Calling all TNs
Comments
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LJ- your evening with the grandson, sounds perfect. I am 50, with boys 12 and 17, it is the wish to hold a grandchild, that has gotten me through many a dark day. I hope you have a wonderful evening.
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CC4 -
Claritan and/or Aleve is for the Neulasta shot, not for nausea from chemo. It's the big guns for the chemo; Emend, Zofran, compazine, etc.
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Cocker Spaniel, My Onc gave benedryl and steroids with the chemo, to prevent allergic reactions, and those gave me more of an immediate reaction than the chemo. Every chemo session I would ask for less of the antihistimine and steroid, and they did cut it back. Just remember to ask for what you need!
I did accupunture as close after the chemo as I could, and I think that helped with side effects. I also walked as much as I felt I could, and I think exercise helps. It certainly helped me mentally.
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OBXK-my daughter is 26 and my son is 18. I am 48. I did have a great time with him. I look forward to sharing stories about our grandchildren in years to come. I had a good time tonight but I really kind of wished I'd stayed at home in my pajamas.LOL I hope you had a nice evening too.
Heidi- so nice to hear from you. Miss your jokes though. I bet you'd be great at standup comedy too.
Mitymuffin- great seeing you on here too. Glad you coworker that. I was thinking the same thing.
Good night all. Sweet dreams.0 -
LJ - I look forward to it too! I did stay home, in my PJs. Made a big pot of Chicken Noodle soup. Still feeling a little punk, didn't want to spread my germs around.
Wishing everyone a good day!0 -
LRM: Thanks for the correction. How quickly we forget! But hey, that can be a good thing right? Either way, I had very little trouble with nausea and I really didn't even take the Zofran. I just don't like meds if I don't need them because each one I take can have pretty significant side effects... probably because I never take meds... lol. I couldn't take Compazine because it's related to Phenergan, which I'm allergic to. I do remember now taking the Claritan and Aleve for the Neulasta, and I never had any real pain to speak of with that, only some minor discomfort.
I really hope Annie and the rest who are just starting chemo have an easy time with little side effects.
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Hi everyone,
wow I hvent logged in here in so long.... MBJ nice to see a familiar name here.
Question: does anyone else experience shoulder pain ? i have shoulder pain on the right side ( not shoulder blade ), my BC was however on the left side. I've had the pain for about 2 months now, shaking it off to " i slept wrong " idea. I have a Orthopedic Appt. on the 23 rd, but was wondering if anyone else has had this post treatments ???...... kinda makes me nervous.... I try to think positive but that old negative thought keeps popping into my head.
You gals have a wonderful sunday !!! Monica
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CC4:
No problem - who can remember all the different names of all the many pills, and what they were taken for! I only remembered it because it did nothing for my Neulasta pain at all. I was sooooo disappointed because I actually felt the Neulasta pain was far worse than anything the chemo did to me and it seemed to last so long. I didn't like the compazine, as I swear - it made me more feel worse, but the Emend was great and did it's job completely, and the Zofran was good too. Ugh, just remembering it all makes me feel queasy right now! Be well!
Linda
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Monica- i developed a frozen shoulder about 6 weeks PFC. I carried my left arm (BC was on right) by my side for 7 weeks after my infected port was removed. My physical therapist said she took a class that suggested that women between 40 and 60 are prone to frozen shoulder due to extreme changes in hormones. Well, chemo induced menopause is defintely an extreme hormonal change! So perhaps it was a combination of both that caused mine. I did see an orthopedist, The x-rays showed nothing so he had me begin PT. It took 10 months to get my range of motion back. It will never be 100%, but it is close.
I would have it checked it out by your MO. he then can refer you to an orthopedist.
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Here are some smiles for dog lovers:
https://www.facebook.com/media/set/?set=a.10150776873218018.502767.393450018017&type=3
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And some more to make you smile:
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Am I the only one getting that d*mn BC.org survey pop-up *every* time I log in? Even after I've taken the d*mn thing?
I'd think that once you'd taken their survey multiple times (the same one, no less) you wouldn't have it popping up anymore.
Enough already!
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Heidi,
Love those photos! He has amazing photos - I shared on facebook. Thanks!
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Monisch, I think shoulder issues are fairly common with BC. I've seen suggested on many threads that if something is bothering you after two weeks you should probably get it checked out. I had a lumpectomy on the right side last February. I was having shoulder issues then, which caused me to have an open MRI because I couldn't hold my arm above my shoulder. I did for rads, however. Once all my chemo, rads, etc. was done, the shoulder became more of an issue and my PCP referred me for physical therapy. I was actually seen by an occupational therapist, who diagnosed mild lymphedema. After I started with her a few weeks, they did a shoulder eval and I had some range of motion issues, so I have back to back OT/PT appts twice a week. 90 minutes total. It has really helped. They figure that the issues I had previous, added to the radiation which can cause tightness and so can chemo, aggrevated a lingering problem. I don't have 100% motion, but they have gotten it to "functional", which means I can use that side to do most things: lifting overhead, reaching behind, out to the side, etc.
Heidi, I've gotten the survey several times. I took the first one on my iPad, then it popped up on my computer. I figured it didn't recognize my log-in, only that this computer hadn't responded to it.
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Heidi- it only pops up once in a while for me. I have never taken it though.
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thanks for the info....Im hoping it's only " frozen shoulder " thats bothering me. I think i'm going into menopause as well...... sometimes i get spotting and the cramps situation and it only lasts for one or two days.. nothing to brag about. Had a pelvic exam done with sonogram and all was okay. It's been over a year now since I finished my Chemo treatments and Rads.
Monica
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I had a frozen shoulder also, about a year to 1.5 years after chemo. Antiinflamtory drugs and a weeks worth of PT cleared it up for me. I think it is related to chemo - I think our body fluids and joints are affected by the chemo and little things like these pop up. As long it is treatable and not too painful and NOT the return of the cancer - no problem - I'll just deal with them one at a time.
Went to the 1 year follow up with the RAD. She smiled and told me all looked great and said that I was coming up on the 2 year mark of my diagnosis. Said that for TN that was a great and important milestone. I told her I thought it was 3 years to be excited about and she said 2. So happy me and the rest of us at or over the 2 year mark. Yeah!
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Swanny,
Thats nice news. 0 -
Swanny, my BS also considers 2 years more important than 3 or even 5. Glad you had a good appointment!
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Hi Ladies! I popped in about 2 months ago to read up on everyone and say that I was doing well...but I need help now. After chemo (last treatment was 10/10) I have had lingering aches and pains, the worst of them being the bottom of my feet hurting and my toes feeling like they wanted to explode and my toenails pop off (really, lol) I finally got on cymbalta and I am having a time with it!! Has anyone else tried this? I was on Wellbutrin and Zoloft and was told to discontinue the Zoloft, that the cymbalta would take its place. I'm 3 weeks on it...and was told it would be about 6 weeks before it fully kicked in.
So happy to see so many familiar names...you are wonderful to support the newcomers, as I once was...hugs to everyone!
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TnbcRuth -
Finding the right dose of Cymbalta can be a bit of a trick, I think. I was on it for a couple of years, at least, and found it effective. But, it operates differently than SSRIs and it has a longer half life. Give it some time. It's good you're still on the Wellbutrin while ramping up Cymbalta.
Our mental health during this challenge is so important, in all sincerity i hope you feel better soon. And I know that having my toenails pop off would definitely make me feel crazy.0 -
Frozen shoulder here too - long after completing tx. A couple of visits with a PT were all it took to learn exercises and get pretty good range of motion. Not perfect, but fine.
Heidi - only got the survey once, took it, and have not seen it since. Perhaps it didn't like your answers?
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Swanny- congratulations. I'm happy for you too!
Heidi- cute photos. Thanks for sharing.0 -
Wow Swannny..you just made my day! Two years huh? Great for you...happy, happy.
Watching the Grammy's...the Foo Fighters rock!
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Ok..a little embarassed to ask this here..but has anyone here heard of "scream cream"...
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Oh..and Linda..I want to be the first to say "yay'..to 3 years out..awesome..my friend!
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Titan, I read about it on another thread, can't remember the name.. Do a search and it will come up. Several gals swear by it; others say use with caution.
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Titan- I'd have a firehose and an ice pack ready.....
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Titan:
Thank you, Titan - it's been a looooooong three years, but I am so grateful to be running the last lap to that milestone, and so very thankful to have had them. I pray they continue.
Linda
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Heidi LOL!!!!
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