Calling all TNs
Comments
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Heidi: I can't wait to see pictures of you swimming with your horses! Glad to hear your back problems are resolved-sometimes it just needs a bit of time and rest.
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Kris...love your good news! Whew! Good to hear after all the crap we/us/you/ have all been through that there is some good news coming out of this.
Hugs to all you ladies going through S*H..right now...chemo is a freaky thing..just the word chemo freaks me out...
Husbands..yeah..they are really scared for us..sometimes they just don't know what to do to make it better...because really they can't do that much...as much as they support us..and we support each other..it comes down to the fact that YOU have to do the surgery/chemo/treatments..all by yourself..it is happening to YOU/US/WE...no one else can do it for us..
Taxol..really..it should be better than AC..I think that the scary thing is that you know what AC does and now switching to another chemo is scary...my hair started coming back during Taxol..that was a good thing...maybe some tingleness in my feet..but I really think that it is easier to deal with than AC..my nurses said that they hit us with the big guns first..then the taxol....remember taking the taxol means you are closer to being DONE with chemo...
Have I said that Cancer sucks lately?
We are in a massive heat wave here in Ohio..and the Midwest..and I think pretty much everywhere....this heat doesn't help much either..with hot flashes...try to drink alot of water (and some wine if you need it..ha ha)...this hell will end..really...
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bkj66 - glad things are working out for you... remember these sweet moments if you do get down again
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bjk66...yeah..cancer costs alot of $$ even with good insurance...my DH still complains about the co-pay of seeing the onc every 3 months and the bs every 6...I've explained to him that this is standard of care...I think that maybe he just wants this to be behind us..well I do too but I've still got to see the onc.
Actually my DH isn't that bad about it...it is what is..it's not like I chose for this to happen to me...and I can't feel guilty about it..
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stupidboob,
I haven't posted to you before, but I think that many of us know exactly what you are going through. I have always been an optomistic person, but treatment turned me from an optomist to a realist to a fatalist, and there was a lonely gray day when I felt like not going on. The very idea that I had those thoughts terrifed me. Living in Seattle, the entire winter and spring were gray and rainy, and the loneliness and cabin fever really hit hard. I should have reached out for help but I was embarrassed to. I ended up getting more medication (lorazepam) that help quell the anxiety, and I would recommend doing anything and everything that you feel will help. I too have just this week found some lumps in my armpit and upper chest area, and was panicked all weekend. Today I had an ultrasound (the lumps were too high up on my chest for the mammo), and the tech and the radiologists both felt that they were just fat , but I am having a surgical consult to get a better idea. It seems like there are about 6 lumps, about the size of a lentil, and definitely new. You are right about the diagnosis never ending. I had a lumpectomy but now feel like I should have had a mastectomy to further reduce the chance of recurrence (if that even helps) I don't want to worry about every little bump or symptom for the rest of my life, while wondering how long that is. I wish I could be more of a cheerleader for you, but instead I want to tell you what you already know - that this whole process sucks, but some days suck less than others. From where you are it's probably hard to hold that or any thought or be optomistic, and keeping a brave face gets really old really quickly. Maybe the Taxol won't be as bad as you think - sometimes the worrying makes it worse, but it's hard not to. I hope you continue to post and come here for support - you are not alone.
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Here's to just fat Aimee....! You are not alone either..ok?
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Stupidboob....down is part of the cancer normal...some days it's hard to get out of bed.
Losing my hair..it freaks me out.
HAven't had a chance to pick up my wig yet.
Still hve mouth ulcers...pureeing everything. I hope they go away...really..they have to be gone by next Friday for chemo and they aren't.
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Susan did you get some magic mouthwash from your doc? It helped clear mine up in one day. They were not gone but so much relief
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Maybe I should change my name to just fat! Rereading my post, I am so sorry for being negative; didn't really realize it while I was writing. The good days will soon outweigh the bad, and I have been promised by people who know that someday in the future there will be entire days that go by when one doesn't think about cancer, I have also heard the outrageous rumor that those days can actually turn into a week. I hope the rumor is true!
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Thanks gang,
I always feel so bad coming here to vent when I have not taken the time to answer or even read all the post and be the same support I am seeking. When I am down I tend to not want to say things as to make others feel worse when they may not go through the same thing. With that being said though, it is good to know we are not alone if we have a certain symptom and we share it.
If I can get the picture to fit, I will post my shirt for you all to see. It says Cancer Sucks with the ribbon behind it and then StupidBoob over the left breast (removed). I sure hope that Taxol will be easier on me. I too get the pins and needles with a bad back, so hopefully it will be no worse than that. What about the bone pain? Is it worse? I was also told that most don't get sick on it, did any of you?0 -
AimeeMac I know what you mean about being a realist. That is what I told my hubby, I am trying not to be negative but being a realist has to happen. I am not the type of person to just stick my head in the sand and pretend it is not happening. So, many can do that and just take things as they come and I am trying my best to learn to do that, but it is just not my personality. I was just telling myself the other day that I needed to make myself lose weight so that I could say that the things I feel are not fat.........:) I have enough fat for all of us.
I sure hope yours turns out to be nothing as well...........I don't want to rush the appointment for me because it is also chemo day but I really want to know for sure.
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I will try to answer more tomorrow..............calling it a night. I did make it to the pool tonight. I played around for about an hour and did some arm exercises. Our feral cats and the neighbors had left us a dead frog, and they were terrorizing a baby bird. We caught it but we can't get it to its mama and all the wild life rehabilators numbers were disconnected. I will try to feed the poor thing in the morning if it is still alive, but tonight it was to nervous. I was going to put the ferals in my garage but then there is the neighbors cats and so I just decided to put the bird in the garage and know that at least if it dies it will not be shred or tortured. What a way to end the evening and I was so proud I made it out to the pool.
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No apologies necessary aimee! We all understand. I have apologized before for being negative and had others say apologies not allowed! I know this seatte weather is very grey, but being in the hat and wig stage I have been very thankful for the cool weather here!
Oh, I finally figured out the fat aimee comment! Hoping the lumps are just fat also! Gotta love the fat lumps:)
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I wasn't bothered by the just fat comment. I was lucky enough to lose almost 20 pounds with the chemo diet and am about 10 pounds from my ideal weight. Am trying (not very hard) not to let the pounds creep back on. I would love it if these little lumps turned out to be just fat!
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I think that it is important for us to have a place to be negative and let out those feelings. This DOES suck--all of it. And holding it in is not good! I am not advocating being depressed or always complaining, but the truth is, we all have a lot to complain about and this is a safe place to do it. Medication also helps
Hugs to all of you!
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Hi girls! Thanks to everyone for posting their follow up stuff.
My follow up was pretty short. They just want to see me every 3 mos, and I will have a mammogram every year, next on in Nov.As for everythign else...it's 'wait and see'...as in, wait till I break my hip and say, "Oh look--you have mets to the bone"
But--she *did* tell me that if there was some pain that didn't go away in a couple weeks, to call her...doesn't mean the cancer is back, but they would want to investigate. Other than that, I'm supposed to "get back" to my normal life, whatever that is...
She also said it's high possibility my chemo pause is permanent
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Lovelyface and Wren - I only had chemo and it started a couple of months after. I'll bet its the poison being flushed from my system, since its an inside thing! The cream I had did help, so I'll look at the label when I go upstairs again.
I've had horrible neuropathy in my feet and legs just like you Lovely. Worse at night, burning, aching....I've done VitB shots, adrenal rebuilder, and lots of other remedies, but I finally broke down and got a RX for Lyrica yesterday. It has lots of side effects (I'm so dizzy!) and I've only had 3 doses (one 3xday) but I swear, the bottoms of my feel hurt less already.
Hope you have a good day!
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Good Morning laides, so sorry for all everyone is going through I am almost 3 weeks out of last chemo and my body just doesnt seem to be rebounding this time. My whole body has felt like I have worked out for 4 hours straight with weights. All my muscles hurt and I get so fatigued I dont know why this isnt going away, every morning I wake up and get ready for work hoping that I will feel better, stronger, but I just dont, it doesnt seem to matter how much sleep I get I wake up tired and sore
Cancer sucks
Radiation called today wanting me to start on monday I was like jeez I need to recover before you start hitting me with this stuff, she asked how long I had been finished chemo I was thinking dont you have my chart???? So when I told her not ever 3 weeks yet she said oh no we wont start you yet so hopefully not till after the Aug long weekend. I would really like to have some strength back before starting this next leg of the journey.
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Hanging out ladies, but just feeling quiet these days. Reading along though...
The Xeloda is definitely messing with my head - I started back on yesterday, and have a mild headache. Not a migraine, but I'm keeping tabs on it closely. It also makes me so tired! I was falling asleep on the couch at 6 PM yesterday, that is not me! But otherwise it isn't too bad. Hope it stays that way.
Kymn - it took me a shockingly long time to feel better after chemo. I remember going to NYC two weeks after chemo, and trying to walk around the Guggenheim - a "small" museum. I thought I was going to die, I could barely go 30 feet without resting. I had my surgery 3 weeks after chemo, so I was down from that too, but I can honestly say I didn't start to feel better until just about the time I started radiation - 7 weeks after surgery. It sucks - but you have to give your body some time. I tried to exercise/walk, even 15 minutes every few days. But there are no quick fixes. You'll get there.
bkj - I'm glad to hear you and DH have reached a better spot. Hugs to you.
Stupidboob - vent away. When you are up to it, you'll read and post. When you are not, we are still here for you.
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Do I have to have photobucket or something to download a picture?
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hi all- i'm new to this board but 'happy' to find a group that i can relate too. i was diagnosed with TNBC 1 day after my 35th birthday, and just completed all my treatments on june 3rd. just wanted to say hello to everyone!!
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Stupidboob, there are 2 threads about posting pictures and avatars in the Comments, Suggestions, etc. forum at the bottom of the Forum Index main page.
Hi, sh99! Glad to be through with your tx, no doubt!
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welcome sh99, and glad you are done with treatments
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Welcome sh99. This is a great thread. Come back soon and let us know more about yourself.
Navy
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Have also been quiet a awhile but reading your posts. I figured out that somehow I had removed this group from "my favorites". Geez. Went to eye doc yesterday for blurry vision and gyno today for fibroid check and bladder issues. Vision is probably just chemo remnants plus being 50; fibroid has not changed size in 5 yrs (really thought chemo might help w/that also) but appears I am in menopause as a result of chemo so I guess that works too. Bladder issues are also probably from chemo as well. Lots of water and reducing caffeine/ alcohol/citrus intake. Sigh. Lesson learned? Cancer sucks AND so does turning 50. But this too shall pass...
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OK, here's a link for anyone interested in watching the horse swim today. I apologize for the length (@ 8 minutes)... hubby took TONS of video and I had to condense.
God I hate how I look, especially from "behind". I have no muscle tone and I am ten pounds too heavy. Only my horse's butt is bigger...
Anyway, it was a great day and I will go again soon... only not wearing spandex! I wanted something stretchy and comfy for goofing around in, but YIKES!
In case anyone is wondering, that is synthetic tack on the horse...would never take my leather saddle/bridle in water! Next time, I may go bareback like my two gal-pals also. Not too bad falling off a 17hh horse... into the water. I just totally zoned out and forgot to remove my helmet too. It's been SO long since I've done this!
Anyway, as usual I am blabbering totally off topic from this thread. Hope no one minds. When we got home we took the "other" pintos (BTs Brady & Gisele) in the pool. Brady is like a pool-sweep... he eats any leaf, debris or bug that floats by. Have video of that too...
Upper 90's here today, and headed for the 100"s Friday.
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Here's another off topic..
Got a call at work today that my son had an accident at his summer job and was being taking to ER....he almost lost his "bird" finger...we were at the Er for 5 hours...I wonder why they call it emergency when you are there for 5 hours? Anyway..we see the plastic surgeon tomorrow..he may have to have a skin graft or what not...
I really hope stress doesn't cause a reoccurence of breast cancer because I'm feeling a hell of alot of stress right now.
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Titan- take a deep breath; you have a lot going on right now, some good, some bad. One day at a time, my friend.0
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Hi ladies - just discovered this board, So glad to become a part of it. Finished chemo on April 19; first followup next week for check & labs. My TNBC tumor was metaplastic also and I will be anxious to see what my tumor markers are. Hope you all have a beautiful day tomorrow and I send out hugs to all my "pink sisters".
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Heidi - what great pictures!! Your horse is beautiful. What a fun way to beat the heat!
Titan - I'm so sorry to hear about your son's accident. They were able to save his finger, yes? Deep breaths... They can do great stuff with plastic surgery these days. Don't we know it!
sh99 and gami43 - welcome to the board. I'm sorry you have to joins, but it's a great group!
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Got my first tomatoes today - early and grape, yum! Everything else seems to be at a standstill, I think it is even too hot for my jalapeños!! Keep cool everyone.0
