Calling all TNs
Comments
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I've just read thru 5 pages and there is so much news! Thank you again for your love and support. It really really helped! That being said, Lovelyface, if your mother has a slow growing malignancy, they might not do anything at all, thus sparing her from surgery and chemo. My friend's mother has had breast cancer for 4 years with no treatment and you would never know. Here's hoping she will be fine!!
I came up with 3 little round 'peas' on my foob last year and after having it biopsied,found it was fat. I still have 2 left and they are hard. But benign!!
I think everyone will agree with me that all of the chemo cocktails are all do-able. You'll feel 'off', tired, and your whole digestive system will know something's up. I'm just trying to say, try not to worry too much.
I also had an ovary removed right before the dx, and they had everything set up for probable cancer and on the spot hysterectomy, and it turned out to be a baseball sized benign mass. This is the actual pot calling the kettle black because I was crazy with worry, but the doctors gave me very little hope that the results would be negative...even so...I spent too much time worrying and being upset.
So very many of us will go on to have NED for the rest of our lives!! Hoping all my friends here fight the fight and join THIS group! Thank you Titan for starting this for us. I've been here since Sept. '10 and the suport has been invaluable!
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Ruth thank you for posting that. My dr did tell me she doesn't think it is cancer, but I know they don't like to tell you one way or the other until they know, so I just can't help but worry. I have prayed and prayed to God all I can. And that is all I can do.
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Wrenwood & Painting - I am also doing the Budwig Diet and I must say it is doing wonders for my lethargy. The one downside is that I am getting pimples on my face. The flaxoil must be upping my estrogen, wow! It ups my energy and then when I don't take it for several hours, I feel like I am getting lethargic again. I honestly feel that if I don't do the budwig diet, I could possibly get diagnosed with either chronic fatigue or fibromyalgia. and this is a new thing. My neck pain, I believe is part of the fibromyalgia 18 points...... does anyone else have this? I have been reading up on it. Although at this point I don't have the pain all over my body as they describe is the symptoms.
Annie - I felt that Taxol was much much easier than AC. I wouldn't say it was completely great, I just had a lot of smells and things become more pronounced. I couldn't drink water or go near the sink, as the smell of dishwash liquid and water made me feel sick. Other than that, everything was okay with Taxol. Oh! and a little bit of neuropathy in my fingers.
Christina - I used to have so much pain in my breast after rads, I still have pain. I think I also developed a little bit lymphderma, even though in my case only the SN biopsy was done. I am 1 year 8 months out, but I still have pain and tinges coming from there all the time. I think it has something to do with Rads.
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I had my lumpectomy (a large one) done in March of '09 and I still have pain in that breast. My BS told me that some of us will always have sensitivity in that breast - forever. Not what I wanted to hear, but was somewhat relieved to find that out.
Thinking of you all,
Linda
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Thanks all for the breast pain info. It eased my mind.
KS --- don't worry too much. Oddly enough, a year before my breast cancer was diagnosed my gyn was concerned about an ovarian cyst that he had been watching for about a year. So I had a hysterectomy and the cyst turned out to be benign. Too bad about the surgery but the peace of mind was worth it. And now with the BC dx I'm glad I had it done. Plus, I read an article earlier this year that radiation has systemic effects on the rest of the body perhaps preventing other growths from getting out of hand. Good luck tomorrow.
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Linda, I'm like you... I had Lx in October 2009, rads in spring 2010, and my breast is still tender. Not really painful unless/until pressure is applied. My onc and BS said that for some women it lasts for a long time, maybe forever.
KS - hoping for the best for you. My sister had a large mass on her ovary, 2 years after her BC. She had full hysterectomy.. we thought the worst of course, but it turned out to be benign.
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KS - sending positive thoughts for a benign result. (((Hugs)))
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Thank you all so much! I have been reading alot online and I also talked with some other BC sisters and they all reassured me it is probably nothing. So today I am going to be positive. I will let you all know when I find out!!!
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I have no energy. Today, I have to go to my kid's spring band concert. I feel like I am walking through water.
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Karen sorry you are feeling tired. Another one of those great gifts we received. I hope you feel better tomorrow and I hope you did enjoy the band concert.
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Hmm.just realized that this is the 2nd anniversary of our thread! stupid me.let's go for number 3 ladies.. I know I will have no problem for talking for another year..no problem at all..lol.
Breast pain after lumpectomy..yeah my onc said I would experience this..I have a few twinges now and then...I've stopped freaking out about it though..just figure the old boob is saying..ok..you cut me, chemoed me, radiated me...I'm going talk back now and then...
haven't posted this yet but TWO friends of mine have just been diagnosed with breast cancer.this will make 3 in the last month....blah....one lives in Idaho and she is supposed to call me but the other two are meeting me for lunch soon...when we can find time...one has an mri scheduled then a lumpectomy in the next couple of weeks..the other one is just past her masectomy..but seeing her surgeon regularly..and I have a mammo plus the bs and the onc in the next two weeks...trying to find a time to have lunch is almost ridiculous..and we need each other... I have told them that they need to come on here....(where do they think I get my info from..lol).....
Hearing about these friends makes me almost burst out of my skin....the good thing is that I go jogging to burn of this excess anxiety....I want to be there for them but I can't be good if I'm climbing the walls freaking out about them....
type A personality...?? you betcha.
Karen...I hope you have good news...and Minxie too...not sure if I can run much more...
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Cocker..I freaked out about taxol also..4 some reason I was more afraid of that than the ac! It does take alot longer than Ac...did they give you a couple of pills to take in the middle of the night and just before the treatment? I think they were pills to prevent reaction to the taxol but I'm not sure...they said if you were to have a reaction it would happen in the first 10 minutes..but it was very rare...they also checked my blood pressure every 30 minutes because taxol may cause it to go low.. I didn't notice the chemical mouth or the just weird feelings that you get from ac.....felt more normal..but had a little neuropathy in my feet...maybe a little more bone pain...but it really was better than ac because it didn't seem to affect me mentally as ac did...I didn't feel like I was out there somewhere.
It did suck though..that it took so long to adminster....very boring
Oh. and the best thing is..during taxol..you may start growing a little peach fuzz on your head! good stuff....I was so excited...
Love you all ladies... had to chuckle a little at the Mother Theresa comment....you ladies crack me up
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I did 12 taxol first. Went pretty well until about the 8th or 9th one. I got really fatigued and neuropathy in hands and feet. Then I started A/C a week after I was done with my 12th taxol. I would say the A/C is worse for bone pain. Also the chemo brain is worse. Mine has been pretty manageable with the neulasta and pain meds when needed for bone pain. Hopefully the last 2 A/C will not be any worse but I won't hold my breath. Thanks all for this forum.
Have a good week.
Lisa0 -
LOVELYFACE...I ahve my cottage cheese, flaxseed and oil and am waiting for the immersion blender from amazon..Do you find that it is too oily for you? And that tste what do you think?
I ahve to get soem raw brazil nuts..not sure where to find them...no health food store nearby but will work on it. How long have you done it?
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Titan - where is your friend in Idaho - I'm in Idaho.
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Painting - At first I did exactly as was shown on that utube video, which is 3 tblsp oil to 6 tblsp. cottage cheese. This was too much for me to swallow. They said that the equation should be 1 to 2, so it could be less quantity. I have been doing only 1 tblsp. oil to 2 - 3 tblsp. cottage cheese. I got my flaxseed oil (FO) from the shelf from Trader Joe. Although they say don't get it from the shelf, get it from the fridge as flaxseed oil quickly becomes rancid. Next time I am getting the FO from a herbal store. I checked out the brand they recommend, Barlean's & Spectrum, it is $11.96 (not high lingan). And the cottage cheese, first I got organic ones, but the tub finishes pretty quickly, so this time I got a larger tub from Costco, although not organic. I will try to buy the smaller organic in the future, not the one from Costco, as I don't trust their products too much. I don't have my immersion blender yet, so I have been making it in my blender. I have to add a little bit of almond breeze milk, which makes the blender go, as the amount is too less for the blender to work. I add raw brazil nuts (also from Trader Joe), some manukaa raisins, and the taste is not too bad. They have all sorts of raw nuts at Trader Joe. I add grinded fresh dark brown flaxseeds (also from TJ), which gives it a wonderful roast taste. At first, following them 100%, the mixture was very dry and there was just a lot to eat, but now that I have cut my equation down to 1:2, the amount is very doable. My energy was doubled today, I did so much work. And for some reason, I am loving this, maybe because my body needed it and I am doing it twice a day. I don't mind the taste at all, I don't taste the oil in mine. They say everything is in the way the bonding takes place between the oil and cottage cheese. When it is blended well, the taste is not bad at all. Try adding raisins, which makes it very edible. I will be doing this forever. I hope I don't develop any side effects.
I would have been diagnosed with either chronic fatigue or fibromyalgia pretty soon as I saw it coming. I was on the verge of not able to go to work. My sympathy to women who have chronic fatigue. One thing which everyone might find so amazing, is that my long time pain on my neck has lessened at least 85%. Budwig diet is for real, it brings up your hormones, it is wonderful. I am sending it to my mother in NZ, she is shocked by my turn of events. My neck pain was there since Sept. 2011. Thank you Budwig, and thanks to whoever had put that info. on this website. You have saved my life. I think due to low estrogen, I could even have had a recurrence. I swear, something really bad was happening to me, and now it is not happening. I swear by this diet at this point, I hope it continues.
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Painting - I forgot to tell you that I have been doing the diet ever since it was suggested on this website, could be like 10 days ago. I read about the properties of flaxseed and lo and behold I knew all along that for many years now, my estrogen was the culprit in my body. Out of all the 100's of blood tests and scans, I have had done to date, the only thing which stands out is low estrogen. On my blood test, it said "interpretation should be made with caution". Doctors could not explain, they just said all menopausal women have low estrogen. Anyway, once I read the properties of flaxseed, I knew that was my answer. I used to take flaxseed oil in a pill form before and maybe that's why the low estrogen symptoms wasn't as bad as recently. I could probably just heal by flaxseed alone, I am not sure. I will see how it goes. I am just so thrilled right now.
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Good evening ladies,Minxie......please let us know how you are doing. I too am worried about you.
Annie.....Taxol is much easier than AC. a little neuropathy and fatigue but no nausea. I also had my feet peel and got a weird bumpy rash on my elbow. very doable though.
the best thing that happened to me today......i went skiing on the last day. it was a beautiful bluebird day and i am sore and sunburned. here's a pic......
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Titan and Lisadi1963 - thanks for your advice on Taxol. I too think I am more afraid of this as it has the potential to cause that allergic reaction in the first ten minutes. I haven't been given a pill for in the night but apparently they do give me a 10mg pill of Phenergan on Wednesday morning which can apparently make me drowsy. Hopefully I won't get any nausea or vomiting with it so I am keeping my fingers crossed. Well I guess we will see as its coming around mighty quick. Hopefully I might get some fuzzy bits growing then. Would prefer to get it every two weeks instead!!. Thank you once again ladies.
OBXK - hope you are not so tired today. Sit down, put your feet up and while away the hours for a change.
KSMatthews - awaiting to hear some good results from you and keeping fingers crossed.
Hope everyone else is having a good day and the sun is shining for you. Annie
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Inmate - what beaut picture. You look so young and carefree. Good to see you smiling and having a great time. Still haven't seen those pics of the bulbs, just waiting and waiting. Annie
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Inmate - the more I see that picture the more I smile. You made my day. Annie
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Good Morning Ladies,
Have been busy with the move, have a lot to catch up on. Drove 11 hours yesterday, only 10 more to go untill were at our new home.
Hoping for b9 results for everyone gets tests, Cocker, you'll do fine on Taxol, your almost finished!!!
Inmate, I love that picture of you. It's beautifull
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Inmate: love the pic...
Cocker..not sure but I don't think you have to worry about nausea on Taxol...you will be fine!
Gilly..she is in Idaho Falls
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Inmate: As a passionate skier myself, your picture just made my day - you look fab! Wish I was there with you.
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Titan - oh so far away. We are way up north.
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Hi everyone!
KS, I hope everything turns out benign. I'm so sorry you are going through this.
Inmate, you look beautiful and happy - love that photo!
Annie, I had my taxotere together with the AC so can't say much about it except I think the A was what made me nauseated not the taxotere.
Many thanks to all who answered about the radiation aftereffects. I'm hopefully going to have time tonight to read through all the posts carefully. My husband is getting tired of answering the question, "Does my left arm look bigger than my right?"
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Inmate....you look so happy and wow, sking, great!
Lovelyface...thank you so much. I am going to Trader Joe's tomorrow. There isn't one near me but when I leave work tomorrow I have some time so will go to one closer to my job...this 65 mile one way commute is a little over the top.
Everyone have a fabulous day. Good thoughts to all.
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So back to the breast surgeon this morning. Everything like it was 3 years before. Put on gown. Wait in room 1. Mammogram. Wait in room 2. Ultrasound. Wait in room 3. See doctor. At this point I am crying and can't stop. My old doctor comes in, cuts to the chase - "We can see it, we need to biopsy and find out what it is." Core biopsy. Now the waiting game - results should be in next few days.
My doctor says that in mammo it presents like scar tissue, round and bubbly. But it concerns her that it is in the exact same place as the last FC. So that's all I have to go on for now.
When I got back to my car I had what I can only describe a temporary breakdown. I threw myself in the back seat and sobbed and sobbed until I was vomiting, and then was screaming and crying and vomiting more. Ugh. Luckily my husband was there and helped get me pulled together. I called in sick to work and collapsed at home for three hours. Mentally I feel like like I've been run over, mangled, and spit out.
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Ladies, I need your collective wisdom. Is there only one lab in the US (Utah), that does Braca testing, or are there other labs available?
When I spoke with the genetic counselor, she said that DF, would get insurance approval, and ONLY send the sample if the cost to me would be $375.00 or less. (Wouldn't notify me, would have accept that I would be paying up to $375. Just got a call from the lab in Utah, that they want $1697.00 (the cost minus what insurance paid). The damn same wasn't even supposed to be sent if it was over $375!0 -
Inmate - I think you've made a lot of hearts smile with that photo. thanks for sharing.
Heather - Wow, what a long drive. Glad you are halfway, to your new life! How exciting. May all your dreams come true.
Reading about the Budwig diet, makes me think I should give it a go. This fatigue is killing me, I feel like my life force energy is leaving me.
I'm poaching chicken and it smells wonderful.
My one good thing.... A local colony of purple martins, are putting on an air show, right outside my window.0
