Calling all TNs
Comments
-
MBJ: Thanks for the info. I am truly sad
What happened ? She had a recurrence? I thought she was ok... Sorry so many questions.... 0 -
It's ok..Monika...Lisa (paulding mom)...did have a reocurrence...seemed to spread very quickly...you might check out the July 09 chemo thread for more details..I think that she knew something wasn't right but she was ignored by the docs for awhile...with TN..you never know if it would have helped if she would have been treated immediately or not...it may have made a difference as far as time goes..
So..I finally got the guts to get my path report...I was scared..basically it was the same as the biopsy report.....asked the surgeon about the angiolymphatic invasion.my report said "not identified"..so I was like..did they check it or was there no invasion??? He said there was no invasion..and to not worry about that...I told him that I wasn't worried..obviously because I just picked up the report 24 hours earlier...soo..from what I have learned on here..3 ways to mets are 1)..lymph nodes 2) angiolymphatic invasion and 3). through the blood.....I may be ok with the first 2..maybe...as far as 3 goes..hopefully chemo took care of that...
Ah well..as many ladies say on here it is a crap shoot...
Anyone watching the NBA finals? I kinda am...wouldn't mind seeing Miami get beat vs. the Bulls...though that Joaquim Noah from Chicago is kind of a freak...he wears his hair in a messy bun to play..funny stuff.
0 -
I'm still antsy because my path report doesn't even mention LVI, much less say whether it was there or not. I'm going to call my BS and see whether or not it was even tested.
0 -
Same here Titan I pray chemo took care of number 3 as well.
After gathering the nerves to talk more openly to my PS (which is what I should be doing anyways) she shared pictures of before and after. I couldn't tell which one was which.
I look pretty good now and I haven't even had the exchange surgery yet. I must admit the newbies look better than my old girls. I just wanted to add speak to your SURGEON openly and most of your answers can be answered right then and there. Don't be afraid to ask what will they feel like and how much can hubby play with them?
GOOD LUCK....
0 -
Just checking in...
BarbaraJo - I hope the rash is better! Definitely don't let it go, infections can come fast and furious.
Riley - in your shoes, I'm not sure I would push for the information. You have done everything you can do, and maybe it would just cause needless worry...? I wish I could "unlearn" some of my path report. But On the flip side, I can understand wanting as much info as possible.
Titan - I'm from South Florida, go Heat lol. I'm more of a football fan myself (fanatic actually), but being in Mass, you can't help but follow all the sports.
~~~~~~~
Just hanging in, doing my rads. Freaking about every little twinge. Had some twinge-y pain last night under my right ribs and that got me going. But it followed a higher fat meal, so could be gallbladder. Dealing with the heartburn and nausea, but I haven't lost my appetite. Sigh, cancer sucks. I hate what I've become, moving from symptom to symptom, always looking for that zebra...
Started PT for my mild LE today, that was good.
Crappy rainy week here...hope someone is enjoying sunshine somewhere!0 -
Fighter: I am so happy you found a great PS-communication with our dr's is so important.
Suze: Hang in there and try to focus on the fact that the rads is doing it's job-kicking what is left of your BC. Hope you get a little sunshine to chear you up. The sun is out here, but it has been quite chilly the last couple of days. Looking forward to warmer weather. Hugs.
My onc told me I have a 60% chance af remaining healthy and it has been that way from day one, so I try to focus on the 60% instead of the remaining 30. It's such a crap shoot. Trying to take each day as it comes, trying to eat healthy and to stay active. Of course I am still getting more and more "gifts" from chemo--my thumbs keep locking up either straight or bent and it's quite painful. Anyone else have this? Ouch!
0 -
MBJ - I don't have any trouble with my thumbs but my wrists bother me and it seems to come out of the blue, one minute I am fine and the next they just ache like a son of a gun. I also still get some pain in my ribcage, but it seems to go away. I remember the radiation oncologist telling me having pain for the next year would not be unusual.
Before I got sick I was feeling so good, no aches and pains and was sleeping like the dead, and I had lost a few pounds. Then I found the lump. So now if I wake up with some part of my body hurting then I tell myself that I am ok, it is just old age. The days that I feel really good make me worry. Sigh!
0 -
guygirl: The 3 years prior to my diagnosis I felt like hell, but yours was much smaller and an earlier stage--it just hadn't progressed enough to let you know something was wrong. It has to get better, right?
0 -
Hi girls, sorry for all the aches and pains going on right now. I get alot of cramping in my right foot. very weird. I had suspected lymphatice invasion....hmmm...nice so i dont know like you said crap shoot. I am back in the chair on thursday, not ready, I am at number 4 now 2 more after this one. Am switching to Doxetaxol this time so maybe it will be easier I can only pray as my Onc has yet to find a medication that keeps the nausea away from me. I find am so busy the 8 or 9 days that I feel good, I am craming everything in I can but I am feeling tired today. Hope everyone has a great SE day
Hugs Kymn
0 -
I had been feeling absolutely great before dx - look at my stats. How you feel is no indication of how bad things are. I have never been more shocked than when I found the lump.
0 -
I'm just getting back to where I was before the dx (@29), still having symptoms like I am still on Chemo like dry mouth, dry skin, swollen joints the doctors think its an auto immune disorder, and apparently I have the markers for Lupus and Sjogren's Syndrome won't know for sure until they run more test at the end of June with the Rheumatologist. Apparently every bad gene in the family tree I have wxpect thyroid my sister got that one and I got the BRAC 1 gene......lol I am the family Guinea pig.
0 -
hydeskate, I have such horrible leg aches I am on a heating pad most of the day. The dr.s keep saying it's part of the chemo but I don't know. It is 24/7 . I sure hope you don't have Lupus or Sjogren's syndrome...
0 -
I couldn't figure out why I couldn't recover from this ordeal, thus, I've internet diagnosed myself with Sarcoidosis... I have every symptom of this autoimmune disease. Good news is it will eventually abate. Bad news is that I went to 5 specialists with all these symptoms, they found nothing and the bills are now coming in.
I'm sure of 'my' diagnosis because I had a traumatic illness 15 yrs ago and my body responded with Rheumatoid Arthritis, and I spent a year in a wheelchair. And then it just went away (which RA doesn't do according to the dr's. ) I'll take the Sarcoidosis over RA any day. I'll bet the autoimmune response after cancer is more common than we think.
0 -
Seriously Gilly..you felt fine? that really does suck.(not that you felt fine..but that you didn't have any symptoms)...I thought I was going through menopause..just didn't feel right...listless, no energy...just blah.
Suze..that's ok.you can cheer for Miami....somebody has too..ha ha....NE Ohio and Boston, MA have their rivalries too..its fun...I work for a grocery chain (local to Ohio). and we buy our fresh fish and frozen fish from your state..They definitely love their Patriots, Red Sox and Celtics..its alot of fun. I would love to come up to your state and visit sometime..
0 -
Ok..I was bad..a friend of mine on FB posted a "dance" in the streets of Columbus for a Cancer hospital located there. said something about "if you need a lift" watch this..well I watched it...Ok..it was nice...but I did post that "that was nice but we need a cure for BC NOW..thousands of women are dying from this"....I later felt bad about posting that and deleted my comment...
It's not like I don't appreciate the attention..but dang...how can dancing in the streets cure us?
0 -
Titan: I feel the same way-everyone keeps talking about awareness but nothing about a cure.
0 -
yeah, there are a lot of "good causes" out there, races, dances, walks....there is a radio commercial on in my area all the time about "feeling disoriented and afraid" after a bc diagnosis, (no kidding) I don't want to be an event, a cause, even if it is currently a popular one, I WANT A CURE.
0 -
I am running in a 5K this summer..for a 29 year old that died of TN just after she had her second baby..it breaks my heart...ALL of the $$ goes to TN research..but that isn't the only reason I'm running..I like to do this...I have run for the United Way, kids in wheelchairs, you name it..I just like to run...this 5K will be a little different though..it's personal...it hits me right in the gut...
0 -
Morning everyone, i can't get to copy and paste info on to here. Any help please
0 -
Worked it out
I don't visit often so a late hello again to everyone. I am a member of the Harley Owners Group and this year in conjunction with two other bike clubs they are promoting a Boobs and Balls across Ireland event to raise funds for a Cancer Solace Centre in the south east of Ireland. This site is now on Facebook. One of the ladies from a bike club, Barbara, died earlier this year from BC. When i found my lump i immediately thought of her and straight to the doctors. We need the awareness to keep people educated and to push for more funding. Pink, purple, walks, runs - whateever it takes ladies.
0 -
Titan, so great you are doing that run. It sure hits close to home. Good luck.
Gilly: Like you, I felt perfectly fine when I found the lump. Healthy, etc. I can't say I was shocked though, as my sister had been diagnosed 1 1/2 years before.
0 -
I was totally shocked. No family history whatsoever. Even after I found the lump, I thought it was something else, and so did my doctors right up until the biopsy results. I had been feeling very tired but that is is.
0 -
MBJ - thank you. You are right of course! I'm giving it the "2-week rule" and if I still feel uncomfortable with it, I'll get some scans. Now I just need the sun! We are having rain the whole week here, great for the garden, but blech! It reminds me of June 2009 - we literally had 4 days of sun the whole month!
Titan - I hear ya. I think awareness has reached an all-time high, but not about the right things. Most people I've run into in my daily life feel this is very treatable, they don't understand the fear that we live with for the rest of our lives. I want at worst, more effective treatments for ALL stages, and while we are at it, a cure would be nice! I love that you are running for that reason (I wish I could run but I have sesamoid fractures in both feet, so not easy to do). You'll have to run on over to MA to visit one day - I love it here! I lived in MI for 5 years, and have visited OH several times, it is pretty there too. But I really feel like I am "home" with all the history, seasons, big city...sigh, I'm besotted even 6 years later.
Alex - no family history for me either. If you had asked me before this what I would die from, cancer wouldn't have even made the list.
When I was diagnosed, I was actually in the best shape of my life. I had lost 15 pounds, was working out daily, and doing great. Then, well, at least losing the weight probably helped me find the lump. What IS weird is that 2 years previously, I went through the medical gauntlet thinking I had MS...tired, dizzy, neuropathy, feeling like crap...
0 -
You know that's interesting Suze. About 1 1/2 years before my sister was diagnosed, she caught some virus, never really knew what it was, but it threw her for a loop. She felt really crumby for a few weeks, even lost some hair. By some rough calculations, she traces the growth in her tumour back to that time. I know there is research going on on the relationship (if any) between viruses and breast cancer... maybe there's some hiccup in the immune system that allows cell growth to accelerate, who knows? My own (humble) theory is that there are probably many cancer triggers and if you're unlucky enough to have several come together with sufficient potency at the same time, whammo.
0 -
Luah-I would like to know more about the research between viuruses and breast cancer. I am going to see what I can find out. I have lived with the herpes virus since I was 2 years old. I get it on the right side of my face and usually on the eyelids of the right eye. My BC was also on the right. The herpes has been mostly controlled in the last 20 years by taking a maintenance dose of an anti-viral medication. I still get a flare now and then and have to up my dose to a therapeutic dose. In fact, I think I am fighting it right now. After having it for 52 years I know all the signs.
Suze35-BC or any cancer would not have made my list of things I thought I would die of either. There is a lot of diabetes and heart disease in my family. No cancer. I am still determined NOT to die of cancer....at any age, just on principal.
Titan-you hit the nail on the head with saying "Most people I've run into in my daily life feel this is very treatable, they don't understand the fear that we live with for the rest of our lives." Awareness is great, but too many people make light of this terrible disease. There has been a lot of rah rah and over-pinkness that has trivialized this disease in many eyes. Humor is great too. But BC is not humorous or trivial. People are still dying from it. It is not just "Save the boobies" It is save YOU and ME.
0 -
LRM216 and Titan and all the rest. Thanks for welcoming me here. I have a feeling I'll be needing your words of wisdom and comfort in the coming weeks. I started chemo with a bang on Apr. 21 and within 7 days I ended up in the hospital for 3 days with a fever and a zero white blood count. Because of that they have cut my chemo dosage by 20%, which does not make me at all happy. But we're going to try to continue doing dose dense. Wish me luck all! I feel like I'm in the best of comany here.
0 -
Hang in there epgnyc - exact same scenario hit me. I was hospitalized 5 days with febrile neutropenia immediately after my first A/C - then cellulitis in surgical breast - had to be on iv infusions 24/7 for the next 6 weeks - every dang a.m. 7 days a week - ugh, it was disgusting. Thank God for my port. My second A/C was delayed one week and all remaining A/C's were cut by 20% (that is very, very common so do not let it frighten you.). Fortunately, it never happened again, but she feels it certainly would have had she not cut the chemo. Wishing you the best and hang in there - this too shall pass.
0 -
As far as how i felt before dx, I hadn't been well for a good year and a half to 2 years (BS said that my DCIS was probably there for 2 year). I had a back problem, still do, that was not healing. My chiropractor said to get more testing because there was something going on in my body (he thought it was MS). All my mris and nerve testing came out fine, but wouldn't you know it, my mammogram found brest cancer! The people who claim mammograms shouldn't start until 50 should be shot!! It saved my life. Well, for now anyway. I am almost done with rads (two weeks to go), and my breast is living proof! Does not even look human at this point!! :-) But, just happy that I was able to salvage it...
0 -
Do you mean "herpes virus " that would give cold sores on ones lip? I often get cold sores after a cold or so. The sore would be really big and ugly and I would use anti-herpes virus cream before it bursts and usually with the cream, it goes away quickly.
I read most people have herpes virus that give cold sores when one has a cold. Alex, are we talking about the same virus?
0 -
newalex, yes I am talking about the same virus, only I get it in the eye area instead of the lip. My mom gets them on her mouth and the theory is that I got it from her kissing me. However, MY kids have not had it and my sister doesn't either.
0
