Calling all TNs
Comments
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Happy Anniversary Titan!! Make sure you use the guilt factor when he gets home- always leads to a nice gift or evening out!! HA!!
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Good afternoon ladies. I hope you are having a good day so far.
Angellinda- congratulations on being almost 3 yrs out. I'm curious as to what stage you were diagnosed at too! Any lymph nodes? We are all here for you. I hope you have a good day today. Do something nice for yourself.
Titan- happy anniversary! 29yrs is amazing. I hope you both can celebrate when he comes back from his business trip. I think your photo of the single toothbrush is priceless. It should be on a Hallmark card or something. 35 months since surgery is cause for celebration too! I'll toast you tonight with a glass of wine.
Lovelyface- I'm saddened you are having to go through this anxiety. I wish I could think of words to help you through this. I'm hoping with all my might that everything is going to be ok. I'll be
thinking of you tomorrow when you get your biopsy. I hope it is pain free and again everything is fine. I also hope someone is going with you. Breath in breath out and concentrate on each breath.
Pop a Xanax, I hope you have some. Please let us know as soon as you can.
Cocker spaniel- I had thrush real bad and could hardly swallow, but the Nystatin helped me also as it did Riley. As far as your CT scan, they had a new flavor, vanilla, didn't seem as bad as so many of the others I've
had, chill it, drank with a straw, pretend it's a milkshake, helped it go down faster for me.
I spoke with my onc's primary nurse today and my onc wants to see me tomorrow instead of next Tuesday. Im trying to not let myself get worried. I'll get the results from my MRI and she wants some extra X-rays done. Hoping I can share good news with all of you about my appointment with her
tomorrow. It is beautiful here today in the high 40's and sunny. Im feeling happy to be here. I'm going to go out and play a little in my greenhouse and maybe work on my painting some more. I'm working on an abstract landscape which I've never done before. I've always done figurative paintings. It's kind of fun to challenge myself. wishing you all smiles and sending hugs.0 -
Laurajane- we will all be with you in spirit tomorrow- praying for good, no great results!! have fun in the greenhouse today!
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LauraJane, praying for fantastic results, have fun today!
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Hey
I havnt got my hormone report yet and am scared tht am TN my bioposy shows am grade 2 Can TN occurs in grade2? I find that all of you are in grade3 tht s y I ask thank u
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Rosa - Most Triple Negatives are Grade 3 but there are a few of us who are grade 2 - I am a grade 2.0
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Happy 29th wedding anniversary Titan!
Loverlyface- Sending you calming vibes. I know waiting for result is hard.Deep breaths.....(((Hugs)))
CS- My onc prescribed what was called "magic mouthwash" for mouth sores. I had to use it once on AC and it worked wonders. Ask your onc for it.
LJ- Wishing you good results tomorrow.
MBJ- Hope you are feeling better and that the fact that your BC switched to + will open up new treatments for you. Fight on!!! We are all with you. (((Big Hugs)))
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LJ praying for good results tomorrow.
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LJ..you WILL hear good news tomorrow..I know it...know it know it know it...
Thanks for the anniversary wishes (both BC and wedding)..god he irritates the hell out of me sometimes but I miss him when he is not here...he was my rock during surgery/chemo/rads..very patient with me..while I was climbing the freaking walls...my daughter said he cried when the BS told them that they had "got it all" and that there was no lymph node involvement (not that I knew what that was at the time..duh)...he still won't admit that he cried..but I remember..oh yeah..I remember..
Mary..thinking about you all the time..remember...we are planning to get together since we are now neighbors!!
Lovelyface..thinking of you as well...praying for good results...I know you are freaking right now...its so dang hard to go through all these tests...hoping for benign
Cocker..hang in there ok? se's will happen...just take it easy..rest when you need to..eat when you want too...I still say that going for a little walk or just going out somewhere helps alot....don't cage yourself in your house...
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Oh yeah Rosa..tn can be Grade 2...that's a good thing...
I don't worry too much about being Grade 3...it is what it is...
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LJ - hoping tests come out good for you.
Saw onc today, will be calling hospice tomorrow. Even though the Halaven is working at keeping me stable, I still seem to be headed downhill. My appetite is nil, I'm not keeping much down, I'm using a wheelchair constantly, and am on oxygen most of the time. All I want to do is sleep. There are some chemo options I may be be willing to try as long as SEs aren't too bad. They are simply palliative so not a problem with hospice. My MO is consulting with Dana Farber also, but we aren't holding out much hope.
My doctor can't give me a definite timeframe. From one week to five months, but likely somewhere in between. I physically don't feel great, so my guess is three months.
I won't be posting much, but when the time comes, my best friend will be sure to let everyone know so there aren't any questions.
This board has meant more to me than words can ever say. I am okay, and am going to take these next weeks really trying to feel well.
I love you all,
Susan0 -
Susan, what a courageous thing you have done. As much as this board has meant to you, there are hundreds of us on here whom have been inspired, and educated, and helped by you! I lurk a lot but have checked back often to check up on, well, you, and a few others, and am heart broken, and inspired.
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CockerSpaniel, I got a mild thrush just after my second round. I didn't want to take any more drugs (cripes, we had enuf huh?) so I, in the days coming down from steroid high and before SEs kicked in, found a yogurt I liked (lemon meringue yum) and ate a few of those a day. Protein was good. And it got rid of the thrush, which was, uh, gross. I was on taxotere, which I blame for this nice SE. I also had neulasta shots the day after. The claritin thing sounds kinda kooky, but I didn't take it the first time, and I had horrible leg and body aches. And took claritin the second time, and still felt crappy the fourth day out, but no aching - so go figure. So for whatever it's worth...
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It seems like only days since I met you here on the boards. You always have the right words to calm me. I am wishing only the best for you, pain free days and much time to spend with your beautiful family. I think of you always and will be happy for the days you decide to post to us.
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Susan - I have no words except..........tears, tears, tears, and a very broken heart. I still want to believe in miracles. Please don't say goodbye. You have helped me so much on this board, so my heartfelt sincere thanks for all your help and guidance. I hope your kids are doing okay. May God bless you and your family, my friend.
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To suze35 (Susan),
I cannot find the words to express the sadness I feel about what is happening to you. You have been such an inspiration to all of us on the TN threads.
Thinking of you,
Sylvia.
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Susan, I have no words.....................Just sadness. Take care. Rest well. We love you too. xxx
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Dear Susan,
My heart is breaking for you and your family. It seems like just last week you were a ball of energy as we were galavanting in New York together laughing, drinking shopping and having fun. I remember how difficult it was to keep up with you. You were so patient with me trying to keep up. You are pure sunshine and full of such positive energy and full of life. We have all learned so much from you and you have always been there for all of us. I've especially appreciated your wise words when I had no where else to go or anyone to turn to, you were right there for me with a cold beer in hand and a big hug. It makes me so angry that there isn't something more that can be done for you. I too am praying for a miracle for you. Please let me know if there is anything I can do. If you don't have the energy to type you are welcome to call me. Every time I see a pair of Louboutin's I think of your wonderful smile. Hoping your feeling better than you think and we still hear from you often. Hugs to you, your wonderful kind husband and beautiful children.
Love,
Laura0 -
Susan- too many tears to come up with any meaningful words right now. You are always in my thoughts.
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Susan, I my heart aches for you today. Like so many others, you were such a major part of helping me get thru treatment. Your knowledge, support and positive attitude pulled me out of the funk of my initial diagnosis. I really do think of you daily, I hope and pray for peace, comfort and painfree days. Enjoy every second with your beautiful family. I'm praying for a miracle for you too.
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Susan,
We are all blessed by your grace and wisdom. My heart's hope is that you will remain comfortable and at peace.
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Lovelyface, Thinking of you and wishing b9 results for you today!!!!!
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Susan- OK, now I'm crying, and that doesn't happen much anymore. It's a beautiful day, and I am so profoundly sad to read your last post. Peace be with you, and your family.
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Susan -
PM'd you.
Love,
Linda
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Thanks mccrimmon and all you lovely ladies for your best wishes for the results of my biopsy today. I am very nervous as I have mentioned before.
My recent MRI results which I picked up from the hospital yesterday - I guess I should be really happy that my MRI of the Cervical Spine does not show any abnormalities but I am not entirely happy right now because I have serious doubts whether this was the correct test for the pain I am having. I understand from the tehnocologist who did my MRI that the MRI of the Cervical Spine shows only vertabral areas including lesions in the soft tissues there. When I pointed out my neck pain to her, she said, Oh! maybe you should ask your doctor for a soft issue MRI of the neck. I had never complained about pain in my spine or back, and am not sure how much of the neck area including soft tissue area is included in the cervical spine MRI. Does anyone know?
If anyone has any information on what appropriate scans should be done for neck pain about 3 inches from the middle of the neck towards the right, in the front, please let me know. They are muscles there, right? Or should I get a bone scan?
I am being extremely careful not to have CT scans, as I understand from reading articles on BC research that the strongest known environmental risk factor for Breast Cancer is exposure to ionizing radiation. To date only a few studies have been concluded of low dose common medical procedures, therefore, this remains questionable.
I had a lot of CT scans and other procedures involving radiation done to me in 2008 and 2009. Sometimes I feel that those could have been a cause in my particular case. I am trying to avoid CT scans as much as I can and therefore really need to figure things out other ways before I submit to a CT scan which supposedly involves ionizing radiation.
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I didn't mean to put my post and mess up the conversation about how sad we all feel for our dear friend Susan right now. I am sorry. I just want to add that my heart is so broken, I am so super sad, when I read Susan's last post. This really can't be happening.
Although I must say that I have a very good feeling in my heart, I feel that this bright woman is going to get out of this situation just fine. Hospice is just a mental and physical rest for her and her family right now, but I feel that she is so brilliant and so smart, that she will be able to get out of even this, she still has chances with other drugs. I truly believe that she is going to get better and be released from Hospice within 6 months, due to improvements in her health. Why do I so strongly feel like this?
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"Dance as though no one is watching you, love as though you have never been hurt before, sing as though no one can hear you, live as though heaven is on earth."
For all you brave, strong ladies
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lovelyface- I am the Queen of neck problems. It started in 1993 when a horse I was riding fell on the landing side of a jump and drilled my head into the ground, knocking me unconscious. Then, in 2003, I slipped on the ramp of my new horse trailer (it was frosty) and gave myself one H*ll of a case of whiplash.
For years I have suffered from migraines, and only now am I beginning to realize that these are/were probably "cervicogenic" in nature. In other-words... related to the cervical spine and radiating into the head. Chemo will fast track you towards arthritic conditions if you are predisposed to them.
With one bulging disc, multiple bone spurs, arthritis and locked facets I definitely meet the criteria. I have had multiple CTs (with and w/out contrast) and MRIs of my neck, but I can't honestly tell you that one more than the other shed any particular light on it. Obviously, MRI will show more soft tissue damage and a CAT scan more bone, as I understand it.
I have *extremely* limited ROM, particularly to the left (only about 30-40 degrees). I've gotten so use to it it surprises me when people ask what I did to my neck, as it is so obvious to them and so "normal" to me.
Anyway, my chronic pain is finally beginning to come under control with the injection of cortisone into the C2/3 & C3/4 joint. Next time, I'd like to go into the C 1/2 also and I think that will be the end of a lot of daily pain and headaches.
My pain sounds a bit like yours (not sure what the "in the front" part refers to) and my doctor ordered tests that would definitely show all of the cervical spine. Perhaps you might discuss the above regimen if your case warrants it. I can't believe I went 20 years before finally getting on what I now believe to be the right track.
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I agree with you Lovelyface..I really do (about our Suze)..
I'll be back later tonight to talk..I'm supposed to be working....lol
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Susan, I hope you have many many good days ahead with your family. Your beauty and grace shows in every post you've made here. ((Hugs))
Lynn
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