Calling all TNs
Comments
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Suze: Are they using a protective cover on your stomach when they do the rads? I haven't had it but I have a friend who had the same symptoms and they did some damage to her stomach due to lack of protective gear. Please let the radiologist and your dr. know what's going on and don't take no for an answer.
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MBJ - no, they aren't, and thank you for bringing that to my attention!! My RO yesterday said it isn't from the radiation, but I told him flat out I disagreed. It is too coincidental that I started having these issues within days of starting rads, and it is slowly getting worse. I will bring it up again today and push about the protective cover - I'm good at that, lol. Thank you!!!
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Suze: They ignored my friend for a long time, too. She had to drink this awful white gunk for months afterwards and lost a horrendous amount of weight (do not use this as a diet, lol) because she couldn't keep anything down and, they finally admitted it was the radiation. Do whatever you can to get this nipped in the bud and I am so sorry you have this to deal with! Hugs!
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Wugh that sounds awful - I hope your friend is doing better now!! Luckily I've been managing with meds, but I don't intend to let it get further, that's for sure
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MJB and Suze 35, thanks for the welcome. I don't know yet if I'll be taking Tamoxifen. Every time I go to see the Oncologist, I end up seeing the NP. Next time I see him, I'll be having a conversation about my follow up and continuing treatment after my chemo is over.
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good morning girls, that is good info to know about the rads and upset tummy.I have been struggling with nausea from chemo big time and sure dont want it to continue into rads so will be sure I get a protective cover from the get go. Hope you are all haveing a great SE free day
Hugs Kymn
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Hi ladies...just want to say I'm finish with chemo this week...didn't think I could do it, but I did...next on to surgery...what types of surgery did you all have? What should I be asking my surgeon...
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Moe..what does your onc. recommend? Are you a candidate for a lumpectomy? That is the easiest and less intrusive way to go...not having had a MX I can't help you with that...
Ok..ladies I AM POOPED...had a mammo on Mon, Onc on Wed, BS on Thursday..plus worked my rear off at work..I"M TIRED! You have all this stress leading up to all these appts.,...and I don't want to call it a let down..but now that the stress is over..well..I'm just really tired....
I've always thought that the mental part of BC was almost as bad as the physical part...
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Hell..maybe I should just drink more coffee.
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Ha ha Teka...seriously..have you ever eaten that worm? I think my DH did..once...
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Suze..where exactly are you getting your rads? It if is just full breast it shouldn't even be effecting your stomach...what the heck.
On the other hand..my Mom had what they called a "full mantle" which covered the top of her neck to her groin area..She did have alot of issues with that.
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Congrats to everyone with clear scans or completing treatment. Jules, I'm another slightly ER+ gal (8%), but consider myself a TN. I am doing the Tamoxifen because my onc wanted me to, but if I have any health issues with it, I'll stop. So far, so good.
I have gotten so out of shape and this heat and humidity are rough! I spent 45 minutes tackling weeds in the flower beds, and I was drenched in sweat! I'll finish up the rest tomorrow. My apartment has a crab apple tree surrounded by a hedge. Last year, I whacked out the dead growth from the bottom of the hedge so that I have about a foot of empty space underneath. It looks nicer and discourages critters hanging out in there. Now, I have suckers from the crab apple growing up in there, so I need to crawl under there and whack those out, too. And plant my dahlia bulbs.
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Hi all
I had started a thread in the "just diagnosed" forum and a few wonderful people told me
I should take a look at this thread. My mom was diagnosed with IDC, triple negative and 14/17 positive nodes(scary)! She had a right mastectomy and hopefully the surgeon has gotten all the nodes. Ct scans of chest, abdomen, pelvis, and head were all clear except for very small spots on her liver that the radiologist said were cystic in appearance. I'm an MRI technologist and spoke to the radiologist myself. She has just had her last drain pulled and will have an echo next week and I believe, will start treatments soon after the echo. I am scared, but have found alot of help on this website. She's my best friend, only 52 years old and healthy. I just wanted to introduce myself and thank you all for your stories! We have read all sorts of stuff like statistics and they stink so I am thankful for this site and all the wonderful people who share their stories and experiences on here.
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New here.
Cindy 44
DX 11/29/10
Stg1 Grade3 IDC ER-/PR-/Her2-
<1cm, clean margins, 0/1 neg
No BRCA 1/2 mutate
Rt Breast lumpectomy 12/28/10
Brachytherapy complete 01/14/11
Taxol/Herceptin 1x wk x12 - begin 3/24/11
CVP/Herceptin 1x ev 3wks - TBDHerceptin every 3 wks x52
BUT - My ER was slightly + @ 5% and there were some scattered, amplified Her2 cells, hence the Herceptin. Just today had #8 of the Taxol/Herceptin, experiencing slight side effects.
Curious if anyone else has had the SAME adjuvant treatment regimen?
Thanks
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Suze35: If I remember correctly, my RO did say that rads can affect the esophagus and cause problems like what you're describing. I'm sorry you're not feeling well.
Cinderwee: It sounds like you are triple negative but slightly positive for HER2? I have not heard of that before but maybe someone else here has.
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Sadiesmom: Welcome, it sounds like your mother's in good hands... and has a great support in you. Let us know if we can help as she goes through treatment. Positive nodes are scary, but the clear scans are a good sign.
Cinderwee: Welcome to you too. Can't help with the treatment, though. My path was zero-zero-zero! You might find more on the Her2+ board.
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Titan - I'm getting 4 fields done - axilla, supraclavicular, chest wall, and inframammary area. So pretty heavy. My guess is the inframammary rads are hitting around my stomach/esophagus area. I did a search on the Rads board, and apparently this is a common complaint, I just wish the techs and doctors would own up to it!!
Riley - I love gardening. It sounds lovely what you've done! I'll be putting another blueberry bush in the ground this weekend, along with my mini roses, some daisies, and petunias. I also hope to get started clearing my garden out to have it ready for June 1st. My broccoli, brussel sprouts and lettuce (containers) are growing like weeds! They love this cool sunny weather.
MBJ - my techs looked at me like I had lost my mind yesterday, but they humored me and gave me a tummy shield. I think I felt a little better last night, but that could be wishful thinking, lol.
Lynn - thanks. That's the first doctor I've heard fess up to it!
Sadiesmom - welcome. It is scary to read the statistics, I know. I'm one with a lot of nodes, even my supra node, so hang in there. All of my doctors expected to find mets on my PET in April, but I was clear. I intend to stay that way! You are wonderful for helping your mother through this!
Cinderwee - welcome as well! Your treatment regimen is also new to me. I'm glad to see your doctors being aggressive with the slight HER+. Better to be safe than sorry, as long as you tolerate it!
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Ugh, I'm having a "mild" allergic reaction to my Prilosec. I get itchy, red bumps on my thighs and stomach. I had this the last time I bumped up to 80mg day (it clears up when I drop to 40 mg). But I can't stop the Prilosec because it is the only thing that gives me even a LITTLE relief.
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Suze: Better to be safe and I am so sorry you are having an alergic reaction to your meds!
Sadiesmom: Welcome to the group.
Mo: I had two lumps, one right under the nipple, so they did an MX on me. Chemo made my surgery possible. They did immediate/delayed recon with an expander on my MX side and an augmentation on my natural side using implants. I have to say, my breasts look better now then going in. I didn't need radiaton. Hope this helps, as we are all in slightly different situations with our BC.
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Titan: That is one rough week, and I don't think I would eat the worm
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Moe: Have you been to the Picture Forum? This helped me make my recon decisions and gave me a wealth of information.
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How do you access the picture forum? I keep reading about it on various threads, but do not know where to find it.
Beccad
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To access the picture forum you have to PM timtam. You can find her by clicking the member list in the upper right. I did this recently and she responded right away. I didn't know what I was looking at though. Does anyone know if there is a way to know which procedures go to which photos?
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Timtam is overwhelmed so you can PM myself, Whippetmom, Lilah, Estepp & Firni. We are the gatekeepers and help get you set up. You have to have been on here for at least 15-20 posts and must be willing to be honest and open about your procedures. It's a separate and very private site from BCO. Just PM myself or one of the others.
You can do a search on the Picture Forum by procedure or you can scan page by page and it's usually in the title of each thread what has been done.
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Hi All - just checking in.....had my MX on Monday so haven't been online as much as usual - had alot to catch up on! Get my pathology results on the 19th - am really ready to know and plan adjuvant chemo. My post-trial scans showed continued shrinkage but still areas of uptake so they are expecting there to be residual disease. Trying to be optimistic and focus on the fact that there will be more chemo and radiation, but am struggling a bit. I think I'll be able to be more optimistic when the drains are gone and I'm a bit further out from the surgery. I did not do any recon at this time so I look pretty shocking but am getting used to it. Does the Picture Forum have 'after' shots? After the MX, which I think is a fairly straightforward surgery, I am re-thinking my plans for DIEP as it must be really hard compared to this.
dlcw
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dlcw-It is shocking looking in the mirror isn't it? The things we used to take for granted...I also can't get used to the sort of concave spot where my (very slight) cleavage was.
I am scheduled for a delayed DIEP June 8. There is a great thread on here for DIEP 2011. Most seem to be recovering and healing nicely. I am encouraged.
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dlcw: PM me and I will get you to the picture forum where there are pictures of delayed, DIEP and also women who opted out of recon. Gentle hugs and heal up! Better to have more chemo then to risk complete invasion.
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So much to read after a few days! So sad for the losses this past week...and the recourrance. The roses are beautiful. Welcome to the "newbies". I have received the most wonderful help and insight here.
Doing well from the MX on Monday. Weird though, I have a horrible itchy rash on my neck and shoulder. Even went to the family doc this morning. We think it is from "something" during surgery. My eyes were itchy that next morning and I had a red rash on my face but as each day went by it got worse. The only thing different I used was the wash before surgery. I do have a problem with tape too. I guess this is quite minor compared to some. Of course the Dr's just "poo-pooed" it like it was nothing. I will mention that when I see MY surgeon on Wednesday.
Be Well, Barbara Jo
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Barbara Jo..do you think you may have a latex allergy?
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Good Morning girls,
I haven't been here in a while. I started reading the old post s...... What happened to Lisa(Pauldingmom)? i saw some posts refering to another threat about her.... Can someone fill me in please?
Thanks Monika
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MonikaV: Unfortunately, Pauldingmom lost the fight and we are all mourning her loss here. Hugs!
BarbaraJo: Congratulations on your exchange! I would call your PS's office ASAP as you want to get something like this under control immediately.
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