Calling all TNs

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  • kittycat
    kittycat Member Posts: 1,155
    edited May 2012

    I received great news this week... NED on my brain and lower spine MRI. I have a herniated disc (finally a cause for the right leg pain) and gall stones (already knew about those). I'm just glad there was NO CANCER!!!!!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited May 2012

    Lovelyface - sorry to hear about your mum and hoping you get a benign result for her. On the subject of surgery it depends on whether her heart would stand up to surgery if she has high blood pressure but the anaesthetist would monitor her closely whilst she was under the anaesthetic and  you say she is an otherwise healthy lady. Many many older folk here, older than your mum,  have surgery and come through it fine and there is no reason why your mum wouldn't.    But one day at a time,  this could be totally benign.  Hoping so for you and your mum. 

    Kittcat - Great NED news. Sending a big hug.

    Becca -my congratulations on getting a standing ovation.  You deserve it girl.  Annie   

  • Hope60
    Hope60 Member Posts: 150
    edited May 2012

    Ruth - I'm so happy for you!  Did the happy dance when I read your post!

    Kittycat - Yay!!! Great news!!!

    KS -I went through menopause before I had BC.  After a year of no periods, I had a little bleeding. Even without a cancer history at that point, my gyno put me through all kinds of tests, up to and including a D&C, before he was confident there was nothing wrong.  Probably your doc is just being really careful with you.

    Lovelyface - sorry to hear about your mom and hoping all is well. I've had a lot of benign breast cysts and they show up as "round black things" on ultrasound.  Hoping you get good news about that.

    Titan - you are a ROCK STAR for starting this board!

    Ladies, my nephew is getting married tomorrow.  He got engaged right after I was diagnosed, and all I could think was that I wouldn't be here for his wedding.  Well, I'm still here & feeling good.....planning to celebrate in a big way!

    Love to all. 

  • Lovelyface
    Lovelyface Member Posts: 563
    edited May 2012

    Annie, thanks for the much needed information for my mom's case.  I will give you the good news next week, keeping fingers crossed and praying really hard that it is benign.

  • OBXK
    OBXK Member Posts: 689
    edited May 2012

    Ksmathews- I was like that. Had to always make sure I had a pad with me. I'd have a ps every two weeks for three months, then go 6 months without them. I was so happy when I made it to a whole year!!! The periods started about 2 years after chemo and lasted about 2 years.



    Lovelyface - I am so sorry to hear about your mom. Don't forget, the odds are in her favor. Calming thoughts your way.



    Titan - thanks for starting this thread. I think of you all daily.



    Kittycat - Woo Hoo!



    Have a great Friday!

  • Luah
    Luah Member Posts: 626
    edited May 2012

    Just popping in after several days away - lots to catch up on. I can't believe it's been 2 years since you started this thread, Titan. It's the only one I got to regularly, I love the feeling of community here.

    Have a great day, ladies, you rock! Cool 

  • minxie
    minxie Member Posts: 239
    edited May 2012

    yeah, having a rough time here. Last week we were dicussing divorvce, today I am terrifed my cancer is back. Just want to take a lot of pills and go to sleep for a long long time.

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited May 2012

    (((((Minxie))))) 

  • Lovelyface
    Lovelyface Member Posts: 563
    edited May 2012

    minxie - Life is challenging, my dear.  One step at a time...... after every dark night, comes a bright sunny morning.  Hope things get better in your life very soon.

  • onvacation
    onvacation Member Posts: 521
    edited May 2012

    Lovelyface, hoping for good news on your mom!

  • borntosurvive
    borntosurvive Member Posts: 194
    edited May 2012
    Minxie:  I can relate.  Life has been so stressful these last few months that my husband and I had talked about divorce too.  We had a few nights away together and reconnected.  The stress was just to much with us and the two kids.  I was spinning.  I hope there are happier days ahead for you and your husband.  Gentle HUGS to you xo
  • Paintingmywaythru
    Paintingmywaythru Member Posts: 221
    edited May 2012

    Minxie, I agree with Teka...please let us know you are down but not desparate.

    Titan...thank you, this has been my life line.

    Kitty cat .... jsut wonderful news, sorry for the other issues.

    lovelyface...so hope all will be well.

    Have my first post  chemo mammogram MAy 15th....sort of dreading it, but also feeling that it will be a clear mammo.

  • ksmatthews
    ksmatthews Member Posts: 743
    edited May 2012

    Well my ultrasound showed I have a 4cm cyst on my right ovary. The dr does not think it is cancer.  Also my uterus shows a thick lining no fibroids or anything, but she did go ahead and biopsy it.  I find out Monday.  My 2 dr's I saw today suggested I go ahead and have a hysterectomy.  So I go for the consult on that next Friday. I am having a bladder tuck anyways so I can have all of this done laproscopic the same day..

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 221
    edited May 2012

    Oh TEKA, I hope the waiting isn't too awful..weekends are the worst, hugs.

    ksmatthews...that's a lot to get done, sorry you will be needing surgery. I  had a laproscopic hysterectomy and it was not to bad except for the first day. hugs.

  • sugar77
    sugar77 Member Posts: 1,328
    edited May 2012

    Thinking of those of you who are awaiting results and/or biopsies. hugs 

  • sugar77
    sugar77 Member Posts: 1,328
    edited May 2012
    Wow, it's heard to believe it's been two years since this thread started.  I just went to screen one and remember posting on May 2, 2010 when this "new" thread came up.  I was still wearing a wig, which I stopped wearing about four days later. Brings back lots of memories. Titan, I'm so glad you started this very active thread. You ladies mean the world to me. Smile
  • Wrenwood47
    Wrenwood47 Member Posts: 68
    edited May 2012

    Paintingmywaythru  Are you still on the Budwig Diet? If so, how are you feeling?  I am still on it and feel pretty darn good. Just have it for breakfast and eat regular meals for lunch and dinner. Hope it it working well for you.

  • christina1961
    christina1961 Member Posts: 450
    edited May 2012

    Titan, Thank you for this thread - it is simply wonderful and I love all you ladies on it!

    Lovelyface, I hope everything turns out ok with your mom.

    Minxie, please hang in there - I hope things will be much, much better soon. I have had very dark times in my relationship during this past 14 months. Things are mostly better now.

     I've had pain all day in my radiated area, and under my arm where the nodes were, and a weird sensation for the past several days where I have a new awareness of my arm brushing up against my side. The pain is not at all constant - just comes and goes, but the area is tender to the touch (but that is nothing new.)  I decided it might be lymphedema starting that is causing the feeling or maybe the underside of my arm is starting to regain more sensation, and of course I'm worried about recurrence, too. I measured my arm and it is the same as the other and I can't tell any difference for certain when I look in the mirror.  I have fat arms anyway so it is kind of hard to tell.  I had a 72 hour work week with most of the time spent at my desk although when I do field work I tuck my clipboard under my BC side arm - so I dunno what it is, but it is bugging me. Did anyone else have pains and soreness post rads (my rads stopped in Oct 11) like this?  Thanks!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited May 2012

    Ladies I need a bit of hand holding. My first taxol is due this coming Wednesday and as it gets nearer I start to freak a bit more. Can all of you who have had it tell me what your side effects were and did you have any nausea or vomiting. I really would appreciate your help if you can. Annie  

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited May 2012

    Annie - I did not have any nausea with Taxol.  But my MO gave me all the same pre-meds I had with AC (an hour of hydration, aloxi, Emend, Pepcid and a little decadron).  I also got 50 mg of Benadryl via IV for the first treatment, 25 mg for the other 3.  I felt like I was drunk after the Benadryl and might have taken a nap if I had been there alone.  My DH and DD were with me, so I stayed lucid.  I got Neulasta the next day, and I took Claritin for a few days, the same as with AC.  On days 4-5, I was achy - as if my arthritis was winning the battle.  A couple Tylenol helped with that.  And I ended up taking Pepcid every day because Taxol can cause acid reflux, and Pepcid is the drug that suppresses it.  You can do this!

  • onvacation
    onvacation Member Posts: 521
    edited May 2012

    Annie, I'm not taking that, but just wanted to offer my support and hope it goes well!

  • mags20487
    mags20487 Member Posts: 1,092
    edited May 2012

    I had taxol and no nausea or vomiting for me.  I did have bone and joint pain which was exaggerated by the Neulasta shot I got the day after chemo.  I also had both constipation and diarrhea alternately so I had both types of med on hand.  Slept through the infusions probably from the benadryl

    Maggie 

  • tracie23
    tracie23 Member Posts: 214
    edited May 2012

    I have been on this thread since 2010, it has given me so much information. I am so thankful for all the wonderful women who share there stories and give us valuable information to move forward with. Have a wonderful weekend.

  • khs113
    khs113 Member Posts: 15
    edited May 2012

    Hi Christina---I've had the exact same concerns for the last month or so. Finished my rads last November and have all kinds of twinges and soreness. Sometimes it feels like that breast is swollen or like you, something on the side. Different areas of the breast are sore on different days. I have my one year post mammo on the 14th. I tried to get it moved up a few weeks ago and no luck but am waitng it out. See the surgeon two days after that. My mind keeps going to terrible what if places.Didn't think the one year cancerversary would be so full of anxiety.

    Thanks to Titan and all of you who have been so supportive to everyone who has come to this thread. It's the one place I can go and feel understood.

  • kathyrnn
    kathyrnn Member Posts: 366
    edited May 2012

    First-Titan-I don't think you truly realize what a wonderful thing you did when you created this thread (I'm talking Mother Theresa kind of wonderful!). I can't count how many health professionals and laypeople I've told about this thread. It was the combination of the support here and being able to connect with people with the exact same type of breast cancer. I would have lost my mind without all the info I got from all the ladies. I am sad too about the wonderful women we've lost, but remind myself I wouldn't have had the blessing in my life of knowing them, if not for your thread.



    Lovey- hopeful that it will be a benign growth.



    Kittykat

    - congrats

    Becca - congrats on the ovation, it must have been such a wonderful feeling

    Hope - Enjoy the wedding!

    Minxie -Very worried about you!!! I know the "not knowing, what if" is killing you, but hang in there.

    KS- great news!

    Teka - hug!

    Christina - I'm 2 mo out of rads, and I have these random sharp stabbing pains. Doc said it's normal and will last for awhile. Where you're 6 mo out, I'd call the doc and ask if it's still normal

    Cocker - other then some mild fatigue I had no major SE on Taxol ( I had it first and used to refer to it as my baby chemo). Only 2 surprises. They told me my hair would "only thin gradually" but by the 3rd treatment I was pulling small animals off my head. I also thought I dodged the nail problems but 5 mo AFTER treatment all my toenails fell off. Fingernails shredded at the ends but not as bad as toenails. The Benadryl they will give you during treatment will kick your ass! One of the wise women on here told me that I could get the Benadryl changed to Claritan, and after that I was able to drive myself to all my treatments ( kisses to that wise women!)

    kHS - I didn't even realize till I read your post, that my cancerviercery is next week. How fast a year can fly!
  • kathyrnn
    kathyrnn Member Posts: 366
    edited May 2012

    Ooops one of those congrats was for you Kittykat

  • kathyrnn
    kathyrnn Member Posts: 366
    edited May 2012

    Sorry guys, just realized paragraphs are way off, hope you all find your greetings

  • ksmatthews
    ksmatthews Member Posts: 743
    edited May 2012

    I still have pain in my radiated breast.  I was told it could take up to a year to 2 to heal up.

    Girls I am really freaking out!  I didn't freak out like this at all with the bc.  but to think I may told Monday I have uterine cancer or possibly ovarian cancer!  I am a mess!  I try to stay strong in front of my family and friends, but as soon as I am alone I am crying!!!

    I just don't know if I can handle the news I might get on Monday... 

  • Babs37
    Babs37 Member Posts: 320
    edited May 2012

    (((((ks)))))

  • onvacation
    onvacation Member Posts: 521
    edited May 2012

    Oh my KS - Sending healing vibes and prayers your way.