Calling all TNs
Comments
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Lisa, hoping your feeling better soon. Hubby just had a bad case of pnemonia. Some strong antibiotics will fix you up and you'll be out soon. Thinking of you.
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Painting - I have sent my prayers for a divine flight for your cousin's husband to heaven. It is sad to hear about people suffering so badly in the end, I am sorry.
Linda - I hope you had a great mother's day, despite of your great loss, that you had moments to reflect upon your beautiful memories with your daughter. Memories is all we have left, no matter what the situation.
Merrinell - That was sure funny! These days I could probably do things like that, he is not alone.
Lisa - I am so sorry you are in the hospital. Hope you get out soon and I hope it is pneumonia. Doctor's are pretty correct, if they are saying that 99% it is not cancer, than I am certain it is not. Give us the good news very soon and take care.
I thought of Suze, Laurajane and Mary a whole lot this weekend and sent loving, sweet thoughts to their children. I hope god is watching over them and they are all doing okay.
Annie - that sounds like a horrible accident. I did not hear about it on our local news here in California. How sad!
I had an ultrasound of my thyroid last Friday - this was just one last test that was part of my neck pain situation although all my blood tests re: TSH, FSH stuff was okay, doctor said he would be surprised if the scan was abnornal in any way. Anyway, the tech kept on and on measuring this and that, and seemed to take longer, although initially she told me it would take only 10 mins. I asked her if she sees something, and she said she is not allowed to tell me. She asked me whether I had a return appointment with the doctor which to me was saying, you sure should go back to the doc since you have something here. The test kept me worried this weekend. Remember that undiagnosed neck pain which I have had since Sept. and no specialists have been able to tell me what it is - now I am freaking out. Could it be something? My neck MRI had come out not showing any lesions or cancer. Does the MRI of the neck not cover the thyroid? I had all sorts of fear and questions this weekend. I will get the results by Tues I hope.
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Lovely sending positive vibes your way!
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Just got back from a Pilates class - trying to keep up with my normal day to day activities. I am waiting to hest from both of my oncologists. Dr P (renal cell) about scheduling a bone/PET scan - and Dr M (breast) for final biopsy report and chemo treatment and schedule. He wanted me to start treatment on Thursday, but DD is graduating college on Friday, and as this is my first treatment, we don't want to take any chances, of a bad reaction. So I will start on Monday or Tuesday next week.
One of my sister's is really pushing me to get a 2nd opinion. I'm not sure what to do, I want to start treatment ASAP- i am being treat at NY Columbia Presbyterian - which is a mile from where I live and a really great hospital which I have been using over 20 years. All of my doctor's are attending physicians there. Is it worth getting another opinion once I start treatment? Any suggestions, etc would be greatly appreciated.
Lisa, sending you healing vibes - the hospital is no place for a sick person
-When I first started chemo for my advanced renal cell carcinoma I got a minor infection and wound up in the hospital for 8 days - not fun, but they need to extra careful with people who have suppressed immune systems. Merrinell - Great story - a sense of humor is priceless.
Painting - prayers and condolences to your whole family.
lovelyface - waiting for results is always the worst part of the processes. Good luck.
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Lovelyface - I went through a thyroid scare about a year and a half ago. I'd been having neck pain, my oncologist said the side of my neck where the pain was appeared slightly swollen, so he sent me for an ultrasound. And to my horror, they found a nodule in my thyroid. I of course obsessively researched the chance of BC metastasizing to the thyroid, and found it to be extrememely rare. That didn't stop the worry, as I moved on to fretting about thyroid cancer. They did a biopsy and the nodule was declared benign. Apparently thyroid nodules are very common, especially in middle aged women, and most of the time they are nothing. And if they're not - thyroid cancer is one of the easiest cancers to treat, with a much better prognosis than BC, as my endocrinologist told me. I know it's impossible not to worry, but I hope this reassures you somewhat.
Lisa, hope you're feeling better soon!
I am still waiting for the plastic surgeon and the breast surgeon to coordinate my surgery date. I want this thing OUT OF ME so bad... And right now I'm trying to gather my courage and schedule that PET scan I am so terrified of. My moods are all over the place, from thinking that I can make it through this, to some seriously dark despair... My boys and hubby made such a sweet Mother's day for me yesterday, and it was all I could do to keep from bursting into tears at the thought it might be my last Mother's Day on this earth. This recurrence is so horrible, so unexpected, I just still can't believe it's happening sometimes.
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Minxie- don't go there!!
Keep working through everything and pushing forward. We have all had these concerns.
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Minxie, u can beat this too, keep fighting!
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Lisadi1963 - I had pneumonia between treatments #5 & 6, so I know exactly what you're going through. It sucks. I spent 4 days in the hospital getting breathing treatments and taking lots of extra meds. As much as it sucks, it's the best place for you to be. ((HUGS))
Happy Mother's Day to everyone (a day late). I had a great day yesterday - it was also my 17th wedding anniversary. DH and I went out to dinner (without kids!) Sat night and I started to go to that dark place in my mind....what if I don't get another 17 years with my best friend, partner, and wonderful husband? But, I managed to pull myself away from there - with a nice glass of Pinot - first glass of wine I've had in 6 months! Then dinner with my 78 yo mom yesterday...she cooked!
Going to be a busy week - meet with MO on Wed for 3 week post-chemo follow-up, then meet with BS on Thursday for 4 month lumpectomy follow-up (has it really been 4 months?), and get my first zap of radiation Thurs afternoon. Throw in DS baseball game and football practice and work - it's gonna be a hectic week!
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Good Morning Ladies
Painting - so sorry to hear about your Cousin's husband. Was thinking of him yesterday. Must be devastating for his wife. Many prayers sent to you all with love.
Lisa - hoping for some good news for you and hoping you feel better soon. Hugs.
Lovelyface - I hate that "I am not allowed to tell you bit". They said the same to me when I had my biopsy yet they could see something. I think my god I am 65 yrs of age and you are not allowed to tell me, whatever. I think they treat us like children sometimes.
SueRae1 - A second opinion never hurts and if it makes you feel better then go ahead. This is your life.
My second Taxol is coming up tomorrow and I am quite concerned that I might have the same reaction as last time. Seeing Oncologist today so will see what she says about it. Wish this was all over. Cancer Sux.
Have a great day ladies. Sending hugs and love to you all. Annie
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I was diagnosed with a right inflammatory breast cancer 8/2007, (it was infiltrating ductal carcinoma; grade III, ER/PR, HER2/neu negative, positive axillary lymph node). I also had a lump of 1.5 cm contralateral tumor was T1 N1. I received neoadjuvant chemo with Taxol for 12 weeks and fluorouracil, etoposide, and cisplatin for 4 weeks. I had a double mastectomy 3/24/2008. After the surgery, I received 6 weeks of radiation once a day. I completed treatment June 2008. I am NED.
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CS- sending good vibes for your treatment tomorrow!
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Minxie - thanks so much for the thyroid info. I can be better prepared. In my last petscan in July, 2011, they did not see any nodules or enlargement, it was a clean report on thyroid. My smart Onc. quickly analyzed that if my pain in neck started Sept. 2011, had it been cancer, it would have shown on the Petscan in July. He was not worried at all. It is sometimes really amazing to see how a doctor's mind thinks.
And my dear, you will get past this recent scare. Don't let your thoughts go to dark places. Each case is unique, no two are alike. Everything is after all in God's hands, isn't it? At times when I am really scared, I think of personal miracles I have witnessed in my life or amazing true stories which science cannot explain, which gives me a burst of faith in the higher power. There is a wise saying such as "even the tiny little leaf on the tree does not move with the wind, without God's will". And that is just a leaf, imagine us, we are living souls, could he possibly forget us? No way.
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Lovely to read all the stories and all I can say is I dont think there is 2 many people in Ireland with TN I seen 2 people here online one girl from Kilkenny and other from Ennis I am from Tipperary I am ust wondering why is this TN so rear what would have given me this Tn maybe stupid question I am just wondering ye are all in my prayers xx
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Caroline71 - my Onc. had told me in 2010 that 20% of all breast cancers are TN's, maybe those stats are for USA. I am wondering if anyone else has more recent stats. I am sure all of us at first just wondered and wondered what causes TN. My Onc. also told me that doctors and scientists know that breast cancers are somehow caused by or related to hormones but they just don't have the entire pictures how or what. Non-TN's have cells in their tumors which have hormone receptors, whereas we don't. If you have a theory let us know.
Do you know the stats of TN's in Ireland? Maybe there are lots others who just don't post here, I am just wondering!
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From what I found, TN common among younger folks (under 45ish). I was dx at 39, just turned 40 5/11th, am finally eligible for free mammo, gonna come in handy since I have BC, hee hee!
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Hi Caroline, I only live two miles from the tipperary border.
When I was first diagnosed I spent hours on the internet and asking the same questions over and over. Nearly drove myself mad then I found this ladies and learnt to concentrate on the treatments and myself. They saved my sanity.
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Annie - I hope you have an easy time of it today, I'll be in your pocket.
I think there is something wrong with my brain. So tired and some neurological things going on like pressure in my head, weakness, ringing in my ears. I need a MRI, but I'm just not ready yet.
My one good thing...
Band awards tonight with my 12 year old. It was billed as a banquet... Hot dogs, cheese nachos, cake and soda.0 -
OBXK - no, no, no, there is nothing wrong with your brain. There just cannot be anything wrong with your brain. You are just tired, overworked and stressed. Please please please get an MRI and put yours and my mind at rest. Sending you hugs, hugs and more hugs. Annie
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Hi All.....I have my first tomographic mammogram almost one year after diagnosis. I am feeling really anxious and scared. It is at 6:00PM. I want a good result as we all do, but the anxiety is through the roof. Sorry I am not replying to your posts, feeling freaked out. Lorazepam did nothing- I took one this morning at 5:30 when I bolted awake and still have the dreads.
Hope all have a good day and anyone going through chemo and being in the hospital, well wishes to you.
Lovely Face and Cocker thanks for your thoughts regarding my cousin's husband. It is difficult. And we have another cousin who I am very close to with brain cancer. What is going on in my family??????
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Terry: Welcome and congrats on being 4 years out, NED.
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Just got the results of my mammogram...Birads 1...good stuff.
And I was freaking since last Friday....literally freaking...I thought I couldn't breathe several times Sunday night...
I really hate the stress..it really, really sucks...and I don't know how to control it.
See the BS and Onc on Friday.....what a week...I want this over with.
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Wow..OBX...I love hot dogs and nachos......better than dried up chicken breast with gross green beans..right?
Cocker...how did the taxol go today...? I'm sure they were very careful with you.
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Titan - Congrats!!!!!! Birads 1 is the greatest news. Good job! Don't forget to celebrate. We really need to celebrate each one of these in a big way. Each destination we reach, is a MILESTONE. Thanks for making my day!
Yes Annie, how did your taxol go today? I hope you didn't have too much stress, as is understandable after what you went through the last time.
Ladies - I am actually not stressing regarding my thyroid ultrasound. I didn't hear anything from the doctor yesterday, so am thinking that there probably was no bad finding. I think within hours the doctor gets the result especially when something is bad. And they call the patient right away. I will NOT call them, but rather, I would like to think that no news is good news. It is Tuesday half day gone already, so I feel that everything might be okay.
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Congrats on the good mammo, Titan!
I have the PET/CT scan scheduled for tomorrow morning. So scared so scared so scared... They're giving me Ativan and that seems to be it. I really really don't want to do it, but my counselor has talked me into it. We all need to know.
Met with the rad oncologist today - he seems very nice, and prepared to blast this thing into oblivion. My surgery date is the 24th. It's all moving quickly, but not fast enough...
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Oh Minxie...I wish I could be there with you...but I guess we all will be thinking of you....The stress is the absolute worse....
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Mixie the best of luck tomorrow...hugs
Titan congrats...such great news.
I go for my mammo now at 6:00PM tonight and am really freaked out- anxiety through the roof...hate it...and then the waiting...GOD, it feels really hard.
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Titan: Congrats on the clean mammo. I agree with Lovelyface, go celebrate! It's amazing what stress can do. I was having some intermittent tingling under my scalp, right side, of course convinced myself it was brain mets; mentioned it to my BS at my check-up last month and she said, "nope, doesn't sound like something cancer related, but wouldn't hurt to get your GP check it out." The day after that assurance, pretty much all the tingling disappeared! Stress, coincidence, or mind over matter, whatever...
Minxie: Thinking of you, and keeping fingers and toes crossed for a good outcome. Nice to hear the RO is good.
Lovely and Painting: Thinking of you too, I'm sure all will be fine.
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Hi Ladies
Its 8.30am on the 16th and today is my Taxol day. To say I am scared is an understatement. I can't seem to stop myself from shaking cause I have to be there in an hour. My oncologist said yesterday she will give me something to make me very drowsy but I am even scared of that. How bloody pathetic I am. I wish I could just take all of this in my stride but I can't. Cancer Sux.
Titan -I get my results of the BRAC on 31st May and I just know that I am going to be 1 or 2. My oncologist said if I am I will then have to think about having my right breast off and an oophorectomy as I will have a 60-80% chance of it coming back in those places. I just know where you are coming from and I also want this week to be over. Don't think I can take much more of this.
Painting - I feel as scared as you today. What is going on with us. I keep thinking what did I do that was so bad in my life I have to get all this. Stupid way of thinking I know but I don't seem to be able to think right today.
OBXK - will be thinking of you in between taxol all day. I hope you got a good nights sleep and feel better this morning and not so tired. Please arrange an MRI.
To everyone. Hope you have a bloody marvellous day, and not like mine. Be safe, be happy and try to be stress free. Sending hugs. Annie
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Annie dear - you did absolutely nothing wrong in your life to be going through this. Actually, looking at it spiritually, I believe quite the opposite. You have been the chosen one, to get challenges and tests, so that you can grow and go towards the real goal of your life. Otherwise, what other purpose there is to life? Just live, be happy with friends and family and then die and leave them forever? Doesn't make sense, does it? We are evoluting, and our evolution is faster than others, due to the grace of God. We are in pain, so we can be more compassionate towards others, we can even get to the level where we really do understand other people's pain as if they were our own. Would we have understood as well, had we not gotten this disease? I was previously a snob, had lots of self-pride, show-offish, thought beauty was everything, tried to get fit and thin just to look good. Now, I am no longer like that, not as much as before. Having compassion towards others, helping others when they need you, making somebody's pain your own, not laughing at the disfortunate, etc. We are lucky, even though it is hard to believe. My grandmother used to tell me that we only take our good karma with us when we die, into our next life. We don't do good karma and call out to God unless we are in real pain. This disease gives us the highest pain therefore some spiritual people believe that this quickens our karma the fastest. Life is just a cycle of birth and death, unless one day when our good karmas add up and equals the bad ones, and our slate is cleaned. Then we reach heaven, nirvana, become self-realized, one with nature, one with God. This is how I believe, I am sure others believe differently. I just wanted to share this in case someone is feeling really down, and this gives them some hope. This is not made up, this belief system comes from many Eastern cultures.
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