Calling all TNs
Comments
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Hi ladies, stretching and emerging from my chemo induced fog...oh my what a round. Thanks for all your love and support the one time i did pop on this go around. I know I said I didnt want to finish this treatment out but Suze35 your posts have conviced me other wise. I will think of you when I want to give up, I can do this, I too adore and cherish my kids and enjoy them sooo much I have to plug along.
Stoopidboob I am so sorry you are so scared right now, I know the emotions are so hard and so draining and so all consuming, I promise once you get started you will have good days too it doesnt seem like it at the begiinning but they do happen and you really appreciate them. Its funny you named yours stupid boob I refer to mine with my DH as SHITTY TITTY lol.
Ok just wanted to let you all know that I am back big girl panties pulled back up and heading out to do my taxes lol
Hugs to you all
Kymn
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Kymn - I know how much you adore your children - ((hugs)). It is so hard when you are in the worst of it to see that things will be better, but I promise you they will. We all can attest to that. You are doing a fantastic job - there is no right way to get through chemo - and when it is over, you will have a lifetime to hug those babies. And may I just say, SHITTY TITTY - INSPIRED! WINNING!
Stoopidboob - it is a scary time, and a scary diagnosis. It must be so hard to deal with other issues that affect your treatment as well. But as we've all said, chemo is DOABLE. I really had no adverse affects at all - no heart issues, no neuropathy, no nail problems. I just felt like crap for 5 months. And even that was well controlled. Unfortunately, this disease is just not manageable through altnerative methods. Sit down and have a heart to heart with your Oncologist - explain your fears, perhaps talk with a therapist. Hopefully your medical team can work with you to limit the fear and anxiety you will face. Hugs to you.
OBXK - so sorry you had to join us here. Hopefully we can answer your questions and give you the support you need.
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So now all I can notice is mild discomfort on my right side. Stupid psychosomatic crap! I am going to have an MRI scheduled asap. Hopefully it will ease my mind...but I'm expecting the worst just in case.
On a fun note - I'm going to check out a 1971 MG Midget this weekend! It is my dream car from childhood, and well, I'm gonna get one. It is the perfect season for it, and I can tool around sharing a ride with my kids (properly restrained of course!). Hoping to find one by the end of June to really get my summer's worth.
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I love the name stupidboob and kymn I love shitty titty...
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It's not catchy but before my mx I would look in the mirror at my boob and say YOU TRAITOR YOU ARE HISTORY.
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I would call them my killer B's
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I refer to mine as good boob and bad boob!
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I am new to this whole forum thing, but I think it is great that so many have nicknames. I never thought of mine like that. lol
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OMG..here we are are..Kymn is shitty titty, we have stupid boob...we are all going through hell..or have been there..(but we still can remember it)..and I'm sitting here smiling at your posts.
All we need is for Heidi to come on here with her potty mouth and we are good to go..ha ha.
Kymn..glad you are sticking with the chemo even though you feel like crap and it sucks...how many more to go? You are pretty close to being done aren't you...we are totally going to throw a cyber party when you are done...
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Hmm, I don't remember naming the bad boob, but do remember telling it, "Trying to kill me? You are so gone. And your little friend, too, before she gets any bright ideas!" During chemo, I would also tell the tumor on a daily basis to "Die, sucker!" and chortle with delight as I could feel it getter smaller and softer. Not sure how sane that was, but it made me feel better and also get into a frame of mind to beat it.0
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Hi there. I am new to the board and wanted to introduce myself. I was diagnosed with IDC on April 13, 2011. My husband died on Nov. 2, 2010, and my dx came on what would have been his 34th birthday--talk about a bad day! I'm 33 years old. I was taking time off to grieve and was planning to travel this summer, but instead will get to spend it getting chemo. My tumor (whose name is Gertruide) is on the large size--5-6 cm and so I am doing neo-adjuvant chemo to shrink it down before surgery. Triple negative, grade 3. I had my first dose of taxol on Monday (May 23rd) and have 11 more, followed by 4 doses of AC. I'm also taking an experimental drug as part of the iSpy clinical trial.
This first dose of taxol has been rough. My onocologist said that most people tolerate it well so I think that I was expecting it to be easier. I felt amazing the first day after chemo--from the steriods, but then crappy for the next two days. I had a emotional breakdown yesterday worrying about being able to get through all of this and just missing my husband so much. Today I have pretty much stayed in bed except for to take the dog for little walks and to go to the darn bathroom (my side effects are of the bathroom variety).
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So sorry you have to be a part of our group, but glad you've found us! I did a neoadjuvant clinical trial, too. That shrank it from 4.5 cm to 1.1 cm at mastectomy. And I'm so sorry this has come on the heels of losing your husband, and finding out on his birthday. Seriously, world? WTF?
Don't worry about not being Wonder Woman. Sleep as much as you are able. The steroid bursts with each dose of chemo made me crazy hyped up, and I frequently had trouble getting enough rest. I was told the AC would be rougher than the Taxotere, but it was the opposite for me. I think everyone's reactions and SEs vary quite a bit. Just remember to hydrate, hydrate, hydrate! That helped the most for me, regarding SEs.
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blondelawyer: I think you need a hug. ((hug)) I am sorry you are joining us this way. It sounds like neoadjuvant chemo is the right choice for you. Neat that you are in a clinical trial also. Many of us here have been through the same chemo as you, and we'll be here to help you along.
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I had 3 tumours in my right breast hence a mastectomy (multifocal disease). My biggest tumour was 5cm.
I had all lymph nodes removed and 13 of my 26 were infected with cancer.
I am 36 with 2 young children (boys aged 3 and 5).\
My chemo treatment is 3 x FEC and 3 x TAXATERE (every 3 weeks). Will be up to my 4th on the 9th of June. Been terribly sick!
Also will more then likely have 6 weeks of radiation.
Invasive Ductal Carcinoma diagnosed 9th March 2011.
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blondlawyer-my heart goes out to you. You have too many types of grieving all at once. No fair. None of it is. I think when most of us say that Taxol is easy it is because we have had the AC first. I had assumed AC was rougher but maybe whatever we have first is the roughest. I found my dogs to be a huge comfort and motivator. And yes, hydrate, hydrate, hydrate.
shereejoy-you have a tough row to hoe as well, trying to care for 2 small children through this. I hope you have a good support system. I am sure your boys are great comfort and motivation, but also into anything and everything at those ages. It is probably hard for you to get the extra rest you need.
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Lynn - Im glad you like my avitar. Come on down to Florida and I will make you a batch of Pina Coladas myself!
I keep thinking I should change that picture but that was when I just found out I had cancer. I took my mom on a little 4 day cruise to the Bahamas and I was trying to think of how I was going to tell her. I eventually got it out but that Pina Colada was the tastiest I ever had. I don't know if it was the location, the company (mom), the emotions, or the bartender! Anyway, the picture is bittersweet, it was also one of the last pictures with my hair! Now I look about 20 years older!
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I am so saddended to see so many newbies
, but am glad to know we are here to provide support.blondlawyer - My sincere condolences on your continuing tragedies. Nobody should lose a loved one so young, and then to get this...not fair.
shereejoy - I have three young kids myself, so I understand completely how difficult this is for you.
Sunny Coconut - I grew up in Ft. Lauderdale and spent my summers in the Keys...ahh...I know Pina Colada's well. YUM.
Sorry for the drive-by - off to car shop
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Thanks for the encouragement. This is such a blow and I feel like someone took my life, turned it all upside down, stomped it to bits, and threw it back at me. I cared for my husband for 12 years and walked with him through many medical battles (he had cystic fibrosis) and now find myself a widow with breast cancer at the age of 33. It is the most lonely place I have ever been. I have days where I want to fight and other days when I just want to give up--not sure what today will be!
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ksmathews: Welcome to the group!
BlondeLawyer: Wow, I am sending you a huge cyber hug because that has got to be so rough. I hope you have family and friends around to help you through this. I had two tumors equalling almost 5 cm and adjuvent chemo shrunk it to almost nothing and what they took out was completely dead. I only had it on one side and I am now doing really well. If you are constipated, get yourself some MagO7--it totally got me through my last 5 chemos--wished I had it for my first. You start taking it the same night you start your steroids then gradually lower the dose until you are off of it. You will be fine even though you have a broken heart we are all here to help lift your sprits through this trying time. My dr. told me that I needed to find something that made me happy to get up every morning and greet the day. Whatever that is for you--focus on what will make you happy in spite of your loss. Hugs!
Kymn: Chemo sucks, there is no way around it but we are all here cheering you on to the finish line--We must throw you a cyber party for sure!!! Hugs!
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blondelawyer- (((hugs))) It is bad enough you lost your husband at such a young age, but that you have to deal with BC on top of that. Just stay strong!
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Geesh, been off of here for a couple of days, and so much catching up to do - I love how this thread moves along.
blondelawyer: More (((hugs))). What do they say, "what doesn't kill us makes us stronger"? Tough to believe that with all you've been through, but I'm betting you're one strong woman. Wishing you so much better from here on forward...
shereejoy: Srry you had to join us, but glad you did. Does that makes sense? We're here for you!
Suze35: Man the MG sounds mighty nice. You go, girl.
You may recall me mentioning that I was part of a clinical study looking at the effects of exercise on woman going through chemo for breast cancer. It was a great program offered through my cancer centre and a local rehab unit. Today, some of us met up for lunch... Sadly, one couldn't make it because of surgery for a recurrence - the only other TN in the group -
That aside, it was really nice to see these ladies again - and their full heads of hair lol! 0 -
So we LOOOOVED the car, lol. Racing green, chrome bumpers, new top. The body was in excellent condition - no rust where it counts. Might need some work on brakes and transmission, but very driveable. The owner is asking a reasonable price - body condition is everything for these cars, as parts are easy to obtain. We will have a mechanic check it out next week, then hopefully, it is MINE. minemineminemine. LOL, can you tell I'm excited?? When I do get one - I'll be sure to post a pic!
Luah - I'm so sorry to hear about your friend and her recurrence. It is such a crapshoot, it is hard to believe. My thoughts are with her - thankfully, even TNs are living longer with Stage IV.
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Suze35: OMG - that Brit racing green?! I'm sure you'll need to plan a road trip, seeing all your sisters.
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What an active thread today...it's taken a while just to catch up.
shereejoy - welcome to the thread.
blondlawyer - I don't know what to say...so sorry you're having to go through bc after your husband passed away. It's not fair. Glad to meet you and you'll get lots of support here.
Luah - I remember you mentioning the clinical trial for exercise when we were going through chemo. That's scary that your friend has had a recurrence. I'm assuming (..and hoping) it's local in nature and not distant.
Suze35 - the car sounds fabulous. Post a picture!
The other day I went for my three month clincal exam with my GP and all felt fine. Whew! Now I can breath a sign of relief until the next dr. appointment.
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LYNN - Yes those are by babies in my Avatar. That was last Easter. A park in our town has a field of Daffodiles that come up, and it's a great place to take spring pictures! My kids are like any other kids they fuss and fight but they truly love each other. I caught this picture as the were holding hands walking through the flowers. This avatar doesn't give it justice it is very sweet, as are they.
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blondelawyer - Sorry you have found your self here. However, you will find tremendous support, friendship and information here. Feel free to PM me anytime with questions along the way. Hang in there!
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Suze..your new car sounds great! Brakes? who needs brakes..never use them. I seriously drive like a bat out of he*LL...I don't know why..I know it is stupid..I cannot stand slow drivers ..IF I'm going to die from something other than breast cancer it will be a car accident...I freak out everyone when they ride with me.
Welcome to all you new ladies...hang in there..we will be there for you..ok?????
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Just popping in to say I'm thinking of you all. I check the thread every once in a while, but trying to get back some of the person I used to be before everything happened over the last 5 years. I am very sorry to see so many new people joining the thread... glad you found us, but very sad to hear your news. With all the technology we have and we still have cancer... it's very upsetting.
On a happier note, it appears the warm weather has finally come to Ohio. Now, about all this rain and these storms..... that's another story all together. We had a tornado come through the other day and 3" hail. I watched it go by, but it did not hit where I lived. All I saw were the clouds. We have ducks where there normally is no water! We have lakes where there have never been puddles.
I have set out to plant some flowers for the first time in 5 years. I don't recall being quite this sore or stiff 5 years ago! I managed to get a sunburn a few times already, and I have a great tan but I'm not trying to get one. I don't recall tanning/burning this easy before, so I looked it up online and I think the chemo may be playing a part in this, even though I finished Jan 31st. Either way, I use spf 30 and it really isn't working very well. My onc is going to kill me... being BRCA+, she didn't want me to be in the sun. We have a higher (albeit very slight) rate for melanoma.
Well, I'll catch up in a few days. To all those joining us, you're in my thoughts and prayers. The women here are wonderful and it's the ONLY place I've found to date where I know I'm understood. Never forget, you are not a statistic and you do not have an expiration date that anyone can read. There are thousands of women living full lives out there who have had cancer and have been triple negative. They just... well, they just don't come here... because they're living and feel great.
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suze35, your diagnosis looks pretty similar to mine and your age I am assuming you are 35? When do you turn 36? So how old are your children? So you have finished your treatments?
Thanks for the welcome everyone, are there alot to try to get to know here? Will try to keep up
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Luah - I can't wait to drive around these great NE roads, the wind in my very short hair, lol.
Titan - LMAO!! I think I like that philosophy! I can just picture you like a bat out of hell on the highway
.Angelisa - isn't it wonderful to get flowers in the ground? I love gardening, mostly veggies, and my broccoli, brussel sprouts, carrots and lettuce are doing extra well this year. My mom also helped me put in a lot of tulips and other flowers, and the Iris' are just gorgeous - purple and white. It really feels good to put something in the ground and watch it go.
shereejoy - I'm actually 41 - my username is a holdover from when I first started posting on message boards years ago. WISH I was 35, lol. My kids are 10 and 7 (my boys) and 4 (my daughter). It can be rough, but they are my inspiration.
I'm still in treatment, as my case went a bit off the rails. I did 4 DD AC and 12 Taxol/Carboplatin, then surgery. Unfortunately my cancer had become chemo resistant and started to spread, so after surgery, I found more lymph nodes, including 2 supraclavicular, and am currently getting rads to zap them. I'll be back on more chemo in 1-2 weeks - Xeloda with Avastin. I had a PET scan in April that showed no evidence of mets, although I am having a liver MRI this week as I've been possibly having symptoms. Keeping everything crossed that it is all in my mind!
Don't let my scenario scare you though - it isn't very common, most TNs respond well to chemo, and there are plenty of IIIc survivors out there - living their lives :-).
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We are off to Sturbridge Village today to enjoy the warm weather! I hope everyone else has sunny days and fun planned
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Suze: I can picture you in your cute little race car! I love fast little cars and I had one many years ago and I just know you are going to have fun driving it. Hope it passes the mechanic's test and gets a seal of approval for you to take it home!
Titan: I am the same driver, lol! I think it might have something to do with living in Los Angeles--once you have lived here you just become an aggro driver--how can you not? My DH is the only other person I know (besides you) who drives like I do!
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