Calling all TNs
Comments
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Ruth, wish I was close by so I can go with u, I will be there in spirit, best of luck!
Karen, thanks for the suggestion, I'll keep that in mind.0 -
Ruth.....sending you lots of love and positive energy.
Lovelyface.....I hope you can find a good space to be while your family visits.
This chemo is the pits. In the 2 years I have been doing active treatment, this is the closest I have been to tossing my cookies. Nausea is the absolute worst! ugh!
Have a good night. Love to you all.
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Hi Ladies. My we have been busy.
Merrinell - hopefully you will get less quesy with your reduced dose. Must be lovely and peaceful in the mountains for you. A space to heal for a while and just think. I really envy you. Hope everything turns out fine for your mammo.
Lovelyface - Yes you do deserve love and compassion but I really think it wouldn't hurt talking to a counsellor or someone you feel comfortable with and it could help you a lot. I see my counsellor tomorrow and she is wonderful and I can really let go. Hugs to you.
LuvRVing - hoping your PET scan is fine. Thinking of you with hugs.
Naan - What a great camp for kids. If anyone needs help and understanding for this horrible time kids do. So much must run through their minds if they have a sick mum or someone in the family ill. Must be really scary for them.
Sophietoy - Its good you are happy with your oncologist. I have just got my oncologist back that I had in the beginning of treatment and she is wonderful. It really helps that you have someone on the same wave length as yourself and understands how you feel.
TnbcRuth- Glad you didn't get fired from your job for something that is not your fault and you have no control over but sorry you have to go through these times on your own. Just remember that all of the ladies on here will be holding your hand just when you need them too. I was so sorry to hear about your sister but no lights will show up for you. Big hugs to you.
Titan - yes it is hard to go over all the things again when you are wanting to put it to the back of your mind but I know you will be there for her. Sometimes I just want to forget it until I have to think about it just so that I can feel normal again for a while. (if anyone could call me normal!)
LRM216 - big hugs to you too for going through all that scary stuff alone. Thinking of you.
OBXK -Happy birthday for tomorrow. You don't look a day over 35. Yes things are looking up for you and will stay that way. Just keep cuddling that little lamb.
Inmate - I take my hat off to you. I just could not go through all that sickness. You have my complete and utter admiration for what you are going through. Make sure you kick the arse of that cancer. Big hugs.
I think all of our posts are getting longer and longer because we are so busy chatting on here. Have a good day tomorrow ladies. Don't do anything I can't do!!! and if you do enjoy it. Annie
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Ruth, I'm sending all positive thoughts your way! Hugs, Christina
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Ruth, I'll be sending you positive thoughts and vibes and Friday. Karen, Happy Birthday, and many, many more!
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Ruth, holding your hand today
Happy Birthday Karen!
LuvRVing - why do they make you wait so long for the PET? Can't they move it up?
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Happy Birthday Karen...you old thing...ha ha..I'm still older than you..
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OBXK....I am so jealous....I loved playing that SORRY game with my son....He is almost 23 years old now and a thousand miles from home
Do enjoy those little moments in time. Thinking of you, Ruth. Wish we lived closer....
Thinking of you, too Lring. Scanxiety ARGH! I hate it.
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ugh ugh UGH last night I found a lump in the site of my original tumor, right above the lumpectomy scar. After the lumpectomy I had a mastectomy and they re-excised the lumpectomy scar, no sign of cancer cells anywhere in the re-excision. Why why why is this happening? I haven't told anyone, including my husband, because we have been having a really rough time in our marriage and things seemed back on track... it's been 3 1/2 years since my diagnosis, can this possibly be scar tissue? The area has always been lumpy, only now it seems moreso. If this is cancer again I just don't know how I'll get through it. I need to call my oncologist but am terrified.
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Minxie, my lumpectomy scar is lumpy too but please call your oncologist.
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Minxie - Been there, done that. I went through the same thing right before Christmas. Go to your phone and call your oncologist. You need to know and you won't be able to stop thinking about it until you know. It's probably nothing, but I know that feeling that you must have in the pit of your stomach. Take care! I'll be thinking of you!
Kathy
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OBXK - thanks for keeping the "best thing today" going. Hopefully it will inspire more of us to do so too.
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Best thing that happened to me today.
One of my bosses wrote a letter of recommendation for me that made me sound like a rock star! Now, just hopes it helps me get a job!
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I see my oncologist at 9:00 am tomorrow. I'm sure he'll recommend some type of biopsy, sigh... Ksteve - what was you lump like?
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Minxie - It was a "new" small lump. It did resolve itself with time, but my bloodwork showed some elevated levels, so my onc ordered a petscan. It was clear (the day before Christmas)! My PS and onc thinks it was scar tissue. I'm glad you got an appointment. I know I felt like throwing up until I got the pet results. Please let us know how it goes!
Kathy
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McCrimmon - I might be able to get a PET sooner if I went to a different hospital. It's probably not perceived as an emergency, and I'm OK with that date. My daughter has her college graduation ceremony on 5/12 and I don't want anything to spoil the event. So in this case, ignorance will be bliss. I'm hanging onto "false positive" until proven otherwise. I looked again at all my bloodwork and there is just nothing there that indicates trouble. Even the blood calcium level is normal (if it were high, it could be a sign of bone mets). I was able to compare the last three sets of numbers and it seems I'm really fine.
Inmate - sorry that the chemo is tougher this time. I hope things ease up and you can get through treatment having kicked BC's a$$.
Minxie - sending (((hugs))) and wishes for the lump to be nothing to worry about.
My MX scars are lumpy too, especially since I had TEs that were removed. I'm looking forward to my DIEP surgery that will clean up all that crap.
Best thing so far today - my new Canon Powershot SX40 arrived and I was able to take a picture 30 seconds after taking it out of the box. Now I'm ready for Paris! 23 more days!
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TnbcRuth - Oh Babyheart, I wish I could be there for you. Oh, I know exactly how you feel. I wish I was rich enough to just fly over and be with you at this most trying times. This is where I need to win a lottery so that I can help each and every woman everywhere in the world who is facing this disease.
minxie - I truly hope it is the scar tissue from your lumpectomy. I am not sure if I understand you well, at first you had a lumpectomy, which is removing the lump only and then you say you had a mastectomy. So if the whole thing is gone, where is the lump? I had a lumpectomy, then radiation. After Rads, very near to the scar is a very pointy hard lump, which 7 doctors said was part of the scar tissue. To me it feels like a lump, however, this did not light up on the MRI's - several of them, so I am happy it is the after all the scar tissue. Feels exactly like a BC lump.
Teka, and all others - thanks so much for your posts regarding my depression situation. I am trying to see if I can find my insurance to pay for some counseling sessions. I had seen a counselor many years ago when my son was going through difficult times, and sure enough, it had helped a lot. My job paid for the sessions. Amongst other bills, it is hard to add another one just now.
Whoever had suggested the budwig protocol - thank you so much. I have been trying this for the last couple days, and I can tell a difference in my energy. It has uplifted me so much. I am afraid to take so much flaxseed oil, though. Can it make my cholesterol higher? I know it is good with Omega 3 oils. It supposedly has 0 cholesterol, but I am not sure, as it is oil, afterall. 120 calories, all fat calories.
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Lovely - I'm thrilled to hear you're considering counseling. Maybe the American Cancer Society can recommend someone who works through them at a discounted rate?
Ruth - Cocker was reading my mind. We'll all be at the table holding your hand Friday.
OBXX - Happy Birthday!
Welcome April.
Minxie - Many of the women on here have had scar tissue scares. Take some deep breaths and let the Onc check it out. HUG.
LuvRV - I hope everything comes back perfect. I do want to thank you for the best laugh I've had in awhile. "and my Dana Farber MO does them every time she does labs, which is every three months at this stage.". Are there two DF's, because I'm definitely not at your DF, lol. Tried to get a PET scan when I was diagnosed ...."not our standard of care". Asked about tumor markers and was told "we don"t find them reliable and they're not our standard of care". The only follow up I'll be getting is a yearly mammogram. I'm starting to think I need to get the name of your oncologist!!!!!!!0 -
Lovelyface - I had a lumpectomy, then chemo, and then at my 6 month mammo after chemo they found DCIS in the bad breast. I decided to have a BMX at that point. They removed the breast tissue through the nipples, and re-excised the lumpectomy scar (on the underside of the breast) to be sure everything was clean. Now the area of the lumpectomy scar on the underside of the breast is hard and lumpy - there was always a line of rough tissue along this ridge, but I always assumed it was an edge of the implant. I haven't obsessed over it in awhile, decided to feel it last night... bad mistake.
Thanks Ksteve. I have a call into my psych's office for anti-anxiety meds.
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Minxie,
So you haven't felt that area in a while and now it feels more lumpy? Is it possible that things have just settled in a bit and feel a bit different?
KSteve, didn't something shift on you?
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Kathyrnn - that is pretty funny! Actually, there is more than one DF location. My MO is at the one in Londonderry, NH and yeah, I got that "we don't do this stuff" story. But my recurrence was so aggressive and I was Stage 3B in a matter of a few weeks after getting a clear mammo, so no one argues with whatever I think I need to keep tabs on what's going on. My RO (the chair of RO at Dana Farber) said that he was glad he didn't have to negotiate with me. And my MO said I was the toughest negotiator that she had, but that I did it nicely...lol! I keep getting the same argument everyone else gets - there is no evidence that discovering mets earlier makes a difference in survival. Well, how about if we discover what's going on before it spreads? Because my tumor marker tests showed a pattern in the past, she is OK with doing them along with all the other lab work. We agreed that there would be a PET only if the markers were elevated, which makes perfect sense to me.
Heather - I could probably go somewhere else and have the PET sooner (like maybe to Boston). But my daughter's college graduation is 5/12 and I don't want to get any bad news until after that day. So I'm ok with waiting until 5/11 for the scan.
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THANK YOU ALL SO MUCH FOR THE HUGS AND GOOD WISHES. I WAS ABOUT TO JUMP OUT OF MY SKIN WAITING FOR THE RESULTS SO I CALLED THE HOSPITAL TO SEE IF THE REPORT WAS READY AND SHE SAID 'WHEN DID YOU HAVE YOUR SCAN'. I MEEKLY SAID 'TODAY'. SHE SAID IT WAS READY. I CALLED MY DR AND THEY JUST CALLED BACK AND SAID THE BONE SCAN WAS NORMAL !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Linda- I can so relate to your story and thank you so much for sharing. They go thru extensive testing every time I have an ache or pain and no one really understands sweating it out like my bc sisters.
Just wanted to share the great news
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YEAH RUTH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Ruth - Oh Girl, I am so happy, doing the happy dance right now? Smile!!!! Thank you so much for the good news. You are a brave girl, wow! you have gone through a lot. I would like to say that you deserve a really good meal at a very "Fine" restaurant today or something to celebrate this! God Bless!
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Woohoo, Ruth!!!
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Fabulous news Ruth!!!!!
Michelle, Minxie- I am sending good thoughts that all tests come back normal!!
Inmate- Hang in there!
Happy Birthday Karen!!!
Big hugs to all!!
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Ruth,
Sooooooooo very happy, happy, happy for you. I can feel it here in Georgia! Been there and done that, so I well know what were and what you are now feeling. Also makes me feel better to in that another sclerotic spot on someone else also came back non-cancer. So, you're good news has bolstered me too!
Hugs,
Linda
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Just popping in to say hi to everyone. I haven't been here in about a week, and I see I have a lot of reading to catch up on. What a busy board this is....I love it!
Congrats to those who have finished treatment, or received good test results. And a big hug to those who need one today!
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Ruth! I was so excited it took me 3 times to log in! I was swearing at the computer..anyway YES YES YES YES YES! sooo happy for you.
And minxie just hoping for scar tissue or something like that...I'm always feeling my scars for anything...good thing you are on top of this...
Teka..so I'm old now...thanks alot....ha ha..
Inmate..hope you are feeling better...feeling pukey is just so freaking annoying...
The best thing that happened to me today was hearing Ruth's news! Keep it coming
oh..yeah..I love the game "sorry" too...I play twister sometimes with my 4 year old niece...ha ha..that is interesting
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woohoo Ruth! that is wonderful news
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