. And yet... something else happened to me too. As I read through those posts, my front door suddenly opened and in walked my 18-year-old son who has been living and working out west since last fall, returning home, surprising me on Mother's Day! I jumped up, ecstatic to see him, scarcely believing that here he was, in the flesh, back in our kitchen, safe and sound.

    Tossing in bed later, I reflected on the worst and the best of my Mother's Day, marvelling at the sheer elasticity of the human heart, its capacity to absorb our piercing fears and our acute joys... simultaneously. We can do this. We can confront a sister's death and carry on with our own life, we can grieve privately and we can celebrate publicly... this I've learned from Lisa and from these boards.

  • sugar77
    sugar77 Member Posts: 1,328
    edited May 2011

    Luah, well said! Thanks for sharing your happy surprise story with us as well.

  • Kymn
    Kymn Member Posts: 887
    edited May 2011

    Luah, thank you. That is what I needed to hear

  • fmakj
    fmakj Member Posts: 1,045
    edited May 2011

    Luah - Thanks!  I am sure we have all been facing our own fears with Lisa's Passing. 

    In Case anyone is interested.. I've copied this from the Middle Age Thread and have added my own contribution to the bouquet.

     Eph3_12 wrote: OK everyone. If you would like to send a rose or roses for a big pink bouquet for Lisa, please call Francis Florists 770-949-8711. Say that you would like to add rose(s) for $6.75 a piece to the Pink Rose Tribute-they will know exactly who that is for. We must have at least 12 roses (I purchased 2). If you prepare ahead of time what you want the card to say they will write it out and attach the card to your rose. The gentleman I spoke to said their business is doing the family flowers as well, so just saying "Pink Rose Tribute" will be sufficient. He warned it you try to do it on-line it will ask you for a delivery charge so calling is best. Joni

    Haven't posted on this thread recently, but still try to check in once in a while. 

    Worrying is just a waste of precious time!  Try to enjoy each day for what it is and can be (I have been really trying to do this, but VERY difficult to do!)

  • Lynn18
    Lynn18 Member Posts: 284
    edited May 2011

    Luah:  Thanks for sharing your story . . . what a nice son.  I also enjoyed spending time with my kids yesterday, even as I thought of Lisa.

    Kymn:  I am sorry you are feeling so bad with the SEs.  I will echo what others have said. . .you will feel better once chemo is behind you, which is hopefully soon.  In the meantime, take it easy on yourself.    

    fmakj:  Thanks for posting that information, what a great idea. 

  • Titan
    Titan Member Posts: 1,313
    edited May 2011

    Oh Luah..thank you SO MUCH for your post...you put everything in perspective..having BC..we all have our highs and our lows..and like you said simultaneously....My son called me from school and I just burst into tears..I just wanted to hug him so badly..I get him back for the summer in two weeks..My daughter came home and I just hugged her tight too...it seems like I'm crying about everything these days...

    Thanks Teka..don't know about the mammo yet because it wasn't "diagnostic"..just a screening..I expressed my sentiments to the tech about this..She said well..you will know in a day or two..whatever..I want to know NOW...and I explained why..I just don't think it is right...

    I dunno..i feel great..I don't feel any lumps or bumps anywhere..I run over 3 miles and don't even feel it..the tech was the one that gave me that mammo two years ago..she was very somber at the time..today she was joking around with me...I "think" I'm OK..but heck..you never know with TN. ...I see Onc on Weds. and BS on Thursday...I just want to get this week over and MOVE ON..at least for another 3 months anyway..Laughing

  • Titan
    Titan Member Posts: 1,313
    edited May 2011

    I got my report back this am.  Birads 2!  Yay!!! Ok...onc tomorrow and BS  Thursday!   I'm not a dense as I used to be either..at least physically anyway...

    Teka...we are getting our garden ready also....hopefully plant some sweet corn this weekend.

  • Luah
    Luah Member Posts: 626
    edited May 2011

    Titan: "Not as dense... physically"... good one! So glad to hear the mammo was fine, always a relief no matter how good you're feeling. (Here, they don't call with mammo results, kinda annoying. I waited a long week then called them, all ok) I'm also seeing my onc on Thursday, we must be on a similar schedule.

    Weather is amazing here, sunshine and warm temps finally. Have a good one, all.   

  • Suze35
    Suze35 Member Posts: 559
    edited May 2011

    Titan - yay!!  I'm so happy to hear you are all clear, and less dense Tongue out.

  • JenC
    JenC Member Posts: 186
    edited May 2011

    FMAKJ - Thank you for the information on the flowers.  I just contributed 3.  That was a wonderful idea.

  • Titan
    Titan Member Posts: 1,313
    edited May 2011

    Good luck with your appt on Thursday Luah! 

    Teka..I'm in NE Ohio...we can plant some sweet corn now but the rest of the stuff will probably wait until Memorial Day weekend..hopefully the danger of frost will be over by then!

    I loved making fresh salsa from our garden last summer...what a great way to eat fresh veggies!

  • MBJ
    MBJ Member Posts: 3,671
    edited May 2011

    Titan:  Yay with your clear mamo.  I can't believe after al we have been through that they actually make you wait for your results.  With my last mamo the dr. was present and I heard the good news right away.  My right breast has always been clear (though dense) and I am hoping it remains this way.  I have all my fresh herbs growing in my balcony garden: Mint, rosemary, thyme, chives, basil.  I love cooking with them.  I am a bit late getting anything else growing.  Don't quite have enough room for much unless I took away our chairs.

  • christina1961
    christina1961 Member Posts: 450
    edited May 2011

    YAY Titan!  Glad you got a good report!  I hate the anxiety of waiting...

  • JenC
    JenC Member Posts: 186
    edited May 2011
    Congrats on the clear mamo Titan.  Laughing
  • Titan
    Titan Member Posts: 1,313
    edited May 2011

    Hey..I've got a question for you all..I'll make this brief (as possible).I have a friend whose brother in law has Stage 4 colon cancer (3 years now). She said he is on "bonus time"..anyway..she and her DH hung out with him and his wife..all the time..shopping, golfing, dinner..everything...recently her brother in law and sis in law have cut off all contact..They said that they are being "selfish and protective"..She asked me (as a cancer patient). if I had any clue why they would act that way...honestly I don't have any clue.. I know that cancer does change us..we really aren't the same as we were b-4..but honestly from our thread here I don't see any of you avoiding life in general...I mean..we aren't all hunkering down waiting to die now are we?  Does anyone have any insight to this..from any experiences?  It may be like preaching to the choir..hope you can help. I'm not sure what to tell her.

  • Suze35
    Suze35 Member Posts: 559
    edited May 2011

    Titan - I'm sorry to hear that about your friend. Is it possible that he is reaching the end of his battle, and they are spending his last days together? Perhaps he doesn't want anyone to know...? I hope that is not the reason, but it makes sense. Me personally, I am finding myself withdrawing and protective of my family time, even though I am not Stage IV.

  • fmakj
    fmakj Member Posts: 1,045
    edited May 2011

    Titan - I had a friend who was dying from an AIDS related brain tumour who also did not want to see anyone as he got sicker.  He said that he didn't want anyone to remember him that way and that he didn't want to see the pity in their eyes.  Don't know if this is the same, but that was the way that my friend felt as he knew his time was drawing near. 

    Congrats on the clean mammo!!

  • Titan
    Titan Member Posts: 1,313
    edited May 2011

    Thanks..it does make sense that maybe something is going on that they don't know about..I know that there was a spot on his stomach that supposedly rads took care of.

    I do the withdrawal thing sometimes too..sometimes I just want to be with my kids and husband..oh and talk to you guys!Laughing..this is my safe place

  • MBJ
    MBJ Member Posts: 3,671
    edited May 2011

    Titan:  I have been much more withdrawn since my diagnosis.  I am just now getting back to some kind of "normal" and being stage IV must have it's challenges and I wouldn't be surprised if they are spending quality time but also lots of dr's appointements,plus an inability to eat the same foods, or unable to play golf, all the SE's--treatment can be a real bitch.

  • Angelice
    Angelice Member Posts: 1,116
    edited May 2011

    hi ladies  i hope your all doing well Cool .. good  to hear your news mammo was clear

      i just finished my last rads today wooho

    i have my bone scan in october ..

  • Luah
    Luah Member Posts: 626
    edited May 2011

    Angelice: Congratulations on being done! Hope you are celebrating in some nice way.  

    Titan: I'm wondering if his health has taken a turn for the worse... and he knows the end is near.  Maybe he doesn't want his deterioration to be witnessed or, maybe, and I think this is something we have all experienced when we were first diagnosed (and overcame, as our treatments "worked")... golfing and shopping just seem like such superficial and meaningless pursuits when one is staring down the prospect of death. Maybe they're at a loss about how to relate to and spend time with their in-laws/friends in a new, more serious way.