Calling all TNs
Comments
-
I find I get a lot more light-headed and dizzy after BC. My knees ache more too. I can no longer tolerate too much heat either (In the past heat would trigger a migraine so I try to avoid it).
Because of my post BC tx seizure last year I am very sensitive to "weird" feelings in my body. I don't ever want my brain to short circuit again. I was out for over an hour and ONCE is enough!
I hate "living on the edge" like this; wondering if I'll have a repeat of anything. Before, I would ignore the occasional dizzy spell and just keep going. Now, not so easily ignored or explained... especially since they occur with much greater frequency. My feet cramp now too... never had cramps before BC and chemo...never.
I don't expect my doctors to be able to explain any of this. I just take it for what it is...post BC residual after effects. It's too coincidental to be anything else IMO.
0 -
Suze- Hope everything went well at your mri. We are all here for you................ (((Big hugs)))0
-
Thanks everyone. I'll get the results tomorrow AM, but the techs were all nice and normal, and I didn't get any "uh-oh" vibes, for what it's worth. Hope that's good.
Heidi - I can only imagine how sensitive you are to this type of stuff after a seizure! My knees also give me lots of trouble now, I just feel so much older. I thought I'd be living scan to scan, but now it seems to be symptom to symptom, I hate it. I feel like the little boy who cried wolf, only this wolf is real and lurks around the chicken coop, waiting for an opening.
Fighter - I'm actually 41, lol. 35 was how old I was the very first time I had to create a use name. I tend to recycle names. But let's call it the age I WANT to be!
Summer - I gave up on the two week rule with this, I just felt so off. My MO was great, said no reason to suffer with worry, and bam! MRI. Pulling the bandaid off quick, so to speak. I hope your lightheadedness resolves soon.0 -
Suze - I'm sending you good vibes for good results tomorrow!
Ladies - Hi..I haven't had much to report lately but I've been watching your posts. I hope everyone is having a nice day. It's our Victoria Day holiday today and I spent the day in the kitchen making three different soups to freeze. It was rainy and overall kind of crappy so it worked out well. The sun's out now so I'm going to take me furry friend for a walk.
0 -
Ladies! Ta da! I had my first haircut in over a year!
0 -
alexanjb - congratulations on major milestone for hair - makes us feel a bit more normal
. 0 -
I'm wondering about the light headedness too. If I get up from a lying-down or even from a sitting position too quickly, I get a bit light-headed/dizzy and sometimes see blackness. My GP said it's a common condition of getting older - lol NOT! - and can be caused by low blood pressure which I have. I used to get it on occasion, but since my treatment, I get it much more frequently. So I do think there are residual effects "they" don't mention.
Suze, fingers crossed for a good result. Great that you could get in quickly.
I took a break from here for a few days, after all the sad news. I felt obsessed by negative thoughts. But I have to admit, Heidi, when I came back and saw those dog and cat photos, I laughed out loud. Thanks for that - what a valuable post!!
0 -
Here's another laugh for you guys...
0 -
Heidi - lol what a hoot (....or should I say hooters)!
0 -
Heidi..lmao...that was funny!
Suze35 (41)...hope you get good results! Thinking of you
And Alex..first haircut..felt good didn't it?
0 -
Hedi that is so sick.... and so funny
0 -
alexanjb - That's great! I'm glad for you.
0 -
That's great! I'm glad for you.
0 -
alexanjb - That's great! I'm glad for you.
0 -
Heidi: OMG you made my day!
Suze: Hoping your MRI is clear and that it's just another of the long list of "after" effects of chemo.
Me, my thumbs no longer work and my hands go numb. For a very long time I also had trouble breathing normally due to a reaction to my last Taxotere infusion. If I am not moving for a long period of time and try to get up, my joints everywhere feel like I am 99 years old and have just been run over by a truck.
0 -
I'm trying to find a job and I am so scared! Will I space out as my blood pressure plummets during a interview? or have one of my nasty headaches? Will they notice when I'm real slow to get up from my seat? When I get a job, can I keep up? Learn quickly? (not!) and have time to rub my achy feet and rest during lunch? Can I take one day off every week because I'm just not feeling good at all? Will they mind my dizzy spells and give me time to recouperate? I feel like I'm fighting a losing battle on this front. Thanks BC. No wait, F*** BC. Disability won't support me and no one else will either. And that one job, the one we always fall back on, the Wal-Mart Greeter? I'd rather play in traffic!
My prior life was in the mortgage industry and there are a million details you have to be on top of at all times...I don't think I could keep up with that anymore, but there is not much out there I feel like I could do. But I'll keep looking
I do have the best private short term disability insurance with Mut. of Omaha. I would be on the street without them. God bless my agent! Amazing benefits, amazing company!
0 -
Heidi- I just love your sense of humor. That is just too funny!
0 -
tnbcRuth: Good luck on that job interview. You'll do great. My chemo brain is getting better each day and work is easier each day, too.
0 -
Ruth: I so know how you feel. I chose to try and work for myself to allow myself to set my own schedule but I know this isn't always an option. I suffered a back injury many years ago and the state disability office sent me to a full service work program at the Goodwill. They helped me brush up my resume, coached me for job interviews, bought me some "find a job" clothes. There is also another newer state funded program here which helps place people in jobs. Have you tried signing up for some temp work agencies just to get you going? That used to be my fall back plan whenever the economy tanked and I was out of work. Alot of companies use agencies when they are hesitant to hire full time employees. I think once you get your work feet back, you will find it becomes easier. I do, however, have to write everything down or I forget it. Best of luck in your job search! Hugs.
0 -
MRI clear!!! Yayy!!!! I feel so stupid for getting these tests, but my doctor was very kind. She said it is probably chemo, radiation, Ativan, and seasonal allergies. I have been weaning off the Ativan for months and my body is extremely dependent on it. I'm down to 0.5mg/day...but can't drop it. So I vote for that.
Still - yayyyy!!!
Heidi - THAT was funny. I showed it to my DH, he enjoyed it ;-).
tnbcRuth - I hope the job interview goes well! It must be scary getting back out there. I'm terrified of my mom going home because it means I do all the kid-work, so I can only imagine if I had to look for a job. But I think it is wonderful - back to "normal" if we can ever say that. Good luck!
MBJ - that must suck with your thumbs, is it from the Taxol do you think? I ache in my joints every day, worse than I used to, but have never had anything lock. Scary.
0 -
Suze - what great news you MRI is clear...it made my day!
0 -
Suze- WOOOOOOHOOOOOOO!!!!!!!!!!!!!!!!!!!!! Great news!!!!!!!!!!!!0
-
Suze-yipeee!!!!!!! Never feel stupid for getting the test, it was a brave, smart thing to do and now you can relax!
0 -
Suze: I am so happy for you!!!!! Yippppeeee!!!! I say test away then give me the good news
!!! My thumbs started locking just a couple of months ago, a year after TC ended. The BS I was first going to ordered 6 x TC which my Onc thought was excessive, but he complied with my BS. I had an alergic reaction on my last infusion and my Onc says many of my SE's are due to the extra chemo. Just wish I would have changed dr's (BS) sooner-maybe I wouldn't have these issues! Big hugs on your happy news!!! 0 -
hi ladies trying to recover from treatment number 4. not doing well sick to my stomach still doesnt seem to matter what I take nothing is working.overall just feeling like crap. am seriously thinking about pulling the pin on this chemo crap. i did 4 I just dont know if I can do 2 more.
ok going to go until i have a better outlook hope you are all doing better than me
hugs kymn
0 -
((((((KYMN)))))) Hang in there. We know it's hard but you can do this. We are all here for support.
0 -
Suze!!! Sooooo happy for you!!!
Kymn,
Please hang in there - hit it with all you've got this go around - I just had #5 of TAC and am about to head down for my neulasta shot. Don't worry about the next round right now - you are not feeling good - but by the time you feel better you'll be ok for the next. I just told myself - this (5) is the next to the last - and then just one more. So I know I can do one more. I've been taking zofran every 8 hrs plus supplementing with other anti nausea stuff as needed.
I'm starting to feel crappy now but I've got to go down to work for a little while. It is so slow to work from my laptop doing remote desktop. Unfortunately I ended up having some "spillover' work for this week. Usually I try to avoid working the week after chemo.
0 -
Kymn: Honey, hang in there and it will be over before you know it. Are they still not giving you any neulasta shots? That really should be a standard of care thing. Big hugs-you can do it, I know you can!
0 -
Kymn, Ask for Emend... it was a miracle drug for nausea.... and I took zofran with it. Emend you take the day of chemo , day after chemo and one more day. But it was great !!!! I also found zofran and Reglan were a great help. I hope you start feeling better.
0 -
Suze: So great to hear your news, very happy and relieved for you.
Kymn: Heck, I was hoping the taxotere would be easier on you, very unusual to have nausea with that, surely your onc can come up with something? You've been drinking lots of water, right? It really sucks, but if it's making you feel that awful, imagine what it's doing to any stray cancer cells (aiming for the silver lining here!)
0
