Calling all TNs
Comments
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Annie - One day I may get one
they are very $$$!
Riley - I hope they tweak your drugs to perfection! I have off and on wrist problems too. I think mine is arthritis.
Bernie - what awful news. I'm sorry for your loss.
Heather - I hope you get some good news soon. I know your DH must be missing you. Fingers crossed.
Luv - just damn! Hope you have a great time in Paris. Hope DD is on the mend soon. I broke my kneecap last fall and it was horrible!
Kathy - loved the story.
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Luv: So sorry to hear your news. It just sucks. Hope you can put it aside for a bit and enjoy all the magic of Paris - what a wonderful trip to do! Then come back and blast through the next phase of this ugly fight... we're here for you.
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Michelle- I am heartbroken to hear your news. This FC is so unfair. You have endured so much, yet here you go again. I hope the trip to Paris is absolutely wonderful. Pace yourself and come back strong and kick this shit to the curb! I will be thinking of you.
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(((Bernie))) (((Luv)))
kathyrnn, I'm known for saying "GDMFSOB". Not the words, just the actual letters. You can see people's wheels spinning as they try to sort out the letters.
I worked with a nurse years ago who would say, "Bad words!" instead of cursing. If she was really worked up, she'd say, "Bad words! Really, really bad words!" It was cute. I'm also fond of "conjugating" damn, as in "Dang it, damn it, durn it, darn it!"Saw the doc today. She changed her mind about a cortisone shot in my wrist. She wants an MRI to know what she's dealing with before she sticks a needle in there. She said it could be a harmless cyst that is pushing on a nerve, a sprain or strain, etc. She'll make an appointment and call me tomorrow with the date and time.
She increased my Lexapro dose. Yay! I've been hoping she wouldn't switch me to something else, as there are so many SEs out there and I really haven't had any with the Lexapro. She also gave me a sample pack (10 pills) of Lunesta to try for the insomnia. If I like it, she'll call in a prescription for me.
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Beautiful need that on a shirt...
Ladies, I have not been here in a while. Does anybody have any info on theis medication Xeloda????
Thanks missy
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LuvRVing, I'm sorry to hear about the latest PET results. That sucks. This damn cancer doesn't know its place. I hope your trip provides a much needed reality break!
My counselor pushed and pushed me and got me a PET/CT scheduled - at 7 am this morning. And she has her secret ways and was able to get me the results as soon as they were done - all clear, except for the stupid breast tumor! Whew, I was so worried about my liver or lungs and the constant bachache I have... but it's not cancer. So I'm around to battle the beast once more. Preliminary path reports say TN. Now they're talking chemo as well, which I don't want top do - I really want rads first!
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Hi Ladies
Karen- I am so so sorry about the hard time I have been giving you about your MRI, I never thought about the cost. I must have assumed that things like that was covered by your insurance in America. Just wanted to know you are ok. I couldn't bear it if you wasn't. My sincere apologies to you and I will never mention it again. XXOO
Does anyone out there have any tips on heartburn which taxol is giving me. They gave me some Losec and I took one last night but it didn't do very much and I had rib pain with it. Also makes me feel so nauseous so anything you can help with would be wonderful. Annie
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Luvrving:
I am very sad at hearing your news. I am so sorry that you have to gear up yet again to fight this horrible beast. God knows you have already fought so hard. Please know that I wish you a wonderful trip to Paris, and a time in which cancer is a forgotten word, and that you come back with renewed strength and courage to kick this crap to the curb. We will all be here for you and with you.
Linda
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CS, my doctor insisted that I take Nexium to prevent the heartburn from progressing to inflammation and ulceration of the esophagus, stomach or gut. I needed to continue taking it for several weeks after Taxol treatment ended, until the symptoms disappeared. Carol
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((((((((((Luvrving))))))) So sorry to hear your news....FC. Try to enjoy Paris and we are here to support you when you're back.
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Luv - big hugs to you. Paris sounds wonderful! Enjoy!
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Annie - No worries!! I love that you care about me. Three rounds with cancer, makes insurance something I can't get. I may get a ca 27.29 test done first.
Minxie - so glad you were able to get a fast scan and results! You must be so relieved!0 -
Minxie - so glad to hear your PET results were better than you expected. I can feel your giant sigh of relief! Not sure about rads before chemo... I've heard of radiation recall. You might want to check up on that, I don't think it's something you'd want to experience. I don't know how often it happens.
Annie - when I was on Taxol last summer, I took generic Pepcid every day, and it was one of my IV pre-meds before treatment. It pretty much did the trick for me, with the addition of an occasional Tums. Actually AC gave me heartburn, too. So I was taking both (generics) Pepcid and Prilosec every single day until about a month after treatment ended. I have been fine since then.
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Glad that you have some answers Minxie, now you can work on a plan of action and move forward.
CS: I had TAC for my chemo and had terrible heartburn, too. I started taking Prilosec and it did the trick. Also was told to stay on it for a few months after TX. When I tried to come off it, the heartburn returned. So I started back on it and now I take it every other day and that seems to work. Call your Onc and see what they recommend. No need to suffer.
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Minxie: Glad to hear you're (just) dealing with a local thing, as bad as it is to have to fight this crap all over again. That was awesome getting your results so fast!
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OBXK (and others) - FYI: CancerCare.org (800-813-4673) are very proactive in finding/proving financial assistance (for insurance co-pays, help with no insurance, etc) to people who qualify. Don't hesitate to call them. No need to stress about $$ too. They also have great teleconferences on various topics of interest, that you can sign up for, for free.
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LuvRV...you deserve a wonderful trip to Paris! Wow...don't even think of FC when you are there.....we don't want to hear from you while you are there...even though we will miss you...
Minxie...holy shit for good scans.....!
I'm having a hell of a morning..i work in an office and the dang copy machine jammed and I ended up with my arm stuck in it and copy machine ink all over me... then our CEO was complaining about the strawberries so I ended up digging through the warehouse to find some to show him...I'm exhausted and it isn't even noon yet.
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Minxie - great news
Titan -now you need some champagne for those strawberries to ease your day.
Cocker - I had serious GERD, before I started Taxol, and it only took a couple of weeks before I had symptoms of ulcers (had several bouts of them over the years). Try the pepcids, nexium, etc, but if they don't work, my doctor put me on a drug called Dexilant. Worked like a charm!0 -
Dip those strawberries in chocolate before eating with champagne!!!
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LuvRVing......Crap! Crap! Crap! Those are the most intelligent words I can muster right now. Sending you my love and support!
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Inmate - right back at you! Now...how are you doing? I noticed you had been AWOL for a few days. What chemo are you taking, and how is it treating you? Have you healed from your "tummy not a tuck"
And oh, can you recommend a good online catalog for big girl pants and kick-ass boots, cuz I'm gonna need both!!!0 -
Michelle - Great Idea about dipping the strawberries in Chocolate and enjoying them with Champagne. I like your humor in the midst of what you are going through. So sorry about your bad news, but there is nothing like Paris to take your mind off the crap for a while. Have the most amazing time of your life in Paris and don't give this thing any thought while there. I will be praying for you, you know that.
Titan - It sounds like a busy and stressful morning for you. Call the CEO over and shut his mouth with chocolate dipped strawberries, sounds yummy! Just kidding!
BernieEllen - Keep in touch as we will miss your posts.
Kathyrnn - Amazing ski trip story! You were quite amazing in your younger days, I never did anything like that. I believe what is actually in your heart and intention is what counts. I think even God laughs at our meaningless angry swears sometimes.
Bak94 - Sorry about the duct tape feeling in your chest. I have heard good things about aromasin, I hope it works wonders for you. I can't believe the peach tree has peaches on them already, that is a Laurajane miracle.
Riley - Sounds like you've got a good doc who will check for cysts before giving cortisone shots. Good luck on the findings!
Missy - Did you try this website for info. on Xeloda?
Minxie - Whew!!!! What a relief. All clear Pet/CT! Congrats.
Annie - For heartburn I took Prilosec the whole time. Do you have Prilosec in your country?
Saying Hi to Linda, Sugar, Kim!
Okay - so here is my update on thyroid. I saw the Endocronologist yesterday. It turns out it is only one nodule in my right thyroid lobe, medium sized, 21mm X 18 X 18. It is a solid nodule, which is what scares me. Doc said it is so common for women to have thyroid nodules, that if he opened shop in a mall with an ultrasound machine, he would have no problem making a really great living. I asked him if it was just middle aged women, he said, no - starting from age 20, all ages of women. Most women don't get ultrasounds so they have no idea they have a nodule. He would like a biopsy to rule out things, although he warned me that even a biopsy could be "indeterminate", if they don't find enough cells to do the tests on. He said that he hoped I did not insist on getting the node surgically removed. I said I wouldn't as I don't like surgeries.
Laides, what scares me is that I have had a pain in my neck since last Sept. Doc said the pain which I am describing is not coming from the nodule. The pain is a few inches away from the nodule. Could this nodule be cancer spread? Does anyone remember that bad feeling I had one day? Once before I was diagnosed with BC.... and again recently, that ugly bad feeling which I can't describe. I told you about it in an earlier post.
Doc said that nodules are caused by radiation and he believes environment. He asked me if I was exposed in Japan, or some state in US? He said in my case he does not think that my rad therapy caused my nodule. Rad finished in Mar, pain started in Sept. I had a pet/CT scan on 7/18/11 which says "thyroid and salivary glands are unremarkable". 2 months later, the pain in my neck started. I think that scans are doing a number on my body. Did you guys know that it has been proven by doctors and scientists that radiation is causing cancers, then why not CT/PET, even if they are small amounts? It does hurt tender tissues such as breast and thyroid. I asked the doc how come the nodule is not showing on the PET/CT in July? He said a PET/CT does not pick up thyroid nodules as well as US does, as it is close to the skin. He said, however, he is happy that my PET/CT did not show any hypermetabolic in the thyroid area, which means this may not be cancer. I believe there was no nodule during the PET/CT and that maybe the rad from the scan caused it.
Anyway, all my thyroid hormones, such as TSH, FSH, etc. have normal levels, so I don't have hyper or hypo thyroidism. My estrogen is less than 11.8 (maybe a zero), and total testesterone is 17 (30 and above is in the normal range). Imagine having no estrogen and testesterone - why wouldn't I be lethargic, right? Doc said, that is just menopause.
I am getting a biopsy soon. He asked me if it was okay to tell me my results via phone, I said yes I am used to that. I think I will be freaking out quite a lot next week. Wow! what the hell is going on in our world. what the f****k is going on in my body and what the hell is this environment thing they keep mentioning? I am really mad, ladies.
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Hang in there, Lovely - you're gonna be fine, I just know it.
Linda
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My wrist MRI will be Monday morning. Pretty quick, huh? In even better news, I had the best sleep last night I've had in over a year and woke up rarin' to go this morning. And I am so NOT a morning person! Score one for Lunesta! It's sunny and a little cooler here today, so I've been puttering outside, while trying not to stress the wrist. I can use the garden snips with either hand, so the weeds got cut.
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Titan - hope you got a nice copy of your arm ha ha
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Thanks Linda. I feel so alone with my thoughts, except sharing with you guys. Thank you so much for being there for me, otherwise, I honestly don't know who to share stuff like this with. All morning at work, I am reading on this subject on the internet, statistics look so good. I am thinking then why I am not feeling well, why do I have all these looseness and lethargy, pain in the neck, etc. It must be the nodule hitting on a nerve or something that is causing the neck pain, right?
Well, on a positive note, my tumor markers are absolutely normal, my pet scas showed no hypermetablic stuff, blood hormone levels (FSH, TSH) are all normal for menopause, so there can't be any cancer.
Please pray for me. Thanks again.
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Lovely,
You're not doing anything different than any one of us would be doing under the same circumstances - googling, researching - all the things you should NOT be doing, lol! It's the apprehension of the waiting that's getting to you. I honestly feel you will be fine, and even if, and I emphasize the "IF" - it was something - you would want it to be in the thyroid. That's an easy cancer to cure (yes, cure) and is not the killer that breast cancer is, nor would the treatment be as devastating. But, see - now you have me adding to your tension and anxiety, and that was not my purpose. We are all waiting this out with you, and will remain right by your side. I know I would be apprehensive too, I am over any little thing since the diagnose, comes with the territory, unfortunately, for all of us. So I do feel for what you are going through in the waiting for results. Hang in there, we're hanging with you!
Hugs,
Linda
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Thanks so much Linda for walking with me with this nightmare. It will be a long wait. They are waiting for authorization from insurance which can take up to a week sometimes. I am just numb right now. You are absolutely right about this one not being as serious as BC. Everything seems positive. I am just trying to concentrate on my life. My daughter in law is graduating with her master's degree this weekend, I need to go get a dress and shoes for the Saturday occasion. Trying to gather my strength, my dear. Thanks again, it means a lot to me to have you guys be with me at this time.
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Sending prayers your way, Lovelyface. Soglad that all other tests have come back NED.
Riley, Lunesta sounds good. I am such a crummy sleeper and when I can get a full night it feels so good to be rested--mind and body. Glad it worked for you.
Good night gals. See you tomorrow
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Lovelyface - here's hoping the dress hunting and ensuing graduation celebration takes your mind off things for the weekend. We're here for you.
Titan - I can so relate about the photocopier. Hope your arm's okay and that you didn't get toner all over your clothes. The photocopier near my office is always broken. LOL...I think the technician should be invited to our company events (golf tournaments, dances, picnics, etc.)...because he's at our office more than some of the employees
Thinking of all you ladies who've come to mean so much to me these past couple of years.
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