Calling all TNs
Comments
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Clown - we'll be here, holding your hand.
Annie - your poor old dear! Pestering him in the middle of the night, complaining about his plaster job - and then he runs the sweeper! Sounds like a keeper! Glad your feeling better.
Babs - how horrible! I hope they run their course quickly.
Gave the 5 pound pooch a trim and bath - still have all my fingers!0 -
Annie, with you posting, we will always be laughing. Never had a boil but they sound really painful. Have you tried sitting on a rubber ring so that the actual boil is not touching anything? Just a thought !?
I also have numbness and tingling on Taxotere - pleased to hear it goes soon after last treatment.
Babs... hope you get better soon too.
Peace and Love to you all xx
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Annie- I may complain about my "dear fellar", but I do have a great one so I shouldn't complain too much and he does help out when I ask, but i do have to ask. Hope your friend "down there" goes away soon!!
Tazzy- My numbness stopped not too long after the last taxotere, but I do still have an occasional tingle on the soles of my feet, on the left side of my tongue and mouth and on the palms of my hands. Nothing painful, just a little tingle that lasts a very short time.
Babs-sorry to hear about the shingles, but I'd take that over skin mets any day!! I wish you a speedy recovery!
Clowngirl- we are here to help- stick around!!
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Clowngirl - welcome back. We were starting to worry about you.
Cocker - I had about 6 of the wee bastards, but I thought it was related to the fact that I had cystular acne until my 30's. (had cystular acne, cyst on my ovary and fibrocystic breasts. I'm sensing a theme here). I can say one good thing for chemo. About 5 years ago I started developing syringomas all around my eyes (yes, they are a form of lumpy cyst, lol). When I started to look like a Klingon, I went to a plastic surgeon, but nothing they could do. They are still there after the chemo, but they are much flatter and less noticeable. Yay chemo, for at least one good thing!!
Babs - take care of yourself and get plenty of rest. Shingles can be nasty.
Tazzy - may all SE disappear quickly!
OBXK - don't worry, pooch is busy plotting revenge.0 -
Hi!
I was just wondering out loud today while I was at work how the H*** did I make it through chemo, surgery, infections, radiation, (boils!)? Thinking of all that are in treatment. It is such a whirlwind that seems like it won't end, and I am so thankful mine did end(hopefully for awhile at least, a long while), and so sad that it has been non ending for many. Y'all probably don't even remember me! This thread moves so fast. Remember, I am the crazy one who posted very long posts while doing chemo in the hospital!
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I remember you Bak94 because I remember the goats but you haven't posted for a while. Good to see you are back. I think I must be the crazy one because I'm not in the hospital and I do long posts, at least you had a good excuse. Hopefully your whirlwind will stay away from you for a long long time never to return. Hope you will stay with us this time. Annie.
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Hi can I jump in? Realizing we were probably on very similar meds and stuff, so probably similar lingering side effects too? I have an extreme photo sensitivity since chemo. My hands are very sensitive to hot water as well....weird?
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Hi Gina welcome. You don't say what treatment you are having but I am on taxol but if you aren't on that the other ladies on this thread will be along soon to welcome you and they may be able to help. Don't go away they won't be long. Annie
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Welcome Gina!
Bak...nice to see you "bak" on the thread.
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BAK - Good to see you. I hope you've beaten back the beast for good!
Kathy - LOL
For those of you on taxanes - if the numbness and pins and needles get too bad, see if they will put you on Neurotin. It helped me with the zingers! I never fully recovered feeling on the last three toes on my left foot. Boy you don't realize how important those piggies are to balance, until they are numb. But my brain learned. I still have numbness from treatment a year ago and sometimes it feels like someone is pouring ice cold water down my legs.
There is some kind of hand and foot syndrome that can happen, they get very red and start peeling. Try using your elbow to test temps, to avoid hurting your self.
Annie - do you have a donut to sit on? I know it must be horribly uncomfortable. Speedy recovery wishes.
I am happy to report I am feeling better this morning! Thanks for the good thoughts and wishes - they worked!
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Bak - so nice to see you!
Sugar - *gigglesnort*.
Welcome Gina, jump right in, tis a lovely group. Neuropathy show in many different ways, so I would guess the problem with hot water is one of the variations.
OBXK - I'm on Neurontin also. Hasn't solved the problem, but it at least as toned it down. (there was a point during treatment where my feet felt like I was walking on hot, broken glass)
Off to install two new ceiling fans with roomie. I'm starting to love that man, lol0 -
Cocker - this is especially for you. I'm still laughing from your line, "You thought I was going to say help him didn't you lol).". I think I have told the other ladies this before, but your comment made me think of it.
In many ways I was a horrible wife, lol. When we first got married, we had a big debate about how toilet paper should be hung. (I'm an over the top, hubby was insistent it was from the bottom). I thought about it for a few minutes, and then told hubby, "I've got a deal for you, whoever changes the roll, gets to have it the way they want". (knew hubby had some control issues, lol). I swear, I didn't have to change the roll more than 10 times in 20 years, heheheheheheeh. Probably cost me some money (would hear him furiously using up the end of the roll), but I never once had to plop my butt on the toilet, and find an empty roll. Bad wife.....very bad wife!!!!! *big old evil grin*0 -
Been out of the loop for a few days while I went to my consult in NC w/Dr Carey.
All in all it was worth the trip. She is wonderful, UNC is a great facility. However, she had no real earth shattering news for me about what I should do about my TNBC and this local recurrance. She said absolutely surgery, which I've done, absolutely radiation, which I'm starting hopefully next week, and she also suggested an anti hormonal since this recurrence is 1% ER+ as opposed to last time's 0%. She says any positive is a positive. And then her last thought - more chemo.She recommended FCM and/or TC, but said there is no data to prove it would help in my situation, a local recurrance after having done AC/Taxol. She said the AC/Taxol could have partially worked, no way to tell, but it is the strongest chemo out there and I can't do it again. So basically the decision to do more chemo is up to me because there's no data to help me out either way.
Great. If she would have said for sure it would help I'd consider it, but putting myself through 3-6 months of more hell for something that might not help and is sure to make me feel worse... I am thinking not.
She did stress that this does look pretty local, and if it would have metastisized she'd expect it to be on a similar schedule as the breast lump and should have shown up in the PET. So we are cautiously optimistic about that.
Metformin - she says the jury's still out, but if I want to take it, fine.
Last thing - Flying and the TSA. I did NOT want to go through the scanner since I'm about to get 35 doses of radiation and now have only half a breast. I told them I didn't want to go through so they gave me a pat down. While I was being patted down I told her I'd just had surgery, be careful, and she said next time just tell them I want to opt out because I had surgery and couldn't lift my arm. Which is only half true. But on the way back I tried it, and sure enough, they just had me go through the metal detector instead, no pat down, that was it! So keep that one in your back pocket next time you fly.
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Minxie - I wish you had been given better news. I hate to have things put into my hands. I don't think I could do more chemo, unless they really wanted me to have it. Thanks for the TSA tip, I'm sure it will be of use to some here.
Kathy - when my neuropathy was causing me foot pain, they added an old antidepressant - I think it was nortriptoline (sp?) but it made me horribly depressed.
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Morning Ladies,
Man this thread moves fast!! I'm sure I'll forget somebody.
Welcome back BAK - was starting to worry about you.
Karen - I'm so sorry, big hugs
Babs - hoping your singles clears up ASAP
CS - hoping the same for your boils. I too, developed a lovely one in my girly bits too. As if the entire situation isn't bad enough Chemo has to throw that one at us too. I know we've moved on from the Physic conversation but wanted add my two cents. I'm not for finding out my future anymore but after my mom died I REALLY wanted to find a reputable phyic to "contact" my mom. I needed closure. I still do, but I think I'll always be on the fence as to whether or not its real.
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Dawn - I went to a mental health therapist last week because I get so down when the pain just won't stop...and she gave me a 'tapping' pressure point routine with dialogue to use to diminish some of the emotional frustration. Its all I have to hang on to, so I'll keep doing it... this is crazy but learning to live with the pain and not just exist or be resentful is the new goal. Nuts. Buddahists say learning to deal with suffering is the path to enlightenment. I clearly have the path laid out !! haha
Love reading thru the posts so... hi newbies and hugs to those still here offering encouragement and support.
I have a question...I never eat soy based products because I don't tolerate it well. I decided to eat some Edamame Friday..maybe 20 of the little soy pods...and yesterday and today my right foob is puffed up like a watermelon ready to burst. Its so sore, but not warm. I know the soy and estrogen are related, but if I don't have any breast tissue left, why am I reacting? I guess it could be an extension of LE that I get time to time in my right arm, but this is armpit to center of cleavage. Any ideas?
Have a healthy week!
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I've been visiting grandbabies out of town for several days and just now read about "breaking cords." I've got cords and massage them nightly, but I this isn't enough. How do you "break" them?
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Annie~ I did Adriamycin and taxotere last round was feb 2011, then lumpectomy march 2011, then a whole lot of rads. I'm on gabapentin, but I don't take as much as they would like....I get a little cloudy when I take during the day, not always a bad thing to be cloudy, but not so much at work.
Being TN I tried a vegan diet for 8 months - also took out sugar, preservatives, processed foods - but I guess I ate too many potatoes since i didn't loose a pound - chemopause, I guess. I've heard so many different "TN diets" like low or no fat, no meat, etc. I'm little confused...
So I'm 42, have one DD away at college, I have a DH - second time around I got it right. Good to meet you all.
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Good morning Ladies
Heather - I also sit on the fence re a psychic. I am just not convinced there is any truth in it and that it is just coincidence that they come up with something that relates to your questions/family.
Kathrynn - I am an over the top person with the loo roll and the old fellar is a 'leave it empty' person, too much trouble to get out a new one unless he needs it.
Karen - I do have a donut but it even hurts to walk. I feel like a duck waddling around. Glad you are feeling better today. I agree with Kathrynn on the pouch plotting revenge, at least mine would!!
I still had joint pains today and was tired so I thought I would take the morning off from typing. Anyway I was sitting at the computer and thought I would go and make a nice cup of coffee. Walked through the kitchen and there was little bits of white paper everywhere and in the lounge and dining. The little shit had completely ripped up a new box of plasters I brought yesterday for my boil and left on the side of the bedside cabinet. So I thought right this time, well she was spinning around and around, just like a kid does when they don't want their rump wacked but I managed to get in a real doozy. So ladies -
Free to good home or any home come to that. One white, small maltese little shit. You don't have to feed her cause she eats everything in sight. I will even deliver it, as far away as possible. Comes complete with half chewed bed, half chewed toys and half chewed leash. Will be a great companion for anyone provided they don't leave her alone, ever.
I'm gonna replace her with six cats like Inmate. They are a lot less of a problem provided they don't sit on my chair.
Off for my onco visit tomorrow so I'll see what she says about these joint pains and numbness. I'm hoping she says I don't have to have any more taxol but that could be wishful thinking.
Well I think I might wobble back and start some work. Have a good day, don't forget to keep smiling if you can. Annie
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Annie - that cracked me up! My Yorkie only eats the back end of guest's pants
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Ok Annie- what are plasters? Are they bandages? All I think of is plaster on the wall!
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Jan69--I was told to only let a professional LE therapist break the cords. Post on the Le thread your question and you should get some responses from some really qualified to answer ladies. I have had some terrible cords in my affected arm and now have crappy LE in it too. It is my least fave SE from all this S**T. I hate the compression day and night and am trying to adjust to it all. End of rant.
maggie
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Tifj - those little waterproof things that come in a box that you stick over cuts etc. or in my case a boil. You can get tweety bird ones and animal ones for kiddies. They are about 2" long and about ½ wide but they also come in different sizes and you can get little round ones if its only a small cut. Bandages are bigger and come in all shapes and sizes. You must have something in America for when you cut your finger but I just don't know what they are called. Bandages would be too big for that area!! Here in NZ its plaster of paris that goes on the walls. I think this is why I never understand the abbreviations that the girls talk about on here, cause its called something different here. You say MO for what I think is Medical Officer and we say GP for General Pracititioner which is your local all round doctor, not a specalist. If you got a little cut on your finger what would you put on and what is it called. Not that the boil feels small, it feels like a bloody great boulder but in essence it is only a small area.
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Those "plasters" are bandaids over here.
Doreen
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Thanks for the explanation! We call them Band-aids which is a brand name, but other companies make them too. Some people also call them bandages even though they are small. I have to admit I always giggle when you mention a fag! Definitely not the same meaning here!!
I've never had a boil and I certainly would not want one where you have it- my heart goes out to you!!
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mags Thanks for your info. I see my GP this week and will ask for a referral to therapist.
Best thing today: Watching mom and dad quail care for their babies outside my kitchen window. Dad sits on tree stump or picnic bench and mom and kids scratch the ground for seeds or ? We also have a family of chimpmunks with 3 very tiny babies. Cute. The wild turkeys, young and old are fascinating to watch, but a menace to anything I plant.I could go on about the deer, fox, mountain lion, coyote. They were here first, so I leave them in peace. But I paid big money to live here. With all that wildlife outside, Cocker I think I'll pass on the offer of your in door wild maltese.
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Tifj - not thinking, chemo brain. Of course they are called band-aids here too. Stupid me. Plasters are just the old name for them. Yep they are band aids. Yes a fag, NavyMom PM'd me about that and laughingly told me what that meant. We call them Dykes or Lezzo's, ie lesbian. I can understand the lezzo's but god knows what Dykes has got to do with it. My old fellar calls then "lezby friends" ie lets be friends. I hope nobody on here will be offended cause I know some extremely nice lesbians that are really great gals.
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Jan69 - bloody typical aye, dad sits on his arse and mum forages for the food!! I would actually love to live there with all those animals around me (honest I didn't smack the little rat hard, I really do like animals! just not her at times) she probably barely felt it and will be into something else tomorrow. But the quail, mountain lion and coyote would be wonderful to see and live near.
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Luigi and Virginia both aged 72, were married.
After returning from his honeymoon in Florida with his new bride, Virginia, Luigi stopped by his old barbershop in Cleveland to say hello to his friends.
Giovanni said, "Hey, Luigi, how wasa da treepa?"
Luigi said, "Everytinga wasa perfecto except for the traina ride down."
"Whata you nean, Luigi?"
"Well, we boarda da train at Grana Central Station. My beautiful Virginia, she pack a biga basket a food. She brought vina, some nice cigars for me, and we were lookin a forward to da trip. Everything wasa Okey Dokey until we gotta hungry and open upa da luncha basket.
The conductore come a by, waga hisa finger at us anda say, 'no eat in disa car. Musta use a dining car."
"So me and my beautiful Virginia, we go to dining car, eat a biga luncha and start to open a bottle of nice a vino!
Conductore walka by again, waga hisa finger and say, 'No drinka in disa car. Musta use a club a car."
"So, we go to club car, While drinkina vino, I start to lighta my biga cigar, The conductore, he waga his finger again and say, 'No smokina disa car. Must go to smokina car."
"We go to smokina car and I smoke a my biga cigar. Then my beautiful Virginia and I, we go to sleeper car anda go to bed. We just about to go aboomada boomada and the conductore, he walka through da hall shouting at da top of hisa voice, 'Nofolka, Virginia! Nofolka, Virginia!"
"Next time, I'ma gonna take a da bus!"
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Karen - I have a suggestion. We swap doggies. Your little one looks lovely. Actually when we breed our Bichon's my Sophie was a tiny little thing and we also made steps for her to get onto the bed. The things you do for dogs. My Chloe's expression said she was 'sorry' tonight. Until tomorrow !!!
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