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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited February 2012

    Can anyone out there help me.  I am 65 yrs of age.  I was diagnosed with triple neg in November with four out of the nodes positive and some cancer already growing outside one of the nodes.  My oncologist said it is a high grade aggressive cancer. I am due to start chemo next Tuesday but the problem is I have a life long fear of vomiting and nausea and quite frankly I am scared stiff.  Can anyone tell me if they have had vomiting/nausea with the chemo and how long it lasts. Also how to avoid it.  I am freaking out big time and I'm not sure what to do.

    My name is Annie. I only chose Cocker_spaniel cause the name Annie had already been taken

    Thanks

  • mitymuffin
    mitymuffin Member Posts: 242
    edited February 2012

    Cocker_Spaniel, Annie,  Of course you are scared. Everyone here has been there and understands. I think most people do not have vomiting with chemotherapy; the nausea drugs should control that.  If you feel very nauseated, tell you doctor and try a different drug. 

    I had mild nausea for a day after the chemotherapy,  some weeks worse than others, but never vomiting.  It does vary from person to person, but it is not like our old ideas of chemotherapy.

  • TifJ
    TifJ Member Posts: 804
    edited February 2012

    Happy 2 years Sugar!

    Annie- Like Mitymuffin, I never vomited- just felt icky in my stomach from days 3-7 after treatment. Just make sure to tell your oncologist you get nauseated easily. He/she will make sure you have plenty of medication to help. Chemo these days is not like it is portrayed in the movies. Sending you a warm hug!

    Tiffany

  • Titan
    Titan Member Posts: 1,313
    edited February 2012

    Annie...ask for Emend!  It is the best...The nurses told me that I could take Emend and drink of fifth of whisky and still not throw up.

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    Annie, I just had my last chemo in Sept and I never once vomited.  I may have been a little nauseated but not too bad.  I took those meds like clockwork.  Also started taking them before I felt bad.  My tummy felt wonky but never like I was going to get sick. 

    I can tell you I was absolutely terrified of Chemo and it wasn't half as bad as I thought it was going to be.  I would get my treatments done on Thursday, start to feel under the weather from Friday night thru Sunday, by Monday morning I was feeling like my old self again. 

    Just take one day at a time and definitely talk to your onc about your fears, they have meds for everything, there is no reason for you to vomit at all thru treatment. 

     Good luck.

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    Ladies,

    Zoe-lily posted this article on another thread.  I'm not sure what date it was published but I think it's fairly outdated but it's a positive article and I thought we could all use a bit of positivity lately. 

    I hope I'm not stepping on any toes or offending anyone.  If I am I'll remove ASAP. 

    Talking With Patients About a Diagnosis of Triple-Negative Breast Cancer: An Expert Interview With Dr. Hope Rugo
    Faculty and Disclosures

    Editor's Note:

    Although they constitute fewer than 20% of all breast tumors, triple-negative cancers are responsible for a disproportionate number of cases and deaths among young women.[1] Such statistics leave many women who receive a diagnosis of triple-negative disease feeling hopeless. Still, studies in the last decade have demonstrated that patients with triple-negative disease have a substantially better response to conventional chemotherapy than women with other breast cancer types.[2,3] However, too often these data are overlooked or misunderstood by patients. To find out how clinicians can discuss and explain the implications of a diagnosis of triple-negative breast cancer with their patients, Sandra A. Finestone, PsyD, a member of the Susan G. Komen for the Cure Steering Committee for the Breast Cancer Curriculum on Medscape, and herself a breast cancer survivor, interviewed Hope S. Rugo, MD, Clinical Professor of Medicine and Director, Breast Cancer Clinical Trials Program at the University of California at San Francisco. Their conversation is both revealing and instructive and is presented to help clinicians communicate more effectively with women who have just received a diagnosis of triple-negative breast cancer.

    Dr. Finestone: I've been noticing that patients with triple-negative breast cancer are often very worried about their diagnosis. Are you seeing the same thing in your practice?

    Dr. Rugo: Yes, I do think a diagnosis of triple-negative breast cancer tends to generate a lot of unnecessary fear. For example, I saw a patient yesterday who was diagnosed with triple-negative breast cancer a year ago. At the time of her diagnosis, she felt that it [triple-negative breast cancer] was a death sentence; that there was no point to treatment because it was not curable, because it is such a horrible disease. I had a lengthy conversation with her about how triple-negative breast cancer is treatable and even curable, but she could not be reassured. She had heard from so many people that triple-negative disease is akin to being given a death sentence.

    First of all, the diagnosis of breast cancer is quite scary in general. Patients often hear that it is better to have hormone receptor-positive disease rather than HER2-positive disease, or vice versa. But when people hear that they have triple-negative breast cancer, they feel like they have just been given a death sentence, that their survival is going to be 18 months, and everything is terrible.

    Dr. Finestone: How many patients really understand the implications of triple-negative breast cancer? Would it help to have an explanation readily available?

    Dr. Rugo: Very few patients understand the concept of triple-negative breast cancer. For that reason, I do have an explanation ready. I think the important thing is to tell patients that not only is triple-negative breast cancer very treatable, but it is also worthwhile to look at clinical trials because they offer patients additional options.

    Dr. Finestone: Based on that, how does the clinician translate the diagnosis of triple-negative breast cancer for the patient?

    Dr. Rugo: I think it really requires explaining to a patient -- and then having her believe you -- about the biology of breast cancer and how we treat it. The best way is to start off by telling the patient that triple-negative disease is a type of breast cancer that does not respond to hormone therapy or HER2-directed therapy. However, because triple-negative tumors grow rapidly in the early-stage setting, they are much more likely to respond to chemotherapy. In fact, chemotherapy can be very effective at controlling the disease. If one looks at the neoadjuvant data, although a complete pathologic response rate of 15%-18% is seen among patients with all breast cancers, the pathologic response rate in patients with triple-negative disease is quite a bit higher.[2,3] In fact, if a patient has triple-negative breast cancer, there is a very good chance that chemotherapy -- either neoadjuvant or adjuvant -- will induce disease remission.

    If a patient has triple-negative breast cancer, there is a very good chance that chemotherapy -- either neoadjuvant or adjuvant -- will induce disease remission.
    The metastatic setting is a little different, but not that much. Again, we should emphasize that we try to use the best possible chemotherapy regimens. We also need to know what clinical trials are available and discuss these with our patients.

    The important thing is that not all cases of triple-negative breast cancer are the same. There is a subgroup of triple-negative tumors that progresses very rapidly and is quite chemotherapy-resistant, but it is only a subset. However, it is worth noting that this subset of rapidly progressing triple-negative breast cancer may be particularly responsive to new targeted therapies.

    That is really how I explain triple-negative breast disease to patients -- that this kind of cancer often is quite responsive to chemotherapy, which is a very good treatment for triple-negative breast cancer.

    Dr. Finestone: I think that is a message that patients really need to hear because there is this misunderstanding that there are no effective treatments for triple-negative breast cancer.

    Dr. Rugo: Right, and that's absolutely not the case.

    Dr. Finestone: How would a clinician in a rural, small practice setting start the discussion?

    Dr. Rugo: The clinician should emphasize that the standard therapy really does work. The reasons that triple-negative breast cancer has gotten a lot of negative press are 1) because a small number of triple-negative cancers are seen in patients with inherited mutations, and 2) in contrast to HER2-positive breast cancer, we do not have a targeted therapy like trastuzumab with which to treat triple-negative disease.

    Ideally, regardless of the practice setting, the clinician should strive to have an open dialogue with the patient, discussing and considering all appropriate treatment options, including clinical trials. I also think it is worthwhile to consult with other physicians who might have greater familiarity with certain types of cancer. In this way, treatment may be optimized while allowing the patient to remain in her own community. However, it is worth noting that geography may determine access to certain clinical trials and, therefore, access to certain types of treatment.

    Dr. Finestone: Do you think that there is any advantage to describing a spectrum of disease and positioning triple-negative breast cancer within that spectrum?

    Dr. Rugo: The concept of early vs late disease is certainly a type of spectrum physicians could use when describing disease to their patients. Another important area for patient education is biology. For example, the clinician can explain that a very slow-growing tumor, even with 5 positive axillary lymph nodes, is not going to respond to aggressive chemotherapy and is associated with a risk for recurrence over the subsequent 10-20 years. With triple-negative breast cancer, the recurrence risk is front-loaded; that is, it is more likely to occur within the first 3-5 years after diagnosis. The upside, however, is that chemotherapy is much more likely to be effective. It is really a question of biology.

    Dr. Finestone: Unfortunately, the messages about triple-negative breast cancer have gotten a bit skewed. Can triple-negative disease be viewed positively because it can be treated quite effectively with chemotherapy?

    Dr. Rugo: I say to people, "It is information. It is not bad or good." For instance, if a patient with triple-negative disease is cured right up front, she is done with treatment. In contrast, a patient with hormone receptor-positive breast cancer potentially has to take hormone therapy for at least 5 years, and recently we have been exploring treatment for up to 10 and 15 years because of the risk for late recurrences.[4] There are those sorts of hidden benefits for patients with triple-negative disease.

    In addition, we are looking into a variety of different treatments, like antiangiogenic agents, that might help to improve outcomes for patients with triple-negative breast cancer. Specifically, there are a number of trials examining the efficacy of add-on bevacizumab across the spectrum of triple-negative disease.[5]

    We have quite a number of patients who come from far away, sometimes from rural areas, to participate in post-neoadjuvant therapy trials. We have even treated a woman who lived as far away as Alaska. She was a young woman, with extensive triple-negative disease at the time of surgery, as well as after chemotherapy. In fact, her doctors stopped her chemotherapy early due to poor response. She enrolled in one of our clinical trials that included bevacizumab and has now been disease free for 2 years. Triple-negative breast cancer is really a disease that we can treat, and I think we are treating it more and more effectively.

    Dr. Finestone: When and how would you recommend that patients with triple-negative breast cancer consider participation in a clinical trial?

    Dr. Rugo: I think any patient who is undergoing treatment should at least be thinking about what trials are available to her. Clinical trials are not for everybody. But there are many options out there, and it is really important to explore them. There is an excellent, relatively new Website, organized in collaboration with the National Cancer Institute, called breastcancertrials.org, which will match patients with available trials. Breastcancertrials.org also provides a lot of information for patients, such as what a clinical trial is and what it entails. It would be worthwhile for physicians and patients to look at the site and see what approaches are being studied to improve breast cancer care.

    There is also the National Comprehensive Cancer Network (NCCN), which issues guidelines about the standard types of treatment for triple-negative breast cancer. For example, I recently saw an out-of-state patient with triple-negative breast cancer who came to the appointment with molecular diagnostic lab work ordered by her referring physician. Although molecular diagnostic testing can be helpful in guiding hormone receptor-positive breast cancer treatment, in this case, use of such a test is contrary to the standard of care for triple-negative disease. By utilizing the NCCN Website, physicians are able to review and discuss standard treatment algorithms with their patients. I think that is also really helpful.

    Using these kinds of tools can be empowering for patients. A patient faced with a diagnosis of triple-negative breast cancer may have to counter a great deal of misinformation from well meaning friends and loved ones. What she needs to understand is that this disease is not so terrible, that it is a very treatable cancer.

    Dr. Finestone: I think the key to a meaningful, reassuring conversation with patients is exactly what you have explained, namely that triple-negative breast cancer is very treatable and can have a very good outcome.

    Dr. Rugo: I think that is absolutely the case. Even in cases of relapsed and metastatic disease, there are a lot of new treatment options. So I think that the most helpful thing to do with patients is to provide them with as much information as possible before they begin any treatment. It is usually better for the patient to take the time to consider all options than to just rush into treatment due to anxiety.

    I'd like to reiterate that not all triple-negative cancer is the same. We have seen patients who respond to each therapy for a year or longer in the metastatic setting, and then we have some patients whose cancers progress very rapidly. Physicians and patients should not make assumptions about how a tumor will respond to chemotherapy until treatment begins and responsiveness can be evaluated. Many of my patients with triple-negative disease have done well on treatment for years. The name of the game is to continue the treatment and continue to pay attention to quality of life.

    This activity is supported by an independent educational grant from Susan G Komen for the Cure.

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited February 2012

    I truly feel that once more is understood about our type of DX it will become one of the more easier forms of BC to control and treat.

    It is just the waiting to get to that point that sucks.

    ^^^Great article... 

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    Just wish they'd hurry the "F" up with finding something! 

  • Hope60
    Hope60 Member Posts: 150
    edited February 2012

    Annie - I was absolutely terrified of chemo, but it was much easier than I imagined.  They have some excellent anti-nausea drugs these days, and I never vomited.  Like Titan, I took Emend ...I think it's a wonder drug....I used to call it "my friend Emend."   I felt queasy sometimes but not too bad, plus my doc gave me some other meds to help with this. Chemo is do-able, and I wish you the best of luck with your treatment.

    Heather - Thanks for posting this.  This is what my MO told me when I was first diagnosed.   It's good to be reminded of it!

  • Titan
    Titan Member Posts: 1,313
    edited February 2012

    Its a good article to read when the "freaking out" feelings start hanging around.. Thanks Heather!

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    I hate the "freaking out" feeling that creep in on me.  When that happens to me I have to sit back and remember during treatment at one of my onc visits, I started to ask him something and I phrased it "I know I'm not curable but" and he stopped me right there, looked me right in the eye and said I am absolutely curable.  I know that wasn't a 100% gurantee but it sure helps during my freak outs. 

  • Hope60
    Hope60 Member Posts: 150
    edited February 2012

    I guess nobody gets a  100% guarantee...with or without BC....(sigh).  But I know the "freaking out feeling" all too well.....and it's good to have something to hang on to when it hits.

  • CharB22
    CharB22 Member Posts: 87
    edited February 2012

    Cocker_Spaniel_Annie - My MO gave me a recipe for peppermint ginger tea to help with nausea. PM me and I'll give it to you along with a list of other herbs and foods that help fight nausea. I had some slight nausea with my 1st treatment but I didn't faithfully take the meds. With the 2nd treatment, I started the nausea meds before I went to bed the day of treatment, then every 4 hours (I have 2 that I take). Then I ate a lot of cinnamon (on that list) and peppermint candy w/peppermint oil (also on that list). No nausea at all. I felt lousy for a few days but turns out it was from my dangerously low WBC.

    Chemo's really not as bad as I thought it would be....it's no walk in the park, but it's manageable.

  • Lynn18
    Lynn18 Member Posts: 284
    edited February 2012

    Heather, thank you for the article. It helps me to read this as I always get a little "freaked out" before my checkups, and I have one coming up.

    One thing in the article that stood out to me was that our risk of recurrence is "front-loaded", whereas other types of BC can recurr 10 to 15 years down the road.  I like how she calls that a "hidden benefit". ( However, getting through those first couple of years is scary).

  • laurajane
    laurajane Member Posts: 305
    edited February 2012

    Good afternoon ladies. I'm going to try and play catch up. MBJ should be recording her laptop next Monday or Tuesday. We texted briefly and she said she was doing rads this week and should be able to go home next Monday. I'm still not sue what's going on but next week she should be able to share. I sure do miss her on this thread. I went for my chemo cocktail on Tuesday and got the CT results. I had an itty bitty lesion on my liver but onc says it used to be fatty and isn't anymore so it may have already been there. The fattiness has been reduced due to once loving beer and wine and sadly I lost the taste for it. Boohoo! I guess the good thing is that less fatty is a good thing. We discussed the possibility that I am a lot like the energizer bunny I just keep on keeping on. The CT looked worse than the last one but I was a lot better for the last one and the FC as you guys know got really bad in between. My onc and I can see how much better things are since restarting the Halavan. A couple of tumors have wrapped around some nerves in my pit area which is what is causing the severe pain in my left arm, also showed tumors in my clavicle and sternum. These I already had. It also showed that the cancer has spread to the nodes under my right arm pit. But the great news is that it hasn't spread to any high risk areas. This made me very happy. So I pray the Halavan keeps on working. I'm having a kind of difficult time getting too excited until I pass the 6 week mark. I've had other chemos that have worked great but none so far have worked past 5 weeks. Again praying this is the one. I generally feel pretty good. Happy that I'm feeling better today than I did yesterday and the day before that etc. I truly didn't think I could ever feel this good again. So I'll just keep on keeping on.



    Tifj- your surprise sounded wonderful. I always had a crush on David Lee Roth. What a cutie.



    Lovelyface - I'm with McCrimmon and hope it's a false positive too. When is your surgery? Also, on a different note, what a great idea to do the self massage. It sure makes sense to me. Thanks for sharing.



    McCrimmon- congratulations on smoke free. I have not quit right after diagnosis I tried and cut back like crazy when i first started chemo. After the first 3 chemos didnt work I went back to smoking. I asked my onc if she thought I would live longer if I quit and she basically said in my situation she did not think it would make a difference. My BS told me the same thing. I tell myself that if there is a chance that this could all be behind me I will quit. Again praying on beating that 6 week mark.



    Christine- I'm so happy your mammo was good. I can only imagine the worry you had. Wishing the same to say the least for your daughter. Even though I don't carry the gene my daughter is so terrified that she will get cancer too. I'm not really sure how to alleviate her fears. I try, but my words sound shallow to me.



    Bac- oh my o! I can't believe that happened with your drug screw up. So happy they caught the error. That is so frightening. I know I drive my onc and pharmacist crazy with my questions will this interact with etc. I'm currently taking 7 prescriptions along with my Halavan and we often read about mistakes like this happening. I'm so glad someone caught the mistake in time for you.



    Annie- as Titan and others have said the meds they give you will really help and Emend is fabulous. I have heard of some insurances that won't cover it, if you run into any problems with that the pharmaceutical company will help you. I hope it is reassuring that we have all done these chemos and we can help answer any questions you might have. A while back I posted about mouth sores and if you happen to get any they are usually caused from a yeast infection and your onc can prescribe meds for that. Most once don't realize this is the cause.



    Sugar- I'm celebrating with you. Congratulations!



    Titan- I think it's fabulous that you ran 2 miles. I need to get up off my petunias and at least start walking.



    Fighter- time to go shopping. I too have lost weight I kind of like being able to fit into my skinny jeans again.



    I hope you all have a fabulous day. I love the best thing stories you all have shared. Sure puts a smile on my face reading them. I'll post the best thing tonight.











  • lrm216
    lrm216 Member Posts: 534
    edited February 2012

    Annie:

    I will be 65 next week and welcome you to our group.  I remember only to well all that I was feeling almost 3 years ago when diagnosed with this horrid disease.  I can soooooo relate to your fear of vomiting.  I think, and I swear to this, that I have vomited perhaps a total of 10 times in all of my life, as I do absolutely everything I can possibly do to avoid it (not that anyone likes it!).  I had A/C & T and was so petrified of the thought of vomiting that I actually cried to my onc.  She assured me that the Emend I would be taking prior to each round of A/C would insure that I didn't  vomit.  She was correct.  I never had the need to vomit at all.  Please make sure you discuss all this with your onc and insist on a full arsenal of "I will not omit drugs."  The Emend must be started the day before (or is it 2 days before, I don't remember) chemo, the day of and the day after.  In order for the drugs to work, it must be adhered to.  Also got extra Zofran (also anti nauseau) and Compazine for any type of breakthrough nausea and she stressed to me to stay ahead of any and all pain and/or nausea with all of these meds.  Once you let it start - it's hard to stop, but if you keep ahead, it won't happen. 

    Also, Annie, practically each and every triple neg (with few exceptions) is found to have a high grade aggressive cancer.  That kind of defines triple neg to a tee, no matter what stage you might be, the grade is almost alwasy grade 3, so we are all in the same boat - don't get too scared over that.

    Want to wish you all the best, let us know what you will be having, and there will be many of us at any time of day or night to help you and guide you.  Be strong - this will be behind you  soon, I promise!

    Will be thinking of you,

    Linda 

  • lrm216
    lrm216 Member Posts: 534
    edited February 2012

    CharB:  Just make sure Annie checks with her onc before taking anything with herbs in it. 

    My onc was seriously against any herbs at all while undergoing treatment with chemo. 

  • mccrimmon324
    mccrimmon324 Member Posts: 794
    edited February 2012

    Laura, While I'm sorry your scan showed progression I was glad to know that the Havalen is working for you.  I bet if you had a scan prior to re-starting this last batch you would see a definite improvement.  I'm sorry to hear your in pain, I'm praying that you hit your 6 week mark and Havalen keeps on giving! 

    I actually quit smoking prior to being diagnosed.  What a slap in the face it was to be told I had cancer anyway!!  My onc pretty much told me the same thing about it not making a difference with BC, however it's lowering my chance of Lung cancer.  Oh well. 

  • OBXK
    OBXK Member Posts: 689
    edited February 2012

    Heather - thanks for the article. When I went to my MO, I had been given a dx of IBC. I didn't even register the TN, since my aunt had died of IBC and I knew how aggressive it is. He looked at my breast and said this isn't IBC. I said Yay!Yah! He said no Yah! - TN is very aggressive. I thought the guy was going to start crying. He hugged me as I left and said - This shouldn't have happened to you, I am so sorry. I had been in remission for 7 years.

  • bak94
    bak94 Member Posts: 652
    edited February 2012

    Not sure if the story of Josh Powell is national, but I am devastated by this murder suicide. I do not know them, but the story is so tragic. First his wife was missing, been about 2 years. He was a suspect, but not enough evidence. Well, he took his 2 sons, got into his house on a supervised visit, locked out the social worker, took a hatched and injured his 2 sons, I think they are 5 and 7 and then blew the house up. All 3 died. The boys were so full of life and just beautiful children (aren't they all though!). I can not imagine what the family of Susan Powell, the missing wife, is going through. I think her parents were trying to get full custody of the children, or maybe they already had it, I'm not sure. It is just so wrong that this happened. Here are people fighting for their lives to be there for their children and this madman has these beautiful children and all are healthy and he ends it for all of them. I just can't stop thinking about this.

  • ksmatthews
    ksmatthews Member Posts: 743
    edited February 2012

    Heather thank you for the article. Loved it!

    Laura I quit smoking a year before I was dx,  cause I lost my bf to bone cancer and said I was quitting cause I didn't want cancer.  :(   oh  well,

    I have just recently started back and hate myself for it.  I am one though when I am ready to quit I can put it down no problem.  So I'm sure this is just a fad for me..

  • beckyv
    beckyv Member Posts: 9
    edited February 2012

    Can anyone tell me how long after your last treatment you started feeling like yourself again.  My treatment is 4 AC (every two weeks) followed by 4 T (every two weeks).  I just completed my first round and felt OK - not too many SEs.  Do the four rounds of T have more SEs?  If all goes on schedule for me - my last round will be May 8.  My wonderful bosses are offering my husband and I a cruise - it leaves on June 15.   Will I be feeling well enough to enjoy this cruise?  I know everyone is different - just trying to get an idea of what some of you have experienced that have already completed treatment.

  • Huskerkkc
    Huskerkkc Member Posts: 471
    edited February 2012

    Becky,

    What a wonderful gift! By all means, you will feel well enough for a cruise, plus it really helps to have something like this too look forward to. I took a trip before my last chemo and other than being very tired, I managed just fine. Fatigue will probably be your biggest complaint. and no hair.

  • Lynn18
    Lynn18 Member Posts: 284
    edited February 2012

    laurajane, thank you for the update.  I also miss MBJ and hope she gets to go home.  I am happy to hear your news about nothing showing up in high risk areas.  I hope that pattern continues and am glad the Havalen is working for you. 

    bak94, that story has really bothered me also.  Someone should have been monitoring those boys when they were with their father,  he should have never been allowed to be alone with them.   Yes, in light of what we go through here, so many fighting to live,  to see a lives destroyed like this is very senseless.

    beckyv, my dr told me 3 weeks, but I had the weekly taxol.  It might be a little longer for you since you have dose dense.  6 weeks sounds reasonable, I would think you would feel up to going. Perhaps you can plan relaxing activities, like days at the spa or laying out by pool.  Sounds wonderful!

  • gillyone
    gillyone Member Posts: 495
    edited February 2012

    Lynn - the father was NOT allowed to be alone with the boys. A social worker was taking the boys for a supervised visit. The father shut her out. She called the cops, but the house was on fire and it was too late to save anyone by the time help arrived. The father had this all planned out.

  • riley702
    riley702 Member Posts: 575
    edited February 2012

    Annie, you've received some good advice re: nausea and vomiting. I'll stress to take the meds faithfully whether you feel nauseated or not, as it's a lot easier to prevent than reverse. I'll also add the advice to drink, drink, drink (water!), esp. the days before, during, and after chemo. Drink until you slosh; until you're peeing every two or three hours. It will help reduce the side effects of the chemo.

    I let myself get dehydrated when I first started chemo (I was also anemic), and once the vomiting kicked in, it wouldn't stop. I ended up in the hospital for 5 days getting blood and IV fluids. Got out just in time for my next round of chemo.

    One more thing - the aggressiveness of TN means it sucks up the chemo and responds very well to chemo. Some ladies have no evidence of the original tumor after chemo, if they did the chemo before surgery. So chemo is our friend and try to think of it that way. I would visualize the tumor getting smaller and softer as chemo kicked its ass! That helped me.

  • Lovelyface
    Lovelyface Member Posts: 563
    edited February 2012

    Ladies, I want to ask everyone a question which just boggles my mind.  Do you guys think that TN and/or any type of BC comes from within a person's body due to some bodily metabolic or other type of dysfunction or do you think this is something which comes from outside and attacks a body, just like a virus or bacteria.

    My personal opinion is that there is something lurking in the environment which attacks a person who has an imbalance or a low immune. It attacks in the area of the body where there is an imbalance and that is where cancer forms.  Many women who are past 50, their periods are not happening anymore which used to protect them.  They have hormone imbalances (which is absolutely normal at 50), however, this evil cancer is so strong that it strikes the person and their reproductive organs, either the breasts or ovaries, uterus, etc. are affected just because of the fluctuating hormones.  For men, it is prostrate.

     My surgery is on Thursday, the 16th.  The procedures I had done recently, the MRI and Mammo/US has done quite some damage to my breasts.  They are burning, paining.  I am so worried that these tests itself may cause so much harm.  If not, why so much pain?  The pain is deep inside.

  • riley702
    riley702 Member Posts: 575
    edited February 2012

    I think it comes from within. I think some people have a predisposition to having cells mutate (which could explain why cancers sometimes run in families), but it might be nudged along by exposure to environmental toxins, and that stress, etc. might prevent your body from dealing with these mutated cells, so that they grow and form a tumor big enough to be detected. My sister is older than me and has no evidence of BC, but then again, she had children, eats better than me, and lives in a much less toxic environment. She lives in the country and I've been in the big city for 30 years. I also smoked briefly (tobacco and pot) in my 20s and am a light drinker. She has never smoked or drank. So that might explain why I got it and she hasn't. Then again, maybe I got genes more prone to mutating than she did. I think a lot of it is a crapshoot.

  • bak94
    bak94 Member Posts: 652
    edited February 2012

    I have heard that some cancers are believed to be caused by a virus or bacteria, but never heard that about bc being caused by those. I also think it is a combination of environment and our dna, and for some people strictly their dna. I read statistics on a study that said that all types of breast cancer, triple neg, triple pos, etc. have a simliar percentage of obese verses thin/normal at diagnoses. 69% are overweight/obese verses 31% thin or normal:( I am certainly overweight/obese. I know there are alot of thin women diagnosed with bc, but those stats certainly show it is better to weigh less!

  • Titan
    Titan Member Posts: 1,313
    edited February 2012

    The Josh Powell story did make national news...how awful....

    Don't know the hows and whys of breast cancer but I think the chubby thing is blah...This is America...alot of us are chubby...