Calling all TNs
Comments
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Nana- Great news on CT scan!!
Fighter- I need to get out there and start planting. My husband has done quite a bit in the vegetable garden, but it's my job to do the flowers! I think it is still a bit early for most flowers here, so maybe I can procrastinate a while longer!!
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Donations to assist Laura's children with estate expenses and/or Joe's education will be greatly appreciated and can be made to either the Laura Shively Benevolent Fund or the Joseph Shively Education Fund, both at Key Bank (418 S. College Mall Road Bloomington, IN 47401).0
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Heidi - do you know if there's a way to donate to the education fund online? I was going to send you a PM but since you just posted a few minutes ago, I thought I'd check here.
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Ormie on vimeo http://vimeo.com/m/27256955
Something funny to enjoy, have a great day all!0 -
christina and bak - I just wanted to chime in and tell you that I was also 5% positive for Progesterone (PR) not Estrogen. My Onc. said he was going to twist my arm and make me take aridimex, since I am post menopause. I took aridimex for first 2 months, perfectly. It made me look really pretty and I was losing weight, yes losing, not gaining like others. But after 2 months, I experienced the SE from hell. I could have become severely disabled. My right arm was stiff and very painful. I was told that I had carpel tunnel, and my nurse argued with me that it was caused by typing for 30 some years. I was shocked. It was100% from aridimex, no doubt. The pain in my right hand/arm went away after couple months. I think my back hurts today because of what aridimex did to me, that is it somehow deteriorates your muscles, bones or something, especially TN's. I stopped it. My Onc. was not happy, but I think aridimex drastically reduced the hormone levels in my body.
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Donations to assist Laura's children with estate expenses and/or Joe's education will be greatly appreciated and can be made to either the Laura Shively Benevolent Fund or the Joseph Shively Education Fund, both at Key Bank (418 S. College Mall Road Bloomington, IN 47401).
To donate to either of the two funds listed above you must send a check to the branch address above, attention "Karen" (she knew LJ) and specify which fund you want the money to go towards: benevolent (pays for funeral expenses, etc.) or educational (goes towards Joeseph's education). He is 18 and, as some of you may recall, LJ had hoped to live to see him graduate.
You can specify if you want to be anonymous or named in the donation, and if you want a receipt for tax purposes.
If you wish to have any further information beyond what I have provided the bank's number is:
(812) 331-0600
In conclusion, I sent the following email to the Wonderlab:
Hi Courtney,
I spoke to you last week about a bench in memory of Laura Jane Shively, landscape architect.
It has come to our attention at breastcancer.org that two funds have been set up at Key Bank in Bloomington for LJ's expenses and her son Joseph's educational trust. Since these are already set up, the decision has been made by the gals in BC.org that donating to either of these existing accounts would be the best course of action for us to take, as they represent LJ's concerns and wishes.
Therefore, we will no longer be pursuing the bench. I *am* hoping that her daughter Sarah might still be able to place a limestone plaque in honor of her mom somewhere in the Wonderlab Garden, and I will be suggesting this to her as well.
Thank you for your time and consideration in this very sad matter.
Regards,
Heidi
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Thanks so much Heidi for all the info re the funds, as I tried googling the bank over the weekend to see if we could do it online, but I had no luck finding anything pertaining to the funds. I will mail off the check in the a.m. when I get to work. And thanks for doing all you have been regarding the bench and keeping us so well informed. It's really swell of you to take the time to do this, and I see LJ smiling down at you!
Linda
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ATeamNana:
So happy for your great results! Celebrate!
Linda
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Thanks for the info Heidi..I'm thinking of going with the college fund for Joe..with both my kids in school. (well one out but debts to pay)..any help Joe can get will help him out...
This is probably stupid..but does anyone know IF there is help with college for kids if a parent has cancer? I kinda hate asking this acting like I want a hand out..but dang..
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lovelyface-that sounds terrible! I am a bit worried about se's and I really don't know when he plans on starting me. He said I should have a hysterectomy about 6 months after rads, wants me to regain some strength I guess, so I wonder if he woud starte me on tamox. now and then switch me to an ai after surgery. I see him in a couple of weeks so I will find out more then. I know absolutely nothing about tamoxifen or ai's! I guess most of us on the trp neg thread wouldn't!
Titan-I am not sure, but it sounds like a good idea. Cancer is definitly a financial stress, even with good insurance!
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Bak - Maybe the tamox will work out great for you. And even if he changes it to Aridimex, many women hardly have any SE's. If Aridimex doesn't work, try Aromasin. Someone I know is doing very well on it. Whichever one, I hope one of the anti-hormone works for you. I hope you realize you are very lucky. I mean in my opinion, first of all in 2002, you had stage 2B which is amazing, and having been BRCA positive, you had a nice long break of 9 years. And when it hit you the second time it was a new primary - extremely lucky! Even though you seem to fall on the border of receptor positive/negative, I truly hope these anti-hormones work for you, that way, you are protected for at least 5 years. I honestly felt that Aridimex was a wonder drug when I first started. It just made me into a different person, toned, thinner, happier, prettier, with all the hormones getting out of my body. Some have said that if continued, I would have balanced it out to a certain level, and the SE's would have gone away. I had to choose between my job and the medication, as I felt completely disabled in my right arm and fingers. Good Luck!
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Thank you Heidi for taking the lead on this. You are the glue that holds this board together. I just love your humor it really breaks up the anxious feelings we have from time to time.
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I have just finished my first four treatments of A/C and start Taxol next week. How does the Taxol compare to the A/C? I had few side effects with the A/C thankfully. My onc said that T is easier on the stomach than A/C - but neuropathy and joint pain are the most common side effects. What are the differences that you have felt? Is the T easier and less SEs than the A/C?
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beckyv-it is so different for everyone, but it seems like for most taxol is easier to deal with than ac. I think your onc was right on.
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bak, don't be afraid to try another drug if the Tamoxifen doesn't work out. It didn't for me, so my onc switched me to Aromasin, which had all of the previous SEs PLUS painful, creaky joints. I wasn't initially thrilled with the idea of trying another drug (Arimidex), but he convinced me to give it a try. I'm glad I did, because I'm having no SEs so far. I'm losing weight (metformin is helping there, too), my achy joints are gone and I think I'll have no trouble finishing out the 5 years.
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Some humor:
The older we get....
Recently, when I went to McDonald's I saw on the menu that you could have an order of 6, 9, or 12 Chicken McNuggets.
I asked for a half-dozen nuggets.
'We don't have half-dozen nuggets,' said the teenager at the counter.
'You don't?' I replied.
'We only have six, nine, or twelve,' was the reply.
'So I can't order a half-dozen nuggets, but I can order six?'
'That's right.'
So I shook my head and ordered six McNuggets
(Unbelievable but sadly true...) (Must have been the same one I asked for sweetener and she said they didn't have any, only Splenda and sugar.)
TWO:
I was checking out at the local Wal-Mart with just a few items and the lady behind me put her things on the belt close to mine. I picked up one of those 'dividers' that they keep by the cash register and placed it between our things so they wouldn't get mixed.
After the girl had scanned all of my items, she picked up the'divider', looking it all over for the bar code so she could scan it. Not finding the bar code, she said to me, 'Do you know how much this is?'
I said to her 'I've changed my mind; I don't think I'll buy that today.'
She said 'OK,' and I paid her for the things and left.
She had no clue to what had just happened.
THREE:
A woman at work was seen putting a credit card into her floppy drive and pulling it out very quickly.
When I inquired as to what she was doing, she said she was shopping on the Internet and they kept asking for a credit card number, so she was using the ATM 'thingy.'
(keep shuddering!!)
FOUR:
I recently saw a distraught young lady weeping beside her car.
'Do you need some help?' I asked.
She replied, 'I knew I should have replaced the battery to this remote door unlocker.. Now I can't get into my car. Do you think they (pointing to a distant convenience store) would have a battery to fit this?'
'Hmmm, I don't know. Do you have an alarm, too?' I asked.
'No, just this remote thingy,' she answered, handing it and the car keys to me. As I
took the key and manually unlocked the door, I replied, 'Why don't you drive over there and check about the batteries. It's a long walk....'
PLEASE just lay down before you hurt yourself !!!
FIVE:
Several years ago, we had an Intern who was none too swift. One day she was typing and turned to a secretary and said, 'I'm almost out of typing paper. What do I do?'
'Just use paper from the photocopier', the secretary told her.
With that, the intern took her last remaining blank piece of paper, put it on the photocopier and proceeded to make five 'blank' copies.
Brunette, by the way!
SIX:
A mother calls 911 very worried asking the dispatcher if she needs to take her kid to the emergency room, the kid had eaten ants. The dispatcher tells her to give the kid some Benadryl and he should be fine.
Then, the mother says, 'I just gave him some ant killer.'
Dispatcher: 'Rush him in to emergency!'
Life is tough. It's even tougher if you're stupid!!!!
Someone had to remind me, so I'm reminding you too.
Don't laugh.....it is all true...
Perks of reaching 50 or being over 60 and heading towards 70!
01. Kidnappers are not very interested in you.
02. In a hostage situation you are likely to be released first.
03. No one expects you to run--anywhere.
04. People call at 9 PM and ask,"did I wake you?"
05. People no longer view you as a hypochondriac.
06. There is nothing left to learn the hard way.
07. Things you buy now won't wear out.
08. You can eat supper at 4 PM.
09. You can live without sex but not your glasses.
10. You get into heated arguments about pension plans..
11. You no longer think of speed limits as a challenge.12. You quit trying to hold your stomach in no matter who walks into the room.
13. You sing along with elevator music.
14. Your eyes won't get much worse.
15. Your investment in health insurance is finally beginning to pay off.
16. Your joints are more accurate meteorologists than the national weather service.
17. Your secrets are safe with your friends because they can't remember them either.
18. Your supply of brain cells is finally down to manageable size.
19. You can't remember who sent you this list.
20. And you notice these are all in Big Print for your convenience.
Never, under any circumstances,take a sleeping pill and a laxative on the same night!
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Ateamnana:;Yeah for good scans!
Heidi, tahnks for info for LJ's funds.
Tired tonight from traveling to and from JAX to see Navyson and his family.
I'll catch up later
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LOL! those are great!
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Ok..I'm laughing here...some of you tn's are YOUNG and won't get Heidi's jokes...but I do..ha ha....
See it all gets better when you get older..you have an excuse for everything...I use this excuse daily.
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I guess I am old too.....hahaha Thanks Heidi
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My husband once asked for "a couple" of something at a restaurant and the reply was "how many is a couple?" I think he should have answered "4"!
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ok ladies, I have a question....I keep having joint pain in my fingers, is this normal after taxol and ac? My ankles and feets tend to be achy in the evenings...is this also normal...anything that can help with this?
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My heart is breaking for the 3 wonderful ladies who helped me thru this past year...all the suggestions, advice and comfort they gave me....May God bless their families and friends and all they touched...
just read all the post and i think im in shock
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Heidi---ROFL--thanks for the great laugh...needed it
Maggie
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Ha ha I love a good joke.
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Hilarious post, Heidi.
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Moe,
Joint pain in hands, feet, ankles is all typical with Taxol. For me and others, it seemed worse in the evenings. How long since you had treatment? I took Neurontin (gabapentin) for neuropathy-tingling/numbness in fingers and toes. I think there are supplements that some take but I am not familiar with those. Maybe others can speak up on that.
Kristy (aka Huskerkkc)
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Enjoyed the laugh!
I've been really fatigued of late, all test come back fine. Found a study saying Omega 3 may help.
http://m.medicalxpress.com/news/2012-03-inflammation-fatigue-tied-omega-intake.html0 -
obxk-have you had your thyroid checked?
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Hi Navymom. Glad you made it safely back home.
Heidi. I loved the jokes.
OBXK . Hope you get some energy back soon.
Take care all.
Marsha0
