Calling all TNs
Comments
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I have read in so many places (not just the cancer ones) that sugar is evil, and should be avoided. Some even say sugar feeds cancer cells! So I plan on avoiding!
Yes, I too have read that the main thing we can do is exercise and eat a low fat diet.
there are great books out there to help you change your diet! We can do this!
Cheers!
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One of my favorite food authors is Tosca Reno - she writes the Eat Clean Diet books. Check her out - she has a website also!
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Beacher - check and see if there is a Metformin trial in your area. There are hundreds of them across the country. If you're overweight, your PCP may be willing to prescribe it for you. The clinical trial dose is 850 mx twice a day. It's the latest "hope" for us TNs and it looks promising. There are a couple of discussion threads on the Metformin trials that you might find interesting. You can read the info on the clinical trial at
http://www.clinicaltrials.gov/ct2/show/NCT01101438?term=metformin+and+breast+cancer&rank=6
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Thanks Michelle! I forgot the Metformin trials since my Dr. (your "friend" and mine Dr. Monaghan!!) won't prescribe it for me!
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Tif - you should get a second opinion, really
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I am so saddened at the loss of dear wonderful Mary. This is just too much but I know they would have wanted us to stay positive, celebrate their lives and celebrate each day of our lives.
I am just so saddened for their families and loved ones. Cancer is so cruel. My cousin was just diagnosed with brain cancer and she is 55 and a nutritionist who is so careful about her health. I think cancer just strikes and strikes hard sometimes.
The best thing that happened for me today is that my daughter and her husband are staying over as they are running a half marathon tomorrow...13 miles.0 -
My MO called me today, on a Saturday! Thank goodness it was only to tell me that my "eye allergy" is really a staph infection. How can I be happy to hear that I have a staph infection, again! He said it is the kind that we all have on our skin. He said it is ok for me to get my port in an Wednesday. I think my immune system is just shot from all the chemo and radiation I have had. My blood counts were ok, but my lymphocytes are low.
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Painting - I am so sorry to hear of your cousin's dx. I hope it is treatable. Do they think it is a primary tumor? Sending good thoughts her way. Enjjoy your visit from your kids; may they run a great race, in perfect weather! Hugs!
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I check in here from time to time, and am so saddened by the losses of LauraJane,Susan, and Mary. Yes, triple negative can be ruthless. But please take hope from my date of diagnosis. I am NINE YEARS OUT as of February! So it's not always a death sentence! I do exercise, but I eat sugar and drink wine and eat all kinds of bad stuff:(
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Maywin congrats on 9 years! WOOHOO! Thanks for stopping by and giving us hope!
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Oh as usual I forgot something....a friend of mine in this town was also diagnosed six months before me and she had either three or four positive lymph nodes. She's a TN also, and still doing fine. We both had mastectomies and chemo, she had rads but I didn't.
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Painting, I hope you have a great visit with your kids! I'm very sorry about your cousin, too. I hate this disease. It strikes so suddenly and so randomly. I have a friend who had brain cancer twice. She is a tough as nails lady who runs a dog and cat rescue. It has been over eight years since it recurred and she is doing great. It was an aggressive type that generally younger people get, but I cannot remember the name.
Bak, I had all sorts of eye issues, too at the end of extended treatment - last chemo was 2/17 and even my constant tears have begun to dry up! I had a lump on top of my eyelid, then pink eye, then herpes simplex next to my eye - BUT now I am fine! I think some of it was caused by my eyelashes falling out then when they tried to grow again, the surrounding oil glands became clogged. I started using baby shampoo on a Qtip to wash my eyelids every night. This helped tremendously.
Best thing that happened to me today was getting out in the sunshine and walking/jogging 4 miles. I felt very positive while jogging, like my old self.
Maywin, Thank you and congratulations, too!
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Maywin - congratulations on nine years...you are an inspiration. Thanks for letting us know.
The best thing today was visiting my mom for the weekend to celebrate her 79th birthday. My daughter and I took her shopping. She's on oxygen 24/7 and uses a walker because she has congestive heart failure (but no history of breast cancer, thank goodness) so she doesn't get out much. She was so happy to hit the mall and was such a trooper shopping 'til she dropped.
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Happy St. Pat's day everyone!..I used to go out and party the night away on St. Pat's day but now I'm sitting at home talking to you and watching basketball....times have changed...lol
Beacher..I wish I knew what to do after treatment...the only thing I can say is to exercise, try to eat right and possibly put this behind you...being active physically and eating good stuff helps with the mind as well as the body... every time I start freaking out I just go for a jog..did alot of jogging with the news of Suze, Laura and Mary...
You guys may be interested in the story of a couple of co-workers..One is TN and 8 years out (or more)...another has just been diagnosed..lobular but estrogen driven..two tumors in her breast...anyway...the other tn and I have been talking to her about things...kinda ironic but my tn co-worker is positively convinced that being tn is better than er positive because we don't have to deal with tamoxifin...my just diagnosed co-worker is already freaking out about taking it... saying it causes uterine cancer, etc...
I just find it a little funny that a tn is actually thrilled that she didn't have to take tamoxifin...
Maybe we should be too????
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Sugar..my mom is 77 and gets short of breath..she thinks it is because she is "chubby"...They can't find anything wrong with her so maybe she is right
My Dad and Mom took my DH and I to a casino last night..remember I told you that they gamble and then go to church..(Laura loved that..heh heh)...Anyway, they drove us, and gave each of us $50 bucks..and then drove us home...Here I am..52 years old and I felt like I was a kid again...what fun....the thing is..WHEN..they cannot drive to the casino (or to church..lol)..my DH and I will be the ones taking them...pay back time...
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Thank you for the welcome a few days ago. I wish that none of us had to be here and I am so very sad to read of the grief that this board has had to bear with the passing of 3 cherished members recently.
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Titan - I love your family! Sounds like more fun than bingo!
As for the tamoxifen - for me, it was a terrible drug. Horrible bone pain and fatigue.I only took it a year. My BS says a lot of women who took tamoxifen, have it come back as TN, as I did.
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There are pros and cons to everything. I, too, am glad not to have to take Tamoxifin, as the SEs can be bad and it only delays the fears of recurrence, IMO, by providing a "safety net" for 5 years. Also, it's a daily reminder of "oh yeah, I had cancer". Believe it or not, there are many days when it doesn't even cross my mind; it's coming in here that reminds me (more pros and cons).
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When they found the really low ER receptors (5-10% mod stain) at surgery, my MO wanted me on tamoxifen. I saw 2 other oncologists, both TN specialists - one said the tamoxifen wouldn't do much and if I had problems I could quit taking it, and the other called me low estrogen positive and I needed to take it. I've been on it about 10 days. My local onc thinks my tumor mutated in response to the chemo.
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Maywin thank you so much for cheering us up!!!!! Congrats on the 9 years out! I know someday I will say the same thing...
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Congrats Maywin! I love seeing posts like yours- very reassuring!
Michelle- I am going to ask my Gyn when I see him next month- he is an awesome guy! If he won't, I will consider the dr. you recommended!
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Maywin - your posts are encouraging and uplifting! Something all of us TNs need right now and something only a sister would know. Thanks.
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Christina, I forget, were you at 0% er with your biopsy? I was 3% at biopsy and the were going to redo the test after bmx, but since I had a complete response they do not have any cancer to test. So my mo still wants to start me on tamoxifen. I am thinking of having them send some of my tissue from the biopsy to a different lab and have it re tested. I do not have 100% confidence in the lab since the mistake they made with my mastectomy tissue. My mo calls me er positive, he says positive is positive.
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Well girls the best thing that happened to me today, was my hubby, boys and I had a bonfire in our backyard. We cooked hotdogs and made smores
Hope all is well and I hope we all have a great week.
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The best thing that happened to me today is we spent almost the entire day with our grandkids. It was so beautiful here today and we had a "swing building" picnic in their back yard. I'm not sure how the weather could have been any better.
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The best thing that happened to me today was reading all the positive posts from our TN sisters who have gone 3 yrs and beyond without recurrence, thank u so much. I know I will do the same every 5 yrs once I'm done with all my treatments and surgery.
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This definitely gives me some hope. Thank you!
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It was beautiful here today. I agree all the positive posts are certainly an encouragement. Thanks to those that posted!
I am two years out and counting on many more:)
Recent CT Scan showed not liver lesions .... no signs of any abnormalities.
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Bak, I think I may have tested 1% or less ER at biopsy and I had a good biopsy - they did six samples. I remember there was a recommendation from the pathologist writing the report at that time to retest for ER following surgery - it almost didn't get retested. I'm sending you a PM.
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Such a sad week.
I already donate to the American Cancer Society through payroll deductions. Suze was such a pretty lady. Just as I imagined. I lovely bob cut and a soccer mom at heart.
I will donate to BCO.org in Mary's honor, and I SHOULD I come here so often for support that I generally forget to support. Can I blame it on the chemo???
Please someone let us know about LJ son's fund. It is so hard to loose a mother. No one cares for you like a mother can. That is my biggest prayer, PLEASE let me raise my kids so that they do not become someone else's burden.
I planted Pansies(?) over the weekend. They look GREAT and have added so much color and life to our front yard.
Stay blessed ladies and enjoy spring, and count all your blessings!!!!
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