Calling all TNs
Comments
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Suze.......heavy sigh and heavy heart!. I just can't stop weeping and my head seems to be spinning out of control. Is it fair to say I don't want to do this anymore so I'm taking my toys AND my friends and we are going home?
Cancer can just go play with itself!
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Susan,
I am so saddened by this news. You have inspired me from the first time I read one of your lively, logical, always kind posts and I am so grateful to you for all the help you have given me, including pointing me to the Halaven trial. Thank you.
I believe you had mentioned in the past that you felt bad on pain meds and I hope that maybe hospice can help you feel better with better meds or better schedules for them or something. I too, of course hope for some kind of miracle that will reverse this path for you. Lots of love to you, C
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Love you Suze!!
Inmate so brave of you...
LJ-lovely flowers you are putting me to shame.
MBJ-you have helped so many. What more can I add??
Everyone else what a sad day right. I have cried and thought about you ladies constantly over the weekend. Not fair. Not fair.
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Susan I will never have the pleasure of meeting you here on earth yet I cry for you.
May the road rise up to greet you
May the wind be always at your back
May the sun shine down upon your head
May the rain full softly on your face
And until we all meet one day in Heaven as friends
May God hold you in the palm of his hand.
Praying for one of God's miracles for you. xx
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Susan - tears and heartache here too. Sending you calming thoughts, and wishing you many days of energy and comfort. Love to you... Karen
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My dearest Susan......
My heart aches and my eyes fill with tears from reading your recent post. May God hold your hand and make this journey peaceful for you. I pray for memories to fill your family's hearts and bring smiles to their faces should you leave us. You have touched my life in a very special way, and I have thought about you daily since the day we had lunch.
I too, am hoping this is just a difficult time, and you will get the rest and treatment you need to continue on.
God, please take care of our dear Susan. She will be sorely missed should you choose to bring her home so soon.
Warm hugs Susan,
Heather
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Susan - I'm at a loss for words. You are a shining light on this thread and an inspiration to so many of us. May you find comfort. Sending you gentle hugs.
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Dear Susan
There are no words... Thank you for all of your wisdom that you have shared with us. Sending you hugs.
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Susan prayers for you and your family. Keep fighting! You are such an inspiration.
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HeidiToo - thank you so much for your post. Wow, you sure have gone through a lot with your neck. I also feel that your migranes were from the cervical condition, as I also have had headaches and when I move my neck in a certain way, the headaches go away. I am glad that yours is getting resolved with the cortisone shots. I can actually live with this without any problems, as the pain only comes when I sleep on that side. I wake up with a pain which lasts almost all morning long. If it is coming from the cervical or muscle - that is fine with me. I just want to make sure that it is not coming from Cancer mets or anything suspicious like that. Just want to make sure I catch it early enough, whatever it is. Hopefully, I will make my doctors get to the bottom of this as I just need to know what is causing the pain. Thanks again so much. We all are made exactly the same way, therefore, it helps to learn from one another.
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Susan, This board has become a huge part of my journey too. I love all of you, and am filled with so much emotion right now. I hope you can continue to fill your mind with peace and life during these difficult days.
Prayers and hugs to you and your family.
Cyndi
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Susan, I wish you MANY pain free and joy filled days ahead with your family. You are such an inspiration. Bless you, sweet sister.
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Suze..remember our talk about heart and soul? Well..you are both to all of us on this thread..I'm hoping that hospice is just that...a way to make you comfortable and feeling good...just like you have so selflessly made us all feel good and comfortable on here...I treasure your friendship...
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Can I start out by yelling? I HATE F#$%^&G CANCER!!!!
I am so sorry about everyones latest bad DX's, Happy for the good ones, and just pissed about my latest scans. I have been having hip/groin pain for about 3 weeks, Finally got a bone scan scheduled last Friday, and saw the MO today. Being a Nuc Med Tech, I knew by looking at the images on the disc that there was a spot on my skull, but the radiologist read some areas that I thought were probably arthritis as possible mets, so....... now on to another PET scan, I am hoping that I can get it scheduled for this Saturday, otherwise not until next Friday. Ya know, as I said I am a Nuc Med Tech, so if I am radioactive from my scans I cannot scan anyone else. If I can't scan I don't work, if I don't work I will be living in a box under a bridge. ( well not really a box, I can use a hammer and nails and bild something out of wooden pallets) We still aren't sure what is causing the hip/groin pain because that area was clear, and the spine looked ok. So as I said, on to the PET scan and a new referral to the orthopod.
Becca
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Beccad - I hope you awake from this nighmate soon, with no mets, and that you can get back to work soon. I have a tent if you need one
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And I've got a caravan. Really depends on what your weather is like there, sun - the tent, cold- the caravan. I do hope everything goes well for you but as all the ladies on here have told me hang on and be positive, it really works, well most of the time. Thinking of you and hoping you get your scan on Saturday and all is well.
OBXK - I love your sense of humour. Annie xx
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Becca:
Wishing and hoping that this is all done quickly for you - the waiting is the absolute worse. Recently went through it myself and thought I'd have to be peeled off the walls. Hoping all will be absolutely fine. We're all holding your hand through this ride.
Linda
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Becca, I'm so sorry your going thru this now. I'm praying it's only arthritis.
Inmate - You had mentioned working on some t-shirts, I honestly think you should use the pics of yourself. You could always choose to grey out your face if your wanted. Maybe put "One in Eight" or whatever slogan with it, I don't know but I really do think your could/should use them. I think they are the perfect tool to get the point across. You are beautiful, those pics are beautiful and your hubby did a fantastic job capturing the reality of our situation. And quite frankly I don't give a F&%K if someone finds it offensive. People walk around with obscene gestures and language on their clothes everyday.
I'm just so angry and upset I want to scream!
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Inmate, I agree with Heather about the shirts. They woud be incredible!
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Teka, I'm sorry if my language offended you. I will try to refrain myself in the future but I find it is a way for me to release some of my stress and anxiety I feel towards this horrible desease.
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Laura Jane, How are you doing?0
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mccrimmon....i would be more than happy to put my mug (and the girls) on a shirt. funny, i was more worried about offending you girls than i ever would be offending the general public. a little shock therapy might do some good for those who aren't in the thick of it. i am still working on the shirts, just not as "on-it" as i used to be. i will keep you all updated.
my friend is doing a fundraiser - "curaoke" at our local eagles club. we will have a silent auction followed by karaoke. it should be a blast. for the event she had some buttons made that say "cancer makes my crabby" with a picture of a crab (like the zodiac sign). i think they are fantastic! if anyone is interested i can send a few your way. just pm my your info.
i just had a bit of a scare. my husband is out of town and the morning he left i noticed a rash on former lefty by my smaller tumor scar from my re-diagnosis in november. he was also out of town when i was re-diagnosed. hmmmmm, maybe that's my cancer trigger, my hubby being out of town. poor thing, i don't have the heart to tell him yet. i fear he may never want to go out of town again. of course i imagined the worst and just spun around my house until i couldn't stand it anymore and called my MO. this was on sunday. as luck would have it my Dr was on call. I went to see him on Monday and he took one look and said i have shingles. now ain't that just a bugger?! of course my mind immediately went to skin mets so was relieved to hear shingles. who in their right mind would be happy about that? i suppose that says it all!
i feel silly even complaining about it given the turn of events for Susan. this cancer crap is the gift that keeps on giving. ugh! it occurs to me that it is a bit like being afraid of the dark. i know i shouldn't be afraid, but am convinced their is a monster hiding under my bed just waiting to pounce. i've been sleeping with the light on since my DH left. so far it isn't helping with my anxiety or sleep.
i hope that everyone has a good day!
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inmate, Shingles?! Oh good heavens! You're right, the gift that keeps on giving. Sorry about the monster scare but glad the rash will be gone sooner than FC. Interestingly, I worry about shingles being triggered with all the crazy meds we get. Never had shingles myself, but have several friends who have. I hope you didn't get my round! (I have no idea why I worry about shingles when there are so MANY things to worry about.)
I will pm you for crabby shirts!
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Hey guys.... offensive? WTF... don't forget, I wore the shirt that said:
"F*ck Awareness Find a Cure" all last October. And there wasn't any asterisk where the letter "u" was either.
My son's rugby team loved it!
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HeidiToo - I love it too. I join you in saying "F*ck Awareness Find a Cure"......... And yes, I wouldn't put the letter "u" in it either.
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Lovelyface, how did your appt go yesterday?
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Lovelyface- how did it go yesterday?
Inmate- has your rash spread? I dont want to freak you out but I had an onc that I hadn't seen before actually a fellow try and diagnose my skin mets as shingles. I really hope your rash has spread to other areas and it is shingles. I would much rather have shingles than skin mets. again I really don't want to put fear back into you and I pray your onc is correct.
I saw my onc yesterday. I'll continue with the Halavan. It's not working as well as it did but it has so far kind of slowed it down. I've had the max rads so as they were hoping to radiate the tumors that have rendered my left arm immobile, that is not an option. No mets to tailbone or hips seen from
X-rays and no significant change to my tumors not worse than before Halavan but not better that's kind of good, better than worse. I'll take that with a smile. I discussed the metformin and although my onc wrote the 'script for it I haven't started it without some more investigating, she claims it's beneficial to woman that are overweight, I've always been an ideal weight, I've lost about 15- 20lbs but most of that is muscle mass since my diagnosis, she feels it would be dangerous for me to take. I'm not sure she really knows that much about it. I'm due for another complete scan but she feels like what's the point, my only option is to continue with the Halavan , my thoughts today are to have a scan, start metformin and continue Halavan and then get rescanned in say 3 more weeks if all goes well. Any thoughts? I will do some more investigating on this metformin. This is the first I've heard of it only benifitting over weight or heavy women. By the way my bone pain is caused from me being literally skin and bones I have sadly lost my butt. Where's Fredericks of Hollywood when i need them, they used to sell butt pads. I'm lucky as far as my onc really doing anything I ask, she is very open.0 -
Laura, glad to hear that its not worse. and no mets to tailbone or hips.
Metformin - My onc refused me but told me to ask my family dr. I have my yearly physical / pap on Friday, I plan on begging him for it. I can't believe I'm going to say this. Thankfully, I'm overweight, so hopefully that will be in my favor. There that will be the first and last time I will ever say that. Are you still doing your macrobiotic diet, meditating, etc??
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Hi all, I am a long term BCO lady, not TN, but have a friend that had ER pos cancer twenty years ago then a TN tumor under her arm, and now mets...she doesn't know til Friday what kind it is..any suggestions...?? The onc basically told her if it is TN to get her affairs in order...hmmm and this is at a National Cancer NIH approved Center..
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Hi all, I had the MRI guided biopsy and then 2 images of mammo. The procedure is very uncomfortable as we all have experienced. They took 12 samples from the right side. The Rad said that the enhancement was very small, however, they still have to follow through once they see anything like that. I asked her what are the chances of it being cancer, she said even if it was cancer, it would be a very early stage, or could be a DCIS. The tech. told me that they do lots of biopsies and a "very large" number of them are benign. They just have to follow protocol once they see an enhancement on an MRI. I was a bit relieved to hear this, however, am sitting on pins and needles at my desk at work. Just waiting for my cell phone to ring........ which could make me celebrate or it could change the course of my life forever. Thanks everyone for your love and support.
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