Calling all TNs
Comments
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Suze- Wonderful news!!!! I would like to stop the Ativan too, but can't sleep without it!
Kymn- I don't know what you are getting for the nausea, but I was prescribed an Emend patch that I put on the day before chemo and wore for three days. I was never sick to my stomach, just a bit yucky feeling. I hope you feel better soon and please don't stop chemo!!
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Suze -- good news and now have a great weekend!
Colleen
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Hi everyone. Just got back from rads and seeing my RO and I got his ok to put cream on, YEAH!!! So11/25 done. Good evening to you all.
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Ponderisms
1. Ever wonder about those people who spend $2.00 a piece on those little bottles of Evian water?
Try spelling Evian backwards: NAIVE
2. Isn't making a smoking section in a restaurant like making a peeing section in a swimming pool? (My sentiments exactly!)
3. OK.....so if the Jacksonville Jaguars are known as the 'Jags' and the Tampa Bay Buccaneers are known as the 'Bucs,' what does that make the Tennessee Titans?
4. If 4 out of 5 people SUFFER from diarrhea, does that mean that one enjoys it?
5.There are three religious truths:
a. Jews do not recognize Jesus as the Messiah.
b. Protestants do not recognize the Pope as the leader of the Christian faith.
c.Baptists do not recognize each other in the liquor store or Hooters.
6. If people from Poland are called Poles, why aren't people from Holland called Holes?
7.If a pig loses its voice, is it disgruntled?8.Why do croutons come in airtight packages? Aren't they just stale bread to begin with?
9. Why is a person who plays the piano called a pianist, but a person who drives a race car is not called a racist?
10.Why isn't the number 11 pronounced onety one?
11.If lawyers are disbarred and clergymen defrocked, doesn't it follow that electricians can be delighted, musicians denoted, cowboys deranged, models deposed, tree surgeons debarked, and dry cleaners depressed?
12. If Fed Ex and UPS were to merge, would they call it Fed UP?13.Do Lipton Tea employees take coffee breaks?
14. What hair color do they put on the driver's licenses of bald men and women ?15. I was thinking about how people seem to read the Bible a whole lot more as they get older; then it dawned on me .. they're cramming for their final exam.
16. I thought about how mothers feed their babies with tiny little spoons and forks, so I wondered what do Chinese mothers use? Toothpicks?
17. Why do they put pictures of criminals up in the Post Office? What are we supposed to do, write to them? Why don't they just put their pictures on the postage stamps so the mailmen can look for them while they deliver the mail?
18. If it's true that we are here to help others, then what exactly are the others here for?
19. You never really learn to swear until you learn to drive or play golf.
20. Ever wonder what the speed of lightning would be if it didn't zigzag?
21. If a cow laughed, would she spew milk out of her nose?
22. Whatever happened to Preparations A through G?
23. At income tax time, did you ever notice: When you put the two words 'The' and 'IRS' together it spells, 'THEIRS'?0 -
Kymn - hang in there!! It is so hard at the end, I was ready to dump my last chemos also (turns out I SHOULD have
), but you will get through this! I ditto the Emend suggestion, it really makes a world of difference. What is your steroid dosage? I often think we are overdosed, and that can cause stomach issues as well. Try and focus on that light at the end...it is there, just very very dim.Heidi - LMFAO! I can't pick a favorite, lol.
Babs - I'm so glad the RO okay'd cream. I was scratching my head wondering why not? I'm at #20, and my skin is holding up really well thanks to Jeans Cream. Yay on getting to 11!!
Teka - I think we are going to a butterfly exhibit with the kids - definitely something fun!
Have a great night everyone - I'm enjoying some red wine and good (light!) Italian food
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Heidi: Thank you for making me snort--yes, you heard it, like a horse I just sounded, LMAO!!!
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Christina1961 - My onco wants me to do 6 x TAC, hopefully, I will start in about 2 weeks, I am terrified to do this but I have to, would you be able to tell me a little bit of your SE's, what you did to help them, did you work at all during the treatments?
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OMG..Heidi..I'm laughing my rear off...I'm glad I wasn't at work..my stomach hurts from laughing....hey how is Russ doing! He is prolly laughing his ** off too..living with you..ha ha.
Kymn..chemo sucks, it really sucks..but the cheerleader in me is coming out (many years ago)..please see if you can stick with it...everyone wants to freaking quit..we all did...just think to yourself..2 more times and you are DONE..and besides that..COMPLAIN to your Onc about your SE"S and dont let them brush you off dang it..MAKE them help you..that is their job.
Yay Suze! you go girl..party this weekend 4 sure!
Babs..glad they ok'd the cream for you..but duh...did they ask you where you learned about using cream? I remember asking questions about things I learned about on here and I think I kinda pissed them off...whatever....maybe they learned something...
Remember I talked to you guys about my uncle? He starts chemo tomorrow..the freaking cancer is in his bone marrow and spleen..along with a bunch of lymph nodes. He is having 4 cyles of chemo..every 3 weeks......I called him tonight...they have said his cancer is treatable..and I think it will be...I hope..
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Hi there ladies, I'm back after a long haul. I havent been on the site for a while and have been trying now to catch up on the postings. geez you guys are active
I'm all done with my Therapys.... Chemo in Nov 2010 and Radiation in Feb 2011. I even had a 4 week rehabilitation.rehab is common here in Germany... it starts no later than 5 weeks after your last treatment. It did me some good to be away from home and to relax. I did alot of Sport Activities and some Physical therapy for my numb hands and feet. My recent Gyno.exam was all clear and my Mammogram from last week was also good. I'm praying that the monster is gone.
Oh hey and even my hair is back.... it's dark and wavy.... I was a blond before I lost it to Chemo.
weird how somethings change ......
I hope all of you are doing well...I will try to get back here more often to keep in touch.
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Not a good morning guys. Found another lymph node this AM in the shower, higher above the collar bone closer to my shoulder. I'll be talking to my MO tonight (she returns calls in the evening so she has time to talk), and I am sure she will want it biopsied.
It *could* be reactive - I took a tumble Monday and have a nasty bruise on that arm, plus I've been doing PT with LE massage - but my gut tells me it is cancer.
I am at day 21 of rads - I will be pushing to start more aggressive chemo asap, and I will also mention the twinges I get occasionally on my right side. I have to face reality, this isn't good, but I still have a little hope.
I'll keep you all posted.
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Suze35 awwwwh hugs! It's not CANCER!!! Don't claim it.
When you say twinges what exactly do they feel like? Maybe the muscles are relaxing from the fall. Hang in there and relax.
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Thanks Fighter - I think I'm so used to bad news, I prepare myself for the worst. I hope it isn't...but that hasn't been my luck so far.
I started feeling slight twinges under my right rib cage (where my breast used to be) about two weeks ago. It could very well be my gall bladder, and it hasn't gotten worse, so I haven't said anything to my MO. I think I will now, even just to rule it out.
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(((Suze))): After all you have been through, I would be proactive and having everything checked out, too. Better to stay on top of things and I am hoping for your sake that it's nothing but SE's. Big hugs to you.
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Suze... don't get ahead of yourself. Repeat... don't get ahead of yourself. They'll be plenty of time for that later. For now, take a deep breath (OK, maybe a Xanax) and try to enjoy *today*.
Easier said than done, I know. But try anyway. Remember practice makes perfect...one day at a time... keep breathing... Carpe Diem!
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Great advice, Heidi!
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Suze- Are the twinges on the rads side? If so it could be the nerves reaction to the rads........ I have plenty of twinges since I started my rads. I asked and they told me it was normal. Hope that's what is causing yours......... (((hugs))))0
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Okay, now that I've taken my Ativan...
Met with the RO today - not my normal one, he's out of the office. There are two palpable nodes and he had me scanned to see if they are in the radiation field. Unfortunately, they are just outside of it. He is going to add them to my treatment tomorrow and play catch-up, but he won't be able to fully catch me up by day 33. He recommends finishing out my treatment and adding a week or so for these nodes...
I'll be talking with my MO tonight. I'm not at all comfortable putting chemo off anymore. I think I may insist on either over-lapping chemo/rads, or ending rads at 25 and starting. We'll see what she says.
Babs - unfortunately, the pangs are on the non-rads side. My PET was clear in April, but I did notice my liver SUV had creeped up to 2.4 (from 1.7 on first PET). Hoping that was chemo changes.
Heidi - you are right, I shouldn't get ahead of myself. Ativan is very helpful in that respect, lol.
It is a beautiful day here, and I'm going to sit on my deck and soak up a little Vitamin D. I'm a realist, and my cancer seems to be a viscious little bastard, so I expect the worst, but I'm going to take this one step at a time.
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Suze35, I am thinking of you. I am glad they are adding those to the rads field so it can kick some cancer a$$. I would be wanting to start chemo soon also, isn't that crazy? Wanting chemo! Big hugs to you. It sounds like you have a great team of doctors. What chemo are they going to put you on? I know you mentioned it before....
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Suze35: I am glad you can talk to your MO tonight--I hope those nodes are normal. Sounds like your RO is being vigilant by adding that to your treatment. I find ativan really helps me at certain times; I just took one yesterday. Enjoy the beautiful day, it's nice here also but windy! (((Hugs!)))
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Suze35, you have so much going on, I admire how well you are handling things. It does sound like your team of docs is great. I agree with the others, try not to get ahead of yourself. And as for liver enzymes, they really can be all over the place, as I've discovered, for very harmless reasons.
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bkj66 - I am going to be doing Xeloda with Avastin. I was considering a clinical trial, but it isn't aggressive enough for me at this point. It is weird when all you want is poison!!
Lynn and Luah - thanks guys. One step at a time, right??
I did speak with my MO tonight - she called at 9:00, lol. She agreed that we need to be aggressive, and feels that we can overlap the Xeloda with radiation as it is done in other types of cancer. We are hoping to have a solid plan in place by Tuesday, but it looks like I'll be starting chemo either June 6th or the 13th. And we will keep radiating the new nodes.
She said we can get a liver MRI anytime I want - just say the word. I'll have her set one up next week I think. I need to rule as much out for my peace of mind. Or for treatment purposes.
It is concerning when my MO keeps saying how strong I am, and that she hopes that if she ever faces what I'm facing, she handles it like me. I appreciate her words, but it just reinforces the seriousness of what I face.
Onwards and upwards...
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Oh Suze!!!! Hugging you here..can you feel it sweetie! I HATE CANCER...F''CANCER..I really just hate it and I get frustrated because what can we do..what can we DO? I hate feeling helpless like this...
My sweetie uncle had his first chemo today...and had a horrific reaction to the first chemo..ended up up being taken by squad to ER..they are keeping him overnight for observation...He is to start another type of chemo in a week..My aunt is freaking because she wants him to do CHEMO now..He is the first person at the cancer center to experience a reaction like this..
Why does this crap happen to good people..I just don't understand this...and I know everyone feels the same way I do.
And maybe I'm stirring the pot here but there are some people on this board (not us)..that are acting like idiots..complaining about people's posts just because people don't agree with their views....I'm sorry..but that is sooo stupid and a complete waste of time.
Sorry..just ticked off here...I need to not read those threads and I certainly don't reply to them...
This is my home
Monisch..hey lady! I love the fact that you get rehab..that is awesome. and can I ask you something about breast cancer treatment in Germany..you made have stated this b-4 but what treatment did you have? I know alot of people go to Germany for their treatment (Farrah Fawcett was one)...I'm just curious...I wanted to know what is different than here in the US.
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Oh Titan, thank you so much. I really DO feel comforted. And I am so sorry your uncle had a bad reaction. I hope the new round goes well for him. Sending healing thoughts his way! I feel like your aunt - give me the chemo NOW!
I've not pondered the why's much on a philosophical level, and I suppose that is my way of coping. I have an unorthodox view of life and death, although I feel it is an uplifting viewpoint that gives me comfort. It allows me to have a measure of acceptance that terrible things happen to good people, that there is a reason, a balance, out there in the universe. It doesn't erase my anguish at leaving my beautiful children and hurting them so deeply...so much that I will fight to the bitter end for every day with them.
And boy, I know the posts you are talking about! There is a specific poster that I avoid like the plague because she is just so vile...I took the bait once, but not again. The other thread a few days ago that upset me was more a misunderstanding, not this ridiculousness that is going on currently. How can some of these people lack basic compassion and empathy?? I like my home here, warm and safe.0 -
Serial posting...
I'm feeling schmaltzy tonight over my kids...I grabbed my oldest son's journal (he's 10), and opened it to see if he'd been writing in it. I didn't read much, I swear! But I caught that he is in love with a classmate, and "just can't stop thinking about her". He thinks she kind of likes him. I shut it at that point and just started crying. He is growing up so fast, and he is so so dear and sweet, and handsome, and I am furious that I might not be around to see the man he will become. Or the man my 7 yo will become - he has this huge heart that is so big, it also leaves him so susceptible to anger and hurt. And my beautiful 4 yo daughter, who holds my face in her hands and gives me the most amazing kisses before dancing away.
Shit, this disease sucks. Thank you for letting me blaaaaagh.0 -
Oh Suze..I like your post..you are comforting..I do realize that we have to accept the way things are....but it doesn't mean we have to like it...it is soo hard to understand the "why" of these things....I mean..why can't we all live to be bitchy old ladies? I want to be a bitchy old lady so bad..
and thanks for your support of my uncle..who you guys don't even know..it means alot...
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Hi all, I am 55 and was just dx with TNBC IDC, 2.7 cm tumor w/some node involvment, apparently considered stage 2B. I am still completing some of tests. My onc suggested I begin with a protocol of 12 wkly taxol and then 4 wks of AC, surgery and then rad. I may have lots of questions for this group as my treatments progess so I wanted to introduce and get familiar with this process now.
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umater: I answered you on the other thread. Welcome to this one!
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Umater - welcome. I hope we are able to answer any questions you have! Your treatment sounds right for your stage. A recent study has shown that Taxol before AC has a better survival benefit, and 12 weekly is easier to handle than dose dense. Sounds like a good plan. Neoadjuvant gives your doctors a chance to assess your response to chemo and make changes if necessary. Are you getting a port placed? When does chemo start?
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umater: welcome, your protocol sounds just like mine, only I had the AC before the Taxol.
Suze35: Your posts are really affecting me tonight. I like how you described your daughter dancing away. That is such a lovely age . . .mine are teens now. I know what you mean, I decided early on I would fight until the end to stay with them .. . .
Titan: I am sorry about your uncle. I know what you mean about other threads, this one is the best. My experiences on other threads have never been as positive as this one.
Does anyone read the TNBC Foundation website? There is information about a new trial involving a drug called "tigatuzumab" (I know, weird name) and it is for triple negatives. The trial is funded by Susan G. Komen and the TNBC foundation. I had heard a lot about the Parp, and it sounds like that one was not as promising, but I wonder about this one.
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Lynn - I don't mean to be a downer, my kids are my greatest joy. And 4 is just so wonderful! We joke that Keegan (my daughter) NEVER walks. She skips, jumps, hops, slides, dances, and tiptoes her way around. She rules this house, and has her brothers tied in knots around her little finger. It is as it should be. I smile every day watching them
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I saw that new trial on the TNBC site...if I do end up Stage IV, I'll definitely be interested in something like this! I am also fascinated with the drugs that "boost" your immune system to fight the cancer...cutting edge stuff!
On a good note, I've decided to start my bucket list early, and DH and I are going to start looking for a cute MG convertible for me for the summer. Always a dream of mine!
Now I'm off to bed. Still with hope. Best to all.0
