Calling all TNs

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Comments

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    Titan, for the most part I really do need to keep my head in the sand to keep from completely freaking out.  It may not be the best thing to do but it it's helps to manage my anxiety which left unchecked is unhealthy too.  Just try to exercise, eat right and take my vitamins.  I'm just really hoping your niece was grossly misinformed. 

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    OBXK - I started a thread a while ago reguarding getting insurance if we move out of state.  I got so many replies and other people we're asking questions.  Why don't you read thru it and see if there is some info you can use.  Alot of people posted links to hippa, state run programs.  I'll try and post the link although I'm not sure how. 

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012
  • laurajane
    laurajane Member Posts: 305
    edited February 2012

    I would like to thank the following for donating money for MBJ:

    Luah, Swanny, Titan,Huskerkkc, Minxie, Babs, Paintingmyway, Gillyone, Phgraham, Tisthyme, Sugar77, Mitymuffin, Lynn18, KSMathews, Karbarn, Lrm216, Christine1961, Suze35, Raiderdee, Mccrimmon, Tracie23 and Tifj.



    I hope I haven't forgotten anyone. I will be purchasing her laptop today. I hope this will cheer her up. I know I am anxious to have her join us again. I've missed her.

  • lrm216
    lrm216 Member Posts: 534
    edited February 2012

    LJ:

    Thank you so much for all you are doing to help MBJ, it is so appreciated by all of us, and I know it surely will be by MBJ too!  I too miss her posts and want so much for all of us to be able to stay in touch, especially during her treatments.

    Hugs,

    Linda

  • sugar77
    sugar77 Member Posts: 1,328
    edited February 2012

    I echo what Linda says.  I was really feeling down when I heard about MBJ.  I miss her posts. Thanks for giving us an opportunity to keep in touch with her and her to us!

  • christina1961
    christina1961 Member Posts: 450
    edited February 2012

    Laurajane,

    Thanks again for doing this for MBJ - I was thinking about this last night and not only will this be a way for her to connect with us for support but also such a valuable link to internet resources right now.  The internet has helped me so much in finding good treatment and getting second and third opinions. I don't know what I would have done without it.

    Titan, that 1 in 7 is suspiciously close to the number of women who get triple negative - 14.3%. Wonder if that's how that got started.

  • TifJ
    TifJ Member Posts: 804
    edited February 2012

    Yes, thank you Laurajane! I think MBJ needs us all right now.

  • karbarn
    karbarn Member Posts: 8
    edited February 2012

    Laurajane, thank you so much for doing this. Although I don't post often, the support and encouragement that I've found through this group has been invaluable. I am sure that it will mean a lot to her to know how much we care, and to have the ability to stay connected during this difficult time. Best wishes to you and MBJ...and to all of my TN sisters!

  • Lovelyface
    Lovelyface Member Posts: 563
    edited February 2012

    Ladies, I have missed reading everyone's posts over the weekend.  I was at a NACA Save the Dream event all weekend long.  NACA tries to help homeowners save their homes by holding events, where they have lenders present, so owners can talk to them directly, they play the middleman.  I was there from 8 am to 8 pm both days, but in the end, did not get any resolution to my home situation.  I can still afford my mortgage, however, it has lost over $100K value, therefore, it is under water.

    I just pm'd LJ, please send me payment info so I can also add some money, sign MBJ's card and join in.  Sorry for the late response.  LJ, dear, I am so very happy to hear that Halavan is working, has reduced your symptoms. Suze - I can't wait to hear all about your dream vacation when you get back.  Hope the weather is beautiful every single day during your vacation.

    Painting - Congrats on having your painting at the museum, I am sure it is making lots of people very happy.  Minxie - the place where you sit with your granmma sounds absolutely beautiful.

    mccrimmon - if you have a link to the new vaccine, please send that to me. I want to feel hope for something, it is just so damn hopeless, this disease.

    I am going to see my surgeon tomorrow and see what she says about the biopsy. I hate hate hate having the biopsy, don't like it, don't believe in it, feel it will be damaging to me. I would rather just take the whole crap out.

    Everyone - have a great Monday, which is a very tough day for me. I had forgotten about my case this weekend, now I am back to worrying and nervousness about what I will be facing the next couple days.

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited February 2012

    I just donated as well. Not on much during the weekends.

    Praying for healing for us all. HUGS!

  • OBXK
    OBXK Member Posts: 689
    edited February 2012

    Thanks for the support and advice. I'll do some more investigating. I called my BS office today, he works for a Catholic hospital. The office manager is going to see if I can pay, at a lower rate. I make my income, through rental properties, so while I don't have a big income, I have property assets, which keeps me from getting help.

    I'm feeling better about it all today. I had a nice walk with the dog, and did a few chores. Which is great, since I awoke at one in the afternoon!

    Thanks again for the support! Karen

  • Titan
    Titan Member Posts: 1,313
    edited February 2012

    Here for you OBX...thinking of you kiddo.

  • laurajane
    laurajane Member Posts: 305
    edited February 2012

    Lovelyface- so sorry you are having to deal with all of this. I wish I could snap my fingers and have everything be ok.



    Obxk- great that you got to sleep in. The little things like walking your dog can be so satisfying. I went on a walk today too with my daughter, grandson and Charlie my dog. It was nice. If my daughter hadn't of come over I probably would have spent the day on my recliner watching tv. I've developed some bad habits lately.mim so glad you are feeling better.



    Thanks for the thanks but I feel great that we are doing this as a whole. I've left a couple of messages for MBJ but I haven't heard back yet. Maybe I'll hearnfrom her tomorrow. Sending positive vibes to all of you. Hope everyone had at least one thing happen today that put a smile on your face. Last year about this time there was a bunch of us that started writing about the best thing that happened in each of our days from as small as having a piping hot cup of latte to something bigger. It sure put a lot of things in prospective for me and it was fun to share also. Here goes the best thing that happened to me today was having my son, daughter and grandson over for dinner. I splurged on steaks, potatos and a nice bottle of wine. The extra good part was that the wine actually tasted good to me. Hallelulja! That's right! The wine tasted good! First time in a couple of months and I LOVE fine wine.

  • bak94
    bak94 Member Posts: 652
    edited February 2012

    Had my rads simulation today, finally! About 5 pm tonight I get a phone call, of course I miss it and it is from my cancer center but is a general number, don't know which doc called me! I am having anxiety that they found something with the ct they did for rads! Why do I have so much anxiety? Had to take an ativan as I am freaking out. They didn't leave a message!

  • sugar77
    sugar77 Member Posts: 1,328
    edited February 2012

    Obxk and Laurajane  - I think dogs are the best medicine.  Just walking my little buddy Brandie helps me relax. My little furry friend helped me immensely when i went through chemo...except when he would steal my wig...lol

    Bak - I know it's easy to have your mind wonder about the phone call but try to think of other things it could be. Not too long ago, I saw our family doctor's office had called and since my DH had recently had a check up, I drilled him as to why they called to the point where I had him call the office the next day and they had no record of calling us. There was no message left on the answering machine either, it was call display that simply showed the office had called our number. I hope all goes well with your upcoming rads.

    The best thing that happened to me today was teaching my daughter a few crochet stitches. I'm a real beginner and am in the midst of signing up for lessons but she wanted to learn the little bit I know. I cherish these moments! 

  • bak94
    bak94 Member Posts: 652
    edited February 2012

    I just tripped on the darn dogbed and fell on my knees and elbows! My knees are messed up and my big toe. The fall led to a major meltdown! Just send me to the loony bin now! I know that is probably not pc but it is what I feel like. I am home alone, husband is out, and my dogs were so worried, practically climbing all over me to make sure I am ok, which I am, just a little bruised and feeling a bit crazy.

    Thanks Sugar, there could be many reasons they called me. I don't think the rads doc was even there today to look at the scans, at least thats what I am hoping!

  • riley702
    riley702 Member Posts: 575
    edited February 2012

    bak, it could have been a wrong number... maybe they were calling the previous or subsequent name on the list. Last week, I had a message from my landlady asking me to call her ASAP, and when I did, she was embarrassed and said she'd called the wrong name on the list, so it does happen.

  • Huskerkkc
    Huskerkkc Member Posts: 471
    edited February 2012

    Bak, when they do rads scans it is for measuring and positioning and set up purposes only, not for diagnostic. So don't let your mind go THERE, it is very likely something routine like changing or setting up an appt time. Or a wrong number!

    Best thing today...friend from church,age 72, had biopsy last Monday and was supposed to get results Friday but they never called. She called them and they said they would check but still no call so she waited in agony all weekend. Today she called to tell me it was all clear, nothing there. I was so happy for her I cried. She had bladder cancer last year so especially relieved for her.

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    BAK - OMG, I'm so sorry, I can only imagine the anxiety your going thru then to have a bad fall would certainly send me into meltdown mode.  I hope your able to get a hold of them but I would think if they didn't leave a message than it couldn't have been that important.  As far as the meltdown, I think maybe you just have a lot of pent up stress and anxiety and it was good that you were able to get it out.  Although sorry to hear about the knees and elbows.  And aren't dogs/pets the best.  They were right there for you loving on you when you needed it the most.  I hope your feeling better today.

  • TifJ
    TifJ Member Posts: 804
    edited February 2012

    Good thing for today- I am meeting my best friend for lunch today. She says she has a surprise for me today. She and my husband have talked on the phone a few times (don't worry I was right there and I am POSITIVE they are not having an affair!! HA!), but neither will tell me what's going on. I am so curious!!

    Happy Tuesday to all!!

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    TifJ - Enjoy your lunch and surprise today!!  Maybe it has something to do with NYC. 

    Good thing today for me.  I'm wearing one size smaller pants.  Yay!  (and new shoes)

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited February 2012

    Okay here goes my happy moment. I didn't have anything to wear this morning, because everything was too BIG!!!!!!!! ****all smiles***

    I have never had that to happen. I am always trying to squeeze into something.

    Still praying for us all. Gentle wishes ladies.

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    Yay! Fighter!! 

  • TifJ
    TifJ Member Posts: 804
    edited February 2012

    Yay on smaller clothes!! I haven't gotten there yet, but I'm trying... well...sort of!

  • CharB22
    CharB22 Member Posts: 87
    edited February 2012

    Best thing to happen to me today - a perfect stranger (a friend of my boss) whom I've never met is a BC survivor. She sent me a really pretty scarf for my bald head!!

    And....yesterday I got a great laugh from my neighbor's son whose in 1st grade. He was over our house playing with my DS. My DS wanted me to take of my scarf and show the friend my bald head. Not tramautic for the friend - his aunt is a BC survivor and did the whole scarf thing. So, I took off my scarf, he cracked up and said my head looked like a cow (I have some black hair spots left). We all laughed sooooo hard!

  • OBXK
    OBXK Member Posts: 689
    edited February 2012

    TifJ - I'm so excited for you! Can't wait for the update.

    I love the happy stories!

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    Char, that is so cute.  My neighbors are older, in their late 70's & 80's.  I was over one day fixing their PC, their house was hot as heck so I apologized and said the scarfs coming off.  They both told me I looked like Don, an 80 yr old bald man.  WOW!! Thanks for that burst of confidence.  LOL.  Very nice people and funny too. 

  • Lovelyface
    Lovelyface Member Posts: 563
    edited February 2012

    Hi Bak94, hoping for the best results from your CT.  And so sorry to hear about the fall and you having a bad day.  I know how difficult it is to wait on results and getting messages from these doctors.  When my surgeon called me recently to give me the results of my MRI, I practically froze.  Good Luck on the CT results.

  • kathyrnn
    kathyrnn Member Posts: 366
    edited February 2012

    Hi all, sorry that I've been MIA. I'll be back to post but wanted to leave a message for LJ. Can you PM me with info for MBJ's donation. Info where to send a money order would probably

    be best, as the chances of me remembering how to get into paypal, are slim to none.